Open Access. Powered by Scholars. Published by Universities.®

Digital Commons Network™

Open Access. Powered by Scholars. Published by Universities.®

Discipline
Institution
Keyword
Publication Year
Publication
Publication Type
File Type

Articles 71041 - 71070 of 5207156

Full-Text Articles in Entire DC Network

Generalized Planning Using Language Models And Its Applications, Vishal Pallagani Apr 2026

Generalized Planning Using Language Models And Its Applications, Vishal Pallagani

Theses and Dissertations

Planning is a fundamental capability for intelligent systems, yet classical planners remain difcult to scale and generalize across domains due to their reliance on hand- engineered models, brittle search procedures, and limited adaptability. These limita- tions constrain real-world applications that require fexible reasoning, robust decision- making, and the ability to operate across diverse environments.

Large language models have emerged as powerful learners supported by their ar- chitectures and large-scale training data, demonstrating strong capabilities in tasks such as question answering, code generation, summarization, and reasoning. Moti- vated by their broad generalization abilities, I investigate whether language models can be systematically …


Comparing Stress Levels And Experiences Between Mothers And Fathers Of Children With Angelman Syndrome, Katherine Helen Fix Apr 2026

Comparing Stress Levels And Experiences Between Mothers And Fathers Of Children With Angelman Syndrome, Katherine Helen Fix

Theses and Dissertations

Angelman syndrome (AS) is a neurogenetic disorder characterized by significant developmental and cognitive impairments, disruptive behaviors, and a hallmark happy demeanor. Past studies have shown that certain features of AS contribute to increased parental stress. Other studies report that in general the stress of parents of children with disabilities is influenced by stereotypical gender roles surrounding factors including daily care taking tasks, financial responsibility, and medical care involvement. This study aimed to compare perspectives among mothers and fathers of individuals with AS to identify discrepancies and themes relating to stress, specific hardships, and caregiving roles. Parents of children with AS …


Exploring Genetic Causes And Perspectives Of Uninformative Snp- Based Cell-Free Dna Prenatal Screening Results, Teeya Mercer Apr 2026

Exploring Genetic Causes And Perspectives Of Uninformative Snp- Based Cell-Free Dna Prenatal Screening Results, Teeya Mercer

Theses and Dissertations

Single nucleotide polymorphism (SNP)-based cell-free DNA (cfDNA) prenatal screening can yield uninformative results, including “atypical finding” and low fetal fraction results which can present challenges for clinical management. Limited data exists regarding the underlying causes, pregnancy outcomes, and patient experiences associated with these results. The purpose of this study was to explore the different potential underlying causes of these uninformative results while also exploring the pregnancy outcomes and the perspectives of patients who have received one. A mixed methods study was conducted consisting of a retrospective chart review on patients who had a documented appointment with a genetic counselor for …


Are We Talking About Culture?: Exploring Discussions In Clinical Supervision, Rosalba Bonilla Apr 2026

Are We Talking About Culture?: Exploring Discussions In Clinical Supervision, Rosalba Bonilla

Theses and Dissertations

Cultural competence is understood as a necessary piece in providing mental health services (American Psychological Association, 2017), however little research has evaluated how conversations pertaining to culture occur during clinical supervision. This study is designed to examine the frequency, content, and predictors of cultural discussions in 631 clinical supervision sessions between 93 supervisor-therapist dyads. Using transcripts from school-based mental health services in California and South Carolina, descriptive analyses were applied to identify commonly used words informed by multicultural dictionaries and the ADDRESSING model. The most commonly used words in the dataset pertained to gender (36.5%) and national origin (17.4%) cultural …


Destruction, Possession, And Power: The Treaty Of Hartford As A Prototype For United States Indian Policy, Madyson Anne Buchalski Apr 2026

Destruction, Possession, And Power: The Treaty Of Hartford As A Prototype For United States Indian Policy, Madyson Anne Buchalski

Theses and Dissertations

Amidst a growing interest in the field of Native American legal history, this article aims to bridge a gap in the scholarship between the colonial period and the United States’ nineteenth- and twentieth-century federal Indian Policy. By examining the terms presented in the lesser-known Treaty of Hartford, signed in 1638 following the Pequot War, it is demonstrated that many foundational legal precedents which reappeared in later centuries emerged much earlier than typically assumed. By highlighting this overlooked agreement and comparing it against later proceedings, this article takes a fresh approach to Native American legal history by drawing a throughline from …


