Bioethics and Medical Ethics Commons^™

Bioethics: Preparing For The Unknown - Conference Program, The Center For The Study Of Ethics In Society Western Michigan University

Bioethics: Preparing for the Unknown

On March 17-18, 2016 at Western Michigan University a conference was held to celebrate the 30th anniversary of the WMU Ethics Center. The conference was on Bioethics: Preparing for the Unknown and this is the conference program.

Is Whole-Exome Sequencing An Ethically Disruptive Technology? Perspectives Of Pediatric Oncologists And Parents Of Pediatric Patients With Solid Tumors, Laurence B Mccullough, Melody J Slashinski, Amy L Mcguire, Richard L Street, Christine M Eng, Richard A Gibbs, D William Parsons, Sharon E Plon

Faculty, Staff and Students Publications

BACKGROUND: It has been anticipated that physician and parents will be ill prepared or unprepared for the clinical introduction of genome sequencing, making it ethically disruptive.

PROCEDURE: As a part of the Baylor Advancing Sequencing in Childhood Cancer Care study, we conducted semistructured interviews with 16 pediatric oncologists and 40 parents of pediatric patients with cancer prior to the return of sequencing results. We elicited expectations and attitudes concerning the impact of sequencing on clinical decision making, clinical utility, and treatment expectations from both groups. Using accepted methods of qualitative research to analyze interview transcripts, we completed a thematic analysis …

Defining Quality In Medical Practice, Nicholas E. Boggs

Clinical Research in Practice: The Journal of Team Hippocrates

We need physicians who are willing to participate in creating the standard of care, and to hold insurance companies accountable for real evidence-based quality markers. Only then will patients receive adequate care and we as educators in medicine be able to adequately teach the next generation of physicians.

Stepping Into And Out Of The Void: Funding Dynamics Of Human Embryonic Stem Cell Research In California, Sweden, And South Korea, Noomi Weinryb, Tania M. Bubela

Office of the Provost

Nonprofit organizations and philanthropists stepped into a funding void caused by controversies over public funding of human embryonic stem cell (hESC) research. Based on interviews of 83 representatives of 53 funders, we examine the motivations and accountability structures of public agencies, corporations, fundraising dependent nonprofit organizations and philanthropic organizations that funded hESC research in three jurisdictions: California, Sweden, and South Korea. While non-traditional forms of funding are essential in the early stages of research advancement, they are unreliable for the long timeframes necessary to advance cell therapies. Such funding sources may enter the field based on high expectations, but may …

Tough Decisions For Premature Triplets., Ashley Hurst, Scott And Emily (Parents), Brooke D. Vergales, Alix Paget-Brown, Mark Mercurio, John Lantos

Manuscripts, Articles, Book Chapters and Other Papers

When infants are born at the borderline of viability, doctors and parents have to make tough decisions about whether to institute intensive care or provide only palliative care. Often, these decisions are made in moments of profound emotional turmoil, and parents receive different information from different health professionals. Communication can become garbled. It may be difficult to tell when and whether the patient's clinical condition has changed enough so that certain choices that had once been permissible become impermissible. In this "Ethics Rounds," we present a case of triplets born at the borderline of viability. We sought comments from the …

Physician Assisted Dying: A Turning Point?, Lawrence O. Gostin, Anna E. Roberts

Georgetown Law Faculty Publications and Other Works

Physician Assisted Dying (PAD) has been lawful in some countries since the 1940s and in the United States since 1997. There is a body of social and scientific research that has focused on whether the practice has been misused and whether gaps exist in legislative safeguards. There are multiple concerns with physicians assisting patients to die: incompatibility with the physician’s role as a healer, devaluation of human life, coercion of vulnerable individuals (e.g., the poor and disabled), and the risk that PAD will be used beyond a narrow group of terminally ill individuals. Statutes in the United States have been …

Dignity, Pet-Euthanasia And Person Euthanasia, Thomas A. Cavanaugh

Philosophy

Challenging the standard argument for euthanasia, G. E. M. Anscombe holds that euthanasia does not comport with human dignity interpreted in terms of self-determination. For, were self-determination to ground any killing it would justify self-killing, not being killed by another. I articulate reasons for thinking that she correctly identifies the dissonance of self-determination with euthanasia. Additionally, I argue that the same holds, less obviously, for physician-assisted suicide (PAS, which she does not explicitly consider).

