Disability Studies Commons^™

Research Literacy And Research Production Skills As Core Competencies In Leaders, Kk O'Byrne

Tapestry: Journal of Research in Education

No abstract provided.

Beyond Words: Supporting Nonverbal Autistic Preschoolers With Exceptional Cognitive Abilities, Dawn Timms

Knowledge and Creativity Expo

This project explores how caregivers can support autistic preschoolers who are nonverbal yet demonstrate advanced cognitive abilities. Grounded in communication theory and neurodiversity‑affirming practice, it reframes communication as a shared, relational process that extends beyond spoken language. Drawing from interdisciplinary research, I created a strengths‑based caregiver communication toolkit that translates complex theory into clear, practical strategies families can use in everyday routines. This work honors the intelligence of children whose thinking outpaces their speech and equips caregivers with tools that make communication more accessible, responsive, and affirming.

Evaluating Sensory Sensitivities Among Children With Autism Spectrum Disorder In An Adaptive Gymnastics Program, Aicha Kaouss, Bradley Eppinger, Austin Ebbrecht, Kailash Ram, Kaitlin P. Hardy Md

Knowledge and Creativity Expo

Introduction: Children with autism spectrum disorder (ASD) participate in physical activity at lower rates than their neurotypical peers1. Sensory sensitivities, reported in approximately 75–95% of children with ASD, may contribute to this disparity2. Gymnastics environments involve bright lighting and loud noise, which can precipitate sensory overload. The impact of specific sensory features on participation in adaptive gymnastics remains underexplored.

Methods: A cross-sectional study recruited caregivers of children aged 3–12 years with an ASD diagnosis enrolled in the EVMS Adaptive Gymnastics Program. Caregivers completed the Sensory Experiences Questionnaire–Third Edition (SEQ-3)3 and supplemental survey items on Redcap which assessed environmental triggers and …

Voice And Pain: Representations Of Disability In Adaptations Of “The Little Mermaid”, Ace Molloy

Departmental Honors & Graduate Capstone Projects

Hans Christian Andersen’s 1837 story, “The Little Mermaid,” is a popular fairy tale that has been adapted several times by writers, filmmakers, and game developers. It is one of the few fairy tales with explicit portrayals of disability; the mermaid in the tale is nonspeaking and experiences chronic pain, as well as being a mermaid—a nonnormative figure who is aligned with disability. This paper looks at the ways that the mermaid is portrayed in literary, film, and new media adaptations from a disability-justice perspective. Examining multiple representations of the character, I argue that while feminist adaptations erase her disability and …

Evaluating The Impact Of A Lend-Based Family Mentorship Program For Pre-Service Professionals, Matthew Bogenschutz, Sarah Lineberry, Jackie Robinson Brock, Flip Grey, Kathryn Flinn

Developmental Disabilities Network Journal

Family-led pre-professional mentoring programs have been shown in past literature to have multiple positive outcomes, including better provider communication, increased sensitivity to the needs and contributions of family members in clinical settings, and better understanding of disability policy contexts among professionals. Yet there have been relatively few examples of exemplary programs that have developed successful models for family mentoring of pre-service professionals. Using qualitative evaluative data from one such program, a component of a Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program, this study shares the experiences of both families and trainees. Common themes shared between these two groups …

How Do State Labor Policies Impact Disability For Latino Adults In The U.S.?, Marc A. Garcia, Blakelee R. Kemp, Erin Bisesti

Population Health Research Brief Series

Latino adults in the United States experience a greater burden of disability than non-Latino White adults. This brief summarizes findings from a study using data from the 2000-2016 American Community Surveys (ACS) linked to annual state policy data (1998-2014) on Latino adults ages 45-85 across 25 U.S. states (N=1,183,438). The authors describe how state labor policies (i.e., disability insurance, minimum wage protections, paid sick leave, unemployment compensation) predict disability among Latino adults. The authors find that disability rates among Latino adults are lower in states with more liberal labor policy contexts. Liberal state policies appear protective for both U.S.-born and …

Boundless Community: A Developing Disability Arts Movement, Sarah K. Benson, Khaldoun Hijazin, Alaa Qattam, Suha Khuffash

Journal of Social Theory in Art Education

Over several years, individual organizations in Jordan have been focused on increasing the participation of individuals with disabilities in the arts. Increasing inclusion can provide a powerful tool to create visibility, amplify marginalized voices and disrupt normative narratives. However, these isolated efforts had a limited impact until a cohesive effort borne by a burgeoning community of practice led to the first Amman Arts and Disability Summit. Bringing together youth, artists and gallery owners, the movement leaders are using models of social learning and communities of practice to create a more inclusive arts community. The movement stands on the precipice of …

The Lived Experiences Of Deaf People In Carceral Spaces, Grace E. Lester, Gabriel Lomas, Deb S. Guthmann Dr.

