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Social Inequity Is A Life And Death Situation For Our Patients, Stephanie Clough, Mira Hamame, Elizabeth Bavers 2019 Wayne State University School of Medicine

Social Inequity Is A Life And Death Situation For Our Patients, Stephanie Clough, Mira Hamame, Elizabeth Bavers

Clinical Research in Practice: The Journal of Team Hippocrates

Advocating for change in the economic structure of health care in the United States is a moral imperative.


Biting The Hands That Feed “The Alligators”: A Case Study In Morbid Obesity Extremes, End-Of-Life Care, And Prohibitions On Harming And Accelerating The End Of Life, Michael J. Malinowski 2019 Louisiana State University Law Center

Biting The Hands That Feed “The Alligators”: A Case Study In Morbid Obesity Extremes, End-Of-Life Care, And Prohibitions On Harming And Accelerating The End Of Life, Michael J. Malinowski

Michael J. Malinowski

Obesity, recognized as a disease in the U.S. and at times as a terminal illness due to associated medical complications, is an American epidemic according to the Centers for Disease Control and Prevention (“CDC”), American Heart Association (“AHA”), and other authorities. More than one third of Americans (39.8% of adults and 18.5% of children) are medically obese. This article focuses on cases of “extreme morbid obesity” (“EMO”)—situations in which death is imminent without aggressive medical interventions, and bariatric surgery is the only treatment option with a realistic possibility of success. Bariatric surgeries themselves are very high ...


Faculty Socialization Of Graduate Students’ Attitudes And Perceptions Toward The Irb, Elisa Jolls 2019 Abilene Christian University

Faculty Socialization Of Graduate Students’ Attitudes And Perceptions Toward The Irb, Elisa Jolls

Electronic Theses and Dissertations

Graduate student mistrust and fear of the institutional review board (IRB) is an issue that is commonly encountered at academic institutions. Research has shown that students emulate and are vulnerable to assuming the norms of faculty, which is supported by research that shows that students who have difficult relationships with the IRB often have faculty mentors who also have difficult relationships with the IRB. The purpose of this qualitative case study was to explore how novice researchers’ perceptions of the IRB changed through their research submission and IRB interactions required during the IRB approval process, as well as to identify ...


Toward A Rhetoric Of Dna: The Advent Of Crispr, Michael J. Zerbe 2019 York College of Pennslyvania

Toward A Rhetoric Of Dna: The Advent Of Crispr, Michael J. Zerbe

Poroi

The nucleic acid DNA, which contains an organism’s genetic information, consists of a four-letter alphabet that has until recently been characterized as a read-only text. The development of a quick, inexpensive DNA targeting and manipulation technique called CRISPR, pronounced “crisper,” though, has changed DNA from this arhetorical, read-only data set, as it has been characterized in the rhetoric literature to date, to a fully rhetorical text—one that can be not only read but created, interpreted, copied, altered, and stored as well. The Book of Nature, an idea with roots in antiquity but popularized during the nineteenth century, provides ...


Medical And Ethical Issues And Latter-Day Saints, Kevin J. Black 2019 Selected Works

Medical And Ethical Issues And Latter-Day Saints, Kevin J. Black

Kevin J. Black, MD

Handout for a lecture in the Washington University School of Medicine elective course “Major religious traditions and health care.” This document represents my personal views and does not necessarily represent the opinions of the University or of The Church of Jesus Christ of Latter-day Saints.


The “Benefits,” Risks, And Costs Of Routine Infant Circumcision, Stephanie Welch 2019 N/A

The “Benefits,” Risks, And Costs Of Routine Infant Circumcision, Stephanie Welch

Journal of Evolution and Health

No abstract provided.


Betrayed Partners And Men With Poisoned Souls: Interview With A Former Sex Buyer In Germany, Ingeborg Kraus 2019 Psychologische Psychotherapeutin, Germany

Betrayed Partners And Men With Poisoned Souls: Interview With A Former Sex Buyer In Germany, Ingeborg Kraus

Dignity: A Journal on Sexual Exploitation and Violence

No abstract provided.


Confidential Care For Adolescents In The U.S. Health Care System, Priya R. Pathak, Adriana Chou 2019 Harvard T.H. Chan School of Public Health

Confidential Care For Adolescents In The U.S. Health Care System, Priya R. Pathak, Adriana Chou

Journal of Patient-Centered Research and Reviews

In providing care for adolescents, maintaining confidentiality should be considered a human right and an evidence-based component of quality care. Unfortunately, complexities in the U.S. legal and health care systems have created a setting in which confidential care is inaccessible to many adolescent patients. Federal laws provide a minimum standard for confidentiality protections, but variations in state legislation relating to minor consent, special health care services, and confidentiality exemptions create large variability in adolescent confidentiality rights across the country. In certain contexts, such as consensual sexual activity, legal provisions may not align with professional ethical standards in adolescent care ...


