Disability Studies Commons^™

From Crip Time To Care Time: How Library Administrators Can Support Professional Development Of Disabled Employees, Leah T. Dudak, Rhys Dreeszen Bowman Dr.

School of Information Studies - Post-doc and Student Scholarship

Building on our 2025 In the Library with the Lead Pipe article "Cripping Conferences", this piece moves from naming the problem to offering solutions to library administrators. Disabled library workers face significant barriers to professional development, including the financial cost of attendance, the physical and mental toll of navigating inaccessible spaces, and the conflict between crip time and the neoliberal clock time that governs academic and library culture. While accommodations are needed, they are not enough; we need to interrogate the systems that exclude disabled employees. Written by two disabled LIS scholars, this piece offers library administrators practical guidance, from …

Disproportionality And Possibilities: State-Level Policy Recommendations For Special Education Oversight In A Shifting Federal Landscape, Amanda B. Roberts

Electronic Theses and Dissertations

This study employed a convergent parallel mixed-methods design to explore how U.S. states identify and respond to disproportionality in special education within a shifting federal policy landscape. As uncertainty surrounds the future role of the U.S. Department of Education, questions have emerged about states’ capacity to safeguard educational equity. Without federal oversight, states would assume responsibility for maintaining protections for students with special needs, making it critical to strengthen safeguards for marginalized and underresourced populations.

This study analyzed the current special education governance structures nationwide to inform equity-oriented policy and practice recommendations. Quantitative data were collected from Individuals with Disabilities …

"I Belong Here": The Ucla Leadership Academy For Emerging Disability Rights Leaders, Blake E. Warner, Jasper A. Estabillo, Elisabeth Cincione, Julianna Martinez, Yasamin Bolourian, Kashia A. Rosenau, Elizabeth A. Laugeson

Developmental Disabilities Network Journal

The UCLA Leadership Academy for Emerging Disability Rights Leaders was developed to address the gap between advocacy training and systems-level leadership opportunities for disabled people. Rooted in the principles of co-production, accessibility, and relevance, the Leadership Academy equips participants with advocacy, storytelling, and testimony skills through a structured, interactive curriculum supported by coaches and program graduates with lived experience. This paper presents findings from two phases of evaluation: (1) a pilot study with the first cohort, examining the program's feasibility and acceptability through retention, attendance, and participant satisfaction data; and (2) interviews with program graduates who returned in a mentorship …

Engaging Immigrant Families Of Children With Disabilities: Recommendations For Practitioners, Robai N. Werunga, John William Mckenna, Rocio Rosales

Developmental Disabilities Network Journal

Family involvement is essential for positive school outcomes. Yet research suggests that family engagement for students with disabilities may be marked by conflict. Furthermore, creating an environment that promotes active engagement for immigrant families may be challenging. In this paper, we synthesize existing research, legal guidance, and community-engaged insights to present four practice-oriented recommendations for educators and practitioners working with immigrant families of children with disabilities. Grounded in Hans and Love’s stages of immigrant family engagement, these recommendations aim to support meaningful and culturally responsive participation in special education processes.

Disability Rates Among South Asian Immigrants In The U.S. Vary By Country Of Origin, Sobia Mushtaq, Marc A. Garcia

Population Health Research Brief Series

South Asian immigrants are often grouped together in U.S. health data, masking significant differences in health outcomes across subgroups. This brief uses data from the American Community Survey (ACS) 5-Year Public Use Microdata Sample (N = 6,643,738; 2020–2024) to describe disability rates among foreign-born adults from India, Pakistan, and Bangladesh residing in the U.S. The authors find that while South Asian immigrants as a group have lower disability rates than U.S.-born adults, this average is driven largely by Indian immigrants, who make up about 79% of South Asians in the U.S. Among adults aged 65 and older, Bangladeshi immigrants have …

Sermon On The Spectrum, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.

"Everyone Leaves Me Behind”: How Harmful Tropes In Fiction Impact Autistic Women, Sara E. Allard

Ought: The Journal of Autistic Culture

Until now, females with ASD have been ignored by healthcare professionals, policymakers, and the general public. The unique presentation of autistic women and girls is now in the cultural spotlight within not just the advocacy and scientific community, but also the arts. Female autistic characters are getting increased representation across literature and television, yet their narratives are still often stuck in the past. Most authors and screenwriters have yet to understand the specific struggles that female autistics face compared to their male counterparts, relying on the outdated, reductive perceptions that have plagued them for decades.

