Disability Studies Commons^™

Start With What They Know: Using Motivational Interviewing To Create A Cooking Class, A Culinary Intervention For Teens (Autistic And Non-Autistic), Gwendolyn S. Tedder

LEND Trainee Presentations

Autistic teens are at greater risk for having heart disease and diabetes as adults. Food particularity, sensory issues, fixed mindset, and anxiety over trying new things can slow down their interest in preparing food for themselves. Nurturing basic cooking skills and gently encouraging trying new foods would provide more nutritional options to teens as they move into adulthood. A cooking class preceded by Motivational Interviewing (MI) developed further interest in preparing food afterward in teens, both autistic and non-autistic, and in trying new foods for autistic teens with food concerns.

Effects Of Ndbi With Just-In-Time Programming Of Vsds On Communication Of Children With Asd, Jenna M. Rogers

College of Education and Human Sciences: Dissertations, Theses, and Student Research

Autism Spectrum Disorder (ASD) is a prominent neurological and developmental disability that often requires communication support, such as Augmentative and Alternative Communication (AAC). Visual Scene Displays (VSDs) are an AAC support that directly immerses in the user’s life, using images from real environments the user has or may experience. Naturalistic Developmental Behavioral Intervention (NDBI) is an evidence-based approach to early intervention that targets social communication during naturalistic routines, including those who rely on AAC support to communicate. Despite recent research indicating that combining NDBI and AAC is a promising approach (Pope et al., 2024), no studies to date have examined …

“I Should’Ve Listened!”: Lived Experiences Of Postsecondary Transitions Among Students With Emotional And Behavioral Disorders From Non-Traditional High Schools, Kristen De Rose

Dissertations

This phenomenological study explored the lived experiences of former students with EBD who attended a non-traditional high school. Eight semi-structured individual interviews were conducted to understand how students experienced emotional and academic supports during high school and throughout the transition into adulthood. Results revealed that participants appreciated attending a non-traditional school for its school connectedness, emotional and instructional supports, and school-based counseling. Additionally, findings suggest the school did not prepare them for the transition to post-secondary life. These findings suggest that emotional and academic support for students with EBD in non-traditional high school settings positively affected students’ sense of success …

Exploring Autistic Children’S Play Cycles Using The Play Cycle Observation Method (Pcom), Eleanor C. Mugford, Pete King

International Journal of Playwork Practice

The Play Cycle Observation Method (PCOM) enables researchers to observe and record the process of play based on the theory of the Play Cycle. While the PCOM has been used with both video footage and in real-time observation of neurotypical children, it has not previously been applied with neurodivergent children. This study involved ten one-hour naturalistic PCOM observations with nine autistic children during play sessions. The results demonstrated variability in play processes, with several styles of play behaviour observed, including differences in how play was initiated, sustained, and terminated. The findings both corroborate and challenge strands of the existing literature …

Transformational Leadership In Higher Education, Dr. Jewel Hale, Jr., Kristi Apostel

Tapestry: Journal of Research in Education

A crisis can highlight the critical need for resilient leadership within higher educational settings. Educational leaders encounter extraordinary difficulties, ranging from different learning options to prioritizing the well-being of both staff and students, necessitating flexible and innovative methods. By exploring how school leaders apply transformational techniques in actual educational environments, this article addresses the impact of the four I’s of transformational leadership, idealized influence, inspirational motivation, intellectual stimulation, and individualized consideration, on building educator resiliency, sustaining school effectiveness, and promoting student achievement in higher education.

Fierce Leadership-Perspectives Of Black Women Educational Leaders: A Transcendental Phenomenological Study, Janice Taylor, Dianne Reed

Tapestry: Journal of Research in Education

The authors of this transcendental phenomenological study aimed to describe the lived experiences of Black women based on their perceptions, values, and beliefs about the complexities of leadership and the kind of leadership required to succeed in their respective roles, as educational leaders. This study was framed by the adaptive leadership theory. Adaptive leadership recognizes the need for leaders to stay flexible and resilient in fast-paced environments (Nelson & Squires, 2017). The three Black women leaders in this study were fierce adaptive leaders. The information acquired from this study is significant and highlights how Black women educational leaders developed the …

Research Literacy And Research Production Skills As Core Competencies In Leaders, Kk O'Byrne

Tapestry: Journal of Research in Education

No abstract provided.

Beyond Words: Supporting Nonverbal Autistic Preschoolers With Exceptional Cognitive Abilities, Dawn Timms

Knowledge and Creativity Expo

This project explores how caregivers can support autistic preschoolers who are nonverbal yet demonstrate advanced cognitive abilities. Grounded in communication theory and neurodiversity‑affirming practice, it reframes communication as a shared, relational process that extends beyond spoken language. Drawing from interdisciplinary research, I created a strengths‑based caregiver communication toolkit that translates complex theory into clear, practical strategies families can use in everyday routines. This work honors the intelligence of children whose thinking outpaces their speech and equips caregivers with tools that make communication more accessible, responsive, and affirming.

