Bioethics and Medical Ethics Commons^™

Surrogate Pregnancy After Prenatal Diagnosis Of Spina Bifida., Lynnette J. Mazur, Mary Kay Kisthardt, Helen H. Kim, Laura M. Rosas, John Lantos

Manuscripts, Articles, Book Chapters and Other Papers

Some pregnancies today involve infertile individuals or couples who contract with a fertile woman to carry a pregnancy for them. The woman who carries the pregnancy is referred to as a "gestational carrier." The use of such arrangements is increasing. Most of the time, these arrangements play out as planned; sometimes, however, problems arise. This article discusses a case in which a fetal diagnosis of spina bifida led the infertile couple to request that the gestational carrier terminate the pregnancy, and the gestational carrier did not wish to do so. Experts in the medical and legal issues surrounding surrogacy discuss …

A Survey Of Ethics Training In Undergraduate Psychology Programs At Jesuit Universities, Thomas G. Plante, Selena Pistoresi

Psychology

Training in ethics is fundamental in higher education among both faith-based and secular colleges and universities, regardless of one’s academic major or field of study. Catholic colleges and universities have included moral philosophy, theology, and applied ethics in their undergraduate curricula for generations. The purpose of this investigation was to determine what, if anything, Jesuit college psychology departments are doing to educate psychology majors regarding ethical issues. A survey method was used to assess the psychology departments of all 28 Jesuits colleges and universities in the United States. A total of 21 of the 28 schools responded and completed the …

A Christian Ethical Perspective On Surrogacy, Mark E. Lones

Bioethics in Faith and Practice

Infertility is a painful reality for many couples. Assisted reproductive technologies (A.R.T.) are becoming increasingly more popular for infertile couples desperate to conceive. In 1972 physician and ethicist Leon Kass warned that “infertility is a relationship as much as a condition – a relationship between husband and wife, and also between generations too. More is involved than the interests of any single individual”. Yet, most Christians have been reticent in asking what boundaries or principles need to be drawn. A recent Pew Research study found Americans, including evangelical Christians, largely do not see in vitro fertilization and surrogacy as a …

Method In Catholic Bioethics: Anh And Pvs Patients, Gregory J. Smith

Bioethics in Faith and Practice

This paper discusses the methods used in Catholic Social Teaching (CST), a part of the Catholic Moral Tradition (CMT), as applied to bioethical problem solving and decision-making. In order to apply CST to a concrete bioethical problem and to analyze the methods used in CST, the nature and extent of the obligation to provide artificial nutrition and hydration (ANH) to patients in a persistent vegetative state (PVS) is addressed. In particular, this paper focuses upon the extent to which providing ANH to PVS patients is or should be considered morally obligatory. In this discussion, the current official view of the …

Crispr: Race To The Cure, Heather G. Kuruvilla

Bioethics in Faith and Practice

On November 15th, the scientific world was taken by storm when Chinese researchers announced that the gene editing technique, CRISPR, was being used for the first time in a clinical trial.i CRISPR, which stands for clustered regularly interspaced short palindromic repeats, allows scientists to target specific genes for knockout, or even for replacement by other genes. The technique has showed promising results in both in vitro and animal models, and researchers foresee myriad medical uses for it. The aforementioned Chinese study involves genetically engineering T-cells to make them better able to fight cancer. Another CRISPR study involving reprogramming T-cells was …

The New Push For Assisted Suicide, Dennis Sullivan

Bioethics in Faith and Practice

The new push to legalize physician assisted suicide is a bad idea. It violates the Hippocratic tradition, dating back 2400 years. It impairs the trust relationship between doctor and patients, and would detract from modern efforts to improve palliative care and hospice. Finally, it is contrary to clear principles from the God's Word.

Senior Editor's Preview, Dennis Sullivan

Bioethics in Faith and Practice

Welcome to Bioethics in Faith and Practice! As we close out 2016, the New Year brings many challenging issues. This issue of the journal features ethical dilemmas at the beginning of life, the end of life, and in the laboratory.