Who Speaks For Me?: Addressing Variability In Informed Consent Practices For Minimal Risk Research Involving Foster Youth, Mary V. Greiner, Sarah J. Beal, Antonio Allen, Vikash Patel, Jareen Meinzen-Derr, Armand Antommaria 2019 Cincinnati Children's Hospital Medical Center and the University of Cincinnati

Who Speaks For Me?: Addressing Variability In Informed Consent Practices For Minimal Risk Research Involving Foster Youth, Mary V. Greiner, Sarah J. Beal, Antonio Allen, Vikash Patel, Jareen Meinzen-Derr, Armand Antommaria

Journal of Health Disparities Research and Practice

Background: Youth in protective custody (i.e., foster care) are at higher risk for poorer physical and mental health outcomes compared with those who are not. These differences may be due in part to the lack of research on the population to create evidence-based recommendations for health care delivery. A potential contributor to this lack of research is difficulties in obtaining informed consent for empirical studies in this population. The objective of this study was to describe the approaches to obtaining informed consent in minimal risk studies of foster youth and provide recommendations for future requirements.

Methods: We conducted a ...


Negotiating The Credibility Of Chronic Lyme Disease: Patient Participation In Biomedical Knowledge-Creation, Jodie Horowitz 2019 Claremont Colleges

Negotiating The Credibility Of Chronic Lyme Disease: Patient Participation In Biomedical Knowledge-Creation, Jodie Horowitz

Scripps Senior Theses

An estimated 300,000 people contract Lyme disease in the USA every year, 10-20% of whom will experience long-term symptoms even after antibiotic treatment. These patients are said to have Chronic Lyme Disease (CLD). However, diagnostic guidelines, treatment protocols, and the etiological existence of CLD have been the subject of much controversy in the biomedical field, leading to negative mental and physical health outcomes for of patients with CLD. Patient support networks focused on illness experience, known as biosocialities, have formed in response to this controversy. CLD biosocialities create opportunities for patients to participate in biomedical activism and the scientific ...


Sexual Mutilation Of Muslim Girls, Today In The United States, Robert Brannon 2019 Brooklyn College CUNY

Sexual Mutilation Of Muslim Girls, Today In The United States, Robert Brannon

Dignity: A Journal on Sexual Exploitation and Violence

No abstract provided.


Mid-Atlantic Ethics Committee Newsletter, Winter 2019, 2019 University of Maryland Francis King Carey School of Law

Mid-Atlantic Ethics Committee Newsletter, Winter 2019

Mid-Atlantic Ethics Committee Newsletter

No abstract provided.


Strategies Healthcare Managers Use To Reduce Hospital-Acquired Infections, Yohannes Debesai 2019 Walden University

Strategies Healthcare Managers Use To Reduce Hospital-Acquired Infections, Yohannes Debesai

Walden Dissertations and Doctoral Studies

Every year, 2 million patients in the United States suffer with at least 1 hospital-acquired infection resulting in an estimated 99,000 deaths annually. The purpose of this exploratory single case study was to explore strategies healthcare managers in U.S. hospitals used to reduce hospital-acquired infections. The study included face-to-face, semistructured interviews with 5 healthcare managers from a hospital in Maryland who were successful in reducing these infections. The conceptual framework was human capital theory. Field notes, hospital documents, and transcribed interviews were analyzed to identify themes regarding strategies used by healthcare managers. The data analysis and coding process ...


Outcomes Comparison Of Enculturating Advance Directives Process At A Health System, Rose Allen, Tanya Cohn, Christine Edozie, Susan Howard, Patricia McCrink 2019 Baptist Health South Florida

Outcomes Comparison Of Enculturating Advance Directives Process At A Health System, Rose Allen, Tanya Cohn, Christine Edozie, Susan Howard, Patricia Mccrink

All Publications

The Center for Medicare and Medicaid Services requires organizations to comply with the Patient Self-Determination Act by having processes that inform patients about their rights to execute an advance directive (AD) and engage in shared decision-making. The aim of this study was to compare AD data from a previous study (1999–2002) to a postenculturation (2011–2015) of a structured process for documented patient’s preferences. Second, to conduct a descriptive, bivariate analysis of the enculturated structured ADs process during 2011 and 2015. This descriptive, comparative analysis included 500 random patients from four hospitals, and the enculturated descriptive analysis included ...


