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Full-Text Articles in Social and Behavioral Sciences

Partners In Progress: Publishers And Librarians Support Open Access Publishing, Joseph Lerro, Rachel E. Scott Jan 2024

Partners In Progress: Publishers And Librarians Support Open Access Publishing, Joseph Lerro, Rachel E. Scott

Faculty and Staff Publications – Milner Library

There is a tendency to discuss open access (OA) publishing as though it is monolithic. Those of us engaged in the work of researching, preparing, and negotiating, however, know OA agreements are as unique as the community they serve. Open access agreements are created based on local needs, with the input of a variety of stakeholders, and require flexibility on the part of the publisher and institutional client. Open access agreements represent a partnership, and ideally one that furthers the goals of both parties. This discussion between Joseph Lerro, Open Research Business Development Manager with Taylor & Francis, and Rachel …


Editorial: Open Access: One Goal, Many Pathways, Rachel E. Scott, Michael Fernandez Jan 2024

Editorial: Open Access: One Goal, Many Pathways, Rachel E. Scott, Michael Fernandez

Faculty and Staff Publications – Milner Library

How better to celebrate the one-year anniversary of Library Resources & Technical Services (LRTS) becoming fully open access than an issue chock-full of insights, experiences, practices, and data on open access in library settings? The work published in this issue aligns with several of the obstacles we encountered in making LRTS open and available to all. Namely, despite two decades of growth, open access publishing remains fraught with misconceptions, unrealized benefits, and logistical challenges. In library settings, open access poses opportunity and uncertainty in equal measure and brings to light competing demands for resources. The complexities and expenses …


Reports On Conferences, Institutes, And Seminars: Electronic Resources And Libraries 2024 Conference, Grace Norris Jan 2024

Reports On Conferences, Institutes, And Seminars: Electronic Resources And Libraries 2024 Conference, Grace Norris

Faculty and Staff Publications – Milner Library

This column documents reflections from the session 2001 Changes, an Eresource Management Odyssey: Navigating Staffing Changes while Scaling Eresource Management Support and Competencies at the 2024 ER&L Annual Conference held March 3–6, 2024 in Austin, TX.


Corporate Governance Through Social Media, Christina M. Sautter Jan 2024

Corporate Governance Through Social Media, Christina M. Sautter

Faculty Journal Articles and Book Chapters

Retail investors and other stakeholders are vigorously and loudly taking positions regarding corporate governance issues on social media. They are gathering on social media to discuss which stocks to invest in and to debate and collectively act on corporate governance-related matters. Propelled by new technologies and social media, retail investor engagement has shifted away from traditional venues like corporate voting and shareholder proposals. Retail investors have opened tens of millions of new brokerage accounts since 2020. These new retail investors, primarily Millennials and GenZ’ers, are adept at using technology and naturally gather and obtain information on social media. A co-author …


Library Publishing Curriculum Introduction Module: Introduction Narrative, Cheryl E. Ball, Harrison Inefuku, Johanna Meetz, Joshua Neds-Fox, Reggie Raju, Célia Regina De Oliveira Rosa, Chelcie Rowell, Kate Shuttleworth, John Warren, Sarah Wipperman Jan 2024

Library Publishing Curriculum Introduction Module: Introduction Narrative, Cheryl E. Ball, Harrison Inefuku, Johanna Meetz, Joshua Neds-Fox, Reggie Raju, Célia Regina De Oliveira Rosa, Chelcie Rowell, Kate Shuttleworth, John Warren, Sarah Wipperman

Library Publishing Curriculum

In 2018, The Educopia Institute and the Library Publishing Coalition (LPC), in partnership with the Public Knowledge Project (PKP), NASIG, and BlueSky to BluePrint, released the first iteration of the “Library Publishing Curriculum,” a suite of synchronous and asynchronous professional development offerings for librarians. The four initial modules—Content, Impact, Policy, and Sustainability—were funded by the Institute for Museum and Library Sciences and address major competencies in library publishing. As part of the sustainability plan for these grant deliverables, the LPC created an editorial board that would steer future iterations of the curriculum. They took as their first task a step …