Evaluating Sensory Sensitivities Among Children With Autism Spectrum Disorder In An Adaptive Gymnastics Program, Aicha Kaouss, Bradley Eppinger, Austin Ebbrecht, Kailash Ram, Kaitlin P. Hardy Md

Knowledge and Creativity Expo

Introduction: Children with autism spectrum disorder (ASD) participate in physical activity at lower rates than their neurotypical peers1. Sensory sensitivities, reported in approximately 75–95% of children with ASD, may contribute to this disparity2. Gymnastics environments involve bright lighting and loud noise, which can precipitate sensory overload. The impact of specific sensory features on participation in adaptive gymnastics remains underexplored.

Methods: A cross-sectional study recruited caregivers of children aged 3–12 years with an ASD diagnosis enrolled in the EVMS Adaptive Gymnastics Program. Caregivers completed the Sensory Experiences Questionnaire–Third Edition (SEQ-3)3 and supplemental survey items on Redcap which assessed environmental triggers and …

Voice And Pain: Representations Of Disability In Adaptations Of “The Little Mermaid”, Ace Molloy

Departmental Honors & Graduate Capstone Projects

Hans Christian Andersen’s 1837 story, “The Little Mermaid,” is a popular fairy tale that has been adapted several times by writers, filmmakers, and game developers. It is one of the few fairy tales with explicit portrayals of disability; the mermaid in the tale is nonspeaking and experiences chronic pain, as well as being a mermaid—a nonnormative figure who is aligned with disability. This paper looks at the ways that the mermaid is portrayed in literary, film, and new media adaptations from a disability-justice perspective. Examining multiple representations of the character, I argue that while feminist adaptations erase her disability and …

Evaluating The Impact Of A Lend-Based Family Mentorship Program For Pre-Service Professionals, Matthew Bogenschutz, Sarah Lineberry, Jackie Robinson Brock, Flip Grey, Kathryn Flinn

Developmental Disabilities Network Journal

Family-led pre-professional mentoring programs have been shown in past literature to have multiple positive outcomes, including better provider communication, increased sensitivity to the needs and contributions of family members in clinical settings, and better understanding of disability policy contexts among professionals. Yet there have been relatively few examples of exemplary programs that have developed successful models for family mentoring of pre-service professionals. Using qualitative evaluative data from one such program, a component of a Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program, this study shares the experiences of both families and trainees. Common themes shared between these two groups …

How Do State Labor Policies Impact Disability For Latino Adults In The U.S.?, Marc A. Garcia, Blakelee R. Kemp, Erin Bisesti

Population Health Research Brief Series

Latino adults in the United States experience a greater burden of disability than non-Latino White adults. This brief summarizes findings from a study using data from the 2000-2016 American Community Surveys (ACS) linked to annual state policy data (1998-2014) on Latino adults ages 45-85 across 25 U.S. states (N=1,183,438). The authors describe how state labor policies (i.e., disability insurance, minimum wage protections, paid sick leave, unemployment compensation) predict disability among Latino adults. The authors find that disability rates among Latino adults are lower in states with more liberal labor policy contexts. Liberal state policies appear protective for both U.S.-born and …

Boundless Community: A Developing Disability Arts Movement, Sarah K. Benson, Khaldoun Hijazin, Alaa Qattam, Suha Khuffash

Journal of Social Theory in Art Education

Over several years, individual organizations in Jordan have been focused on increasing the participation of individuals with disabilities in the arts. Increasing inclusion can provide a powerful tool to create visibility, amplify marginalized voices and disrupt normative narratives. However, these isolated efforts had a limited impact until a cohesive effort borne by a burgeoning community of practice led to the first Amman Arts and Disability Summit. Bringing together youth, artists and gallery owners, the movement leaders are using models of social learning and communities of practice to create a more inclusive arts community. The movement stands on the precipice of …

Analysis Of City Planning For Autism Spectrum Disorder, Joshua Ericson, Ben Shane

City and Regional Planning

Whether formally diagnosed or self-diagnosed, autism spectrum disorder affects children and adults in every corner of the planet. Every city in the world likely has autistic residents who have difficulty living in navigating their city due to their unique sensory, social, and economic needs. Many of these needs affect autistic people’s abilities to comfortably and independently navigate public spaces, attain a reliable method of transportation, and find housing that suits their needs. These issues could all be addressed with city planning and neuro-inclusive public policies, but to date few cities have considered autistic people in their planning. Cities inadvertently exclude …

