Social and Behavioral Sciences Commons^™

“When I’M Not Heard, I Feel Like I Don’T Matter”: Advancing Equity In Disability Policy Through Critical Participatory Action Research With People With Intellectual Disability, Cris Marchionne

Student Theses

People with intellectual disability deserve a system that offers flexible, timely, and person-centered support — one that is innovative, sustainable, and holistic in enabling them to live fulfilling lives. This qualitative study, grounded in Critical Participatory Action Research (CPAR), examines how people with intellectual disability experience participation in decision-making within New York State's disability service system. By centering lived experience, the study identifies factors that facilitate or hinder participation in decision-making and examines structural, social, and policy-related barriers that limit agency. Through six focus groups and a Photovoice project with self-advocates receiving OPWDD services, participants described systemic barriers that limited …

Breaking The Cycle: From Victimization To Offending Through The Lens Of Human Services, Colette R. Penalosa

Master of Arts in Human Services

The victim-offender overlap challenges the common view that victims and offenders are separately labeled by recognizing that both groups have experienced significant childhood trauma, physical, emotional, and psychological abuse, neglect, and other adverse childhood experiences (ACEs). Current research implies these experiences can increase the risk of offending as they all influence cognitive and behavioral development while leaving criminal behavior undetermined. The purpose of this capstone is to analyze the relationship between childhood victimization and offending from a human service perspective; analyzing the pathways a victim takes on the road to offending. Research conducted will focus on exploring the victim-offender overlap, …

Looking Beneath The Surface: Understanding Fetal Alcohol Spectrum Disorder Through The Caregiver’S Lens—Support, Advocacy, And Self-Care, Melissa Fredin

Master of Arts in Human Services

Fetal Alcohol Spectrum Disorder (FASD) is a lifelong neurodevelopmental disability resulting from prenatal alcohol exposure that can affect cognitive functioning, adaptive skills, communication, emotional regulation, and daily living abilities. Individuals with FASD and their caregivers often face complex challenges while navigating behavioral, educational, healthcare, human service, and criminal justice systems. Although awareness of FASD continues to increase, gaps remain in caregiver education, professional understanding, and access to coordinated, trauma-informed supports. The literature indicates that caregiver education is central to improving outcomes for individuals with FASD and is associated with stronger advocacy, more effective support strategies, greater caregiver resilience, and improved …

Students With Borderline Intellectual Functioning: Dropping The Label And Reducing The ‘Line’, Samantha M. Sitzman

Educational Specialist, 2020-current

Students with Borderline Intellectual Functioning (BIF) often experience significant academic and social-emotional difficulties while remaining ineligible for many formal special education services, creating challenges in identifying and supporting this population within school settings. This convergent mixed methods study examined school psychologists’ perspectives regarding the challenges experienced by students with BIF, the interventions commonly used to support them, and the systemic barriers associated with service delivery. Twenty-two practicing school psychologists in Virginia completed a researcher-developed survey containing quantitative and qualitative items. Quantitative data were analyzed using descriptive statistics, and qualitative responses were analyzed using thematic analysis.

Findings indicated that school psychologists …

A Critical-Constructivist Grounded Theory Exploration Of The Mental Health Experiences Of Individuals With Intellectual Disabilities In Post-Secondary Settings, Alyssa L. Decker

Dissertations, 2020-current

Individuals with intellectual disabilities (ID) now have access to higher education, often through inclusive post-secondary education programs (IPSE), to increase employability and quality of life. IPSE programs, historically, have provided academic and life skill support and not mental health support within programs’ curricula. A recent review of IPSE programs reveals that if mental health services are included, they are often accessed through university health services. Transitioning from high school to college induces high levels of stress, which can exacerbate underlying mental health conditions. Mental health care is defaulted to an already overburdened college counseling center without the knowledge and skills …

Comparing Error Correction Strategies In Discrete Trial Training For Children With Autism, Rachael Litchford

All Graduate Theses and Dissertations, Fall 2023 to Present

Children diagnosed with Autism Spectrum Disorder (ASD) often require structured, evidence-based teaching methods to promote skill acquisition. Discrete Trial Training (DTT) is one such approach widely used in Applied Behavior Analysis (ABA) to teach skills through repeated learning opportunities. However, limited research has compared the efficiency of specific error correction procedures within DTT. This study examined the comparative effectiveness of two error correction strategies, Active Student Response (ASR) and Model-Only, when acquiring tacting skills for children ages 2-10 with ASD. An alternating treatments design (ATD) was used to evaluate each strategy’s impact on skill acquisition, as measured by the percentage …