“Share The Fear”: Communication Concerns Of Parents With Cancer With Dependents And Coparents: A Qualitative Needs Assessment Study, Cinzia Caparso, Zoe Bowen, Sung Won Choi Jan 2024

“Share The Fear”: Communication Concerns Of Parents With Cancer With Dependents And Coparents: A Qualitative Needs Assessment Study, Cinzia Caparso, Zoe Bowen, Sung Won Choi

Nursing Faculty Research Publications

Background: The estimated 1.6 million adults in the United States with cancer who also have dependents face unique challenges given the profound impact of cancer on their families, such as increased psychological distress, decreased quality of life, and altered family functioning. Unfortunately, little is known about the mutual cancer-related communication concerns for the perspectives of the parents with cancer or the coparents. Coparents care for the patient and dependents until they reach adulthood (e.g., unmarried, divorced, stepparent, and/or same-sex partnerships).

Objective: To understand the mutual cancer-related communication concerns from the perspectives of parents with cancer and the coparents and intervention …


The Monadnock Volume 63, 2024, Clark University Geographical Society Jan 2024

The Monadnock Volume 63, 2024, Clark University Geographical Society

The Monadnock (Clark Geographical Society)

Volume 63 of The Monadnock. The Monadnock was the alumni magazine of the Clark University Geographical Society (1927-1985) (2014-present).


Investigating Negative Brand Perception And Toxicity In X (Formerly Twitter)., Nandin Batbold Jan 2024

Investigating Negative Brand Perception And Toxicity In X (Formerly Twitter)., Nandin Batbold

Business ETD Collections

The rapid growth of social media has transformed brand-consumer communication and image management. Among these platforms, X (formerly Twitter) stands out for facilitating real-time interactions and fostering public discourse. While social media provides a powerful channel for engagement, its open and unmoderated nature exposes brands to risks such as negativity, trolling, and toxicity. Recent developments, particularly Elon Musk's 2022 acquisition of X and subsequent rebranding efforts, have heightened these challenges. These organisational changes, including renaming Twitter to X and altering its logo, have sparked mixed reactions from users and brands. This study explores how such drastic transformations impact user activity, …


Aligning Eye Care Provider Beliefs With Behaviors: Exploring And Improving Ocular Surface Disease Decision-Making In A Cataract Surgery Clinic, Amy Hellem Jan 2024

Aligning Eye Care Provider Beliefs With Behaviors: Exploring And Improving Ocular Surface Disease Decision-Making In A Cataract Surgery Clinic, Amy Hellem

Communication (PhD) Dissertations

Millions of cataract surgeries are performed every year in the United States, yet both surgeon reports and patient reports indicate that practices are not utilizing the diagnostic tests and treatments that are advocated in the medical literature to identify and manage ocular surface disease prior to surgery. As a result, patients risk suffering several significant consequences with regard to their vision, comfort and safety. Personal observations from my 25 years of experience working with ophthalmologists and optometrists led to curiosity regarding the root cause of undertreatment of ocular surface disease. Specifically, I had the impression that eye care providers held …


The Sociological Eye 2024, Loyola Marymount University, Sociology Department Jan 2024

The Sociological Eye 2024, Loyola Marymount University, Sociology Department

The Sociological Eye Student Journal

Faculty Advisor: Dr. Stacy Burns

Editor: Katie Shepherd


List Of Mary Ann Bolton Undergraduate Research Award Winners, University Of Northern Iowa. Rod Library. Jan 2024

List Of Mary Ann Bolton Undergraduate Research Award Winners, University Of Northern Iowa. Rod Library.

Library Documents & Reports (entire collection)

No abstract provided.


