Digital Commons Network^™

Expanding Family Participation In Inpatient Rounds Through Remote Access: A Feasibility Study Using Automated Messaging, Praveen Meka, Susan Ayers, Jayme Wilder

Patient Experience Journal

Patient representatives (PR) often wish to be part of the care of their loved ones when hospitalized. However patients are frequently alone during morning bedside rounds. A feasibility study was conducted at a large New England Academic Center to evaluate whether short messaging service (SMS) notifications of morning round times with ability to conference-in could improve remote PR participation in inpatient rounds and assess its impact on communication, acceptability, and care experience. After IRB approval, 17 patients were recruited, resulting in 61 bedside encounters. PRs received daily SMS reminders with scheduled round times and joining instructions; care teams received daily …

The Implementation Of Family-Centered Care And Family Satisfaction In Caring For Children With Cancer, Lenny Gannika, Mulyadi Mulyadi, Jeanette Irene Christie Manoppo

Patient Experience Journal

Background: Family-Centered Care (FCC) is an approach that involves families actively in their children's care by emphasizing respect, collaboration, and support. The goal is to increase family satisfaction with the care of children with cancer. FCC covers six subscales: general satisfaction, information, family inclusion, communication, technical skills, and emotional needs. Objective: This study aims to analyze the relationship between implementing FCC and family satisfaction when caring for children with cancer. Methods: A cross-sectional quantitative study was conducted at the Estella Children's Cancer Center in Manado, Indonesia, from June to October 2024. Parents of hospitalized children with cancer were selected for …

Using Artificial Intelligence To Enhance Patient Comprehension And Risk Perception Of Pathology Reports: Findings From A Survey Of Patients And Pathologists, Jordyn Franco, Osee Koulong Leussa, Amer K. Abu Alfa, Mark K. Fung

Patient Experience Journal

Context: Electronic health records (EHRs) provide patients with direct access to their pathology reports, often before physician consultation. However, the complexity of medical terminology can lead to misinterpretation and anxiety. Artificial intelligence (AI), particularly large language models such as ChatGPT, may improve patient comprehension by simplifying medical language. Objective: This study evaluates ChatGPT's ability to enhance patient understanding and risk perception of pathology reports by generating patient-friendly explanations and assigning a numerical concern level. Pathologists assessed the accuracy of AI-generated summaries. Design: A publicly available colonoscopy pathology report was analyzed using ChatGPT, which produced a simplified summary and concern score. …

Improving Patients' Experience Through Nurturing Care For Patients Undergoing Kidney Biopsies: A Feedback Survey, Molefe Rapalai, Mahmoud Elshehawy, Johann Nicholas, Patrick Anthony Ball, Hana Morrissey

Patient Experience Journal

Background: Renal biopsies are a key tool in diagnosing kidney diseases, providing histopathological insights for personalised treatment plans. Despite their clinical value, little is explored about how patients experience this invasive procedure. Understanding these experiences is important for improving care quality, safety, and ensuring the process is as patient friendly as possible. There is also a lack of research capturing patient experience feedback on renal biopsies, making studies like this essential for guiding service improvement initiatives. Method: Observational study, May 2022 to June 2024. Eighty-six percutaneous renal biopsies performed. Fifty eligible patients invited to complete the Kidney Biopsy Patient Experience …

Capturing Patient-Centered Quality Of Life: Usability And Initial Validation Of The Pediatric Patient-Generated Index Following Esophageal Atresia Repair, Zanib Nafees, Julia Ferreira, Elena Guadagno, Nikki Ow, Nancy Mayo, Jean-Martin Laberge, Dan Poenaru

Patient Experience Journal

The Patient-Generated Index (PGI) is an individualized measure that allows patients to define the domains most important to their quality of life (QoL). This study evaluates the usability and preliminary validity of the pediatric Patient-Generated Index (pPGI) in children who previously underwent esophageal atresia (EA) repair. We conducted a mixed-methods study including the pPGI, EuroQol-5D-Youth (EQ-5D-Y), and PROMIS Life Satisfaction Short Form-8a. Children aged 7–17 years completed self-reports, while parents served as proxies for younger children. Cognitive interviews explored how children understood and completed the pPGI, and clinician interviews assessed clinical usability. Among 25 participants, the pPGI generated 104 text …

Preventing Delirium After Surgery: A Qualitative Study Of Patients, Caregivers, And Providers, Jennifer O'Brien, Maria Cruz, Heather Dyck, Hassan Yassin, Una Goncin, Lei Xia, Huma Aftab, Lilian Thorpe, Peter Hedlin

