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Bioethics and Medical Ethics Commons

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Who Speaks For Me?: Addressing Variability In Informed Consent Practices For Minimal Risk Research Involving Foster Youth, Mary V. Greiner, Sarah J. Beal, Antonio Allen, Vikash Patel, Jareen Meinzen-Derr, Armand Antommaria 2019 Cincinnati Children's Hospital Medical Center and the University of Cincinnati

Who Speaks For Me?: Addressing Variability In Informed Consent Practices For Minimal Risk Research Involving Foster Youth, Mary V. Greiner, Sarah J. Beal, Antonio Allen, Vikash Patel, Jareen Meinzen-Derr, Armand Antommaria

Journal of Health Disparities Research and Practice

Background: Youth in protective custody (i.e., foster care) are at higher risk for poorer physical and mental health outcomes compared with those who are not. These differences may be due in part to the lack of research on the population to create evidence-based recommendations for health care delivery. A potential contributor to this lack of research is difficulties in obtaining informed consent for empirical studies in this population. The objective of this study was to describe the approaches to obtaining informed consent in minimal risk studies of foster youth and provide recommendations for future requirements.

Methods: We conducted a ...


Physician-Assisted Death: A Selected Annotated Bibliography, Alyssa Thurston 2018 Pepperdine University School of Law

Physician-Assisted Death: A Selected Annotated Bibliography, Alyssa Thurston

Alyssa Thurston

This bibliography compiles selected secondary and primary materials on physician-assisted death. Secondary sources include books, book chapters, law review and law journal articles, bibliographies, websites, and current awareness materials, and are mostly limited to publication dates of 2007-2018. Most of the included materials focus on the United States, but a number of sources also discuss other countries and one section is devoted to international experiences with physician-assisted death.


Establishing Trust In Hiv/Hcv Research Among People Who Inject Drugs (Pwid): Insights From Empirical Research, Roberto Abadie, Shira Goldenberg, Melissa Welch-Lazoritz, Celia B. Fisher 2018 University of Nebraska-Lincoln

Establishing Trust In Hiv/Hcv Research Among People Who Inject Drugs (Pwid): Insights From Empirical Research, Roberto Abadie, Shira Goldenberg, Melissa Welch-Lazoritz, Celia B. Fisher

Sociology Department, Faculty Publications

Background — The establishment of trust between researchers and participants is critical to advance HIV and HCV prevention particularly among people who inject drugs (PWID) and other marginalized populations, yet empirical research on how to establish and maintain trust in the course of community health research is lacking. This paper documents ideas about trust between research participants and researchers amongst a sub-sample of PWID who were enrolled in a large, multi-year community health study of social networks and HIV/HCV risk that was recently conducted in rural Puerto Rico.

Methods — Qualitative research was nested within a multi-year Social Network and HIV ...


Euthanasia, Assisted-Suicide, And Palliative Sedation: A Brief Clarification And Reinforcement Of The Moral Logic, Peter A. DePergola II 2018 University of Massachusetts Medical School - Baystate; College of Our Lady of the Elms

Euthanasia, Assisted-Suicide, And Palliative Sedation: A Brief Clarification And Reinforcement Of The Moral Logic, Peter A. Depergola Ii

Online Journal of Health Ethics

A persistent misunderstanding of the moral distinctions between the practices of euthanasia, assisted suicide, and palliative sedation suggests a critical need to revisit the relationship each shares with licit medical practice in the context of palliative care. To that end, this essay grounds its arguments in two, straightforward premises: (i) the licitness of medical practice is largely determined by the balance between (a) good ends, (b) proportionate means, (c) appropriate circumstances, and (d) benevolent intentions; and (ii) whereas palliative sedation employs criteria A-D (above), both euthanasia and assisted suicide fail to secure criteria A-C. Drawing from this syllogism, the aim ...


Ethical Implications Of Treatment For Gender Dysphoria In Youth, Kelsey Hayes 2018 College of Our Lady of the Elms

Ethical Implications Of Treatment For Gender Dysphoria In Youth, Kelsey Hayes

Online Journal of Health Ethics

This manuscript explores ethical implications on treatment for youth with diagnosed gender dysphoria. The ethical considerations outlined and analyzed in this essay involve illuminating an understanding of whether the administration of pubertal suppression with GnRH agonists, and cross-sex hormones to children with gender dysphoria is morally justified as treatment to manage their psychological distress, or if safer more understood alternatives exist. This essay emphasizes that as health care professionals we must ensure youth with gender dysphoria receive adequate medical treatment and care however, this essay concludes through extensive literature review, that the use of inconclusive and under researched methods to ...