Repealing The Aca Without A Replacement — The Risks To American Health Care, Barack Obama

Public Health Resources

Health care policy often shifts when the country’s leadership changes. That was true when I took office, and it will likely be true with President-elect Donald Trump. I am proud that my administration’s work, through the Affordable Care Act (ACA) and other policies, helped millions more Americans know the security of health care in a system that is more effective and efficient. At the same time, there is more work to do to ensure that all Americans have access to high-quality, affordable health care. What the past 8 years have taught us is that health care reform requires an evidence-based, …

Ethical Imperatives Of Timely Access To Orphan Drugs: Is Possible To Reconcile Economic Incentives And Patients’ Health Needs?, Rosa Rodriguez-Monguio, T. Spargo, Enrique Seoane-Vazquez

Pharmacy Faculty Articles and Research

Background

More than 6,800 rare diseases and conditions have been identified in the US, which affect 25–30 million Americans. In 1983, the US Congress enacted the Orphan Drug Act (ODA) to encourage the development and marketing of drugs to treat rare diseases and conditions. This study analyzed all orphan designations and FDA approvals since 1983 through 2015, discussed the effectiveness of incentives for the development of treatments for rare diseases, and reflected on the ethical imperatives for timely access to orphan drugs.

Methods

Study data were derived from the Food and Drug Administration (FDA) Orange Book and the Office of …

Developing Morally Sensitive Policy In The Nicu: Donation After Circulatory Determination Of Death, Michael Van Manen, Nicole Kain

The Qualitative Report

Policy development is an important activity for the practice of healthcare. Policies, after all, may cultivate common practices and ensure that best available evidence is employed in clinical decision making. Qualitative research and individuals with expertise in qualitative research methods have much to offer policy makers. We were confronted with the situation of developing policy for donation after circulatory death (DCD) for our newborn intensive care program. Due the moral-ethical complexities surrounding DCD, and the limited experience with DCD in this context, we approached policy development from an iterative design perspective employing qualitative methods. We describe our experience in employing …

Science As Speech, Natalie Ram

All Faculty Scholarship

In April 2015, researchers in China reported the successful genetic editing of human embryos using a new technology that promised to make gene editing easier and more effective than ever before. In the United States, the announcement drew immediate calls to regulate or prohibit
outright any use of this technology to alter human embryos, even for purely research purposes. The fervent response to the Chinese announcement was, in one respect, unexceptional. Proposals to regulate or prohibit scientific research following a new breakthrough occur with substantial frequency. Innovations in cloning technology and embryonic stem cell research have prompted similar outcries, and …

Mid-Atlantic Ethics Committee Newsletter, Winter 2017

Mid-Atlantic Ethics Committee Newsletter

No abstract provided.

Shapeless, Christopher W. Larrimore

be Still

Life extends beyond the boundaries we perceive, and it is through our actions that we are able to either explore or hide from our universal purpose. After completing gross anatomy lab, I learned that while the human body is complex and most impressive, human action is significantly greater. A cadaver can not walk away from a table, it can not speak a word, it was almost void of all purpose. Except that it is not. Because a decision was made to become a medical cadaver, this action created a dramatic impact on the lives of many medical students. An act …

The Significance Of Injustice For Bioethics, Leslie P. Francis

Utah Law Faculty Scholarship

In my judgment, applied ethics is ineluctably non-ideal and partial compliance theory. It’s ethics in the context of unjust institutions and conduct. Theorizing or teaching about concepts such as autonomy in abstraction from this recognition is misleading. Instead, questions such as how to realize autonomy should be framed in the context of incomplete justice. There’s much to be learned from the past nearly 50 years of discussions of justice to help with this enterprise, but they are too little known or discussed in much contemporary bioethics.