Perspectives On Competency-Based Feedback For Training Non-Specialists To Deliver Psychological Interventions: Multi-Site Qualitative Study Of The Equip Competency-Based Approach, Abdelrhman Elnasseh, Varun S. Mehta, Gergana Manolova, Gloria A. Pedersen, Shannon Golden, Liyam Eloul, Frezgi Gebrekristos, Pamela Y. Collins, Teresia Mutavi, Anne W. Mbwayo, Muthoni Mathai, Tessa Concepcion, Rozane El Masri, Frederik Steen, Jerome T. Galea, Carmen Contreras, Josephine Akellot, Rosco Kasujja, Samuel Wasereka, Byamah Brian Mutamba, Wietse A. Tol, Mansurat Raji, Sacha Moufarrej, Alison Schafer, Brandon A. Kohrt Jan 2024

Perspectives On Competency-Based Feedback For Training Non-Specialists To Deliver Psychological Interventions: Multi-Site Qualitative Study Of The Equip Competency-Based Approach, Abdelrhman Elnasseh, Varun S. Mehta, Gergana Manolova, Gloria A. Pedersen, Shannon Golden, Liyam Eloul, Frezgi Gebrekristos, Pamela Y. Collins, Teresia Mutavi, Anne W. Mbwayo, Muthoni Mathai, Tessa Concepcion, Rozane El Masri, Frederik Steen, Jerome T. Galea, Carmen Contreras, Josephine Akellot, Rosco Kasujja, Samuel Wasereka, Byamah Brian Mutamba, Wietse A. Tol, Mansurat Raji, Sacha Moufarrej, Alison Schafer, Brandon A. Kohrt

Social Work Faculty Publications

Background: The use of feedback to address gaps and reinforce skills is a key component of successful competency-based mental health and psychosocial support intervention training approaches. Competency-based feedback during training and supervision for personnel delivering psychological interventions is vital for safe and effective care.

Aims: For non-specialists trained in low-resource settings, there is a lack of standardised feedback systems. This study explores perspectives on competency-based feedback, using structured role-plays that are featured on the Ensuring Quality in Psychosocial and Mental Health Care (EQUIP) platform developed by the World Health Organization and United Nations Children’s Fund.

Method: Qualitative data were collected …


Brief Virtual Intervention Associated With Increased Social Engagement And Decreased Negative Affect Among People Aging With Hiv, Andrea N. Polonijo, Annie L. Nguyen, Karah Y. Greene, Jasmine L. Lopez, Moka Yoo-Jeong, Erik L. Ruiz, Christopher Christensen, Jerome T. Galea, Brandon Browni Jan 2024

Brief Virtual Intervention Associated With Increased Social Engagement And Decreased Negative Affect Among People Aging With Hiv, Andrea N. Polonijo, Annie L. Nguyen, Karah Y. Greene, Jasmine L. Lopez, Moka Yoo-Jeong, Erik L. Ruiz, Christopher Christensen, Jerome T. Galea, Brandon Browni

Social Work Faculty Publications

Virtual Villages—online communities that deliver supports to promote aging in place—are proposed to mitigate isolation and support the health of aging populations. Using a community-engaged approach, we developed and pilot-tested a Virtual Village intervention tailored for people living with HIV (PLWH) aged 50+ . The intervention employed a Discord server featuring social interaction, regional and national resources, expert presentations, and mindful meditation exercises. In 2022, a sample of PLWH aged 50+ from three U.S. study sites participated in a four-week pilot. Pre- and post-intervention surveys assessed participants’ demographic characteristics; degree of loneliness, social connectedness, HIV-related stigma, and technology acceptance; mental …


Tuberculosis Treatment Loss To Follow-Up In Children Exposed At Home: A Prospective Cohort Study, Meredith B. Brooks, Brittney J. Van De Water, Leonid Lecca, Chuan-Chin Huang, Letizia Trevisi, Carmen Contreras, Jerome T. Galea, Roger Calderon, Rosa Yataco, Megan Murray, Mercedes C. Becerra Jan 2024