Moreover, Anscombe suggests that what actually occurs in euthanasia in effect equates a person to a humanely euthanized dog and, thereby, trivializes and degrades human lives …

Mid-Atlantic Ethics Committee Newsletter, Winter 2016

Mid-Atlantic Ethics Committee Newsletter

No abstract provided.

Drinking From The Data Well: Response To Gamete Donor Anonymity And Limits On Numbers Of Offspring: The Views Of Three Stakeholders, Martha M. Ertman

Faculty Scholarship

No abstract provided.

Age Differences In Cancer Treatment Decision Making And Social Support, Jessica Krok, Angela L. Palmer-Wackerly, Phokeng M. Dailey, Julianne C. Wojno, Janice L. Krieger

Department of Communication Studies: Faculty Publications

Objective: The aim of this study was to examine the decision-making (DM) styles of younger (18-39 years), middle-aged (40-59 years), and older (≥60 years) cancer survivors, the type and role of social support, and patient satisfaction with cancer treatment DM.

Method: Adult cancer survivors (N = 604) were surveyed using Qualtrics online software.

Results: Older adults reported significantly lower influence of support on DM than younger adults. The most common DM style for the age groups was collaborative DM with their doctors. Younger age was a significant predictor of independent (p < .05), collaborative with family (p < .001), delegated to doctor (p < .01), delegated to family (p < .001), and demanding (p < .001) DM styles.

Discussion: Despite having lower received social support in cancer …

The Meaning Of Evidence And Nonmaleficence: Cases From Nursing, Chenit Ong-Flaherty Dnp, Angela Banks Phd, Martha Doyle Msn, Claire Olivia Sharifi

Journal of Health Ethics

In our increasingly diverse environment, nurses are obligated to question the meaning of “evidence” when history has shown that our emphasis on the empirical and quantitative data has shaped our biases against knowledge unknown to us. This bias has limited our ability to provide patient or person-centered care, and can be harmful to patients. Nurses are encouraged to reflect on what evidence means in their practice, and to make sure harm is not caused to patients by dismissing evidence yet unknown to us or accepting “truths” not fully understood by us. The authors use composite case studies to share experiences …

Ada Constitution & Bylaws (2016), American Dental Association

Constitution & Bylaws

The ADA Commons Constitution & Bylaws archival collection comprises printed issues of the American Dental Association's Constitution and Bylaws. The collection also includes the ADA Charter and the ADA Code of Ethics issued 1924-1946.

Stress Of Conscience: Concept Clarification, Muder Alkrisat, Manal Alatrash

Journal of Health Ethics

Workers in healthcare systems are predisposed to work-related stress based on moral factors. Stress results when nurses are exposed to ambiguous moral situations, or when they are prevented by hospitals or their employees from doing what they ought to do. Such experiences have been described as stress of conscience because they give rise to a troubled conscience. Empirical studies indicate that health care employees, including nurses, sometimes refer to stress of conscience when faced with ethically difficult situations related to patient care.

