Social and Behavioral Sciences Commons^™

Understanding Patient And Family Experience In Pediatric Hemato-Oncology: A Cross-Sectional Study From Morocco, Boujemaa El Marnissi, Sanae Bouramdane, Moussa Benboubker, Fouad Abbas, Salma Chahid, Jalal Dahmani, Khalid Moubtahij, Kenza Elmkadem, Sarra Benmiloud

Patient Experience Journal

Background. Patient- and family-reported experience is a vital indicator of healthcare quality, particularly in pediatric hematology-oncology. This study assessed patient- and family-reported experience and identified its sociodemographic, clinical, and organizational determinants in a newly established pediatric hemato-oncology department of a tertiary university hospital in Morocco. Methods. A cross-sectional survey was conducted between November 2023 and January 2024. Experience was assessed using a validated multidimensional questionnaire covering reception and access, information and communication, human and relational aspects of care, therapeutic management and pain control, accommodation conditions, and logistical and administrative processes. Sociodemographic and clinical variables were collected; bivariate analyses and multivariate …

Challenges Of Family Members Of Admitted Patients In Relationship With Medical Staff In Kurdistan Region: Cross-Sectional Study, Khalid Khudhur Faris, Zuhair Rushdi Mustafa, Hadi Haji Hussain, Ibrahim Baker Khudida, Deldar Morad Abdulah

Patient Experience Journal

Families often play a significant role in advocating for and supporting their patients during illness or hospitalization. Understanding the challenges between family members of patients and medical staff is crucial for improving communication, patient care, and the overall healthcare experience. This study aimed to investigate and understand the challenges and difficulties experienced by family members when dealing with the medical staff. This cross-sectional study conducted at a local teaching hospital in Kurdistan Region. A total of 400 family members of admitted patients from various medical departments were included in this study. Companions reported generally positive interactions with healthcare providers (HCPs). …

Parallel Realities: A Narrative Review Of Differences Between Patients And Their Care Providers, Umair Majid, Hazeema Haq, Ziyad Yahmad

Patient Experience Journal

Differences in how patients and healthcare providers perceive, experience, and deliver care can undermine patient-centered care and health outcomes. Yet, few syntheses have examined these divergences as a primary focus. This narrative review aimed to identify and synthesize evidence on the differences between patients and their providers in terms of priorities, expectations, and experiences of care, and to explore how these differences can potentially influence relationships and outcomes. A database search was conducted to identify English-language studies published from January 2019 to January 2025 that included both patients and providers in the same sample and compared their perspectives. Data from …

Exploring The Lived Experiences Of Familial Caregivers To Individuals With Prader-Willi Syndrome: The Impact Of Caregiver Burden, Louisa Williams, Eden Morley

Patient Experience Journal

Caregiver burden (CB) is an under-researched topic among familial caregivers (parents, siblings, aunts, uncles and grandparents) supporting someone with Prader-Willi Syndrome (PWS). CB is defined as the physical and mental toll resulting from caring for someone with additional needs, which has not yet been explored in PWS familial caregivers. PWS causes hyperphagia (insatiable hunger) and violent behaviours that can be hard to manage. Research demonstrates primary caregivers have a decreased quality of life and increased mental health (MH) problems, with quantitative literature highlighting the risk of CB. This study aimed to qualitatively highlight the experiences of CB in familial caregivers …

Information Continuity And Experiences Of Mental Healthcare: A Conceptual Framework, Timothy Kariotis, Megan Prictor, Kathleen Gray, Shanton Chang

Patient Experience Journal

Objectives: Information continuity is a key element of continuity of care and service users' experience of care. However, models of continuity of care have not considered how to operationalise information continuity and balance it with service users' privacy concerns. The aim of this paper was to develop a conceptual framework of the information practices that contribute to service users' experience of information continuity in the mental healthcare system. Methods: We undertook a narrative review to identify studies on service users' experiences of mental healthcare and analysed them using a thematic synthesis method to identify the information practices of care professionals …

Health Information For Patients And Families: Sources, Data Types, And Tools For Evaluating Accessibility, Preeti Pandey, Richard I. Zraick, Vinaya Manchaiah

Patient Experience Journal

This review summarizes key sources and formats of health information for patients and families, and outlines tools used to evaluate their accessibility. Health information appears across online and offline platforms in formats such as text, images, and video. Evaluation tools assess dimensions like readability, accuracy, quality, suitability, and actionability, though they vary in validity and scope. This paper offers guidance for healthcare professionals and researchers aiming to improve the accessibility and effectiveness of patient-facing health materials.