JADARA

This qualitative study used semi-structured interviews to examine the experiences of formerly incarcerated deaf people in the carceral system. The examination of lived experiences in this research offers a context to the belief that the carceral system is structurally unqualified to address the significant, but nuanced needs of deaf people. This study counters the neglect of the intersectional experiences of incarcerated deaf people that exists in research literature by providing them the opportunity to share their stories in their own words through in-depth semi-structured interviews. Five previously incarcerated deaf adults were interviewed using a digital video platform. Using phenomenological methods, …

Diagnostic Trends And Service Enhancements In Deaf Mental Health: A Longitudinal Analysis, Kent Schafer, Steve Hamerdinger, Frank Wu, Rie Sakai Bizmark, Charlene Crump

JADARA

A longitudinal study investigated mental health diagnostic trends and patterns among Deaf and Hearing individuals using a comprehensive dataset from Alabama Department of Mental Health spanning 2004-2024 (Deaf=4,547; Hearing=2,056,188). Chi-square analysis revealed significant proportional differences in diagnoses between the groups. Deaf individuals showed significantly higher proportions of psychotic (12.93% vs. 8.33% Hearing), mood (20.76% vs. 18.84% Hearing), and personality (0.58% vs. 0.43% Hearing) disorders. These findings suggest that increased access to specialized and competent mental health services for individuals who are Deaf, particularly following the increase of staffing patterns for the Office of Deaf Services in 2015,contributed to more accurate …

Analysis Of City Planning For Autism Spectrum Disorder, Joshua Ericson, Ben Shane

City and Regional Planning

Whether formally diagnosed or self-diagnosed, autism spectrum disorder affects children and adults in every corner of the planet. Every city in the world likely has autistic residents who have difficulty living in navigating their city due to their unique sensory, social, and economic needs. Many of these needs affect autistic people’s abilities to comfortably and independently navigate public spaces, attain a reliable method of transportation, and find housing that suits their needs. These issues could all be addressed with city planning and neuro-inclusive public policies, but to date few cities have considered autistic people in their planning. Cities inadvertently exclude …

Addressing Health Inequities For People With Intellectual And Developmental Disabilities In The Hospital Through Partnerships In Nurse Training, Suzannah Iadarola, Amanda Laprime, Samantha Hochheimer, Tabby Anvari, Carrie Baker, Jacqueline Goodman

Developmental Disabilities Network Journal

People with intellectual/developmental disabilities (IDD) deserve the same access to quality healthcare yet are at increased risk of medical and/or psychiatric conditions as compared to the general population. Patients with IDD have less health satisfaction, shorter life expectancy, less access to preventative care, higher chronic health conditions, overuse of certain medications, and increased mortality. This population and their caregivers report high levels of dissatisfaction with emergency/inpatient care. Nurses also express frustration with lack of training, limited resources, and competing priorities.

We developed the Advancing Supportive Care through Education for Nurses on Disability (ASCEND) Program, to build the capacity of inpatient/Emergency …

Parents’ Lived Experiences With Competitive Integrated Employment For Children With Intellectual And Developmental Disability, Dr. Aisha J. Omar

Developmental Disabilities Network Journal

This phenomenological qualitative study explores the lived experiences of Kentucky parents seeking Competitive Integrated Employment (CIE) for their children with intellectual and developmental disabilities (I/DD). Guided by the research questions—How do parents experience this process, and what barriers or supports do they encounter?—the study highlights systemic challenges despite legislative efforts such as the Americans with Disabilities Act and the Workforce Innovation and Opportunity Act. In-depth interviews with five parents revealed three themes: (a) parental transformation and the pursuit of meaningful work, (b) systemic challenges in accessing CIE, and (c) overcoming protective instincts: navigating fear, independence, and self-advocacy. Findings suggest a …

Inaccessibility Harms: Exploring The Impact Of Inaccessible Campus Organizations On Disabled Students, Francis W. Q. Corvin, Natalie G. Horgan

Purdue Journal of Service-Learning and International Engagement

There are 3.5 million Disabled college students in the United States, with 4,671 utilizing disability services at Purdue University. Nationwide, 8–14% of students in higher education are Disabled, indicating a substantial number of students whose needs should be prioritized and supported. Inaccessibility impacts the way Disabled college students are able to engage with the college experience. Inaccessible classes, restrooms, clubs, job fairs, and campuses create significant barriers thatthat extend far beyond the classroom. Disabled students face challenges in securing scholarships, finding employment, graduating on time, and achieving long-term socioeconomic stability. Recognizing these barriers, HonorServes, a community service student committee at …

The Year Of The Buttered Cat: A Mostly True Story [Book Review], Valarie A. Turner

Disability in LIS (DisLIS)

Lexi Haas's voice and body were stolen when unmonitored newborn jaundice caused her to develop a rare form of cerebral palsy. This dual timeline memoir takes you on a gift-discovering journey, illustrating that Lexi's spirit speaks volumes.