Physician-Assisted Death: A Selected Annotated Bibliography, Alyssa Thurston 2018 Pepperdine University School of Law

Physician-Assisted Death: A Selected Annotated Bibliography, Alyssa Thurston

Alyssa Thurston

Physician-assisted death (PAD), which encompasses physician-assisted suicide and physician-administered euthanasia, has long been controversial. However, recent years have seen a trend toward legalizing some form of PAD in the United States and abroad. This annotated bibliography lists sources concerning PAD and the many issues raised by its legalization.


Establishing Trust In Hiv/Hcv Research Among People Who Inject Drugs (Pwid): Insights From Empirical Research, Roberto Abadie, Shira Goldenberg, Melissa Welch-Lazoritz, Celia B. Fisher 2018 University of Nebraska-Lincoln

Establishing Trust In Hiv/Hcv Research Among People Who Inject Drugs (Pwid): Insights From Empirical Research, Roberto Abadie, Shira Goldenberg, Melissa Welch-Lazoritz, Celia B. Fisher

Sociology Department, Faculty Publications

Background — The establishment of trust between researchers and participants is critical to advance HIV and HCV prevention particularly among people who inject drugs (PWID) and other marginalized populations, yet empirical research on how to establish and maintain trust in the course of community health research is lacking. This paper documents ideas about trust between research participants and researchers amongst a sub-sample of PWID who were enrolled in a large, multi-year community health study of social networks and HIV/HCV risk that was recently conducted in rural Puerto Rico.

Methods — Qualitative research was nested within a multi-year Social Network and HIV ...


Ethical Implications Of Treatment For Gender Dysphoria In Youth, Kelsey Hayes 2018 College of Our Lady of the Elms

Ethical Implications Of Treatment For Gender Dysphoria In Youth, Kelsey Hayes

Online Journal of Health Ethics

This manuscript explores ethical implications on treatment for youth with diagnosed gender dysphoria. The ethical considerations outlined and analyzed in this essay involve illuminating an understanding of whether the administration of pubertal suppression with GnRH agonists, and cross-sex hormones to children with gender dysphoria is morally justified as treatment to manage their psychological distress, or if safer more understood alternatives exist. This essay emphasizes that as health care professionals we must ensure youth with gender dysphoria receive adequate medical treatment and care however, this essay concludes through extensive literature review, that the use of inconclusive and under researched methods to ...


Euthanasia, Assisted-Suicide, And Palliative Sedation: A Brief Clarification And Reinforcement Of The Moral Logic, Peter A. DePergola II 2018 University of Massachusetts Medical School - Baystate; College of Our Lady of the Elms

Euthanasia, Assisted-Suicide, And Palliative Sedation: A Brief Clarification And Reinforcement Of The Moral Logic, Peter A. Depergola Ii

Online Journal of Health Ethics

A persistent misunderstanding of the moral distinctions between the practices of euthanasia, assisted suicide, and palliative sedation suggests a critical need to revisit the relationship each shares with licit medical practice in the context of palliative care. To that end, this essay grounds its arguments in two, straightforward premises: (i) the licitness of medical practice is largely determined by the balance between (a) good ends, (b) proportionate means, (c) appropriate circumstances, and (d) benevolent intentions; and (ii) whereas palliative sedation employs criteria A-D (above), both euthanasia and assisted suicide fail to secure criteria A-C. Drawing from this syllogism, the aim ...


Practice-Based Research Networks Ceding To A Single Institutional Review Board, Jeanette M. Daly, Tabria Weiner Harrod, Kate Judge, LeAnn C. Michaels, Barcey T. Levy, David L. Hahn, Lyle J. Fagnan, Donald E. Nease Jr. 2018 University of Iowa

Practice-Based Research Networks Ceding To A Single Institutional Review Board, Jeanette M. Daly, Tabria Weiner Harrod, Kate Judge, Leann C. Michaels, Barcey T. Levy, David L. Hahn, Lyle J. Fagnan, Donald E. Nease Jr.

Journal of Patient-Centered Research and Reviews

Historically, a single research project involving numerous practice-based research networks (PBRNs) required multiple institutional review boards (IRBs) to be involved in approval of the project. However, to avoid redundancies, federal IRB regulations now allow cooperative research projects that involve more than one institution to use reasonable methods of cooperative IRB review and to cede authority for review and oversight of the project to a single lead IRB. Through ceding, a lead IRB has the authority for review and oversight of the project delegated by all participating sites’ IRBs and becomes the IRB of record for the ceded sites. In the ...


Mid-Atlantic Ethics Committee Newsletter, Fall 2018, 2018 University of Maryland Francis King Carey School of Law

Mid-Atlantic Ethics Committee Newsletter, Fall 2018

Mid-Atlantic Ethics Committee Newsletter

No abstract provided.


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