When Decision-Making Styles Do Not Predict Communication Preferences: Rethinking Personalization In Healthcare Experience, Victoria Sze Min Ekstrom

Patient Experience Journal

Background: Healthcare systems increasingly attempt to personalize risk communication by matching messages to patients' decision-making styles. This approach is resource intensive, yet evidence that it improves patient experience or decision quality remains limited. Methods: We conducted a cross-cultural experimental study with adults from the UK (n=330, recruited via Prolific) and Singapore (n=220, recruited via professional networks). Participants viewed three healthcare scenarios with risks of 1%, 10%, and 20%, presented in either positive (``99% no complications'') or negative (``1% complications'') frames displayed side-by-side in randomized order. Decision-making styles were assessed using the Control Preferences Scale, categorizing participants as information-seeking, shared decision-making, …

Reflections On Factors That Led To A Dehydration Hospitalization: Lived Experience To Inform Systems Change For Nursing Home Residents, Lucas Kandia, Jodi Dunmeyer Stookey

Patient Experience Journal

This personal narrative describes a family's journey through a preventable dehydration crisis during the COVID-19 pandemic. When a 93-year-old nursing home resident tested positive for COVID-19, her family prepared for the worst. Instead, she nearly died from severe dehydration, not the virus, and was hospitalized for hypovolemic shock, only to be discharged four and a half days later, still COVID-positive, having recovered with rehydration alone. Medical documentation reveals deterioration from inadequate oral intake (300 mL per day) to pre-shock hypotension to frank shock (72/56 mmHg at 17:20), while oxygen saturation remained normal throughout. The admission diagnosis hierarchy (Acute Kidney Injury, …

15 October 2021: Living With The Consequences Of A Cardiac Event — A Patient Perspective, Bruce H. Knox

Patient Experience Journal

This first-person narrative explores the long-term consequences of a rare but catastrophic complication during a premature ventricular contraction (PVC) ablation, resulting in left ventricular rupture, acute cardiac tamponade, and emergency open-heart surgery. While the surgical intervention was life-saving, the subsequent years were marked by profound changes in autonomic function, multisystem instability, and a sustained alteration in quality of life. The account reflects on living with cardiac autonomic vulnerability before the event, the immediate crisis, and the prolonged recovery that followed—characterized not by restoration, but by renegotiation of capacity, identity, and participation. Particular emphasis is placed on the experience of navigating …

The Phantom Fifth Chair Of Patient Experience, Kathy Saldana

Patient Experience Journal

Over the past three years, the author has openly shared her journey as a certified patient experience professional facing triple negative breast cancer. The firsthand gravity of treatment became instantly apparent to her in the chemo chair. Resisting the temptation to crumble under the fear of it, she chose to view treatment as an unwanted yet precious opportunity to study her profession of patient experience from a deeply personal space. Determined not to waste the difficult long-term experience of treatment, she was compelled to write and speak about her convictions regarding the necessity of honoring patients by soliciting, documenting, believing, …

More Than A Buzzword: Why Trauma-Informed Care Needs Widespread Practice, Christine Lee Frost

Patient Experience Journal

This narrative illustrates the personal story about the difficulty of obtaining a diagnosis for endometriosis. As someone who endured a chaotic childhood, I struggled with complex trauma and medical issues for decades without understanding the connection between the two. In this narrative, I make a case for practicing trauma-informed care across the healthcare industry, and detail the statistics that show why it's so vital. While online communities can make ``trauma-informed care'' feel like just another trendy term, it's a concept with an abundance of data to back up the necessity for it. In addition to people living with mental illness, …

Consumer, Customer, Or Patient?... It's All About Context, Sven Gierlinger

Patient Experience Journal

Today's healthcare industry is at a pivotal juncture, navigating the complex intersection of traditional care delivery with rapidly evolving consumer expectations and unprecedented transparency. This personal narrative is intended to provide a nuanced, experience-driven framework for understanding the distinct yet interconnected roles of ``consumer,'' ``customer,'' and ``patient'' - vital for healthcare organizations striving to build trust and loyalty.