Addressing Health Inequities For People With Intellectual And Developmental Disabilities In The Hospital Through Partnerships In Nurse Training, Suzannah Iadarola, Amanda Laprime, Samantha Hochheimer, Tabby Anvari, Carrie Baker, Jacqueline Goodman

Developmental Disabilities Network Journal

People with intellectual/developmental disabilities (IDD) deserve the same access to quality healthcare yet are at increased risk of medical and/or psychiatric conditions as compared to the general population. Patients with IDD have less health satisfaction, shorter life expectancy, less access to preventative care, higher chronic health conditions, overuse of certain medications, and increased mortality. This population and their caregivers report high levels of dissatisfaction with emergency/inpatient care. Nurses also express frustration with lack of training, limited resources, and competing priorities.

We developed the Advancing Supportive Care through Education for Nurses on Disability (ASCEND) Program, to build the capacity of inpatient/Emergency …

Parents’ Lived Experiences With Competitive Integrated Employment For Children With Intellectual And Developmental Disability, Dr. Aisha J. Omar

Developmental Disabilities Network Journal

This phenomenological qualitative study explores the lived experiences of Kentucky parents seeking Competitive Integrated Employment (CIE) for their children with intellectual and developmental disabilities (I/DD). Guided by the research questions—How do parents experience this process, and what barriers or supports do they encounter?—the study highlights systemic challenges despite legislative efforts such as the Americans with Disabilities Act and the Workforce Innovation and Opportunity Act. In-depth interviews with five parents revealed three themes: (a) parental transformation and the pursuit of meaningful work, (b) systemic challenges in accessing CIE, and (c) overcoming protective instincts: navigating fear, independence, and self-advocacy. Findings suggest a …

Inaccessibility Harms: Exploring The Impact Of Inaccessible Campus Organizations On Disabled Students, Francis W. Q. Corvin, Natalie G. Horgan

Purdue Journal of Service-Learning and International Engagement

There are 3.5 million Disabled college students in the United States, with 4,671 utilizing disability services at Purdue University. Nationwide, 8–14% of students in higher education are Disabled, indicating a substantial number of students whose needs should be prioritized and supported. Inaccessibility impacts the way Disabled college students are able to engage with the college experience. Inaccessible classes, restrooms, clubs, job fairs, and campuses create significant barriers thatthat extend far beyond the classroom. Disabled students face challenges in securing scholarships, finding employment, graduating on time, and achieving long-term socioeconomic stability. Recognizing these barriers, HonorServes, a community service student committee at …

The Year Of The Buttered Cat: A Mostly True Story [Book Review], Valarie A. Turner

Disability in LIS (DisLIS)

Lexi Haas's voice and body were stolen when unmonitored newborn jaundice caused her to develop a rare form of cerebral palsy. This dual timeline memoir takes you on a gift-discovering journey, illustrating that Lexi's spirit speaks volumes.

Children And Youth With Special Health Care Needs (Cyshcn) Regional Support Centers (Rsc): A Framework For Effectively Engaging Stakeholders, Jenna Lequia, Susan Burlazzi, Abby Beer, Miriam Franco, Kathleen Mcgrath, Angel Morales, Joanne Siegel, Susan Hetherington, Tricia Patrick

Developmental Disabilities Network Journal

The three University Centers for Excellence in Developmental Disabilities (UCEDDs) in New York served as Children and Youth with Special Health Care Needs (CYSHCN) Regional Support Centers (RSC). The RSCs aimed to increase the capacity of local CYSHCN programs to connect with and support CYSHCN and their families in their community. RSCs conducted activities in the areas of family engagement, training and educational materials development, and technical assistance. RSCs engaged in ongoing dialogue with CYSHCN and their families to learn about experiences to inform systemic improvements through focus groups, interviews, and surveys. This article describes a statewide framework to serve …

From Strain To Strength: A Narrative Review Of Wellness Dimensions In Caregiving, Valerie Perkoski

Developmental Disabilities Network Journal

This narrative review investigates the positive aspects of being a family caregiver for individuals with developmental disabilities (DDs) using the National Wellness Institute’s Six Dimensions of Wellness (Emotional, Physical, Intellectual, Occupational, Spiritual, and Social). While much research has traditionally focused on “caregiver burden,” this review highlights the often-overlooked beneficial outcomes of caregiving. Emotional wellness is enhanced through gratitude and resilience. Physical wellness is discussed through interventions like physical activity, which can reduce caregiver distress. Intellectual wellness emphasizes personal growth and self-actualization, helping caregivers find fulfillment in their roles. Occupational wellness shows that employment and community engagement can reduce anxiety among …