Gta Anxiety: Teacher-Development For Graduate Students In English, Gracie Rose Warda Apr 2026

Gta Anxiety: Teacher-Development For Graduate Students In English, Gracie Rose Warda

Theses and Dissertations

As composition studies turns its attention toward graduate pedagogy, scholars like Macauley and Jankens suggest that teacher-development programs, that is teacher- support courses for graduate students just beginning as university instructors, might be one place to start. Many GTA instructors enrolled in the teacher-development course demonstrate an ironic ambivalence that mirrors that of their First-Year Composition (FYC) students. The following case study style research draws upon the lived experiences of four scholars in English departments across the United States, as well as my own experience from the researcher positionality of a current GTA. Synthesizing these lived experiences is an attempt …


Understanding Spanish Language Patterns In Therapy: Insights Into Therapists, Clients, And Session Characteristics, Vanessa Perez Apr 2026

Understanding Spanish Language Patterns In Therapy: Insights Into Therapists, Clients, And Session Characteristics, Vanessa Perez

Theses and Dissertations

Spanish-speaking individuals face significant barriers to accessing linguistically appropriate mental health services. Language match between therapists and clients has been associated with positive impacts on the therapeutic process; however, little is known about how Spanish is used in youth therapy sessions or how therapeutic and demographic characteristics influence its use. Using 54 recorded Spanish-speaking therapy sessions from a randomized controlled trial of school-based mental health services in Los Angeles, California, this study sought to understand who participated in these sessions, how Spanish was used, and what predicted its use. To address these aims, data were drawn from electronic health records, …


The Framing Of Sherlock Holmes, William Charles Wren Apr 2026

The Framing Of Sherlock Holmes, William Charles Wren

Theses and Dissertations

In the Preface to The Portrait of a Lady, Henry James offers a metaphor for how we should look at novels: a view that pictures a million windows in which we can see a million different stories. Through James’ thinking with a million windows comes a million frames, a narrative device that became popularized in the late Victorian novel. This narrative framework is used by Arthur Conan Doyle, William Morris, H.G. Wells, among others, which brough forth new self-reflexive developments in plot and character development. Arthur Conan Doyle uses narrative framing devices to great effect throughout The Adventures of Sherlock …


Teachers’ Needs And Preferences Versus School Leaders’ Perceptions: Recommendations For Professional Development On Literacy And Technology Integration In A Rural Elementary School, Kristen Sargent Hopkins Apr 2026

Teachers’ Needs And Preferences Versus School Leaders’ Perceptions: Recommendations For Professional Development On Literacy And Technology Integration In A Rural Elementary School, Kristen Sargent Hopkins

Theses and Dissertations

The purpose of this action research was to identify and describe early childhood teachers’ needs and preferences, as well as district and school leaders’ perceptions of teachers’ needs and preferences, for professional development on literacy and technology integration at South Elementary School. Like much of South Carolina, South Elementary has reported decreases in reading performance and skills, causing leaders to focus on teacher professional development in early literacy and technology integration. This research was guided by two research questions: (1) What are early childhood teachers’ needs and preferences for professional development on literacy and technology integration at South Elementary School? …


Student Insights On The Most Valuable Aspects Of Genetic Counseling Programs’ Online Presence During The Application Process, Anna Cathryn Girten Apr 2026

Student Insights On The Most Valuable Aspects Of Genetic Counseling Programs’ Online Presence During The Application Process, Anna Cathryn Girten

Theses and Dissertations

When applying to genetic counseling graduate programs (GCGPs), past research has demonstrated that students prefer websites that are updated and easy to navigate. Program websites contribute to students’ first impressions of the program and serve as an important source of information, but there is limited research on the role of social media and other online content during the application process. This study aimed to identify the importance of online platforms and helpfulness of specific content for students applying to GCGPs. An electronic survey was distributed to current students and recent graduates of accredited genetic counseling programs, and 148 responses were …