Patient Experience Journal

Post-operative delirium is the most common complication in older adults following surgery. Symptoms include agitation, difficulty focusing, sluggishness, hallucinations, slurred speech, restlessness, rapid mood swings, and uncooperative or aggressive behaviour. It can result in longer hospital stays, increased mortality, loss of functional independence, increased need for a higher level of care post-surgery, and an increased risk of readmission to hospital. We aimed to understand and describe the experiences of patients, families, and healthcare providers with postoperative delirium, and to identify targeted initiatives to support patient and family centered care for high-risk patients. We conducted a qualitative descriptive study using interviews …

Beliefs Regarding Patient Experience In The Emergency Department Among Individuals With Sickle Cell Disease, Elizabeth A. Ibiloye, Gloria N. Odonkor, Ayobami A. Aiyeolemi, Jamie C. Barner, Carolyn M. Brown, Hyeun Ah Kang, Benita A. Bamgbade

Patient Experience Journal

Individuals with sickle cell disease (SCD) frequently experience intense, unanticipated pain episodes known as vaso-occlusive events (VOEs), which often require emergency department (ED) treatment. However, they often report suboptimal experiences in the ED. Using the Theory of Planned Behavior (TPB), this study aimed to elicit salient beliefs regarding SCD patient experience in the ED. Three virtual focus group sessions were conducted with individuals with SCD recruited through a Texas SCD Association and Rare Patient Voice. Nine open-ended questions were used to elicit participants' behavioral, normative, and control beliefs regarding ED use when experiencing VOEs. Qualitative analysis was performed using a …

The Voices I Never Heard: Reflections From A Public Health Advocate On Representation, Silence, And Struggle, Araya Gautam

Patient Experience Journal

Representation of ethnic minorities among trial participants in the UK is poor. It is true that the need for diversity and inclusive language is important in research, but the practicality of making this a reality for patients from under-represented groups has not generally been the case. As a patient advocate, I have been a participant in clinical trial reviews and advisory boards during the past three years and have engaged in a national-level conversation about patient voice and equity. I draw connections between structured frameworks for patient and public involvement (PPI) in the UK and the more informal, community-based caregiving …

The Quiet End Of The Visit, Avinav Biswas

Patient Experience Journal

Reassuring language is a common and often well-intentioned feature of clinical encounters, frequently used to convey clinical confidence and bring visits to a close. This personal narrative reflects on an observed outpatient encounter during a physician shadowing experience in which reassurance appeared to function not only as comfort, but also as an implicit signal of conversational closure. From the perspective of a student observer, the piece describes a moment of patient hesitation that arose after reassurance was offered, then quietly disappeared as the visit concluded. Although the encounter was clinically appropriate and efficient, the unspoken pause highlighted how uncertainty can …

Navigating Medical Ambiguity: A Patient's Perspective On Communication, Timing, And Risk, J. Hansen

Patient Experience Journal

This essay recounts the experience of navigating re-vaccination decisions after an initial diagnosis of vaccine-associated myocarditis. A diagnosis later contested by other specialists. It is not a tale of medical error, but of diagnostic ambiguity and divergent clinical reasoning. My intent is to show how, in the absence of consensus, a patient was compelled to assume a central role in adjudicating between competing medical narratives. Recommendations are offered to make medical advice more available to patients and bridge a growing gap between medicine and the public.

Human Experience, The Boarding Crisis, And Moral Injury-A Call To Action, Thom Mayer, Wendy Dean

Patient Experience Journal

Patient experience has evolved to a broader definition of human experience, including workforce experience, and community experience. Hospital boarding is a common, pervasive problem facing healthcare, which threatens all levels of human experience, from patient experience, to workforce experience (moral injury and burnout in healthcare professionals), and community experience (delayed and denied access to care for patients, Emergency Medical Services, and even interhospital transfers. Effective system leadership across the systems and processes of healthcare, as well as stakeholder and boundary management, will be essential to deliver acceptable human experience, in addition to solutions to smooth surgical flow, improve discharge systems, …

Human Experience: A Catalyst For Global Connection, Jason A. Wolf

Patient Experience Journal

As I think about the state of play in our world today, I find we have two choices in how we react. One is with a sense of despair driven by the intentional efforts to disconnect humanity being perpetuated by some. The other, with a sense of hope, that even in the face of these forces, there are those that strive relentlessly to foster connection and opportunity. I find the path forward in holding the tension of pragmatic idealism – that we can dream, with big and noble goals, while recognizing our path forward must be grounded in practical and …