Tuberculosis Treatment Loss To Follow-Up In Children Exposed At Home: A Prospective Cohort Study, Meredith B. Brooks, Brittney J. Van De Water, Leonid Lecca, Chuan-Chin Huang, Letizia Trevisi, Carmen Contreras, Jerome T. Galea, Roger Calderon, Rosa Yataco, Megan Murray, Mercedes C. Becerra

Social Work Faculty Publications

Background: Loss to follow-up (LTFU) from tuberculosis (TB) treatment and care is a significant public health problem. It is important to understand what drives LTFU in children – a population whose treatment and management depend on an adult caregiver – to better provide support services to families affected by TB.

Methods: We conducted a prospective cohort study of household contacts in Lima, Peru (2009–12). Using multilevel logistic regression analysis, we explored individual-level characteristics of children and their adult household members with TB disease to identify risk factors for LTFU among children initiated on treatment for TB.

Results: A total of …


The Study Of Baby Boomers And Generation Z’S Attitudes Towards Generational Mental Health Dynamics, Regina M. Luttrell Ph.D., Hunter Harpin, Emma Grace Reville, Yunxiang Yu, Abagail Sweeney Jan 2024

The Study Of Baby Boomers And Generation Z’S Attitudes Towards Generational Mental Health Dynamics, Regina M. Luttrell Ph.D., Hunter Harpin, Emma Grace Reville, Yunxiang Yu, Abagail Sweeney

Real Chemistry Emerging Insights Lab

The purpose of this research is to compare and contrast how different historical events have impacted Generation Z members’ and the Baby Boomers’ attitudes towards mental health and how those attitudes have guided members of these generations to feel about medical experts and the technology that they use to deliver their services in the post-COVID era. Studying these topics allows our group to make recommendations as to how medical experts should go about interacting with members of the Generation Z and Baby Boomer generations respectively, based on how historical events have influenced their attitudes towards mental health topics, their perceived …


Examining Connectivity And Mental Health Amongst Generation Z And Millennials, Regina M. Luttrell Ph.D., Alexandra Hosilyk, Nyah Jones, Grace Kos-Dondlinger, Runchu Lang, Katerina Miller Jan 2024

Examining Connectivity And Mental Health Amongst Generation Z And Millennials, Regina M. Luttrell Ph.D., Alexandra Hosilyk, Nyah Jones, Grace Kos-Dondlinger, Runchu Lang, Katerina Miller

Real Chemistry Emerging Insights Lab

The Real Chemistry Emerging Insights Lab tasked our research team to develop findings based on two generational cohorts and mental health. Our team decided to research Millennials and Generation Z in relation to their mental health and connectivity habits. In addition to these general topics, we analyzed how remote work, the COVID-19 pandemic and U.S. political turmoil have played a role in the mental health status of these two generational cohorts.

The Millennial generational cohort is defined as individuals born from 1981 to 1996. The Generation Z generational cohort is defined as individuals born from 1997 to 2012. In order …


"The Only Disability In Life Is A Bad Attitude": A Quantitative Exploration Of The Impacts Of Inspiration Porn, Anna H. Burt, Megan Mccarty Jan 2024

"The Only Disability In Life Is A Bad Attitude": A Quantitative Exploration Of The Impacts Of Inspiration Porn, Anna H. Burt, Megan Mccarty

Modern Psychological Studies

Inspiration porn is a social media representation of visibly disabled individuals performing physical activities accompanied by short motivation captions meant to inspire viewers. Critics of inspiration porn hold that it misrepresents the reality of disability and negatively impacts disabled people. This study aimed to quantitatively explore the impacts of inspiration porn on various disability-related variables, as there is limited research on this topic. We hypothesized that exposure to inspiration porn would increase system justification and belief in a just world, decrease support for disability-related policies, and cause viewers to view disabled individuals as sources of inspiration. We also had several …