The Effects Of Whole-Body Vibration On Countermovement Jump Kinetics And Performance, Garrett Reese Evans Apr 2026

The Effects Of Whole-Body Vibration On Countermovement Jump Kinetics And Performance, Garrett Reese Evans

Theses and Dissertations

PURPOSE: Whole-body vibration (WBV) is reported to be an effective training modality for increasing vertical jump height. However, the underlying mechanisms are unclear because limited studies have examined the effects of WBV on kinetic variables underling jump height. The purpose of this study is to examine the effects of WBV on jump height (JH), modified reactive strength index (RSImod), and eccentric rate of force development (eRFD) during the countermovement jumps (CMJ) in recreationally-active young adults.

METHODS: Fifteen participants (13 male, 2 female, 21.5±1.89yr, 1.78±0.10m, 80.2±15.0kg) completed three randomly-ordered WBV exposures (0s, 30s, or 60s: 35Hz, 2mm amplitude). Three CMJ were …


Instructional Practices, Belonging, And Self-Efficacy In Rural Inquiry-Based Classrooms: A Structural Equation Model Of Direct And Indirect Effects, Jennifer Nichol Harrist Apr 2026

Instructional Practices, Belonging, And Self-Efficacy In Rural Inquiry-Based Classrooms: A Structural Equation Model Of Direct And Indirect Effects, Jennifer Nichol Harrist

Theses and Dissertations

Research on inquiry-based learning (IBL) has largely focused on student achievement outcomes, with less attention given to how classroom social dynamics influence students’ motivational beliefs, particularly within rural educational contexts. Rural schools often operate within smaller, close-knit communities where interpersonal relationships may shape students’ academic experiences in distinctive ways. The purpose of this study was to examine the relationships between instructional practices, belonging, and students’ academic self-efficacy in rural inquiry-based learning environments. Using self-efficacy theory and belonging frameworks, the study investigated whether students’ perceptions of teacher and peer belonging mediated the relationship between instructional practices and perceived academic competence.

Survey …


Evaluating The Effectiveness Of The Genetic Cancer Prevention Clinic As A Tool For Managing Patients At Elevated Risk For Cancer, Sydney Marlene Price Apr 2026

Evaluating The Effectiveness Of The Genetic Cancer Prevention Clinic As A Tool For Managing Patients At Elevated Risk For Cancer, Sydney Marlene Price

Theses and Dissertations

People with an inherited cancer predisposition but have not been affected with cancer or tumors themselves are known as previvors. A previous study suggested the need for the establishment of a specialized management clinic for previvors in the Midlands of South Carolina. In 2022, the Genetic Cancer Prevention Clinic (GCPC) was established to serve this patient population. This study examined effectiveness of the GCPC in helping previvors manage their psychological and medical needs. A mixed methods design consisting of a chart review of patients enrolled in the GCPC (N=34) and a semi-structured phone interview (n=3) was …


Parent & Provider Perspectives On Rehabilitative Therapies For Children With Mucopolysaccharidosis Type Iii, Laura Denise Ciccarelli Apr 2026

Parent & Provider Perspectives On Rehabilitative Therapies For Children With Mucopolysaccharidosis Type Iii, Laura Denise Ciccarelli

Theses and Dissertations

Mucopolysaccharidosis type III (MPS III) is a neurodegenerative lysosomal storage disorder characterized by autistic behaviors and skill regression. Although there is currently no cure for MPS III, various therapeutic approaches are recommended to manage the associated clinical manifestations. The aim of this exploratory study was to assess the perspectives of parents and providers on rehabilitative therapy for their children or patients with MPS III. Furthermore, it evaluated the potential benefit of an MPS III therapy resource developed by genetic counselors. Interview and survey responses were collected between September 2025 and January 2026. Eligible providers included certified speech, physical, occupational, and …


Understanding Contemporary Declines In Psychological Well-Being Among Youth: A Self-Determination Theory Approach, Shawn Stewart Mcnally Apr 2026

Understanding Contemporary Declines In Psychological Well-Being Among Youth: A Self-Determination Theory Approach, Shawn Stewart Mcnally