Human-Centered Quality: Reframing Quality Around What Matters To People, Vita Steina, Jason Wolf

Patient Experience Journal

Each encounter one has in healthcare is an experience. It is everything someone lives through. It is what they remember and all they perceive. It is their lasting story. When we see the experience one has in healthcare from that lens, then all the components that shape that story are parts of their experience. From this perspective, for as much as the clinical framing of experience as metrics on a survey has seen experience identified as a dimension of quality, we would suggest the opposite. Quality is but one part of the experience someone has in healthcare today. It is …

Affordability: A Critical Issue At The Heart Of Human Experience, Jason A. Wolf

Patient Experience Journal

Affordability is a human experience issue. One that reaches well beyond the edges of healthcare. In our current global economy, rising costs dominate the headlines. They weigh heavily on the pocketbooks of families around the world. Affordability may be no more prevalent than in healthcare. It too is the place where it may have the most significant and lasting impact.If we are willing to think of affordability as an experience issue, we can begin to address the solution in new ways. But it will require untangling years of wiring of how healthcare has operated to rewire what it can be. …

The Heroic Behaviors Of Havka Folman-Raban, Courier In The Warsaw Ghetto, Beth S. Dotan

Heroism Science

This article analyzes the elements of heroic behavior of Havka Folman-Raban during her experiences as a courier in the underground of the Warsaw Ghetto during World War II. Drawing on numerous missions she completed prior to being arrested in Kraków, Poland, and others made during her internment at Auschwitz-Birkenau and the Auschwitz subcamp Harmęże, this assessment considers!how Havka Folman-Raban’s wartime activities and convictions that continued throughout the rest of her life align with four commonalities of heroism identified in heroic behavioral sciences. We consider how Havka’s participation in the Socialist Zionist Pioneering Movement influenced her actions. To understand the breadth …

The Erosion Of Journalists’ Freedoms In A Time Of Populism And Illiberalism, Gemma Horton Dr.

International Journal on Responsibility

Recently, Europe has seen the various freedoms that journalists enjoy becoming undermined by governmental efforts to regulate free speech and journalistic freedom. The role of journalists to report on all matters of public interest, a responsibility emphasised by the European Court of Human Rights (ECtHR), is under attack during a time of escalating populist sentiment. This article will examine the importance of journalistic responsibility in relation to free speech in challenging environments that journalists are facing across Europe. Firstly, it will examine the typical role that journalists have played in society and the responsibilities that they hold. Secondly, it will …

Lindenwood Digest, November 4, 2026, Lindenwood University

Lindenwood Digest

• Document Type & Date: "20261104 Lindenwood Digest.pdf" is an internal institutional employee newsletter published on November 4, 2026.

• Core Entities & Provenance: Aggregated by Lindenwood University Communications and Public Relations, featuring operational directives from the President's Office, Information Technology, Learning Academy, Student Academic and Support Services, and Athletics.

• Key Themes & Context: Institutional updates outline a Fall II 8-week midterm grade reporting deadline of November 16, 2026, at 11:59 p.m., explicitly defining special attendance failure codes; a transition of campus network closet battery backups to lithium-ion units scheduled for completion by June 2027; and a mandatory faculty self-evaluation period in …

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Supplementary Materials For Post-Intervention Maintenance In Ptsd, Anxiety, And Depression Among Migrant Youth: Multilevel Meta-Analyses, Maryam Rafieifar, Sajede Tavakoli, Jaclyn Kirsch, Blessing Ramsey-Soroghaye, Hanna Haran, Sadaf Sedaghatshoar, Herman Nuake Kofi Agboh, Diane B. Mitschke

Social Work Datasets

This document provides the online supplementary materials for a systematic review and multilevel meta-analysis of psychosocial interventions for PTSD, anxiety, and depression among immigrant and refugee youth (59 studies). It reports the detailed review methods that could not be included in the main article: eligibility criteria, information sources and full database search strategies, study selection with reasons for full-text exclusion, data extraction and moderator coding, effect-size formulas, multilevel random-effects model specifications, moderator and small-study-effect procedures, and the risk-of-bias and GRADE approaches. It also presents the study-level results supporting the article: the contribution of each study to each synthesis, RoB 2 …