The Impact Of Parent-Child Interactions On Emotion Regulation In Adulthood, Bridget Burgoyne, Holly Grant-Marsney Jan 2024

The Impact Of Parent-Child Interactions On Emotion Regulation In Adulthood, Bridget Burgoyne, Holly Grant-Marsney

Modern Psychological Studies

Childhood is a time where emotional skills are formed. These skills often reflect the primary caregiver(s) modeling and interactions which may shape emotional intelligence. This research aimed to assess if specific parenting approaches have lasting effects on a person’s ability to emotionally regulate. The sample included 141 adults, who responded to questions reflecting the parenting approaches they observed, and their current state of emotional regulation. Results from our regression analysis showed when controlling for age, parental warmth in childhood predicted one’s later ability to use cognitive reappraisal skills. Results from our correlational analysis showed strong positive associations between overindulgence, cognitive …


Motivated Gifts: A Self-Determination Perspective, Sharise Love, Liudmila Titova Jan 2024

Motivated Gifts: A Self-Determination Perspective, Sharise Love, Liudmila Titova

Modern Psychological Studies

Gift-giving can strengthen relationships and facilitate favor requests. Previous researchers have found that 'motivated gifts' (gifts given with the intention of asking a favor) decrease recipients' satisfaction and willingness to help. The current study investigated the role of basic psychological need satisfaction (BPNS) in this effect. BPNS is said to facilitate the integration of autonomous motivation, which was hypothesized to mediate the relationship between motivated gifts and prosociality. In the current study, a sample of 426 undergraduate students was randomly given a hypothetical scenario in which they imagined receiving a motivated gift or not, while also being asked a favor. …


A Historical Analysis And Evaluative Review Of Performance Validity Tests, Lena J. Hull, Jodi B.A. Mckibben Jan 2024

A Historical Analysis And Evaluative Review Of Performance Validity Tests, Lena J. Hull, Jodi B.A. Mckibben

Modern Psychological Studies

Invalid performance on tests, which detect neurological symptoms, is a prevalent issue that disrupts neuropsychological evaluations; therefore, validation of tests which detect invalid performance is critical. This review summarizes eleven performance validity tests (PVTs) and reports two aspects of accuracy, sensitivity and specificity, as these metrics are commonly reported and act as standardized metrics. PVTs are grouped into three categories: the Rey tests, simple forced-choice tests, and complex forced-choice tests. Rey tests were the first to be developed and, though they provided a good foundation for future tests, they yield low sensitivities and specificities. Simple forced-choice tests establish the forced-choice …


The Impact Of A Pandemic On Education And Mental Health, Jack R. Nadrowski, Susan E. Mason Jan 2024

The Impact Of A Pandemic On Education And Mental Health, Jack R. Nadrowski, Susan E. Mason

Modern Psychological Studies

The present study was exploratory in nature. The main goal was to assess the impact of the COVID-19 pandemic on the education and mental health of students. A questionnaire was used to test whether college students felt their mental health needs were being met, whether they thought schools were safe, and whether their attitudes about online learning changed during the pandemic. Students indicated that they had mental health concerns that were not adequately addressed. They also express concerns about school safety and online learning. The data suggest that more needs to be done to address students’ mental health, to make …


Perceived Educational And Entertainment Value Of Positive And Negative Portrayals Of Racial Minority Characters In Films, Hallie Filan, Evan F. Edwards, Kate E. Hembree, Tammy Sonnentag Jan 2024

Perceived Educational And Entertainment Value Of Positive And Negative Portrayals Of Racial Minority Characters In Films, Hallie Filan, Evan F. Edwards, Kate E. Hembree, Tammy Sonnentag

