Bioethics and Medical Ethics Commons^™

Ethical Perspectives Of Direct-To-Consumer Genetic Testing, Pawan Acharya, Rupesh Gautam

Journal of Health Ethics

Direct-to-consumer (DTC) genetic testing, which evolved from genomics is not free from controversies and ethical dilemmas. Conduction of genetic testing without direct communication between the users and certified medical professionals has aroused many ethical concerns. We discuss some ethical dilemmas surrounding DTC genetic testing in terms of quality assurance of the test, information communication process of the result, confidentiality of test result and the right to privacy, cost and price regulations, and user safety and harm mitigation. DTC genetic testing lies in the middle of a clash between liberal trade policies and state’s regulations as a case of extreme paternalism. …

Integrating Social Justice For Health Professional Education: Self-Reflection, Advocacy, And Collaborative Learning, Lena Hatchett, Nanette Elster, Katherine Wasson, Lisa Anderson, Kayhan Parsi

Journal of Health Ethics

Justice as fair and equal treatment for all is one of the core visions for health professional education to reduce racial and economic health disparities in bioethics, nursing and medicine. However, the current reality of deeply entrenched structural inequities across race, class, gender, and social privilege make it a challenge for students to become aware of practical health equity solutions. This paper illustrates how faculty and students can build their understanding of health equity solutions in health professional education through self-reflection, self-direction, advocacy, and collaborative learning opportunities. We provide lessons learned and teaching resources from nursing, medicine, and law.

Generational Conflicts Among Vietnamese Americans In The Health Care Decision Making Process, Georgie D. Nguyen

Journal of Health Ethics

In the U.S. there are approximately 1.3 million Vietnamese Americans. This group faced multiple problems after their immigration to the U.S. after the Fall of Saigon. While some easily acculturated within this group, others such as the older generation suffered difficulty doing so. The purpose of this article is to address concerns regarding the health care decision making process among the Vietnamese community and its importance to helping health care providers understand why there is a high mortality rate within this group.

The Ethics Of Place: Differences In Ethical Perspectives Among Urban, Suburban, And Rural Physicians In Georgia, Mary Eleanor E. Wickersham D.P.A., Jean Rawlings Sumner M.D.

Journal of Health Ethics

A debate continues between two camps: those who see “ethics as ethics” regardless of place and others who believe that ethical challenges are somehow different for rural physicians than for their more urban counterparts. This research examines the ethical perspectives of urban, suburban, and rural physicians to identify differences based on practice location. Over 3000 Georgia physicians responded to questions concerning their experiences with ethical dilemmas in eight domains: payment /conflict of interest; patient access; truth telling/professional conduct; boundary/dual role issues; patient autonomy; sociological/cultural issues; stress/burnout; and ethics training/leadership. Descriptive statistics and contingency tables were used for statistical analysis. Higher …

Calling Science Pseudoscience: Fleck’S Archaeologies Of Fact And Latour’S ‘Biography Of An Investigation’ In Aids Denialism And Homeopathy, Babette Babich

Articles and Chapters in Academic Book Collections

Fleck’s Genesis and Development of a Scientific Fact foregrounds claims traditionally excluded from reception, often regarded as opposed to fact, scientific claims that are increasingly seldom discussed in connection with philosophy of science save as examples of pseudo-science. I am especially concerned with scientists who question the epidemiological link between HIV and AIDS and who are thereby discounted—no matter their credentials, no matter the cogency of their arguments, no matter the sobriety of their statistics—but also with other classic examples of so-called pseudo-science including homeopathy and other sciences, such as cold fusion. The pseudo-science version of the demarcation problem turns …

Compassion As A Practical And Evolved Ethic For Conservation, David Ramp, Marc Bekoff

Conservation Collection

The ethical position underpinning decisionmaking is an important concern for conservation biologists when setting priorities for interventions. The recent debate on how best to protect nature has centered on contrasting intrinsic and aesthetic values against utilitarian and economic values, driven by an inevitable global rise in conservation conflicts. These discussions have primarily been targeted at species and ecosystems for success, without explicitly expressing concern for the intrinsic value and welfare of individual animals. In part, this is because animal welfare has historically been thought of as an impediment to conservation. However, practical implementations of conservation that provide good welfare outcomes …

