Disability Studies Commons^™

"Everyone Leaves Me Behind”: How Harmful Tropes In Fiction Impact Autistic Women, Sara E. Allard

Ought: The Journal of Autistic Culture

Until now, females with ASD have been ignored by healthcare professionals, policymakers, and the general public. The unique presentation of autistic women and girls is now in the cultural spotlight within not just the advocacy and scientific community, but also the arts. Female autistic characters are getting increased representation across literature and television, yet their narratives are still often stuck in the past. Most authors and screenwriters have yet to understand the specific struggles that female autistics face compared to their male counterparts, relying on the outdated, reductive perceptions that have plagued them for decades.

This article outlines three harmful …

Living Through Misinformation: An Autoethnography Of Autism In Chinese Communities, Joy Lu

Ought: The Journal of Autistic Culture

This critical autoethnographic essay examines how misconception, misinformation, and disinformation shape understandings of autism within Chinese communities and produce tangible harm for autistic individuals and their families. Drawing on lived experience, advocacy work, digital observation, and cross-cultural analysis, it explores how language, medical practices, social media, and professional authority sustain persistent misrepresentation.

The essay argues that this misinformation is not merely the result of ignorance, but a socially reinforced and institutionally supported system of knowledge. By situating personal encounters within broader cultural and structural contexts, it highlights the interconnected roles of language, power, and exclusion in shaping autistic lives. It …

The Unexpected Gift: Using Hip-Hop And Autoethnographic Methods To Challenge The “Symbolic Death” Discourse Of A Child’S Autism Diagnosis, Adam Ellis

Ought: The Journal of Autistic Culture

This article explores the social construction of autism through an autoethnographic account of parenting an autistic child in Canada. Drawing on Elisabeth Kübler-Ross’s grief model, neurodiversity scholarship, and post-traumatic growth theory, the paper examines how parents may experience grief, uncertainty, and the collapse of imagined futures following an autism diagnosis, while also arguing that much of this distress is produced by ableist and deficit-oriented social systems rather than autism itself. Using arts-based research, including a rap song and music video, the article explores: (1) what it is like to receive an autism diagnosis as a parent; (2) the grieving process …

When Distress Is Misread: Autistic Credibility And The Politics Of Interpretation, Katrine Callander

Ought: The Journal of Autistic Culture

Misinformation about autism is often understood as a problem of inaccurate facts, stereotypes or public misunderstanding. This essay argues that misinformation also operates through dominant interpretive frameworks that shape how autistic experiences are recognised, understood and believed. Drawing on participatory narrative research with autistic women, the essay examines how institutions frequently reinterpret experiences of harm as personality dysfunction, emotional instability or individual deficit rather than recognising them as relational and socially produced. Autistic forms of communication and storytelling are often treated as signs of unreliability, shaping whose accounts are considered credible within clinical and institutional contexts. By reframing these patterns …

Misinformation Machine, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.

Minimizing The Gap Between Church And Disability In Churches Of Christ, Paris Freeman

Discernment: Theology and the Practice of Ministry

Church members with intellectual and developmental disabilities often experience disconnection from their churches. This qualitative study examined this disconnect in three suburban Church of Christ congregations within the North Texas area. Using an ethnographic approach, data was collected through interviews with ministry leaders, participatory observation, and a literature review. The analysis of the data, in conjunction with family systems theory, was utilized to construct a model for disability ministry which validates personhood and promotes awareness of self and others. The impact of the church growth movement on disability was also examined, but no definitive correlation could be determined. Further research …

Cross-Cultural Differences Among Children And Youth With Special Health Care Needs: A Mixed-Methods Analysis Of Chinese, Spanish, And English-Speaking Families, Kathleen Mcgrath, Miriam Franco, Amy Morales-Lara, Karen Bonuck Phd, Joanne Siegel

Developmental Disabilities Network Journal

One in five U.S. children has a special health care need, with prevalence rates rising each year. Children and youth with special health care needs (CYSHCN) from immigrant and/or non-English speaking families face heightened barriers to care, unmet health needs, and worsened health outcomes. This mixed-methods study explores cross-cultural similarities and differences among English-, Spanish-, and Chinese-speaking families of CYSHCN across four key domains – (1) the diagnostic process, (2) access to essential services, (3) community integration, and (4) social supports. As part of a statewide, New York State Department of Health funded initiative implemented across three University Centers for …

Disability Experiences Of University Students: An Interview Study, Cece Austin

University Honors Theses

This thesis explores the experiences of college/university students with disabilities within the educational system. Using a qualitative research design, semi-structured interviews were conducted with students who identify as disabled or having disabilities in order to explore impacts of disability on their lives, with a focus on experiences navigating academic environments and accessing accommodations. Findings revealed two recurring themes: 1) the importance of both registered accommodations and accessibility efforts from faculty, and 2) difficulties with accommodations, internalized ableism, and disclosure. This research contributes to broader discussions on disability, inclusion, and educational equity by highlighting the lived experiences of students with disabilities …