Modern Psychological Studies

Racial/ethnic minority characters are increasing in films; yet, despite increasing representation, less than half (39.7%) of all films in 2020 cast a main character who was a racial/ethnic minority. Because media representations can perpetuate racial/ethnic stereotypes, the present study examined if negative (compared to positive) racial/ethnic representations of Black and Chinese characters (and their cultures) in films impact individuals’ evaluations of the educational and entertainment value of the content. One hundred and eight undergraduate students were randomly assigned to view scenes portraying African American and Chinese characters (and their cultures) positively or negatively from two popular animated films—The Lion King …


Post-Traumatic Stress Disorder In Trafficking In Persons Survivors: A Systematic Review, Gavin C. Newberry Jan 2024

Post-Traumatic Stress Disorder In Trafficking In Persons Survivors: A Systematic Review, Gavin C. Newberry

Modern Psychological Studies

This systematic review examines post-traumatic stress disorder (PTSD) prevalence in adult and child trafficking in persons (TIP) survivors through analysis of 17 studies, including cross-sectional, cohort, and retrospective studies, from PubMed and PTSDpubs. 4,738 participants yielded an overall median PTSD prevalence of 32.63% (IQR = 20.78–54.42). Age stratification revealed median prevalences of 26.45% in children and 31.87% in adult survivors. Sex stratification indicated 22.68% in males and 38.07% in females, aligning with documented sex differences in PTSD prevalence. Further stratification by trafficking type showed 41.60% in commercial sexual exploitation and 30.67% in labor exploitation survivors. Limitations include methodological heterogeneity and …


Effects Of Gameplay Context On Visual Search Performance, Cecelia Stoll, Shannon Proksch Jan 2024

Effects Of Gameplay Context On Visual Search Performance, Cecelia Stoll, Shannon Proksch

Modern Psychological Studies

Games of all modalities have been found to improve different cognitive skills. This experiment examined the cognitive skills of visual attention and search, and explored whether different modalities of one game would have different effects on visual search abilities. Specifically, we asked whether playing a game alone or with a partner, or playing an analog or digital version of this game would have measurable effects on visual attention and search. Participants (N = 30) completed a visual search task before and after playing the card game SET in three different experimental conditions. SET was chosen because of its focus on …


Describing Dictee, Seo-Young J. Chu Jan 2024

Describing Dictee, Seo-Young J. Chu

Publications and Research

The visual images in Dictee are famously captionless. They resist straightforward explanation. In writing image descriptions of the images in Dictee, I have tried to preserve the "captionlessness" of the original. The point here is not to explain the pictures—an image description is not identical to a caption—but to make Dictee more accessible to readers who are blind and visually impaired. I realize, of course, that in trying to make Dictee's captionless images more "legible," I have inevitably "mistranslated" Dictee as it was originally designed to be experienced. Its captionlessness is lost in translation despite my efforts to preserve it. …


More Than Sleep Problems? Testing Five Key Health Behaviors As Reasons For Quality Of Life Issues Among Shift Workers, Yuxin Chen, Kaiyi Deng, Ian M. Hughes, Claire E. Smith, Hongdao Meng, Minh Quan Le, Min Sun, Xianyan Zhang, Danping Liu Jan 2024

More Than Sleep Problems? Testing Five Key Health Behaviors As Reasons For Quality Of Life Issues Among Shift Workers, Yuxin Chen, Kaiyi Deng, Ian M. Hughes, Claire E. Smith, Hongdao Meng, Minh Quan Le, Min Sun, Xianyan Zhang, Danping Liu

Psychology Faculty Publications

The shift work schedule is a common work arrangement that can disrupt typical sleep-wake rhythms and lead to negative health consequences. The present study aims to examine the effect of shift work on health-related quality of life (QoL) and explore potential behaviorial mediators (i.e., sleep, eating, exercise, smoking, drinking). A cross-sectional survey was conducted among 4,449 petroleum workers in southwest China. Data on shift work status, health behaviors, and physical and mental health QoL were collected. We tested our model using path analysis and the Monte Carlo approach among 2,129 included participants. After adjusting for covariates, shift work did not …