The Legacy, Importance, & Impact Of Lend: Evidence And Personal Stories, Emily Zalimeni, Emma Stone, Alexa Fortier, Leia Getchell, Nataliya Kloyzner, Asha Abdullahi, Elizabeth Barkoudah, Meghan Chapman, Meredith Close, Heather Engholm, Melissa Levin, Aanchal Sharma, Sarah Sparks, Patricia Rissmiller, Amy Szarkowski, Jason M. Fogler

Developmental Disabilities Network Journal

Leadership Education in Neurodevelopmental and related Disabilities (LEND) programs offer an interdisciplinary/interprofessional training opportunity for medical and allied health professionals, and individuals impacted by disability, including family members and self-advocates. Toward the aim of advocating for the enduring need of LEND and similar training programs, this article centers the voices of a subset of our alumni who have advanced the rights and improved the lives of persons with intellectual and developmental disabilities. These stories are intended to illustrate the key lessons and principles of LEND training, including attending to disability issues in education, growing skills within and between individuals working …

Differentiating And Accommodating Ocd And Anxiety In Mathematical Contexts, Madeline F. Gavares

Interdivisional Studies Summer Fellows

Students in mathematics classrooms may experience emotional and cognitive challenges that affect how they engage with coursework and assessments. While math anxiety has been widely documented, less attention has been given to how obsessive-compulsive disorder (OCD), particularly checking behaviors, may influence students’ experiences in math settings. This study explores how students who report math anxiety and those who report OCD symptoms describe their engagement with math tasks and test-taking. Drawing on survey and interview data from students and teachers, this study examines how these experiences are articulated and perceived in academic math contexts, rather than evaluating ability or outcomes. By …

Access Intimacy In The Feminist Classroom: Co-Creating Course Policies, Expectations, And Access Measures As Feminist Disability Praxis, Krystal Cleary

Feminist Pedagogy

In this essay, I outline an activity to foster access intimacy (Mingus, 2011) in the feminist classroom through students’ co-creation of course policies, expectations, and additional access measures. This activity transforms the classroom into a praxis laboratory wherein students analyze the normative structures that shape their hyperlocal classroom context and practice building environments characterized by interdependent solidarity rather than atomized competition. As feminist disability praxis, this activity centers the knowledge of disabled, chronically ill, and neurodivergent scholars and students; in doing so, it customizes the classroom to a diversity of learners and builds adaptability for responding to unforeseen challenges into …

Our Children Are Sacred: Faith, Disability Justice, And Educational Hope, Charles E. Becknell Jr., Pricella Morris, Monique Matute-Chavarria, Deirdre A. Williams

The Journal of Faith, Education, and Community

This manuscript examines how Black families interpret dis/ability through faith, caregiving, and communal life using Sacred Narrative Inquiry (SNI), a collaborative approach that treats family stories as sources of sacred and cultural knowledge. Grounded in disability theology and informed by Black liberation theology and Womanist epistemology, the study explores how families understand dis/ability as sacred and embodied, shaped by struggle, endurance, and hope. Through shared storytelling and collective interpretation, the analysis identifies recurring patterns of early moral formation, embodied knowledge that precedes institutional recognition, faith as a sustaining practice under constraint, and moments of recognition that affirm dignity and interrupt …

Collaboration Is Key: Improving And Increasing Inclusive Programming Through Partnership, Brandy D James, Elizabeth Sparks, Fiona S Davey, Burris Duncan, Nadine Chau

Journal of Extension

Collaborative partnerships between Cooperative Extension offices and the University Centers for Excellence in Developmental Disabilities are a key opportunity to assess and improve accessible, inclusive programming for the communities they serve. This article outlines such a partnership between local Extension, the local UCEDD, and the local Network for Down Syndrome. It reviews their collaborative process and the resulting pilot program—-an inclusive cooking class. Evaluations of the program and collaborative process demonstrate that the partners' collaboration enabled organizational capacity building and improved service provision for persons with Down Syndrome.