Assessing The Influence Of Disability Views On Perceptions Of Hearing Aids Among Older Korean Adults, Stasha Lee

Dissertations, Theses, and Capstone Projects

Background

Age-related hearing loss, also known as presbycusis, is highly prevalent among older adults, yet hearing aid adoption remains low, in part due to concerns about stigma and negative social perceptions. This study aimed to examine whether attitudes towards disabilities influence perceptions of individuals wearing hearing aids among older Korean adults. It also explored the potential effects of cultural identity and the age of the individual wearing the hearing aid on these perceptions.

Methods

Ten participants completed the Attitudes and Perspectives on Persons with Disabilities (APPD) questionnaire and rated 8 different images of individuals (one younger male and one older …

Enhancing Ecological Validity In Speech-In-Noise Testing: Integrating Virtual Reality For A Multisensory Audiological Experience, Paulina Lee

Dissertations, Theses, and Capstone Projects

Despite the remarkable advances in hearing healthcare technology, the speech recognition tests used in routine clinical audiological assessment have remained essentially the same for decades.  Monosyllabic word recognition tests in quiet, such as the Northwestern University Auditory Test No. 6 (NU-6; Tillman & Carhart, 1966), have served as the audiology field’s default measure of speech understanding.  Modern speech-in-noise (SIN) tests, such as the QuickSIN (Killion et al., 2004), have emerged, yet they remain auditory-only, leaving an unignorable gap between what clinical tests measure and how patients communicate in daily life.  The present study examined whether pairing a standard SIN test …

Applying A Neurodiversity-Informed Approach To Understanding Resolution In Families Raising A Child With Autism, Emma Manole

Honors College Theses

The first known documentation of the syndrome we today refer to as autism spectrum disorder (ASD) was published by Austrian psychiatrist Leo Kanner (1943), who identified a cluster of disordered symptoms among 11 young children, which he termed “early infantile autism”. Consequently, the psychiatric world became aware of autism as its own disorder separate from schizophrenia or “childhood psychosis” (Wing, 1997). Since then, the ways in which autism is studied, diagnosed, referred to, defined, and treated have seen drastic changes (Blacher & Christensen, 2011) over the course of almost a century. It is only natural that the perceptions held by …

From Access To Success: Addressing Barriers For Students With Disabilities In Higher Education, Melissa Wood

Inquiry: The Journal of the Virginia Community Colleges

Over the past several decades, enrollment of students with disabilities in higher education has steadily increased. However, disparities in retention and degree completion persist. Although federal laws such as the ADA and Section 504 of the Rehabilitation Act guarantee equal access, many students continue to encounter barriers that affect their academic experience. These challenges are often more pronounced in community colleges, which serve diverse populations and often operate with limited resources. This paper examines two key barriers and highlights best practices that institutions can implement to improve accessibility, strengthen support systems, and promote persistence and success for students with disabilities.

Empowering Lifelong Choice: Supporting Older Individuals With Idd To Thrive At Work, Transition To Retirement With Dignity, And Maintain Community Connections, Leslie Quarles

Critical and Creative Thinking Capstones Collection

This synthesis addresses the need to support older individuals with intellectual and developmental disabilities in their engagement in continued work. The project traces the journey from an initial focus on supporting older individuals with intellectual and developmental disabilities to work as long as they wish to an eventual shift toward a phased retirement approach. It considers issues such as a reimagined visualization of the support team structure, integration of tailored job supports and Community Life Engagement (CLE). The author's familial history sparked a sense of injustice that would not stay buried, shaping a career path in disability services and access. …

Reclamando Corazón Y Voz: Latinas Speak Their Truth Through Plática As Resistance In California Community College Learning Disabilities Assessments, Maricela Becerra

Dissertations

Although California Community Colleges (CCCs) offer learning disability (LD) assessments to determine eligibility for academic accommodations, for Latina students navigating converging forces of race, gender, language, citizenship, and ableism, these assessments often surface unspoken histories of harm. This study advanced Chicana feminista DisCrit (CFDC), extending disability critical race theory through Chicana spirituality and cultural intuition to examine possibilities when an educadora situates assessments in a plática grounded in consideración—respectful, relational, and unhurried care.

