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Parents’ Perceptions Of The Philly Goat Project’S All Abilities Ramble: A Qualitative Study Of Animal-Assisted Intervention For Intellectual And Developmental Disorders, Patricia Flaherty-Fischette, Jenée Lee, Yvonne D'Uva-Howard, Elizabeth P. Cramer, Karen Krivit, Sarah Meehan 2023 Bryn Mawr College Graduate School of Social Work and Social Research

Parents’ Perceptions Of The Philly Goat Project’S All Abilities Ramble: A Qualitative Study Of Animal-Assisted Intervention For Intellectual And Developmental Disorders, Patricia Flaherty-Fischette, Jenée Lee, Yvonne D'Uva-Howard, Elizabeth P. Cramer, Karen Krivit, Sarah Meehan

Developmental Disabilities Network Journal

Individuals with intellectual and developmental disabilities (IDD) are a growing population. Considering the wide diversity in IDD and the financial burden of traditional treatment modalities, Animal-Assisted Interventions (AAI) has emerged as an innovative and non-traditional treatment for individuals with a range of disabilities, including individuals with IDD. To the authors’ knowledge, the present study was one of the first to explore a goat-assisted therapy experience for children with IDD. This study explored the experiences of 23 children with the All Abilities RAMble – a goat-assisted therapeutic activity offered by the Philly Goat Project (PGP). Key themes in our study included …


Toward An Equity-Driven Conceptual Model Of Covid-19 Vaccine Decision-Making For People With Idd, Lydia Ocasio-Stoutenburg, Reese Triana, Shelly Baer, Jairo Arana, Ana C. Sale, Douglene Jackson, Michelle Schladant, Nastasia Boulos, Grace Dima, Jeffrey Brosco 2023 The Pennsylvania State University

Toward An Equity-Driven Conceptual Model Of Covid-19 Vaccine Decision-Making For People With Idd, Lydia Ocasio-Stoutenburg, Reese Triana, Shelly Baer, Jairo Arana, Ana C. Sale, Douglene Jackson, Michelle Schladant, Nastasia Boulos, Grace Dima, Jeffrey Brosco

Developmental Disabilities Network Journal

COVID-19 presented a public health emergency in the U.S., resulting in severe illness, hospitalizations, high mortality rates, and long-term adverse health care conditions. Several studies examined the disparities in transmission rates, barriers to care, and negative health outcomes for persons with disabilities, particularly people with intellectual and developmental disabilities (I/DD). While data revealed similar trends among Black, Hispanic or Latino/a/x/e, Native, Indigenous, and Asian people, outcomes are compounded for people of color with I/DD. Several historical, pervasive, systemic, structural, and attitudinal barriers have constrained healthcare access and adequate treatment, instigating feelings of distrust among those in systems of care. Although …


State Oversight Of Polypharmacy And Psychotropic Medication Use Among Individuals With Intellectual And Developmental Disabilities: A Three State Case Study, James Houseworth, Kami L. Gallus, TIffany Greene, Steven R. Erickson, Jennifer Lynn Jones, Laura Vegas 2023 Institute on Community Integration, University of Minnesota

State Oversight Of Polypharmacy And Psychotropic Medication Use Among Individuals With Intellectual And Developmental Disabilities: A Three State Case Study, James Houseworth, Kami L. Gallus, Tiffany Greene, Steven R. Erickson, Jennifer Lynn Jones, Laura Vegas

Developmental Disabilities Network Journal

Adults with intellectual and developmental disabilities (IDD) are prescribed more medications than the general population, placing them at significantly higher risk for issues due to taking multiple medications (polypharmacy). There are currently no clear national standards for the administration of medications given this risk. The following policy analysis explores state policies related to prescription medication oversight. This analysis pays particular attention to the use of medications that alter one’s mental state (psychotropics) among people with IDD who receive home and community-based services (HCBS) in the United States. The article outlines current efforts implemented to reduce medication-related risks for people with …


Reimagining Disability: A Call To Action, Paritosh Joshi, Julia Pappageorge 2023 Teachers College, Columbia University

Reimagining Disability: A Call To Action, Paritosh Joshi, Julia Pappageorge

Developmental Disabilities Network Journal

This article focuses on how the medical profession, organizations, and universities should incorporate the social model of disability into their regulations and policies to advance justice for individuals with disabilities. Traditionally, disability has been viewed through the medical model, which postulates that one’s individual body or mind is medically impaired and diminishes the person’s quality of life. The model overemphasizes individual difference or disability diagnosis as something that should be treated at an individual level through medical intervention, and ignores social factors that impact the development of physical and mental conditions. Moreover, this pervasive attitude towards disability permeates institutions and …