“Pride Runs Through Our Veins”: A Qualitative Investigation Of Black Parents’ Ethnic-Racial Socialization Practices Among Black Youth With Disabilities, Nicole A. Telfer, Danielle J. Allen, Noreen Yazejian, Iheoma U. Iruka

Developmental Disabilities Network Journal

While ethnic-racial socialization (ERS) practices are crucial in Black/African American families, little is known about ERS practices in Black families of Black children with disabilities. In the current study, we investigated ERS practices among Black/African American parents’ who are raising children with disabilities and how this may influence children’s outcomes. A total of N = 8 Black/African American parents were invited for semi-structured interviews to explore more deeply their ERS practices among their children with disabilities. Several themes emerged from the data, which highlights ERS practices from a DisCrit lens, as well as the overall experiences of parents and their …

The Virtue Of Hope In Sports Through Spe Salvi And Its Role In Faith, Resilience, And Character Formation In Student-Athletes, Hansson G. Labisig, Arvin D. Eballo

Movement and Being: The Journal of the Christian Society for Kinesiology, Leisure and Sports Studies

Pope Benedict XVI, in Spe Salvi, presents hope as a transformative and redemptive virtue that enables believers to live and suffer differently, rooted in faith in God. He writes, “The one who has hope lives differently.” This study develops a theological-pastoral framework for integrating the virtue of hope into the faith formation of student-athletes within Catholic educational institutions, positioning sport as a genuine locus theologicus for Religious Education and evangelization. Employing the See–Judge–Act methodology, it draws from Spe Salvi, Aquinas’s Summa Theologiae, and the Vatican document Giving the Best of Yourself, in dialogue with C. R. Snyder’s psychological theory …

The Effects Of Functional Coaching On Increasing Functional Play Behaviors In Adults, Abby L. Pattengale

Theses and Dissertations

Play is a critical developmental context for children with autism spectrum disorder (ASD), supporting cognitive, social, communication, and adaptive skill development. However, many adults, specifically registered behavior technicians (RBTs), demonstrate limited engagement in developmentally appropriate play behaviors, which can restrict the quality of play-based interventions, which are essential for effective treatment. However, little research has examined interventions designed to improve adult play behaviors. The purpose of this study was to evaluate the effects of functional coaching on increasing adult functional play behaviors during therapy sessions with children diagnosed with ASD. Two RBTs participated in the study, and two children receiving …

The Voices In Our Heads: Interrogating And Unsettling Internalized Ableism In/For Music Education, Juliet Hess

Visions of Research in Music Education

In this article, I grapple with the internalized ableism I have been navigating upon becoming disabled in 2023. The task of this article is to consider the external forces that shape our ideas about disability with particular attention to socialization processes and larger oppressive systems such as neoliberalism. I specifically consider the messages that different representations, ideologies, and structures communicate to the population at large about disability in order to address why these messages are so often internalized in detrimental ways. Exclusion, I argue, is the societal default for disability and I historicize the different movements that have contributed to …

Proceedings Of The 25th International Symposium On Adapted Physical Activity: Easy Read Edition Of The Symposium Proceedings, Catherine Carty, Niamh Cronin, Ian Coleman Horgan, Stuart Dodd, Jack Dowling, Lydia Murphy, Alex Nicholls, Yann O'Carroll, Robbie O'Neill, Meabh Rohan, Brandon Rumian, Diarmuid O'Connor, Eamonn Carroll, Gerard O'Carroll, Jasmin Richter, Mary Shanahan, Aaron Doherty, Sasha Fitzgerald, Katie Lyons, Katie Mahoney, Afeefah Memon, Conor Moriarty, Adrian O'Sullivan, Dylan Shine, Michelle Enright, Phil Mcsweeney, Sophie Casey

Publications

This book is the Easy Read Proceedings of the 25th International Symposium of Adapted Physical Activity (ISAPA 2025), hosted by Munster Technological University under the Patronage of UNESCO. A small number of printed books are available in MTU libraries, and there is a digital version available online on the South West Open Research Deposit.