Whose Preferences Matter? A Patient-Centered Approach For Eliciting Treatment Goals, Nananda F. Col, Andrew J. Solomon, Vicky Springman, Calvin P. Garbin, Carolina Ionete, Lori Pbert, Enrique Alvarez, Brenda Tierman, Ashli Hopson, Christen Kutz, Idanis Berrios Morales, Carolyn Griffin, Glenn Phillips, Long H. Ngo

Department of Psychology: Faculty Publications

Background. Patients facing a high-stakes clinical decision are often confronted with an overwhelming array of options. High-quality decisions about treatment should reflect patients’ preferences as well as their clinical characteristics. Preference-assessment instruments typically focus on pre-selected clinical outcomes and attributes chosen by the investigator. Objective. We sought to develop a patient-centered approach to elicit and compare the treatment goals of patients with multiple sclerosis (MS) and healthcare providers (HCPs). Methods. We conducted five nominal group technique (NGT) meetings to elicit and prioritize treatment goals from patients and HCPs. Five to nine participants in each group responded silently to one question …

Assisted Suicide, Valerie Ontiveros

Nebraska College Preparatory Academy: Senior Capstone Projects

Assisted suicide is when a physician helps a terminally ill patient die without pain. As of right now, it is illegal in most states. Organizations about this issue were organized in the late 1930's (Humphry). According to Pro-Con. Org, 79% of patients requested assisted suicide even before they came terminally ill –if it got to that point.

Many states have different laws on assisted suicide. In no doubt, these patients go through a tremendous amount of pain and no one but themselves should decide when enough is enough. Technological advances have allowed this generation to help aid a person when …

Human Dignity As A Normative Standard Or As A Value In Global Health Care Decisionmaking, George P. Smith Ii

Scholarly Articles

Dignity is seen commonly as an ethical obligation owed to human persons. The dimensions of this obligation in today's post secular society, are -- however -- subject to wide discussion and debate; for, the term, human dignity, and its preservation, defies universal agreement. Yet, its preservation -- together with the prevention of indignity -- should be a guiding principle or at least a vector of force in a wide range of issues in health care management ranging from embryo research and assisted reproduction to biomedical enhancement, and the care of the disabled and the dying. In clinical medicine, safeguarding the …

Repugnance Management And Transactions In The Body, Kieran Healy, Kimberly D. Krawiec

Faculty Scholarship

Researchers have made progress in understanding the role of repugnance in transactions involving the human body. Yet, often, the focus remains on exchange between individuals and how they mentally cope (or not) with repugnance. But these exchanges also entail a “vertical” dimension in which organizational and state actors both directly manage repugnance and also limit the repugnance management tools available to the marketplace. Analyzing repugnance and its management as an organizational and regulatory problem, in addition to an individual one, suggests that a single, harmonized system of exchange in bodily goods is unlikely to emerge with the passage of time.

The Challenge Of Enhancement & Adaptability In Healthcare: An Ethical Framework For Organizations, Gary Edwards

Electronic Theses and Dissertations

This work defends enhancements that aim at promoting adaptability and formulates a framework for how healthcare organizations can cope with these sorts of enhancements. It begins by defending explicit approaches to defining enhancements and sketches a tripartite conception of enhancements dependent on well-being, social, and perception approaches. After assessing several major arguments for and against enhancement, it defends an adaptability justification for enhancements. In light of this justification, the remaining sections explore the adaptability argument’s implications for healthcare, justify an organizational approach for dealing with these implications, and finally formulate an organizational ethics framework for coping with the adaptability argument’s …

Emotions, Intuitions And Risk Perception In Critical Care, Oleksandr Dubov

Electronic Theses and Dissertations

The theory of decision-making as it applies to bioethics and healthcare assumes a rational decision maker: someone who knows all his alternatives, has clear preferences, can rank and weigh risks and benefits of an intervention, and always acts in his own best interests. However, the growing body of research from the field of decision science shows that, in reality, such a purely rational decision maker does not exist. Instead, patients are rational within personal or environmental constraints such as uncertainty or ambiguity in which non-rational approaches such as emotion and intuition are instrumental. This issue is particularly important in critical …