Disability Studies Commons^™

Collective Access, Collective Liberation: Disability Justice And Abolitionist Pedagogical Worldmaking Toward Post(?)-Pandemic Futures, Hailey N. Otis

Feminist Pedagogy

This critical commentary poses the question: what if we didn’t return to the “normal” of strict, ableist classrooms policies rooted in the bureaucratic, legalistic framework of “accommodations” and, instead, embraced the Disability Justice principle of collective access? After critiquing the accommodations process used in most higher education settings, I advocate for an approach we might call collective access pedagogy, which works from the fundamental assumptions that (1) all bodies exist on a spectrum of dis/ability and, thus, we all have individual needs based on our unique bodyminds, and (2) that we don’t need the constant threat of a pandemic to …

Teaching Disability (Self-)Advocacy As We “Return To Normal”: Addressing Ableism In Higher Education, Sarah M. Parsloe

Feminist Pedagogy

No abstract provided.

Providing End-Of-Life Counseling: A Narrative Inquiry, Carol Hecht, Sibyl West

Adultspan Journal

This qualitative study aimed to address the gap in the research related to end-of-life counseling by exploring the experiences of counselors working with clients at end of life. While counseling literature and education are lacking regarding end of life, many counselors will work alongside clients approaching death. The purpose of this study was twofold: (a) to better understand the nuanced experiences of counselors providing end-of-life counseling and (b) to explore the supports and preparations helpful for counselors to provide end-of-life counseling. A narrative approach, using the Listening Guide (Gilligan, 2015), was employed to analyze and present the stories of three …

Considerations Of Medicare Telehealth Services With Older Adults, Sonah Kho, Amanda Dediego

Adultspan Journal

The onset of the COVID-19 pandemic set in motion a rapid expansion of mental health services offered via telehealth. With this rapid expansion came the need to examine how policy and practice should be shaped in a future where telehealth is considered common in counseling practice. For counselors to understand how to support older adult clients in using telehealth services, they must understand telehealth policy. Following the eligibility of licensed counselors to participate in Medicare, counselors need to stay abreast of regulatory changes regarding restrictions and regulations on use of telehealth for mental and behavioral health services, including video and …

Silent Holy Spirit, July-September, 2024

Silent Holy Spirit

A newsletter published for Deaf Catholics in St. Louis, MO

Silent Holy Spirit Finding Aid

Listener Training For Improved Intelligibility Of People With Parkinson's Disease, Stephanie Anna Borrie

Funded Research Records

No abstract provided.

Differences In Happiness And Perceived Meaning In Life Between U.S. Working-Age Adults With Versus Without A Self-Care Disability, Nastassia Vaitsiakhovich, Scott D. Landes, Shannon M. Monnat

Population Health Research Brief Series

Subjective wellbeing (SWB) - being happy or perceiving one’s life has meaning, is critical to good physical health. People who are happier and who report that their lives have meaning are healthier and live longer. In general, individuals with disabilities have worse SWB compared to those without disabilities. This brief summarizes findings from a study that used data from the National Wellbeing Survey collected in early-2021 to examine differences in happiness and perceived meaning in life between U.S. working-age adults (ages 18-64) with versus without a self-care disability (such as difficulty eating, using the toilet, or dressing without assistance) and …

Impact Of County-Level Urbanicity On Quality Of Life For People With Intellectual And Developmental Disabilities In A Rural State., Alyssa M. Smith, Allison Caudill

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) face challenges, such as decreased access to physical, environmental, and social health-related services that can negatively impact their overall quality of life (QoL). Additionally, people living in rural communities may experience geographic distancing and other factors, like decreased transportation and available housing, that contribute to increased isolation and decreased health outcomes, overall. It is important to consider the QoL of people with IDD living in these communities given the additional intersectional constraints of rurality and having an intellectual disability or other co-occurring conditions. A secondary data analysis reviewed closed and open-ended survey data …