Advocating For A Care-Based Ethic: Stories Of Pregnancy And Birth From Caregivers Of Children With Down Syndrome, Lydia Ocasio-Stoutenburg, Nayma Sultana Mim

Developmental Disabilities Network Journal

Down syndrome (DS) impacts about 1 in every 640 childbirths in the United States. While quality of life has improved for people with DS, systemic inequities and deficit-based perceptions have persisted throughout history, with material impacts on people with DS and their caregivers. Researchers have documented how caregivers of children with DS have had negative experiences with healthcare providers and genetic counselors, whose biased views about DS translate into subtle and overt pressures. Few studies explicitly focus on the experiences of Caregivers of Color, multilingual families, as well as families with varying economic experiences who have children with DS. This …

Ucedd Innovations Lead To Idd Networks’ Driving Change: Envision, Empower, Employ, Suzzanne Freeze, Jean Winsor, Brittany M. Powers, Amy Huppi

Developmental Disabilities Network Journal

State systems responsible for administering employment services and supports to people with intellectual and developmental disabilities (IDD) must acclimate to changing demands, address new regulations, and continue to meet needs in an era of high workforce turnover and uncertain funding. While improvements have been made across the U.S., there are still far too many individuals seeking meaningful employment and contributory roles in the community who are not supported to achieve those goals. A key success factor is providing publicly funded state systems with the information needed to strategically pivot toward priorities and ensure smooth transitions of organizational change. Our country’s …

Independent Living Skills For The Aging Population Of Adults With Disabilities, Sara K. Fetter Otd, Otr, Jennifer L. Martin Otd, Otr, Cht, Clt, Michele L. Mccarroll Phd, Faacvpr, Acsm-Ccep, Ccrp, Lssbb

Developmental Disabilities Network Journal

Adults with intellectual disability (ID) are living longer and increasingly outlive family caregivers. Strengthening independent living and vocational skills has therefore become a critical public-health priority. Occupational therapy (OT) can address this need through person-centered, community-based programming. This paper describes the co-design, delivery, and preliminary outcomes of a short occupation-based curriculum intended to enhance autonomy and work readiness in aging adults with ID. In partnership with a Dallas, Texas nonprofit, the authors conducted a needs assessment and created an 8-session course rooted in the Independent Living Model and the Occupational Competence Model. The curriculum addressed four domains (physical health, financial …

From Crip Time To Care Time: How Library Administrators Can Support Professional Development Of Disabled Employees, Leah T. Dudak, Rhys Dreeszen Bowman Dr.

School of Information Studies - Post-doc and Student Scholarship

Building on our 2025 In the Library with the Lead Pipe article "Cripping Conferences", this piece moves from naming the problem to offering solutions to library administrators. Disabled library workers face significant barriers to professional development, including the financial cost of attendance, the physical and mental toll of navigating inaccessible spaces, and the conflict between crip time and the neoliberal clock time that governs academic and library culture. While accommodations are needed, they are not enough; we need to interrogate the systems that exclude disabled employees. Written by two disabled LIS scholars, this piece offers library administrators practical guidance, from …

Disproportionality And Possibilities: State-Level Policy Recommendations For Special Education Oversight In A Shifting Federal Landscape, Amanda B. Roberts

Electronic Theses and Dissertations

This study employed a convergent parallel mixed-methods design to explore how U.S. states identify and respond to disproportionality in special education within a shifting federal policy landscape. As uncertainty surrounds the future role of the U.S. Department of Education, questions have emerged about states’ capacity to safeguard educational equity. Without federal oversight, states would assume responsibility for maintaining protections for students with special needs, making it critical to strengthen safeguards for marginalized and underresourced populations.

This study analyzed the current special education governance structures nationwide to inform equity-oriented policy and practice recommendations. Quantitative data were collected from Individuals with Disabilities …

"I Belong Here": The Ucla Leadership Academy For Emerging Disability Rights Leaders, Blake E. Warner, Jasper A. Estabillo, Elisabeth Cincione, Julianna Martinez, Yasamin Bolourian, Kashia A. Rosenau, Elizabeth A. Laugeson

Developmental Disabilities Network Journal

The UCLA Leadership Academy for Emerging Disability Rights Leaders was developed to address the gap between advocacy training and systems-level leadership opportunities for disabled people. Rooted in the principles of co-production, accessibility, and relevance, the Leadership Academy equips participants with advocacy, storytelling, and testimony skills through a structured, interactive curriculum supported by coaches and program graduates with lived experience. This paper presents findings from two phases of evaluation: (1) a pilot study with the first cohort, examining the program's feasibility and acceptability through retention, attendance, and participant satisfaction data; and (2) interviews with program graduates who returned in a mentorship …