Aspek Sosio-Kultural Pencegahan Terorisme, Thomas Sunaryo

Jurnal Hukum & Pembangunan

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Sudah Saatnya Indonesia Memiliki Kodifikasi Hukum Perdata Internasional, Mutiara Hikmah

Jurnal Hukum & Pembangunan

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Perlindungan Hak Cipta Musik Atau Lagu Di Indonesia, Hendra Tanu Atmadja

Jurnal Hukum & Pembangunan

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Penyelesaian Tindak Pidana Pemilu Di Indonesia, Topo Santoso

Jurnal Hukum & Pembangunan

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Pengaruh Demokrasi Terhadap Lingkungan Budaya Nasional, Hendra Nurtjahjo

Jurnal Hukum & Pembangunan

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Putusan Arbitrase Asing Dapat Dibatalkan Di Indonesia, Tineke Teugeh Longdong

Jurnal Hukum & Pembangunan

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Peran Serta Masyarakat Dalam Pembangunan Kehutanan, Jufrina Rizal

Jurnal Hukum & Pembangunan

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Family Perspectives: A Qualitative Examination Of College Athlete Suicide During The Spring 2022 Semester, Elaine M. Anton-Lotruglio, Sophia M. Burke, Kimberly H. Mcmanama O'Brien

Journal of Issues in Intercollegiate Athletics

Objective: Suicide among college athletes remains largely underexplored despite rising rates. This qualitative study aimed to explore family members' perspectives on why their loved ones died by suicide. Participants: The study included family members (N=10) of three college athletes who died by suicide in the spring 2022 semester. Methods: Semi-structured interviews were conducted between March and July 2024. ATLAS.ti and Braun and Clarke's thematic analysis were employed to analyze the data and identify themes. Results: The data revealed three primary themes: factors contributing to the suicide crisis, presence of a suicide crisis, and university crisis response. The themes suggested a …

Beyond The Playing Field: Athletic Identity, Academic Performance, And Career Readiness Among Student-Athletes, Lucy Mcafee, Alexander Traugutt, Caroline J. Ketcham, Eric E. Hall

Journal of Issues in Intercollegiate Athletics

This mixed-methods study examined how athletic participation relates to perceived career readiness development and explored relationships between athletic identity, academic performance, and post-graduation plans among 124 Division I student-athletes (varsity and club) at a private university. Participants completed surveys measuring athletic identity (AIMS), perceived development of NACE Career Readiness competencies, and open-ended questions about how athletics prepared them for future careers. Varsity athletes reported significantly higher perceived development than club athletes across five competencies: professionalism, critical thinking, communication, technology, and career and self-development. Male athletes reported higher perceived development in professionalism, critical thinking, and technology. Athletic identity demonstrated significant positive …

Penyelesaian Sengketa Kepemilikan Pulau Sipadan Dan Ligitan, Hikmahanto Juwana

Jurnal Hukum & Pembangunan

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Beberapa Catatan Tentang Persoalan Sipadan-Ligitan Serta Masalah Terkait Lainnya Dengan Implementasi Negara Kepulauan, Ir. Adi Sumardiman

Jurnal Hukum & Pembangunan

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Pulau-Pulau Terluar Dan Batas Wilayah Nasional: Status Delimitasi Batas Wilayah Nusantara, R. W. Martindas - Klaas J.V.

Jurnal Hukum & Pembangunan

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Penyelesaian Sengketa Sipadan-Ligitan: Interpelasi, Hasjim Djalal

Jurnal Hukum & Pembangunan

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Ligitan Dan Sipadan : Bukan Soal 2 Diantara 17.000, A. Zen Umar Purba

Jurnal Hukum & Pembangunan

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Affidavit Of Adi Sumardiman, Adi Sumardiman

Jurnal Hukum & Pembangunan

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Konsepsi Hukum Negara Nusantara Pada Konperensi Hukum Laut Ke-Iii, Mochtar Kusumaatmadja

Jurnal Hukum & Pembangunan

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Peran Tni Al Dalam Pengamanan Dan Pemberdayaan Pulau Terluar Ri, Bernard Kent Sondakh

Jurnal Hukum & Pembangunan

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Pelaksanaan Administrasi Pemerintahan Dan Pengelolaan Pulau-Pulau Indonesia Di Wilayah Perbatasan, Hari Sabarno

Jurnal Hukum & Pembangunan

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