Practice-Based Research Networks Ceding To A Single Institutional Review Board, Jeanette M. Daly, Tabria Weiner Harrod, Kate Judge, LeAnn C. Michaels, Barcey T. Levy, David L. Hahn, Lyle J. Fagnan, Donald E. Nease Jr. 2018 University of Iowa

Practice-Based Research Networks Ceding To A Single Institutional Review Board, Jeanette M. Daly, Tabria Weiner Harrod, Kate Judge, Leann C. Michaels, Barcey T. Levy, David L. Hahn, Lyle J. Fagnan, Donald E. Nease Jr.

Journal of Patient-Centered Research and Reviews

Historically, a single research project involving numerous practice-based research networks (PBRNs) required multiple institutional review boards (IRBs) to be involved in approval of the project. However, to avoid redundancies, federal IRB regulations now allow cooperative research projects that involve more than one institution to use reasonable methods of cooperative IRB review and to cede authority for review and oversight of the project to a single lead IRB. Through ceding, a lead IRB has the authority for review and oversight of the project delegated by all participating sites’ IRBs and becomes the IRB of record for the ceded sites. In the ...


Mid-Atlantic Ethics Committee Newsletter, Fall 2018, 2018 University of Maryland Francis King Carey School of Law

Mid-Atlantic Ethics Committee Newsletter, Fall 2018

Mid-Atlantic Ethics Committee Newsletter

No abstract provided.


Treating The Full Humanity Of Our Patients By Acknowledging Our Limitations, Kamal Al-Shalby, Blake S. Sanford 2018 Wayne State University

Treating The Full Humanity Of Our Patients By Acknowledging Our Limitations, Kamal Al-Shalby, Blake S. Sanford

Clinical Research in Practice: The Journal of Team Hippocrates

A reflection on a clinical experience with a severely anemic Jehovah's Witness Patient who refused blood transfusion.


Demystifying The Placebo Effect, Phoebe Friesen 2018 The Graduate Center, City University of New York

Demystifying The Placebo Effect, Phoebe Friesen

All Dissertations, Theses, and Capstone Projects

This dissertation offers a philosophical analysis of the placebo effect. After offering an overview of recent evidence concerning the phenomenon, I consider several prominent accounts of the placebo effect that have been put forward and argue that none of them are able to adequately account for the diverse instantiations of the phenomenon. I then offer a novel account, which suggests that we ought to think of the placebo effect as encompassing three distinct responses: conditioned placebo responses, cognitive placebo responses, and network placebo responses. Next, I consider implications of the placebo effect’s role in complementary and alternative medicine for ...


Keep Calm And Carry On: Parental Opinions On Improving Clinical Dietary Trials For Young Children, Analise Nicholl, Therese O'Sullivan 2018 Edith Cowan University

Keep Calm And Carry On: Parental Opinions On Improving Clinical Dietary Trials For Young Children, Analise Nicholl, Therese O'Sullivan

ECU Publications Post 2013

Recruitment can be an issue for paediatric research. We aimed to investigate parental opinions of paediatric clinical assessments, and to combine findings with recent literature to inform the design of a clinical dietary trial. We used convenience sampling to recruit 17 parents of children aged 2⁻6 years from two community playgroups in Perth, Western Australia. Three focus groups considered proposed child assessments, study design, and potential study enrolment. Qualitative thematic analysis of focus group transcripts used NVivo 11 (QSR, Melbourne, VIC, Australia). Four main parental concerns emerged, presented here with solutions combining parent responses and relevant literature. (1) Parent ...


Health Care Referrals Out Of The Shadows: Recognizing The Looming Threat Of The Texas Patient Solicitation Act And Other Illegal Remuneration Statutes, Trenton Brown 2018 KreagerMitchell, PLLC

Health Care Referrals Out Of The Shadows: Recognizing The Looming Threat Of The Texas Patient Solicitation Act And Other Illegal Remuneration Statutes, Trenton Brown

St. Mary's Law Journal

Abstract forthcoming


Multiracial Patient Experiences With Racial Microaggressions In Health Care Settings, Cyndy R. Snyder, Prince Z. Wang, Anjali R. Truitt 2018 University of Washington

Multiracial Patient Experiences With Racial Microaggressions In Health Care Settings, Cyndy R. Snyder, Prince Z. Wang, Anjali R. Truitt

Journal of Patient-Centered Research and Reviews

Purpose: Illuminating patients’ experiences of microaggressions in health care settings can help practitioners develop care that is more culturally responsive. While much of the literature on health care disparities focuses on minority groups generally, we sought to identify and to describe the ways in which racial microaggressions manifest for multiracial individuals and families specifically.

Methods: Using a combination of interviews and focus groups, we conducted 15 interviews and 3 focus groups. Eligible participants self-identified as more than one race and/or they self-identified as part of an interracial family, and they and/or someone they considered to be part of ...