Engaging Immigrant Families Of Children With Disabilities: Recommendations For Practitioners, Robai N. Werunga, John William Mckenna, Rocio Rosales

Developmental Disabilities Network Journal

Family involvement is essential for positive school outcomes. Yet research suggests that family engagement for students with disabilities may be marked by conflict. Furthermore, creating an environment that promotes active engagement for immigrant families may be challenging. In this paper, we synthesize existing research, legal guidance, and community-engaged insights to present four practice-oriented recommendations for educators and practitioners working with immigrant families of children with disabilities. Grounded in Hans and Love’s stages of immigrant family engagement, these recommendations aim to support meaningful and culturally responsive participation in special education processes.

Disability Rates Among South Asian Immigrants In The U.S. Vary By Country Of Origin, Sobia Mushtaq, Marc A. Garcia

Population Health Research Brief Series

South Asian immigrants are often grouped together in U.S. health data, masking significant differences in health outcomes across subgroups. This brief uses data from the American Community Survey (ACS) 5-Year Public Use Microdata Sample (N = 6,643,738; 2020–2024) to describe disability rates among foreign-born adults from India, Pakistan, and Bangladesh residing in the U.S. The authors find that while South Asian immigrants as a group have lower disability rates than U.S.-born adults, this average is driven largely by Indian immigrants, who make up about 79% of South Asians in the U.S. Among adults aged 65 and older, Bangladeshi immigrants have …

Sermon On The Spectrum, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.

"Everyone Leaves Me Behind”: How Harmful Tropes In Fiction Impact Autistic Women, Sara E. Allard

Ought: The Journal of Autistic Culture

Until now, females with ASD have been ignored by healthcare professionals, policymakers, and the general public. The unique presentation of autistic women and girls is now in the cultural spotlight within not just the advocacy and scientific community, but also the arts. Female autistic characters are getting increased representation across literature and television, yet their narratives are still often stuck in the past. Most authors and screenwriters have yet to understand the specific struggles that female autistics face compared to their male counterparts, relying on the outdated, reductive perceptions that have plagued them for decades.

This article outlines three harmful …

Living Through Misinformation: An Autoethnography Of Autism In Chinese Communities, Joy Lu

Ought: The Journal of Autistic Culture

This critical autoethnographic essay examines how misconception, misinformation, and disinformation shape understandings of autism within Chinese communities and produce tangible harm for autistic individuals and their families. Drawing on lived experience, advocacy work, digital observation, and cross-cultural analysis, it explores how language, medical practices, social media, and professional authority sustain persistent misrepresentation.

The essay argues that this misinformation is not merely the result of ignorance, but a socially reinforced and institutionally supported system of knowledge. By situating personal encounters within broader cultural and structural contexts, it highlights the interconnected roles of language, power, and exclusion in shaping autistic lives. It …

The Unexpected Gift: Using Hip-Hop And Autoethnographic Methods To Challenge The “Symbolic Death” Discourse Of A Child’S Autism Diagnosis, Adam Ellis

Ought: The Journal of Autistic Culture

This article explores the social construction of autism through an autoethnographic account of parenting an autistic child in Canada. Drawing on Elisabeth Kübler-Ross’s grief model, neurodiversity scholarship, and post-traumatic growth theory, the paper examines how parents may experience grief, uncertainty, and the collapse of imagined futures following an autism diagnosis, while also arguing that much of this distress is produced by ableist and deficit-oriented social systems rather than autism itself. Using arts-based research, including a rap song and music video, the article explores: (1) what it is like to receive an autism diagnosis as a parent; (2) the grieving process …

When Distress Is Misread: Autistic Credibility And The Politics Of Interpretation, Katrine Callander

Ought: The Journal of Autistic Culture

Misinformation about autism is often understood as a problem of inaccurate facts, stereotypes or public misunderstanding. This essay argues that misinformation also operates through dominant interpretive frameworks that shape how autistic experiences are recognised, understood and believed. Drawing on participatory narrative research with autistic women, the essay examines how institutions frequently reinterpret experiences of harm as personality dysfunction, emotional instability or individual deficit rather than recognising them as relational and socially produced. Autistic forms of communication and storytelling are often treated as signs of unreliability, shaping whose accounts are considered credible within clinical and institutional contexts. By reframing these patterns …

Misinformation Machine, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.