Impact Of A Narrative Language Intervention On Language, Behavior, And Self-Concept Among Bilingual Children With Developmental Language Disorder, Nancy Tarshis Ma, Ms, Ccc-Slp, Kathleen Mcgrath Mss, Lsw, Ida Barresi Ma, Ccc-Slp, Risa Battino Ms, Ccc-Slp, Bcs-F, Sarah Henderson Msed, Ms, Ccc-Slp, Shankar Viswanathan Drph, Jee-Young Moon Phd, Karen Bonuck Phd

Developmental Disabilities Network Journal

The growing research on narrative interventions is promising but has gaps regarding cultural/linguistic diversity and outcomes beyond language. We evaluated whether a structured, oral narrative intervention affects narrative language, problem behaviors, and self-concept in a diverse group of children with developmental language disorder. A 10-session intervention was implemented within routine care. Baseline and follow-up data included: (a) Narrative recordings—coded by therapists using the CUBED Narrative Language Measure, (b) Child Behavior Checklist—a parent-reported behavioral assessment, and (c) the Piers-Harris Children’s Self-Concept Scale. Among the sample’s n = 33 children, aged 6-16, 55.6% were bilingual. Post intervention, participants’ narrative language scores improved …

An Examination Of Transition Professional Profiles Based On Value-Based Principles: A Latent Profile Analysis, Anthony Plotner, Angie Starrett, Charles Walters, Rebecca Smith Hill

Developmental Disabilities Network Journal

This paper presents findings from a study utilizing Latent Profile Analysis to examine the value-based principles of transition professionals from two distinct disciplines: special education and Centers for Independent Living (CIL). Specifically, this paper aimed to identify profiles emerging from the value orientations of special education and CIL professionals, and to explore how individual factors such as professional role, disability status, education, and years’ experience differ across these profiles. Findings revealed a taxonomy comprising four distinct profiles within the transition professionals sampled. These profiles delineate varying dominant values that encapsulate the convergence of special education and independent living philosophies. Implications …

Inclusion In Disability Evaluation And Surveillance Projects: Reflections And Recommendations For Inclusive Project Teams, Tamara M. Douglas, Nathan J. Rabang, Marlene A. Attla, Tasha Boyer, Vanessa Hiratsuka

Developmental Disabilities Network Journal

Disability rights advocates emphasize “Nothing about us without us,” yet a program evaluation or surveillance team’s composition rarely reflects inclusion of the individuals from the disability populations they focus on. Individuals who have lived experience with disabilities should be present during all steps of program evaluation and surveillance projects in meaningful ways to progress the impact of disabilities work. In this paper, we describe a process used by staff at Alaska’s University Centers for Excellence in Developmental Disabilities (UCEDD) to hire, train, and work with individuals with intellectual, development disabilities (IDD) as team members. The case example for the inclusion …

Applying A Framework Of Epistemic Injustice To Understand The Impact Of Covid-19 On People With Intellectual And Developmental Disabilities, Sarah Lineberry, Matthew Bogenschutz

Developmental Disabilities Network Journal

Epistemic injustice, the theory of unfairness related to knowledge, is a useful framework for understanding the ways in which historic and ongoing marginalization and stereotypes have shaped the ways that people with intellectual and developmental disabilities (IDD) have been impacted by the COVID-19 pandemic. We conducted a scoping review of the literature and divided findings into physical health (cases, hospitalization, and death) and psychosocial outcomes (access to services, mental health symptoms, community participation, etc.). Impacts were then analyzed using the key principles of epistemic injustice. Findings suggest that people with intellectual and developmental disabilities (IDD) experienced high rates of negative …

Technology Skill Building For Adults With Intellectual And/Or Developmental Disabilities, Heather J. Williamson, Hailee E. Riddle, Cynthia Sloan, Cameron Dogan, Byran Dai, Jon Meyers

Developmental Disabilities Network Journal

Compared to their peers without disabilities, adults with intellectual and/or developmental disabilities are less likely to be employed. Adults with intellectual and/or developmental disabilities also face a digital divide, with less access to and use of technology in their daily lives. This lack of technology use also limits the types of employment available to adults with intellectual and/or developmental disabilities. The purpose of this paper is to describe the implementation of an individualized technology skill-building program for adults with intellectual and/or developmental disabilities in Arizona. The community-engaged project was overseen by a Community Advisory Board who provided insights on program …