Letter From The Editor, Jessica Walter 2018 Oregon Health & Science University

Letter From The Editor, Jessica Walter

Reflections on Healthcare Management

Introduction for the second collection of work from the School of Medicine's Division of Management. Jessica Walter comments that nearly all of the papers touch on the theory and practice of process improvement.


Creating A Project Initiation Storyboard Template, Tim Burdick 2018 Oregon Health & Science University

Creating A Project Initiation Storyboard Template, Tim Burdick

Reflections on Healthcare Management

How do we best decide which projects to move forward? While a wide range of project and quality management tools and templates exist, little is available in the current literature and practice to assist leaders in selecting projects. This paper offers a simple, flexible template to improve decision making and communication. The template aligns with vocabulary and techniques from project and quality management, making the project “kick-off” more successful. Moreover, this low- tech solution is easily understood and used by most from novices to experts in project management.


Daily Huddles: An Agile Technique To Improve Project Communication, Leah Vasquez 2018 Oregon Health & Science University

Daily Huddles: An Agile Technique To Improve Project Communication, Leah Vasquez

Reflections on Healthcare Management

Incorporation of the stand-up huddle into traditional waterfall project management methodology can improve communication in complex, multi-site projects. Huddles are intended to provide an inclusive space for project team members to collaborate in real time and to aid in fostering a culture of psychological safety. Specifically, this paper explores the hypothesis that stand-up huddles can help achieve the following project goals: 1) increase flexibility to accommodate change, 2) improve coordination of work across multiple project teams, and 3) improve communication of high impact decisions between project leadership and project teams.


Stakeholders In The U.S. Healthcare System: A Possible Future, Nancy Boutin 2018 Oregon Health & Science University

Stakeholders In The U.S. Healthcare System: A Possible Future, Nancy Boutin

Reflections on Healthcare Management

In 2014, Don Berwick, MD, MPP, compared his months on the Massachusetts Gubernatorial campaign trail with Marco Polo’s travels to the legendary city of Xanadu. Instead of finding silk and spaghetti, Berwick found pockets of poverty, despair, and a health system that was penny wise and pound foolish. He also found hope in community programs geared toward breaking the inexorable downward spiral faced by many Americans. Halfway through his presentation, Berwick said, “You can see what it (healthcare savings) might look like. I saw it last week on a trip to Oregon.” Berwick’s casual comment opens a path ...


The Military Health System: Adapting The Quadruple Aim, David Zonies 2018 Oregon Health & Science University

The Military Health System: Adapting The Quadruple Aim, David Zonies

Reflections on Healthcare Management

The Military Health System (MHS) is a vast, global, integrated healthcare delivery system. One of the largest healthcare organizations in the United States, the MHS manages a $52 billion budget and has the solemn responsibility for the health of the Armed Forces. As the MHS is transforming its own business practice, they are adopting many principles outlined in the Quadruple Aim. MHS is experimenting on innovative approaches to improve the individual care experience. Notably, MHS is working to improve access to both inpatient and outpatient services across all its platforms. MHS is working to provide improved health opportunities outside the ...


What Is Critical Chain Project Management And How Can It Be Useful In Healthcare?, Paul Wilkens 2018 Oregon Health & Science University

What Is Critical Chain Project Management And How Can It Be Useful In Healthcare?, Paul Wilkens

Reflections on Healthcare Management

This paper reviews the basics of Goldratt's Theory of Constraints (TOC), followed by a discussion of how they have been adapted for project management (PM). Some of the benefits and flaws of this management method are described, followed by a literature review of known applications to healthcare organizations, which concludes with a summary of healthcare-specific observations. Note: Project management based on the Theory of Constraints is described variously as Critical Chain Project Management (CCPM), Critical Chain / Buffer Management (CC/BM), Critical Chain Scheduling/ Buffer Management (CCS/BM), TOC-PM, and many others. This review uses “CCPM” throughout.


Achieving The Quadruple Aim Through Provider Wellness, Krista S. Wood 2018 Oregon Health & Science University

Achieving The Quadruple Aim Through Provider Wellness, Krista S. Wood

Reflections on Healthcare Management

Spending 44% of their work days on administrative and clerical tasks rather than direct patient care, it is no surprise that medical providers are currently experiencing work-life imbalance, dissatisfaction, high rates of attrition and burnout rates exceeding 50%. Some suggest the “Triple Aim” of healthcare—improving the experience of care, improving the health of populations and reducing per capita costs of healthcare—should be changed to the “Quadruple Aim,” with equal attention on well-being of the care team. Others believe provider wellness should be the foundation of the Triple Aim. After all, it is the limiting reagent; without healthy and ...


Exploring Empathy In Medical Narratives, Adam Uhrig 2018 Northern Michigan University

Exploring Empathy In Medical Narratives, Adam Uhrig

All NMU Master's Theses

No abstract provided.


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