Stress In Educational Context, Sarah Matthews

Spark! Innovations in Early Childhood Education: A Research-to-Practice Journal for Educators

This paper examines stress within educational contexts as a complex, relational, and systemic experience rather than solely a negative condition. Drawing on research related to stress perception, coping, leadership, trauma, and resource access, the paper highlights how stress affects educators, students, and families across early childhood and special education settings. Key themes include the role of perception in shaping stress responses, the impact of resource availability and socioeconomic factors, the transfer of stress within classroom environments, and the influence of leadership and organizational stability on teacher and student well-being. Using an ecological framework, the paper emphasizes that stress operates across …

Notice, Respond, Observe, Adjust: Everyday Co-Regulation With Infants And Toddlers, Tony Kung

Spark! Innovations in Early Childhood Education: A Research-to-Practice Journal for Educators

Co-regulation is central to infants’ and toddlers’ developing emotional regulation, yet educators often need to make responsive decisions in real time during everyday classroom routines. This research-to-practice article translates developmental and early childhood research into a practical four-part reflection guide: Notice, Respond, Observe, and Adjust. The article examines how educators can attend to children’s gestures, movements, vocalizations, and participation when supporting arrival and separation, caregiving routines, play, and peer encounters. It emphasizes responsive support that adapts to children’s individual communication, developmental needs, family knowledge, and classroom context. Drawing on recent empirical research and published educator observations, the article offers practical …

B3 Research Guides: A Utrgv Library/Obi Collaboration, Charles Roush, Carlton Nelson, Andrés R. Amado, Andrew Portner

Bilingualism in Higher Ed Summit

No abstract provided.

Exploring Media Students’ Engagement With Digital Libraries And Cognitive Outcomes, Hussein Mohammed, Abd Al-Salam Al-Samarrai, Tayba Tawfiq

The study examines the use of digital libraries by media students in Iraq for academic and reference purposes. It focuses on digital libraries available through the applications Facebook and Telegram that specialize in communication and media sciences. The research sample consists of randomly selected students from various media departments, including Radio and Television, Public Relations, and Journalism.

The study adopts the descriptive method, which is one of the most used approaches in media research, to measure the extent to which media students use digital libraries on Facebook and, Telegram and to identify the cognitive gratifications achieved through this use. The …

The Factors Affecting The Adherence Of Palestinian Journalists Working In Electronic Journalism To Professional Ethics "A Field Study", Ahmad Al Sallaq, Thaer Al-Sharif

The current study aims to identify the factors influencing the adherence of Palestinian journalists working in electronic journalism to professional ethics, and the most significant challenges that hinder their adherence.

The study is descriptive, employing a survey methodology. It utilizes a questionnaire administered to a simple random sample of (120) Palestinian journalists.

The study yielded several key findings, most notably: that the most significant factor influencing the adherence of Palestinian journalists working in electronic journalism to professional ethics is "societal customs and traditions," with a relative weight of (78.3). Furthermore, the study found that "the Israeli occupation" ranked first among …

Audience Discernment Of Ai-Generated Media Content: A Systematic Review, Safaa Al-Abrawi

Despite the growing prevalence of AI-generated content in the media industry, media research has largely focused on specific aspects, such as measuring communicators' attitudes and perceptions toward the use of this emerging technology. Research examining audiences and their ability to discern AI-generated content remains limited. Accordingly, this study aims to examine audiences' ability to discern AI-generated media content. The study employs a systematic review methodology, reviewing 19 studies based on clearly defined inclusion and exclusion criteria within the Participants, Concept, and Context (PCC) framework.