Maintaining Ethical Standards During Conservation Crises, Ryan K. Brook, Mark Cattet, Chris T. Darimont, Paul C. Paquet, Gilbert Proulx

Ethics and Conservation Biology Collection

Many species at risk in Canada and globally are at or approaching a crisis, especially where little or nothing consequential is being done to prevent extirpation. Such is the case of endangered boreal caribou (Rangifer tarandus caribou) in southern Alberta, Canada. Expedient but inadequate emergency ‘fixes’ have been experimentally implemented to arrest their decline and potential extirpation, but use of these measures raises important ethical problems. In their study of the effects of killing wolves (Canis lupus) on the Little Smoky woodland caribou population, Hervieux et al. (2014a) employed lethal methods that included shooting a firearm from a helicopter and …

Existential Suffering And Cura Personalis: Dilemmas At The End-Of-Life, George P. Smith Ii

Scholarly Articles

Existential, or non-somatic suffering, is often associated with the management of refractory pain at the end-stage of life. Because of misleading sympathologies, this condition is often either mis-diagnosed or even ignored. When diagnosed as a part of a futile medical condition, this Paper argues that deep, palliative, or terminal sedation be offered to the distressed, dying patient as an efficacious and ethical response to preserving a semblance of human dignity in the dying process. Not only is this option of care humane and compassionate, it is consistent with the ideal of best patient care. The notion of care should not …

Giving Thanks: The Ethics Of Grateful Patient Fundraising, Stacey A. Tovino

Faculty Articles

Grateful patient fundraising, defined as the solicitation of philanthropic donations by health care providers from current and former patients, raises a number of legal and ethical issues. Elsewhere, I detailed the confidentiality issues raised by the use and disclosure of patient identifiable information by hospital development officers, major gifts officers, institutionally-related foundations, and commercial fundraisers, and proposed corrections to federal health information confidentiality regulations to better balance the competing aims of health care philanthropy and health information confidentiality. In this Article, I analyze several outstanding issues raised by physician involvement in grateful patient fundraising. That is, physicians who solicit philanthropic …

Barriers To Health Care Among Laotian Americans In Middle Tennessee, Xaiyavong Saenphansiri

DNP Projects

Background. Laotian Americans have unique heath beliefs and practices. The cultural differences between Laotian American patients and American health care providers can create challenges in achieving not only evidence-based, but also culturally sensitive care. Although the current literature addresses barriers to health care for Asian Americans, there are few studies related to the Laotian-American minority.

Aim. Describing the particular barriers to preventive and curative care in the Laotian-American population in Middle Tennessee would inform strategies for successful prevention and early treatment programs for this population. The purpose of the study is to describe the health beliefs and barriers to …

Beyond Permissibility : Traversing The Many Moral Pitfalls Of Abortion (A Virtue Ethics Approach), John Westley Mcmichael

Legacy Theses & Dissertations (2009 - 2024)

Ethical discussions about abortion, typically, focus on whether or not it is morally permissible to destroy a fetus. If it is morally impermissible to do so, that seems to answer the question of abortion outright: all things being equal, it is wrong. If it is permissible to kill a fetus, however, it doesn't follow that one cannot err morally by doing so. Using virtue ethics as my guiding normative theory, I argue that there are many potential moral errors one can make in having an abortion (or, in other cases, by not having an abortion) that do not hang on …

La Paradoja Hispana Epidemiológica: Investigando Las Preconcepciones Y Generalizaciones, Maya H. Sandalow

CMC Senior Theses

En los Estados Unidos, los latinos suelen tener menos acceso a la educación, el trabajo, y el seguro médico en comparación con los blancos no-latinos, pero aun así el grupo parece superar ciertos obstáculos de la salud. Las estadísticas de la población latina muestran mayor longevidad y otras tasas favorables en comparación con los blancos no-latinos. Los expertos han titulado esta contradicción “La Paradoja Hispana Epidemiológica”.

Desafortunadamente, la investigación de la paradoja está llena de generalizaciones y presuposiciones erróneas sobre la población latina diversa. Esta tesis investiga los participantes que producen generalizaciones sobre la supuesta paradoja para mostrar que estas …

Embryonic Stem Cell Research, The Ethics, And The Alternatives, Ben Rudy

Augustana Center for the Study of Ethics Essay Contest

No abstract provided.