Conducting A Pilot Evaluation Of A Civic-Engagement Program For Youth With Disabilities, Megan Best, Amanda Johnston, Sarah Demissie, Julianna Kim, Ruchi Mendiratta Khanna, Kelly Fulton, Abby Hardy, Catherine Cheung, Timothy Kunzier, Oscar Hughes, Meghan M. Burke, Zachary Rossetti

Developmental Disabilities Network Journal

The Individuals with Disabilities Education Act (IDEA) is the federal law that ensures all students with disabilities have access to a free and appropriate public education. In the last IDEA reauthorization in 2004, only 1% of public comments were from individuals with disabilities—the population that IDEA serves. To ensure that the feedback of individuals with disabilities is reflected in the next IDEA reauthorization, it is important to support them to learn about IDEA and advocate. To this end, for this pilot study, 16 transition-aged youth with disabilities participated in a 6-hour civic-engagement program across four states to learn about IDEA …

Acknowledgments, Matthew T. Wappett Ph.D.

Developmental Disabilities Network Journal

No abstract provided.

Hand In Hand, September-October 2024

Hand in Hand

A newsletter published for Deaf Catholics in Milwaukee, WI

Hand in Hand Finding Aid

What Supports Are People With Intellectual Disability Living In Group Homes Provided To Access Health Care? A Case Study, Rachel Skoss, Paola Chivers, Glenn Arendts, Caroline Bulsara, Rena Vithiatharan, Jim Codde

Research outputs 2022 to 2026

Background: People with intellectual disabilities living in group homes often have complex health needs, are high health service users and need support from their service provider to access health services. In Australia, little is known about the types and amounts of these supports. Methods: A case study was conducted on a large Western Australian disability provider of group homes to 160 people with intellectual disability. Over an 18-month period, including during the COVID-19 pandemic, the study quantified health service use in hospital- and community-based settings, ways by which the person was supported to access health care and the impact on …

The Problem Of Attendance At Religious Services By People With Disabilities: History And Contemporary Issues In Ukraine, Olga Polumysna, Валерій Булатов

Occasional Papers on Religion in Eastern Europe

This article analyzes previous scientific works by scholars who have researched the problem of religious service attendance by people with disabilities. It also employs contemporary scientific methods, including experience generalization, systematization, and comparative-historical analysis. The scientific novelty lies in exploring aspects of the crisis in religious services for people with disabilities that have emerged due to the ongoing war in Ukraine. A comprehensive analysis of the issue, including its key aspects, will help to develop a more complete understanding of the topic. This study holds practical significance, as it opens up the potential for developing methodological recommendations based on the …

Caregivers’ Experiences Supporting The Transition To Adulthood Of Adolescents With Acquired Intellectual Disability, Melinda Rose Jordan

Walden Dissertations and Doctoral Studies

Transitioning to adulthood can be challenging for adolescents with acquired intellectual disability (caused through an accident, brain injury, neglect, or health condition) and their caregivers. The purpose of this study was to examine lived experiences of caregivers who cared for adolescents with acquired intellectual disability during their transition into adulthood. This study used the phenomenological qualitative design guided by the social support theory. Three research questions were asked: what do caregivers of an adolescent with acquired intellectual disability experience as they support the adolescent’s transition to adulthood, how do caregivers of an adolescent with acquired intellectual disability experience social support …

Raising Their Voices: Lived Experiences Of Gifted Women With Adhd, Jessica Leigh Williams

Electronic Theses and Dissertations

Given the imbalance in the ratio of male to female ADHD diagnosis, there is a dearth of information on the profile for women with ADHD, especially in adulthood and with those of higher intelligence levels (Rommelse et al., 2016). Each, if not all, diagnoses of ADHD or giftedness come from a parent, teacher, or outside observer’s scale of symptoms and behaviors (Hay et al., 2007; Klesfjo et al., 2020; Polderman et al., 2007). In this study, ten gifted women with ADHD aged 29-77 completed semi structured interviews to examine their lived experiences of education, career, and relationships. Using a dual …