The study identified several key findings. Most notably, audiences can distinguish AI-generated content through a range …

Journalists' Trends Towards Employing Artificial Intelligence Tools In Media Content Production, Kifaya Al-Mousa

This study aimed to identify Jordanian journalists’ attitudes toward employing artificial intelligence tools in media content production, examine the extent to which these tools are used, identify the main factors limiting their adoption, and explore the perceived benefits and concerns associated with their use in journalistic work. The study adopted a descriptive-analytical approach and employed a questionnaire administered to a random sample of 306 Jordanian journalists who are members of the Jordan Press Association. The findings showed that 57.9% of the respondents did not use artificial intelligence tools in producing media content, compared with 41.8% who reported using them. The …

Awareness Of Media Students In Jordan Regarding The Ethical Dimensions Of Employing Artificial Intelligence Tools In University Education, Saddam Al-Mashaqbeh, Rasha Salameh, Hani Ahmad Fayez Al-Badri Dr.

This study examined the level of awareness among media students in Jordan regarding the ethical dimensions of employing artificial intelligence tools in university education. The study explored students’ patterns of AI usage and measured their cognitive, emotional, and behavioral awareness associated with the ethical and academic use of artificial intelligence. The growing use of artificial intelligence tools in university education has raised ethical and academic concerns related to academic integrity, proper documentation, and responsible use of AI-generated content. It also aimed to identify the extent to which students adhere to academic integrity and proper documentation practices when using AI tools …

The Role Of Social Media Influencers In Shaping Food Awareness And Dietary Behavior Among The Emirati Audience: A Field Study On Citizens Of Al Ain City, Laila Alkaabi, Huda Alremeithi, Reem Alnuaimi, Shamsa Almheiri, Amer Khaled Ahmad, Maram Manajrah

This study aims to investigate the role of social media influencers in shaping food awareness and dietary behavior among the Emirati audience, drawing on media dependence theory and employing a public survey methodology through the administration of a questionnaire to a purposive sample of Emirati citizens in Al Ain City who follow influencers to obtain information on healthy nutrition. The findings revealed that more than (79.3%) of the sample members rely on social media influencers to obtain information on healthy nutrition at a moderate-to-high degree, with "the ease of rapid access to food-related information" emerging as the leading reason for …

Beyond The Screen: Dimensions Of Ecophilia In Snow White And The Seven Dwarfs (1937) And Children’S Awareness Of Them, Reham Refaat Mohammad Abdelaal Prof

This study aimed to explore the dimensions of Ecophilia in the film Snow White and the Seven Dwarfs and examine the extent to which children perceive these dimensions of love for nature and the environment. The study focused specifically on Biophilia (love of living beings) and Topophilia (love of a particular place or environment) from the perspective of ecocriticism, employing an interdisciplinary approach that integrates ecology, environmental animation, cinema, media studies, and environmental education.

The research was conducted on a sample of 100 boys and girls aged between 6 and 12 years, as children within this age group possess the …

The Role Of Public Relations At Jawwal Palestine Telecommunications Company In Customer Relationship Management And Its Impact On Competitive Advantage From The Customers’ Perspective, Ibrahim Akka, Reham Snobaer

This study aimed to examine the role of public relations in customer relationship management (CRM) and its impact on achieving competitive advantage at Jawwal Palestinian Telecommunications Company from the perspective of its customers in the West Bank. The study adopted a descriptive-analytical approach and utilized a questionnaire as the main data collection tool, distributed to a convenience sample of (400) Jawwal customers.

The study addressed five CRM dimensions practiced by public relations: information sharing, customer engagement, long-term partnership, customer participation in problem-solving, and the use of technology. The findings revealed a statistically significant positive impact of public relations’ role in …

The Mediation Role Of Teacher Engagement In The Relationship Between Teacher Self-Efficacy And The Implementation Of Universal Design For Learning (Udl) In Inclusive Primary School, Dea Karlina, Farida Kurniawati

Psychological Research on Urban Society

The number of students with diverse characteristics in primary education is increasing, Its challenging teachers to design learning experiences that accommodate the diverse needs of students. Universal Design for Learning (UDL) is a flexible learning framework accessible to all students, aiming to reduce learning barriers by providing multiple means of engagement, representation, and action/expression. This study adopts the Job Demand-Resource (JDR) framework, specifically the motivational process, assuming that teacher self-efficacy as the personal resource influences UDL practices through the mediation of teacher engagement. This correlational quantitative study involved 318 inclusive primary school teachers across Indonesia who completed a self-report questionnaire. …