Honoring The Victims: How The Change In Ethics Ruined Science In The Third Reich And What To Do With The Remaining Medical Data, Kathleen M. Mitchell

Williams Honors College, Honors Research Projects

This paper analyzes both sides of the debate over using the Nazi medical data and brings forth one possible compromise. While using the data can provide the scientific community information that can be beneficial for society—and thus salvaging some good out of the evil—are the survivors’ sentiments on the subject truly being heard? The idea that the victims are once again being abused by using the information without their consent is not a matter to be taken lightly. On the other hand, if the data is valuable, it can be detrimental to scientific experimentation to deny access or destroy the …

Shifting Our Focus From Retribution To Social Justice: An Alternative Vision For The Treatment Of Pregnant Women Who Harm Their Fetuses, April L. Cherry

Journal of Law and Health

The ways in which society responds to pregnant women whose behavior purportedly harms their fetuses can be explored from a variety of legal vantage points. This article argues that the criminal law model currently used is ineffective. The assignment of criminal liability to pregnant women is often rooted in fetal personhood and maternal deviance discourse. Criminal law solutions fail because they fail to take into account the fact that maternal behavior is often the result of a myriad of the social and economic conditions over which pregnant women have little or no control. The criminal law model, therefore, simply punishes …

An Assessment Of Retractions As A Measure Of Scientific Misconduct And Impact On Public Health Risks, Alison J. Abritis

USF Tampa Graduate Theses and Dissertations

Research misconduct has been generally considered a limited issue, occurring in a small percentage of research studies. Studies of the number of article retractions use retraction percentages to perpetuate the idea that research misconduct is not a common event, and use information in the retraction notice to quantify types of research misconduct and types or research error. However, retractions appear to be the wrong variable with which to assess misconduct rates and characteristics. Using final misconduct findings in hard science research from the Office of Research Integrity (ORI) for investigations closed from 1993 through 2013, the number of publications and …

Conceiving Of Products And The Products Of Conception: Reflections On Commodification, Consumption, Art, And Abortion, Jody L. Madeira

Articles by Maurer Faculty

This paper rejects the dichotomy between patient and consumer roles and focuses instead on how attributes of each are meaningful to those seeking health care. Arguing that health care is already commodified, it suggests that both medicine and the market offer strategies for handling commodification. The important questions are how we understand these attributes and their role in care relationships, and which attributes we should encourage. The medical profession and patient role have long accommodated commodification, using fiduciary roles, flat fees and opaque pricing to distance payment and pricing from care provision. In contrast, the market and consumer role emphasize …

From Bibles To Biomarkers: The Future Of The Dsm And Forensic Psychiatric Diagnosis, Teneille R. Brown

Utah Law Faculty Scholarship

Given its importance to the law, it is regrettable that judges and lawyers do not fully understand how the DSM is constructed, and the bedrock of values on which it rests. As evidence of this, lawyers and judges often refer to the DSM as the “psychiatric bible.” This language is both fascinating and perplexing. This Article will attempt to correct the notion that the DSM is a legal “psychiatric bible” by explaining how it is created and used by the medical field. It will also provide a few reasons why the law may have come to view it as a …

‘‘We Can Wipe An Entire Culture’’: Fears And Promises Of Dna Biobanking Among Native Americans, Roberto Abadie, Kathleen Heaney

Department of Sociology: Faculty Publications

This paper explores Native American perceptions on DNA biobanking. A qualitative study was conducted among self-declared Native Americans living off reservation in two Midwest cities. Findings demonstrate a paradox: Informants maintain strong hopes for the transformative power of gene-based research while voicing very particular social anxieties. Emerging genomic technologies elicit concerns over the potential for genetic stigmatization or discrimination based on race, preventing access to health insurance or employment. Frequently, social anxieties adopt the narrative form of conspiracy theories which portray powerful agents exploiting or abusing a disenfranchised population. We argue that while Native Americans do not have a monopoly …

Markets, Morals, And Limits In The Exchange Of Human Eggs, Kimberly D. Krawiec

Faculty Scholarship

No abstract provided.