Disability Studies Commons^™

In-Home Supports For The Developmentally Disabled Population: A Heuristic Phenomenological Study Of Sc’ Experiences, Stephen Troy Davis

Walden Dissertations and Doctoral Studies

Despite occupying a central role in the developmental disabilities systems of 48 states, SC do not have a voice in program or policy development and are not well represented in the disabilities literature. The purpose of this study was to understand the experiences of SC who work with individuals with intellectual and developmental disabilities in southeastern Pennsylvania. The theoretical lenses through which the study was viewed were Bronfenbrenner’s ecological systems theory and Wolfensberger’s social role valorization. The study was guided by research questions aimed at illuminating the intensity of support coordinators’ experiences by uncovering how they experience and define their …

Status Sosial Ekonomi Dan Pengeluaran Oop Kesehatan Penyandang Disabilitas, Maxent Rg Nainggolan, Riki Relaksana

Jurnal Ekonomi Kesehatan Indonesia

In 2020, the number of persons with disabilities in Indonesia reached 22.97 million. One of the main challenges this population faces is the high burden of health expenditures, particularly those that are urgent and unpredictable. This study aims to analyze the influence of socioeconomic status on out-of-pocket (OOP) health expenditures among households with persons with disabilities in Indonesia. A quantitative approach was employed using secondary data from the 2022 National Socioeconomic Survey (Susenas), utilizing the core module (KOR) and the household expenditure module (KP). Data were analyzed using the two-part regression model to identify the determinants of OOP health spending. …

The Role Of Applied Behavior Analysis Therapy In Autism Spectrum Disorder, Tracy A. Hourican

Lynchburg Journal of Medical Science

This paper evaluates the development, core principles, efficacy, and controversies surrounding applied behavior analysis (ABA) therapy in treating autism spectrum disorder (ASD), a developmental disorder that affects behavior, social, and communication skills. The diagnosis of ASD continues to rise, highlighting the importance of understanding effective interventions as early as possible, which is critical for improving long-term outcomes. A comprehensive literature review was conducted using the National Library of Medicine’s^® (NLM) database PubMed^®. Filters were applied to include peer-reviewed articles from the past five years, focusing on clinical trials, meta-analyses, and reviews published in behavioral pediatrics and psychology …

A Call For Change: Supporting Children With Tourette Syndrome, Matt Reall

Journal of Nonprofit Innovation

Tourette Syndrome affects 1 in 100 U.S. children but remains widely misunderstood due to stigma, delayed diagnosis, and media misrepresentation. This neurological disorder is characterized by involuntary tics and often co-occurs with ADHD, anxiety, and sleep disorders. Children with Tourette Syndrome face disproportionate challenges in social, academic, and emotional settings—despite having average or above-average intelligence. One-third engage in self-harm, and suicide rates are four times the national average. Peer-education programs like the Tourette Association of America’s Youth Ambassador initiative have shown promise in reducing stigma, but unequal access and weak institutional support limit their impact. This paper calls for early …

Accessibility To Communities Of Faith: Overcoming Unequal Access For People With Disabilities, Shannon M. Trecartin, Terrance P. Trecartin, Ernesto Douglas Venn

Adventist Human-Subject Researchers Association

This presentation explores the religious experiences of Adventist members with disabilities worldwide, focusing on their access to SDA education and participation in community practices like small groups, prayer meetings, and evangelism. It concludes with recommendations for congregations and church leaders to enhance inclusion and engagement.

I'M So Glad We Had This Time Together: A Memoir [Book Review], Jj Pionke

Disability in LIS (DisLIS)

Maurice Vellekoop's I'm So Glad We Had This Time Together: A Memoir is a recounting of his realization and embracing of his homosexuality ultimately through getting therapy for his depression.

Invisible Intersections: Race, Adhd, And The Role Of Disciplinary Actions In Academic Outcomes, Miles Feller

Clinical Psychology Dissertations

Race is a marginalized identity linked to significant achievement gaps for Black and Latino students in the USA (de Bray et al., 2019). These students experience higher rates of exclusionary school discipline (ESD) than White and Asian peers (Aud et al., 2010; de Bray et al., 2019), with suspensions correlating to lower academic performance (Del Toro & Wang, 2022; Wang et al., 2023; Owens & Hinshaw, 2016). Additionally, developmental disabilities like ADHD intersect with these issues; despite narrowing racial disparities in diagnoses (Cénat et al., 2022; Fairman et al., 2020), access to treatment remains uneven (Baglivio et al., 2017; Coker …

The Role Of Neuroscience In Mental Health Management Within The Adhd Population, Kadi Rae Smith

University Honors Theses

Neuroscience-based educational interventions play a role in the management of Attention Deficit Hyperactive Disorder (ADHD), including the regulation of ADHD-correlated depression and anxiety. Existing research shows that elevated rates of depression correspond to anxiety within the ADHD community; approximately 8.83% of the global population. Social ostracization and isolation are established contributors to depression and anxiety which are commonly comorbid with ADHD. The need exists for further investigation of the beneficial impact that an accurate, biological understanding of how the brain works has on the mental health of the ADHD population, and by extension their families, education systems, and medical industries. …

Stigma, Shame, And Narcissism: A Literature Review, Alex Gaither

University Honors Theses

This thesis is a literature review of 12 peer reviewed journal articles accessible through the Portland State University library database on the relationship between stigma, shame, and Narcissistic Personality Disorder (NPD). This thesis discusses ideas brought up in these articles regarding the classification and conceptualization of NPD as a disorder, the role that shame plays in the pathology of NPD, the ways that shame is addressed through treatment, and public and practitioner held bias resulting from the stigmatization of the disorder. New and upcoming ways of conceptualizing the disorder are also briefly discussed as there has been a push to …

Shrink: Story Of A Fat Girl [Book Review], Jj Pionke

Disability in LIS (DisLIS)

Shrink is a graphic memoir and graphic medicine title that chronicles one woman's journey with her fat body. Along the way, she educates the reader about the politics, history, health, medicine, and perspectives of fatness.