Theses and Dissertations

This dissertation examines contemporary declines in psychological well-being among older adolescents and emerging adults through the lens of Self-Determination Theory (SDT). Across three interrelated papers, it explores how changing social conditions may shape experiences of autonomy, competence, and relatedness, SDT’s basic psychological needs, and how these processes may be especially consequential during adjustment to and navigation of college. The first paper is conceptual in nature and argues that contemporary societal pressures, parenting practices, and technology-related contexts may operate together to undermine basic psychological needs. The second paper is qualitative in nature and uses interviews with undergraduate students to examine how …


Strain-Induced Oxygen Vacancy Effect On Thermoelectric Properties In Oxide Thin Films, Ebenezer Seesi Apr 2026

Strain-Induced Oxygen Vacancy Effect On Thermoelectric Properties In Oxide Thin Films, Ebenezer Seesi

Theses and Dissertations

The development of highly efficient and cost-effective thermoelectric (TE) materials is critical for converting waste heat into electricity in advanced power generators. For high-temperature TE applications, transition metal oxides (TMOs) have attracted significant interest because they are comparatively safe, earth-abundant, and stable under oxidizing conditions where many conventional heavy-metal and chalcogenide TE materials degrade. However, the TE performance of TMOs is limited by the intrinsic trade-off between the Seebeck coefficient (S) and electrical conductivity (σ), both of which depend inversely on charge carrier concentration. This constraint limits the achievable power factor (PF = S²∙σ) and remains a central obstacle for …


Fuel Flexibility, Gas Turbine Combustion, Laser Diagnostics, Lean Blow-Out, Austin Thomas Shealy Apr 2026

Fuel Flexibility, Gas Turbine Combustion, Laser Diagnostics, Lean Blow-Out, Austin Thomas Shealy

Theses and Dissertations

To address increasing global energy consumption, energy industries seek to implement alternative fuels and increase energy generation efficiencies to meet energy demands. However, alternative and bioderived fuels present both chemical and physical properties significantly different from traditional hydrocarbon fuels typically used for gas turbine power generation. Consequently, they present unforeseen technical challenges. To address these challenges, ammonia has been suggested for use as a hydrogen carrier fuel in gas turbines. Ammonia presents many challenges by having a low overall reactivity as well as low energy density both by mass and volume. To address ammonia’s unique combustion characteristics, two strategies have …


From Adolescence To Adulthood: The Impact Of Parental Support, Resilience, Academic Motivation, And Mental Health In Black Women & Girls: A Multi-Manuscript Dissertation, Jessica Mikaja Barnes Apr 2026

From Adolescence To Adulthood: The Impact Of Parental Support, Resilience, Academic Motivation, And Mental Health In Black Women & Girls: A Multi-Manuscript Dissertation, Jessica Mikaja Barnes

Theses and Dissertations

Fatherlessness in the Black community is a growing phenomenon that has been widely studied. Although this has been widely studied, there is limited literature that focuses on Black adolescent girls and Black women in early adulthood, more specifically, high school age and college aged women. The literature that has been previously published presents an overwhelmingly negative connotation when connecting Black girls and absent fathers. This multi-manuscript dissertation consists of two studies, both of which explore the impact of fatherlessness on resilience, parental support, and academic motivation, and mental health of Black girls and women. For the first study, I employed …


The Secondary City: Georgetown And The Waccamaw Neck Within A Global Maritime Perspective, 1740-1850, John Paden Wilson Apr 2026

The Secondary City: Georgetown And The Waccamaw Neck Within A Global Maritime Perspective, 1740-1850, John Paden Wilson

Theses and Dissertations

Georgetown is not and has never been the primary city on the South Carolina coast. Its harbor is shallow and muddy and its urban development lacks the commercial density found in more prominent Atlantic port cities such as New York, Boston, Philadelphia, and Charleston. Despite all indicators to the contrary, this marshy backwater outpost became the second richest port in the United States prior to 1850 through rice and indigo exportation. As a result, the port drew people, goods, and ideas from around the Atlantic. Despite its small size and limited cultural relevance, Georgetown was a regional node for international …


Politics And Intergenerational Conflict: Investigating The Impact Of Affective Polarization On Well-Being In The Vietnamese American Community, Van Phan Apr 2026