This article outlines three harmful …

Living Through Misinformation: An Autoethnography Of Autism In Chinese Communities, Joy Lu

Ought: The Journal of Autistic Culture

This critical autoethnographic essay examines how misconception, misinformation, and disinformation shape understandings of autism within Chinese communities and produce tangible harm for autistic individuals and their families. Drawing on lived experience, advocacy work, digital observation, and cross-cultural analysis, it explores how language, medical practices, social media, and professional authority sustain persistent misrepresentation.

The essay argues that this misinformation is not merely the result of ignorance, but a socially reinforced and institutionally supported system of knowledge. By situating personal encounters within broader cultural and structural contexts, it highlights the interconnected roles of language, power, and exclusion in shaping autistic lives. It …

The Unexpected Gift: Using Hip-Hop And Autoethnographic Methods To Challenge The “Symbolic Death” Discourse Of A Child’S Autism Diagnosis, Adam Ellis

Ought: The Journal of Autistic Culture

This article explores the social construction of autism through an autoethnographic account of parenting an autistic child in Canada. Drawing on Elisabeth Kübler-Ross’s grief model, neurodiversity scholarship, and post-traumatic growth theory, the paper examines how parents may experience grief, uncertainty, and the collapse of imagined futures following an autism diagnosis, while also arguing that much of this distress is produced by ableist and deficit-oriented social systems rather than autism itself. Using arts-based research, including a rap song and music video, the article explores: (1) what it is like to receive an autism diagnosis as a parent; (2) the grieving process …

When Distress Is Misread: Autistic Credibility And The Politics Of Interpretation, Katrine Callander

Ought: The Journal of Autistic Culture

Misinformation about autism is often understood as a problem of inaccurate facts, stereotypes or public misunderstanding. This essay argues that misinformation also operates through dominant interpretive frameworks that shape how autistic experiences are recognised, understood and believed. Drawing on participatory narrative research with autistic women, the essay examines how institutions frequently reinterpret experiences of harm as personality dysfunction, emotional instability or individual deficit rather than recognising them as relational and socially produced. Autistic forms of communication and storytelling are often treated as signs of unreliability, shaping whose accounts are considered credible within clinical and institutional contexts. By reframing these patterns …

Misinformation Machine, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.

Minimizing The Gap Between Church And Disability In Churches Of Christ, Paris Freeman

Discernment: Theology and the Practice of Ministry

Church members with intellectual and developmental disabilities often experience disconnection from their churches. This qualitative study examined this disconnect in three suburban Church of Christ congregations within the North Texas area. Using an ethnographic approach, data was collected through interviews with ministry leaders, participatory observation, and a literature review. The analysis of the data, in conjunction with family systems theory, was utilized to construct a model for disability ministry which validates personhood and promotes awareness of self and others. The impact of the church growth movement on disability was also examined, but no definitive correlation could be determined. Further research …

Cross-Cultural Differences Among Children And Youth With Special Health Care Needs: A Mixed-Methods Analysis Of Chinese, Spanish, And English-Speaking Families, Kathleen Mcgrath, Miriam Franco, Amy Morales-Lara, Karen Bonuck Phd, Joanne Siegel

Developmental Disabilities Network Journal

One in five U.S. children has a special health care need, with prevalence rates rising each year. Children and youth with special health care needs (CYSHCN) from immigrant and/or non-English speaking families face heightened barriers to care, unmet health needs, and worsened health outcomes. This mixed-methods study explores cross-cultural similarities and differences among English-, Spanish-, and Chinese-speaking families of CYSHCN across four key domains – (1) the diagnostic process, (2) access to essential services, (3) community integration, and (4) social supports. As part of a statewide, New York State Department of Health funded initiative implemented across three University Centers for …

Assessing The Influence Of Disability Views On Perceptions Of Hearing Aids Among Older Korean Adults, Stasha Lee

Dissertations, Theses, and Capstone Projects

Background

Age-related hearing loss, also known as presbycusis, is highly prevalent among older adults, yet hearing aid adoption remains low, in part due to concerns about stigma and negative social perceptions. This study aimed to examine whether attitudes towards disabilities influence perceptions of individuals wearing hearing aids among older Korean adults. It also explored the potential effects of cultural identity and the age of the individual wearing the hearing aid on these perceptions.