Public Health Promotion In Bangladesh Through The Community Health Clinics: A Foucauldian Analysis, Biplab Kumar Halder

Journal of Health Ethics

The system of community health clinics in Bangladesh is contributing largely to improving the public health status of rural communities in Bangladesh. The significant success of this health promotion program leads medicine to its summit of power to influence the prevalent power structure in rural Bangladesh. A critical analysis of this paradigm shift is demanded in the context of public health. A Foucauldian analysis of the public health scenario of Bangladesh is most relevant in this context. In the paper, I propose a critical analysis of the public health apparatus of Bangladesh as manifested in the community health clinics, from …

Exploring Attitudes Toward Euthanasia Among Shelter Workers And Volunteers In Japan And The U.S., Maho Cavalier

HSU STUDENT THESES AND CAPSTONE PROJECTS

Conflicts between foreign and Japanese volunteers concerning decisions to euthanize animals that are in terminal condition were noted during anecdotal observation by this author at a Japanese animal rescue shelter. Thus, this research was undertaken to explore attitudes of shelter staff in Japan. As a point of comparison, U. S. shelter workers were also interviewed. Twenty current or former shelter workers (16 participants from Japan and 4 participants from the U.S.), ranging in age from 20 to 65, were interviewed. Face-to-face interviews were conducted with the Japanese participants; e-mail and/or Skype were used to conduct the interviews with the participants …

Opportunities And Challenges In The Use Of Personal Health Data For Health Research, Matthew J. Bietz, Cinnamon S. Bloss, Scout Calvert, Job G. Godino, Judith Gregory, Michael P. Claffey, Jerry Sheehan, Kevin Patrick

University of Nebraska-Lincoln Libraries: Faculty Publications

Objective: Understand barriers to the use of personal health data (PHD) in research from the perspective of three stakeholder groups: early adopter individuals who track data about their health, researchers who may use PHD as part of their research, and companies that market self-tracking devices, apps or services, and aggregate and manage the data that are generated.

Materials and Methods: A targeted convenience sample of 465 individuals and 134 researchers completed an extensive online survey. Thirty-five hourlong semi-structured qualitative interviews were conducted with a subset of 11 individuals and 9 researchers, as well as 15 company/key informants.

Results: Challenges to …

Privatization Of Biomedical Research: A Short Term Answer With Long Term Consequences, Frederick Azalekor

Nebraska College Preparatory Academy: Senior Capstone Projects

Biomedical research owned by the government is now available to be owned by private institutions. This results in stagnant innovations because researchers have trouble with all the restrictions that are placed by private institutions. Privatization of biomedical research has short term positive effects but its negative effects are overarching and disastrous. One way to combat this, is for licenses to be deployed slowly with future consequences in mind.

• Privatization has short term benefits but long term disadvantages are disastrous. • To reduce damaging effect, privatization must be deployed slowly and carefully. • Patents or proprietary ownership must be given …

Genetic Analysis And The Ethics Of Secondary Findings, Jacob Zieba 16

Honor Scholar Theses

No abstract provided.

Don't Know, Do Not Resuscitate: A Principle For The Creation Of The Kingdom Of Ends In The Icu, Griffen Isaac Allen

Honors Theses

In the United States today 20% of all Americans die in Intensive Care Units, or ICUs. These were developed in the 50s, 60s, and 70s to centralize medical resources to help treat critically ill patients with new technologies like ventilators, dialysis, and other tools that are now commonplace. This occurred simultaneously with the emergence of individualistic autonomy, understood as the patient's right to dictate their treatment, as the dominant force in medical ethics. Ostensibly both of these developments would seem beneficial for patients. However, the ultimate result is overly aggressive care that strips patients of their dignity and ensures that …

The Future Of Abortion Law In The United States, Gerard V. Bradley

Journal Articles

In 1971, Judith Jarvis Thomson published what was then and still often is regarded as a trailblazing philosophical defense of a woman’s right to have a lawful abortion. It is time to revisit Thomson’s paper. The aim here is not to engage Thomson’s pro-choice conclusions, which are indeed mistaken, but to show that her question—to what extent can abortion be morally justified, assuming that it is the deliberate killing of one person by his or her mother—is the question today in American law concerning abortion. Pro-life people and groups argue among themselves about the prudence of political efforts to roll …