Innovation Highlight - Human Trafficking And Disability, Elizabeth Bowman Phd

SMU Human Trafficking Data Conference

No abstract provided.

Family-Based Support As A Social Determinant Of Health-Protective Factor For Children With Autism Spectrum Disorder, Bisola Duyile, Naomi J. Wheeler

Department of Counseling Scholarship and Creative Works

Parents of children with autism spectrum disorder (ASD) demonstrate resilience and resourcefulness in managing the demands of caregiving. This study highlights the critical role of family based support as a social determinant of health-protective factor (SDHPF) that enhances the well-being of parents, helping to mitigate depressive symptoms. Using a secondary dataset of 199 parents/ caregivers of children with ASD, this study examines how family based support, child symptom severity, and financial resources (income) influence parental mental health. The findings show that strong family support is positively associated with lower levels of depression, underscoring the strength of social networks in enhancing …

The Significance Of Labels: From Shy And Lazy To Autistic And Adhd, Katrine K. Bechsgaard

Ought: The Journal of Autistic Culture

This article examines the ways in which language and conceptions of neurodivergent conditions, autism and ADHD, are connected in a Danish context. As in other Western countries, there are significant increases in diagnoses, and particularly women are being diagnosed in adulthood. The article focuses on how these conditions are perceived and talked about, utilizing concepts such as othering, labeling, and performativity. The analysis suggests that when individuals feel othered and stigmatized by diagnostic labels, it has less to do with the labels themselves and more to do with the connotations and pathologization connected with the labels. Furthermore, the analysis shows …

My Mind In Middlemarch, Margaret A. Fisher

Ought: The Journal of Autistic Culture

“My Mind in Middlemarch” is a creative-critical essay and personal narrative of self-diagnosis. It was modeled in length and (somewhat) in style on Rebecca Mead’s essay, “Middlemarch and Me,” which appeared in The New Yorker in 2011 and was later expanded into her book, My Life in Middlemarch (2014). This personal essay narrates my journey to self-diagnosis and the initial discovery of my autism— a realization sparked by the resonance I found between my life and that of Dorothea Brooke, the central heroine of George Eliot’s classic British novel.

To The Person Who Will Assess Me For Autism: On Self-Diagnosis And The Longing To Be Seen, Torri Blue

Ought: The Journal of Autistic Culture

Artist Statement (Creative Nonfiction):

I was self-diagnosed autistic before I went in for my so-called professional assessment. The months leading up to my assessment brought a good deal of stress. Would I be believed? Seen? How could I be? How, when I had spent a lifetime feeling misunderstood? "To the Person Who Will Assess Me for Autism" is exactly what it sounds like: a letter to my assessing psychologist. It was written in real-time, processing my self-diagnosis, yearning for proof, and working toward the belief that my identity as an autist would not be diminished by someone else's disbelief. I …

Identity Ramifications, Tina E. Wilson

Ought: The Journal of Autistic Culture

No abstract provided.

Black And Autistic In Neo-Nationalist America, Timotheus Gordon Jr

Ought: The Journal of Autistic Culture

In "Black and Autistic in a Neo-Nationalist America," Timotheus “T.J.” Gordon, Jr. explores the intersectional challenges faced by Black autistic individuals in a socio-political climate marked by rising neo-nationalism. Drawing on personal experiences and historical contexts, Gordon navigates the metaphorical tightrope of double consciousness, as articulated by W.E.B. DuBois, to highlight the precarious existence of those who do not conform to monolithic identities. The essay critiques the melting pot analogy of American culture, advocating instead for a pluralistic society that recognizes and values diverse identities. Through a blend of autobiographical narrative and scholarly analysis, Gordon underscores the systemic marginalization of …

Etchings Of The Exiled, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.

It's Lonely At The Centre Of The Earth [Book Review], Jessica D. Gilbert Redman

Disability in LIS (DisLIS)

It’s Lonely at the Centre of the Earth focuses on the author/artist’s battle with depression and anxiety—and the overwhelming urge to end her own life. Readers who are dealing with anxiety or depression will recognize themselves over and over again, as they read the graphic novel and identify the myriad of ways they themselves are trying to function and “make it” in a world that doesn’t seem to be built for them—or to understand them.

Iep Process As An Avenue Or Barrier To Inclusion For Autism Spectrum Students: The Importance Of Collaboration, Stephanie C. Holmes

Tapestry: Journal of Research in Education

Decades of research concerning the implementation of Individual Education Plans (IEPs) have shown that building and implementing an IEP for a student with additional needs can be adversarial between the child’s parents and the school system. In 1975, when Public Law 94-142 was passed, the idea behind the law was not only to provide a free and appropriate public education (FAPE) for children with needs and disabilities but also to give parents of these children a voice in the process of creating the child’s IEP. Autism Spectrum Disorder (ASD) was not added to the list of needs to be served …