"What Makes A Monster And What Makes A Man?": Exploring The Intersectionality Of Catholicism And Disability Through The Lens Of The Hunchback Of Notre Dame, Daniella Flom Jan 2024

"What Makes A Monster And What Makes A Man?": Exploring The Intersectionality Of Catholicism And Disability Through The Lens Of The Hunchback Of Notre Dame, Daniella Flom

SPARK Symposium Presentations

In 15th century Europe, most viewed the disabled through the lens of Catholicism and treated them accordingly. The off-Broadway musical The Hunchback of Notre Dame closely examines religious influences on various members of society in 15th century Europe through dialogue, lyrics, and characterization and invites us to turn the mirror on our own society, asking, “What makes a monster and what makes a man?”


Women In White Christian Nationalism, Danielle M. Urton Jan 2024

Women In White Christian Nationalism, Danielle M. Urton

SPARK Symposium Presentations

This paper analyzes the appeals of White Christian Nationalism (WCN) to the “subordinate” demographic of white women, with specific attention to the use of rhetoric across the movement to attract women as allies, supporters, and promoters of the ideology.


Unveiling Spanish Language Attitudes In A Los Angeles School And A Third-Generation Multigenerational Mexican-American Family, Eric Alvarez Jan 2024

Unveiling Spanish Language Attitudes In A Los Angeles School And A Third-Generation Multigenerational Mexican-American Family, Eric Alvarez

International Journal of the Linguistic Association of the Southwest

This chapter unearths some of the diverse attitudes towards Spanish of a third-generation child in Los Angeles (L.A.), California, her family members, and school personnel. L.A. is a tension-ridden contact zone (Pratt, 1991) where Spanish has traditionally been subjugated and is still a lesser-taught language (LTL) despite decades of research showing that bilingual education positively impacts student attitudes (Potowski & Muñoz-Basols, 2020). Lack of continuity (Caloi & Torregrossa, 2021) in formal instruction and inconsistent heritage Spanish use in the home may entail divergent attitudes towards Spanish, possibly hindering multigenerational transmission. Decades-long turbulent California language policies (CLP) (Macias, 2001) have consistently …


Patient Perspectives On Chronic Rhinosinusitis In Cystic Fibrosis: Symptom Prioritization In The Era Of Highly Effective Modulator Therapy, Christine Liu, Ethan J. Han, Jakob L. Fischer, Jess C. Mace, Jose L. Mattos, Karolin Markarian, Jeremiah Alt, Todd Bodner, Naweed I. Chowdhury, Multiple Additional Authors Jan 2024

Patient Perspectives On Chronic Rhinosinusitis In Cystic Fibrosis: Symptom Prioritization In The Era Of Highly Effective Modulator Therapy, Christine Liu, Ethan J. Han, Jakob L. Fischer, Jess C. Mace, Jose L. Mattos, Karolin Markarian, Jeremiah Alt, Todd Bodner, Naweed I. Chowdhury, Multiple Additional Authors

Psychology Faculty Publications and Presentations

Background

Chronic rhinosinusitis (CRS) is common in people with cystic fibrosis (PwCF). Rhinologic symptom prioritization and areas that influence CRS treatment choices, including pursuing endoscopic sinus surgery (ESS), remain understudied.

Methods

Adult PwCF + CRS were enrolled at eight centers into a prospective, observational study (2019–2023). Participants were administered the 22-SinoNasal Outcome Test (SNOT-22) survey and a modified SNOT-22 instrument examining symptom importance. We determined importance rankings for individual symptoms and SNOT-22 symptom importance subdomains in two sets of subgroups—those pursuing ESS versus continuing medical management (CMT), and those on elexacaftor/tezacaftor/ivacaftor (ETI) versus not on ETI.

Results

Among 69 participants, …