Politics And Intergenerational Conflict: Investigating The Impact Of Affective Polarization On Well-Being In The Vietnamese American Community, Van Phan

Theses and Dissertations

Vietnamese Americans are more likely than other Asian subgroups to identify as Republican. Despite this, Asian American youth, including Vietnamese Americans, still overwhelmingly identify with the Democratic Party. While political orientation could be a source of intergenerational conflict between Asian American generational groups, few studies assess these issues. The present study is an exploratory, hypothesis-generating study investigating the effect of affective polarization in politics on the relationship between intergenerational conflict and well-being for first-and-second-generation Vietnamese Americans. Results showed that affective polarization did act as a moderator for intergenerational conflict on perceived stress for both first-and-second-generation Vietnamese Americans. Specifically, Vietnamese Americans …


Assessing Hereditary Cancer Risk And Genetic Counseling Knowledge And Interest In Appalachian Kentuckians, Ashton Farmer Apr 2026

Assessing Hereditary Cancer Risk And Genetic Counseling Knowledge And Interest In Appalachian Kentuckians, Ashton Farmer

Theses and Dissertations

Appalachian Kentucky has the highest cancer incidence in the United States and about 5-10% of all cancer has a hereditary cause. Despite this, there are no board- certified genetic counselors located in the area, and few genomic studies have been done in this population. This study aimed to define Appalachian Kentuckians’ interest in cancer genetic counseling and knowledge of cancer risk factors. An original online survey including multiple choice, Likert scale, and open response items was utilized to assess interest in pursuing cancer genetic counseling and how knowledge of cancer causes impacts interest in cancer genetic counseling. A total of …


From Boca Chica To Mars: Spacex, Desubjectification And The Making Of Expendable Futures, Iwalewa Oluwajuwonlo Olorunyomi Apr 2026

From Boca Chica To Mars: Spacex, Desubjectification And The Making Of Expendable Futures, Iwalewa Oluwajuwonlo Olorunyomi

Theses and Dissertations

This project examines how SpaceX’s development of Starbase Boca Chica Beach in Brownsville, Texas, produces what I call desubjectified futures: the systematic transformation of residents from subjects who imagine and create futures into objects upon which futures are imposed. Drawing on five weeks of ethnographic fieldwork, including interviews with residents, environmental justice organizers, and members of the Carrizo/Comecrudo Tribe, I argue that SpaceX achieves hegemony not simply by manufacturing consent but through an ontological operation that strips communities of the capacity for collective self-determination before consent becomes meaningful.

I trace this process through three interrelated modes. First, discursively, how SpaceX …


Targeting Endothelial Dysfunction In Capillary Malformations: Mechanistic Insights And Adjunct Therapeutic Strategies, Mackenzie Azuero Apr 2026

Targeting Endothelial Dysfunction In Capillary Malformations: Mechanistic Insights And Adjunct Therapeutic Strategies, Mackenzie Azuero

Theses and Dissertations

Port-wine stains (PWS), clinically classified as capillary malformations (CM), are congenital vascular anomalies characterized by abnormally dilated dermal capillaries that persist throughout life and may progressively darken and thicken with age. Pulsed dye laser (PDL) therapy remains the clinical standard of care for PWS; however, complete lesion clearance is uncommon and many patients experience incomplete or temporary responses. Increasing evidence suggests that endothelial survival and vascular remodeling following laser exposure may contribute to lesion persistence and recurrence, highlighting the need for adjunct therapeutic strategies that target the underlying cellular mechanisms of vascular recovery. This thesis investigates endothelial dysfunction and therapeutic …


Recollection Of The Archaic Psyche: A Comparative Study Of Viacheslav Ivanov’S Realistic Symbolism And Carl Gustav Jung’S Analytical Psychology, Elizabeth Jay Wheless Apr 2026

Recollection Of The Archaic Psyche: A Comparative Study Of Viacheslav Ivanov’S Realistic Symbolism And Carl Gustav Jung’S Analytical Psychology, Elizabeth Jay Wheless