Reaching Consensus On The Future Direction Of A Resource Center Within A Ucedd: A Quality Improvement Delphi Project, Emily J. Hickey PhD, Amy D. Whitehead MPA, Rachel Weingarten BS, Leann Smith DaWalt PhD 2023 University of Wisconsin-Madison

Reaching Consensus On The Future Direction Of A Resource Center Within A Ucedd: A Quality Improvement Delphi Project, Emily J. Hickey Phd, Amy D. Whitehead Mpa, Rachel Weingarten Bs, Leann Smith Dawalt Phd

Developmental Disabilities Network Journal

Individuals with intellectual and developmental disabilities and their families need access to timely, quality information and assistance about relevant services and supports. Despite statewide systems of information and assistance for this population, there is a need for “in-the-moment” assistance for individuals and family members who participate in on-site research, training and or service delivery at the Waisman Center. The aim of this quality improvement project was to clarify the role of an internal Resource Center so as to align with the staff resources available and not duplicate statewide systems of support.

The Waisman Center at the University of Wisconsin-Madison the …


Caregiver Health: Having A Child With Asd And The Impact Of Child Health Insurance Status, Kristin Hamre, Derek Nord, John Andresen 2023 Indiana University, Bloomington

Caregiver Health: Having A Child With Asd And The Impact Of Child Health Insurance Status, Kristin Hamre, Derek Nord, John Andresen

Developmental Disabilities Network Journal

This study aims to understand the health outcomes of parents with children with autism spectrum disorder (ASD) and the interactive effect of child health insurance status. The study utilized 2014-2018 pooled National Health Interview Survey data to construct weighted national estimates and construct main and interaction effect logistic regression models. Findings show parents of children with ASD experienced significantly poorer health compared to parents of children without autism. Insurance status was found to significantly interact with child ASD status. Compared to parents of children without ASD that used private insurance, parents with a child with ASD who used private insurance, …


Health And Quality Of Life Among People With Intellectual And Developmental Disabilities And Direct Support Professionals During The Early United States Covid-19 Pandemic, Erin Vinoski Thomas, Bridgette M. Schram, Sombal Bari, Rachel Odunlami, Kristina M. Ormond, Sydnie E. Smith 2023 Georgia State University

Health And Quality Of Life Among People With Intellectual And Developmental Disabilities And Direct Support Professionals During The Early United States Covid-19 Pandemic, Erin Vinoski Thomas, Bridgette M. Schram, Sombal Bari, Rachel Odunlami, Kristina M. Ormond, Sydnie E. Smith

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) and the direct support professionals (DSPs) who support them have faced unique risks to their health and quality of life (QoL) throughout the COVID-19 pandemic. We sought to understand how COVID-19 has influenced QoL and overall well-being among these populations. We conducted a Rapid Qualitative Inquiry study with a sample of people with IDD and DSPs (n = 18) to gain deeper perspectives about QoL and well-being during the pandemic. Participants described that changes in QoL were typically negative and influenced primarily by reduced socialization and impacts on health and independence; however, …


Contributions Of Community Organizations To Personal Outcomes For People With Intellectual And Developmental Disabilities: A Study Of Special Olympics Program Participation, Seb M. Prohn, Parthenia Dinora, Kayla Diggs Brody 2023 Virginia Commonwealth University

Contributions Of Community Organizations To Personal Outcomes For People With Intellectual And Developmental Disabilities: A Study Of Special Olympics Program Participation, Seb M. Prohn, Parthenia Dinora, Kayla Diggs Brody

Developmental Disabilities Network Journal

Community organizations can enhance the intellectual and developmental disability (I/DD) service system’s ability to improve the health, wellness, and participation of people with I/DD. This study added an item about Special Olympics (SO) participation to the 2019-2020 National Core Indicators In-Person Survey to predict active SO participation and to determine whether personal outcomes differed for SO participants. Results of a multinomial logistic regression showed that people who were younger or who did not require mobility aids were more likely to participate in SO. Compared with people who never or formerly participated in SO, current SO athletes had better personal outcomes. …


Acknowledgments, Matt Wappett 2023 Utah State University

Acknowledgments, Matt Wappett

Developmental Disabilities Network Journal

No abstract provided.