Children And Youth With Special Health Care Needs (Cyshcn) Regional Support Centers (Rsc): A Framework For Effectively Engaging Stakeholders, Jenna Lequia, Susan Burlazzi, Abby Beer, Miriam Franco, Kathleen Mcgrath, Angel Morales, Joanne Siegel, Susan Hetherington, Tricia Patrick

Developmental Disabilities Network Journal

The three University Centers for Excellence in Developmental Disabilities (UCEDDs) in New York served as Children and Youth with Special Health Care Needs (CYSHCN) Regional Support Centers (RSC). The RSCs aimed to increase the capacity of local CYSHCN programs to connect with and support CYSHCN and their families in their community. RSCs conducted activities in the areas of family engagement, training and educational materials development, and technical assistance. RSCs engaged in ongoing dialogue with CYSHCN and their families to learn about experiences to inform systemic improvements through focus groups, interviews, and surveys. This article describes a statewide framework to serve …

From Strain To Strength: A Narrative Review Of Wellness Dimensions In Caregiving, Valerie Perkoski

Developmental Disabilities Network Journal

This narrative review investigates the positive aspects of being a family caregiver for individuals with developmental disabilities (DDs) using the National Wellness Institute’s Six Dimensions of Wellness (Emotional, Physical, Intellectual, Occupational, Spiritual, and Social). While much research has traditionally focused on “caregiver burden,” this review highlights the often-overlooked beneficial outcomes of caregiving. Emotional wellness is enhanced through gratitude and resilience. Physical wellness is discussed through interventions like physical activity, which can reduce caregiver distress. Intellectual wellness emphasizes personal growth and self-actualization, helping caregivers find fulfillment in their roles. Occupational wellness shows that employment and community engagement can reduce anxiety among …

Evaluating The Implementation Of Oregon's Dsm-5-Informed Autism Eligibility Revisions: Interest-Holder Perspectives And Policy Implications, Bradley Josef Hendershott

Dissertations and Theses

Under the Individuals with Disabilities Education Act (IDEA), states establish their own autism spectrum disorder (ASD) eligibility criteria, resulting in substantial interstate variation and frequent misalignment with medical diagnostic standards. In 2019, Oregon revised its ASD eligibility criteria by directly incorporating DSM-5 diagnostic criteria, reflecting proponents' theory of action that this alignment would improve conceptual clarity, identification accuracy, and coherence across educational and medical systems. While an early implementation study documented generally positive early effects reported by evaluators, no research has systematically examined whether the DSM-5 alignment achieved its anticipated effects, how the revised criteria function after multiple years of …

Victims Of Bravery (1): Impacts Of Acts Of Bravery On Australian Civilian Bravery Award Recipients, Tom Voigt, Angela Dew, Susan Balandin

Heroism Science

We admire those who perform acts of bravery involving physical risk and life-threatening trauma, yet little attention is given to civilians who experience negative consequences following such acts. This study examined unintended consequences through qualitative interviews with 24 Australian civilian bravery award recipients using constructivist grounded theory and thematic analysis. Three major themes emerged: (1) Direct impacts, including high psychological distress, physical and health impacts, financial and employment consequences, and lack of formal counseling support; (2) Changes within, including hypervigilance, avoidance behaviours, anger, alcohol misuse, and social isolation; (3) Then and now, encompassing relationship difficulties, changed life approaches, and regret. …

The Social And Cultural Challenges Experienced By Children With Send Through Quasi-Inclusion Practices In Two Mainstream Primary Schools In Postcolonial Guyana, Lidon Lashley, Clevelon Gordon

IALS Journal

This ethnographic study investigates the sociocultural experiences of 36 children with SEND and two non-SEND peers in two rural mainstream primary schools in Guyana. Through interviews, observations, and situational analysis, the study explores how ableism, colonial legacies, prejudice, poverty, linguistic barriers, and inadequate educational support shape the experiences of children with SEND. Findings reveal persistent stigmatization, discrimination, marginalization, exclusion, and "fated failure" discourses that negatively affect learning, participation, agency, and wellbeing. The study concludes that teachers require greater support, training, and specialist resources to foster genuine inclusion within Guyana's mainstream schools.

Good Mothers: Black Disabled Mothers & The Family Policing System, Siobhan Pokorney

Dissertations, Theses, and Capstone Projects

Good Mothers: Black Disabled Mothers & the Family Policing System is a qualitative study utilizing 16 in-depth individual interviews with mothers who broadly identified as Black, disabled mothers who had at least one interaction with the family policing system as adults in or around NYC. The study examines the work these mothers engage in to navigate their identities and strategically present themselves as good mothers while facing state surveillance and oppressive systems (specifically the family policing system) which automatically frame them as “unfit mothers.” It traces their experiences and the identity work that they engage in through the anticipatory trauma …