Rooted in Chicana feminist pláticas methodology and authored from the positionality of a disabled Latina scholar–practitioner, this qualitative decolonial dissertation explored how Latina students reflected on …

Who Gets To Be Taken Seriously? Three Atypical Scholars Navigate Doctoral Education At The Intersections Of Race, Neurodivergence, And Veteran Identity, Sr. Richard De La Garza

Dissertations

As a first-generation, neurodivergent, Mexican American/Chicano veteran, I entered the University of San Diego's doctoral program having had experiences that most institutional intake processes would label as risk factors. The Findings chapter of this dissertation begins by describing those experiences—not as a confession, but as the foundation for a systematic inquiry into how doctoral legitimacy is produced, withheld, and defended. The description of my life experiences is followed by a discussion of the doctoral journeys of two other study participants who also were atypical doctoral candidates.

The central argument being advanced is this: What higher education calls "fit," "rigor," and …

Practitioners’ Experiences Of Developmental, Individual Differences, Relationship-Based (Dir) Approach In Their Professional Practice With Neurodivergent Clients: A Hermeneutic Phenomenological Study, Ekaterina Sidor

Educational Studies Dissertations

This phenomenological study explores how professionals experience integrating the developmental, individual-differences, and relationship-based (DIR) framework in their work with neurodivergent clients. Although DIR is recognized as an evidence-based developmental approach in the field of autism support, little is known about how its integration affects practitioners themselves. Grounded in relational-cultural theory and transformative learning theory, the study examines how engagement with DIR influences practitioners’ professional practice and development. Using a qualitative, hermeneutic phenomenological design, data were collected through open-ended questionnaires and in-depth interviews with multidisciplinary professionals from diverse international contexts who completed DIRFloortime training and actively implement DIR in their work. …

The Use Of Video Modeling With Older Learners With Autism Spectrum Disorder To Increase Adl Skill Acquisition: A Systematic Review, Marianne Feliciano

Seton Hall University Dissertations and Theses (ETDs)

Autism spectrum disorder (ASD) is a lifelong condition that can significantly impact functional independence across the lifespan. Although video modeling is an evidence-based intervention shown to improve adaptive and daily living skills in children and young adults with ASD, its effectiveness for adults aged 40 years and older remains unclear. This systematic review examined the existing literature on the use of video modeling to increase daily living (ADL) skills and independence among older adults with ASD. A systematic review of PsychINFO via EBSCO was conducted according to PRISMA guidelines. Of 578 records initially identified, 20 full-text articles were assessed for …

Multiple Interest Holder Perspectives Of The True Grit Sci Residential Program: A Mixed Methods Program Evaluation, Keara Mcnair

Seton Hall University Dissertations and Theses (ETDs)

Young adults with spinal cord injury (SCI) face significant challenges during the transition to adulthood, including barriers to independence, community participation, and psychosocial adjustment (Ingimarsdóttir et al., 2023; Zebracki et al., 2010). Current rehabilitation models in the United States prioritize short-term physical recovery and offer limited support for the developmental and contextual needs that shape long-term outcomes after SCI, particularly during transitions from inpatient rehabilitation to the community (Anderson et al., 2024; Bryden & Gran, 2024). Community-based programs may help address these gaps, though few have been rigorously evaluated using implementation science frameworks that attend to health equity, contextual influences, …

The Effect Of Dialogic Reading With An Adapted Reader On Narrative Reading Comprehension Of High School Students With Autism Spectrum Disorder, Ramella Lee

UNLV Theses, Dissertations, Professional Papers, and Capstones

Reading comprehension is essential for accessing grade-level content; however, students with autism spectrum disorder (ASD) often demonstrate narrative comprehension difficulties related to language inferencing and self-regulation (Constable, 2013; Duke & Cartwright, 2021). Dialogic reading is an evidence-based shared reading practice that uses systematic prompts and contingent consequences to strengthen verbal behavior (Whitehurst et al., 1988; IES, 2007). Despite demonstrated effectiveness with young children with ASD, experimental research on dialogic reading with secondary school-aged students, particularly those requiring adapted instructional materials, remains limited (Hudson & Test, 2011; Spooner et al., 2012). The purpose of this study was to evaluate the effects …

Neurodiversity In Counseling: Counseling Strategies For Supporting Neurodiverse Clients, Emily R. Plowright

Educational Specialist, 2020-current

Neurodiversity recognizes the natural differences in human functioning, including the unique ways that individuals think, learn, and process information. The neurodiversity movement views these differences as valuable, challenging historical beliefs that label them as deficits. Despite growing awareness of neurodiversity, counseling research and practice have largely overlooked the unique needs of neurodiverse clients, resulting in barriers to accessing mental health care. This paper addresses the concept and models of disability to provide context for understanding neurodiversity. Neurodiverse identities, such as attention-deficit/hyperactivity disorder (ADHD), autism spectrum disorder (ASD), specific learning disorders (SLDs), and tic disorder, are explored through their diagnostic criteria …