Methods

Ten participants completed the Attitudes and Perspectives on Persons with Disabilities (APPD) questionnaire and rated 8 different images of individuals (one younger male and one older …

Enhancing Ecological Validity In Speech-In-Noise Testing: Integrating Virtual Reality For A Multisensory Audiological Experience, Paulina Lee

Dissertations, Theses, and Capstone Projects

Despite the remarkable advances in hearing healthcare technology, the speech recognition tests used in routine clinical audiological assessment have remained essentially the same for decades.  Monosyllabic word recognition tests in quiet, such as the Northwestern University Auditory Test No. 6 (NU-6; Tillman & Carhart, 1966), have served as the audiology field’s default measure of speech understanding.  Modern speech-in-noise (SIN) tests, such as the QuickSIN (Killion et al., 2004), have emerged, yet they remain auditory-only, leaving an unignorable gap between what clinical tests measure and how patients communicate in daily life.  The present study examined whether pairing a standard SIN test …

Disability Experiences Of University Students: An Interview Study, Cece Austin

University Honors Theses

This thesis explores the experiences of college/university students with disabilities within the educational system. Using a qualitative research design, semi-structured interviews were conducted with students who identify as disabled or having disabilities in order to explore impacts of disability on their lives, with a focus on experiences navigating academic environments and accessing accommodations. Findings revealed two recurring themes: 1) the importance of both registered accommodations and accessibility efforts from faculty, and 2) difficulties with accommodations, internalized ableism, and disclosure. This research contributes to broader discussions on disability, inclusion, and educational equity by highlighting the lived experiences of students with disabilities …

From Access To Success: Addressing Barriers For Students With Disabilities In Higher Education, Melissa Wood

Inquiry: The Journal of the Virginia Community Colleges

Over the past several decades, enrollment of students with disabilities in higher education has steadily increased. However, disparities in retention and degree completion persist. Although federal laws such as the ADA and Section 504 of the Rehabilitation Act guarantee equal access, many students continue to encounter barriers that affect their academic experience. These challenges are often more pronounced in community colleges, which serve diverse populations and often operate with limited resources. This paper examines two key barriers and highlights best practices that institutions can implement to improve accessibility, strengthen support systems, and promote persistence and success for students with disabilities.

Empowering Lifelong Choice: Supporting Older Individuals With Idd To Thrive At Work, Transition To Retirement With Dignity, And Maintain Community Connections, Leslie Quarles

Critical and Creative Thinking Capstones Collection

This synthesis addresses the need to support older individuals with intellectual and developmental disabilities in their engagement in continued work. The project traces the journey from an initial focus on supporting older individuals with intellectual and developmental disabilities to work as long as they wish to an eventual shift toward a phased retirement approach. It considers issues such as a reimagined visualization of the support team structure, integration of tailored job supports and Community Life Engagement (CLE). The author's familial history sparked a sense of injustice that would not stay buried, shaping a career path in disability services and access. …

Applying A Neurodiversity-Informed Approach To Understanding Resolution In Families Raising A Child With Autism, Emma Manole

Honors College Theses

The first known documentation of the syndrome we today refer to as autism spectrum disorder (ASD) was published by Austrian psychiatrist Leo Kanner (1943), who identified a cluster of disordered symptoms among 11 young children, which he termed “early infantile autism”. Consequently, the psychiatric world became aware of autism as its own disorder separate from schizophrenia or “childhood psychosis” (Wing, 1997). Since then, the ways in which autism is studied, diagnosed, referred to, defined, and treated have seen drastic changes (Blacher & Christensen, 2011) over the course of almost a century. It is only natural that the perceptions held by …

Reclamando Corazón Y Voz: Latinas Speak Their Truth Through Plática As Resistance In California Community College Learning Disabilities Assessments, Maricela Becerra

Dissertations

Although California Community Colleges (CCCs) offer learning disability (LD) assessments to determine eligibility for academic accommodations, for Latina students navigating converging forces of race, gender, language, citizenship, and ableism, these assessments often surface unspoken histories of harm. This study advanced Chicana feminista DisCrit (CFDC), extending disability critical race theory through Chicana spirituality and cultural intuition to examine possibilities when an educadora situates assessments in a plática grounded in consideración—respectful, relational, and unhurried care.

Rooted in Chicana feminist pláticas methodology and authored from the positionality of a disabled Latina scholar–practitioner, this qualitative decolonial dissertation explored how Latina students reflected on …