Investigating The Longitudinal Relationship Between Social Motivation And Depression In Autistic Adults, Robyn H. Himelstein 2023 Rowan University

Investigating The Longitudinal Relationship Between Social Motivation And Depression In Autistic Adults, Robyn H. Himelstein

Theses and Dissertations

Autism affects individuals across the lifespan, yet there tends to be limited research and services for autistic adults. This is especially concerning given that autistic adults have high mental health needs, with depression being one of the most common and clinically significant co-occurring conditions. We explored the longitudinal relationships between social motivation, social access (i.e., having opportunities for meaningful social interactions), loneliness, and depression in N=303 autistic adults ages 18-65. Participants completed online surveys about social behavior and wellbeing three times over 3–4 months. We hypothesized that an interaction between higher social motivation and lower social access at Time 1 …


Finding The Why: Trauma's Origins And Effects In Morrison's The Bluest Eye, Hope Lopez 2023 Texas A&M International University

Finding The Why: Trauma's Origins And Effects In Morrison's The Bluest Eye, Hope Lopez

Theses and Dissertations

This thesis analyzes the effects of Toni Morrison’s first novel, The Bluest Eye, on its readers and the public discourse surrounding the central issue of systemic racism and incest. The central focus of the analysis is trauma in the novel: how Morrison captures that trauma in writing, how the reader encounters and interprets that trauma, and the effects of that trauma on the narrative and the reader. To construct this argument, I apply the lenses of reader response criticism, psychoanalysis, and trauma studies to the novel.

Morrison expressed concern that readers would miss the crucial message of why the …


Disability Identity In Samuel Taylor Coleridge's Letters, Jackson Fields 2023 The University of Southern Mississippi

Disability Identity In Samuel Taylor Coleridge's Letters, Jackson Fields

Master's Theses

This thesis focuses on letters written by British Romantic author Samuel Taylor Coleridge, who wrote about his chronic illness during the period of emerging modern ideas of disability. Coleridge’s letters are valuable to readers in the twenty-first century because they enable us to track the formation and negotiation of Coleridge’s disability identity. As one of the most important thinkers and authors in the English language, Coleridge has a lot to teach us about how one can understand their illnesses, medical authority, and the influences of disability on friendships and social roles. This thesis considers Coleridge’s letters to his loved ones …


American Community Survey (2021), John Shepard, Jean Winsor, John Butterworth, Alberto Migliore, Daria Domin, Agnes Zalewska 2023 Institute for Community Inclusion

American Community Survey (2021), John Shepard, Jean Winsor, John Butterworth, Alberto Migliore, Daria Domin, Agnes Zalewska

All Institute for Community Inclusion Publications

This Data Note summarizes employment and poverty rates across the US in 2021. These data are compared for people with no disability, people with any disability, and people with a cognitive disability, which indicate that people with disabilities continue to have less success in the labor market, and a greater likelihood of being underemployed, compared to individuals without a disability.


Datanote: Vocational Rehabilitation Services And Outcomes Of People With Intellectual Disabilities: 2013–2022, Jean Winsor, John Butterworth, Alberto Migliore, John Shepard 2023 Institute for Community Inclusion

Datanote: Vocational Rehabilitation Services And Outcomes Of People With Intellectual Disabilities: 2013–2022, Jean Winsor, John Butterworth, Alberto Migliore, John Shepard

All Institute for Community Inclusion Publications

This DataNote describes the characteristics, services received, and employment outcomes of adults with an intellectual disability (ID) who exited from the vocational rehabilitation (VR) program during fiscal years (FY) 2013 through 2022, in the 50 states and the District of Columbia (DC). We compare the findings of adults with ID to the findings of people with other disabilities.


Improving Communication Access With Deaf People Through Nursing Simulation: A Cross-Disciplinary Collaboration, Jamie L. McCartney Ph.D., Tracy Gidden, Jennifer Biggs, Kathy Geething, Karl Kosko Ph.D. 2023 Kent State University

Improving Communication Access With Deaf People Through Nursing Simulation: A Cross-Disciplinary Collaboration, Jamie L. Mccartney Ph.D., Tracy Gidden, Jennifer Biggs, Kathy Geething, Karl Kosko Ph.D.

Journal of Gender, Ethnic, and Cross-Cultural Studies

Baccalaureate nursing and sign language interpreting students participated in a pediatric discharge simulation with a deaf person playing the role of the baby’s parent. At the conclusion of the simulation, participants were emailed a consent letter and a link to a 17-item questionnaire developed by the authors. Responses were analyzed both quantitatively and qualitatively, whereby nonparametric statistics were calculated to examine Likert-scale items. A Mann-Whitney test statistic was calculated, instead of an independent samples t-test, given the smaller sample in the current study (n = 26). A question was posed to participants that evaluated their self-perception of the effectiveness of …


The Moderating Effect Of Positive Sexual Self-Concept On The Relationship Between Disability Impact And Satisfaction With Life., Alexandra M. Kriofske Mainella, Bianca Tocci 2023 Marquette University

The Moderating Effect Of Positive Sexual Self-Concept On The Relationship Between Disability Impact And Satisfaction With Life., Alexandra M. Kriofske Mainella, Bianca Tocci

Journal of Gender, Ethnic, and Cross-Cultural Studies

Research has been produced assessing both the concept of Life Satisfaction and the impact of disability. However, there has been a lack of research assessing the intersection of disability, sexuality, and life satisfaction. This study sought to understand the relationship between improved sexual self-concept, life satisfaction, and disability impact. Sexual self-concept was examined as a moderator of the relationship between disability impact and life satisfaction. It was hypothesized that improved sexual self-concept among those living with a disability will have a positive and correlating effect on life satisfaction. Additionally, it was hypothesized that the relationship between disability impact and satisfaction …


“She Was No Taller Than Your Thumb. So She Was Called Thumbelina”: Gender, Disability, And Visual Forms In Hans Christian Andersen’S “Thumbelina” (1835), Hannah J. Helm 2023 University of Salford (United Kingdom)

“She Was No Taller Than Your Thumb. So She Was Called Thumbelina”: Gender, Disability, And Visual Forms In Hans Christian Andersen’S “Thumbelina” (1835), Hannah J. Helm

Journal of Gender, Ethnic, and Cross-Cultural Studies

This article explores representations of femininity and disability in Hans Christian Andersen’s fairy tale “Thumbelina” (1835) and select examples of his paper art. In this article, I argue that, on one level, the fairy tale and Andersen’s own paper cuttings uphold feminine and ableist norms. However, on another level, these literary and visual forms simultaneously work to destabilise social prejudices and challenge bodily normativity. I explore how characters and themes associated with the fairy tale and paper art can be (re)read in strength-based ways. In the story, Thumbelina experiences the world through her smallness, and key themes including accessibility, physical …


Enigmatic, Tragic, Crip; Or, Crip Time In Sophocles’S Oedipus And Aristotle’S Poetics, Maxwell Gray 2023 Marquette University

Enigmatic, Tragic, Crip; Or, Crip Time In Sophocles’S Oedipus And Aristotle’S Poetics, Maxwell Gray

Journal of Gender, Ethnic, and Cross-Cultural Studies

Tragedy represents a classical literary genre the field of disability studies often prefers not to approach too closely, lest disability also be called a tragedy by association. At the same time, my thinking is organized around my personal experience of chronic illness, pain, and disability that appear in early adulthood, when it’s maybe least expected and most difficult to comprehend; or, in a word, tragic. I turn to the literary genre of classical Greek tragedy to think about/with more enigmatic and tragic forms of disability and crip temporality. In particular, I read Sophocles’s classic tragedy Oedipus and Aristotle’s foundational interpretation …


Judging The Body: Disability, Class And Citizen Identity—A Case Study From An Ancient Greek Lawcourt, Justin L. Biggi 2023 University of St Andrews

Judging The Body: Disability, Class And Citizen Identity—A Case Study From An Ancient Greek Lawcourt, Justin L. Biggi

Journal of Gender, Ethnic, and Cross-Cultural Studies

This paper aims to showcase how one person's disabled identity—that of the unnamed defendant of the legal speech Lysias 24, who was accused of faking his disability to obtain social security payments—interacted with wider conceptions of citizen identity and citizenship in 5th century BCE Athens. This paper brings a much-needed intersectional approach to the speech: by viewing the speaker's disabled identity as shaped by his economical status (and vice-versa), this in turn shapes the way we can interpret his experience of citizen identity, as well as his sense of belonging to a citizen body. Recent approaches in critical theory …


“Handicap Removed”: An Alternative Path To The Social Model, Craig M. Rustici 2023 Hofstra University

“Handicap Removed”: An Alternative Path To The Social Model, Craig M. Rustici

Journal of Gender, Ethnic, and Cross-Cultural Studies

This article identifies an expression of a social model of disability in a 1966 film promoting Hofstra University’s Program for the Higher Education of the Handicapped and traces that model back to books published by the pioneering rehabilitation physician Henry H. Kessler in 1935 and 1947, decades before the UPIAS (Union of the Physically Impaired against Segregation) Fundamental Principles of Disability (1976). In light of Kessler’s articulation of social and minority models, identification of contrasting religious, charity and medical models, and discussion of disability stigma, this article reassesses Ruth O’Brien’s critique, in Crippled Justice (2001), of Kessler and the twentieth-century …


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