Theses and Dissertations

This thesis reflects my three years at the University of South Carolina’s Master of Fine Arts in Acting program, including the roles I’ve played and shows I’ve acted in. The chapters include detailed accounts of my time acting as The Teacher in The Visit by Friedrich Dürrenmatt in March 2024, the Choragos in Antigone by Sophocles in October 2024, Mary in Mauritius by Theresa Rebeck in February 2025 and Gwendolen in The Importance of Being Earnest by Oscar Wilde in November 2025. Each chapter has subchapters of “auditions and callbacks,” “rehearsals,” “performances,” and “lessons and conclusion.” This thesis is a …


Recollection Of The Archaic Psyche: A Comparative Study Of Viacheslav Ivanov’S Realistic Symbolism And Carl Gustav Jung’S Analytical Psychology, Jack Wilson Dedmondt Apr 2026

Recollection Of The Archaic Psyche: A Comparative Study Of Viacheslav Ivanov’S Realistic Symbolism And Carl Gustav Jung’S Analytical Psychology, Jack Wilson Dedmondt

Theses and Dissertations

While nominally appearing disparate in their construction, the theoretical systems pioneered by Russian Symbolist poet Viacheslav Ivanov and Swiss psychologist Carl Gustav Jung operate under parallel hermeneutics of inference concerning the symbolic comprehension of reality. This dichotomy is drawn between an immediate (conscious) stratum of sensible reality of Apollonian, concrete, individual, and intelligible forms, and a transcendent (unconscious) stratum of Dionysian, associative, collective, and nominally unintelligible forms. In the present investigation, we aim to identify the proximity between Jungian analytical psychology and Ivanov’s “Realistic Symbolism” in order to provide the groundwork for future application of Jungian methodologies as an interpretive …


Learning To Stop Being Clever, Dominic Delong-Rodgers Apr 2026

Learning To Stop Being Clever, Dominic Delong-Rodgers

Theses and Dissertations

This thesis explores the actors process for four productions in the University of South Carolina’s Theatre and Dance Department spanning from Winter of 2024 to Fall of 2025 and taking place as part of the MFA program in acting. These four productions – The Visit by Frederich Durrenmatt, directed by Craig Miller; Antigone by Sophocles, directed by Lauren Wilson; Mauritius by Theresa Rebeck, directed by Erica Tobolski; and The Importance of Being Earnest by Oscar Wilde, directed by Dustin Whitehead – form critical points in the MFA program of study, allowing for the practical application of techniques and approaches learned …


Essays In Financial Markets And Corporate Decisions, Siwen Zhang Apr 2026

Essays In Financial Markets And Corporate Decisions, Siwen Zhang

Theses and Dissertations

The first chapter studies the feedback effects in the loan market. Using the secondary market prices of syndicated loans, I find that information in loan prices has real effects on corporate investment decisions. For public firms, the sensitivity of capital expenditure to their loan price is significant, and this sensitivity is higher when loan prices are more informative. In making M&A decisions, public acquirers are less likely to withdraw a deal when their loan returns are higher. Without access to stock prices, private acquirers change their focus from their public peers’ valuations to their own loan prices as a direct …


Resting-State Functional Connectivity Of Dopaminergic Reward Pathways Across The Adult Lifespan, Julia Cardarelli Apr 2026

Resting-State Functional Connectivity Of Dopaminergic Reward Pathways Across The Adult Lifespan, Julia Cardarelli

Theses and Dissertations

This study investigates the effect of age on three major dopaminergic reward pathways using resting state functional magnetic resonance imaging. Resting state imaging refers to low-frequency brain connectivity in the absence of task demands or directed thought patterns. The pathways included in this thesis are as follows: the nigrostriatal, mesolimbic, and mesocortical pathways. These pathways rely on dopamine and are known for a variety of functions, most notably regulating responses to rewarding and aversive stimuli. This analysis compared the connectivity between key regions of interest, where transmission originates in the midbrain and substantia nigra, and terminates in the orbitofrontal cortex, …


From Experience To Reasoning: Offline Rl Subroutines And Llm-Based Grounding For Sample-Efficient Reinforcement Learning, Jianhai Su Apr 2026

From Experience To Reasoning: Offline Rl Subroutines And Llm-Based Grounding For Sample-Efficient Reinforcement Learning, Jianhai Su

Theses and Dissertations

Improving the learning efficiency of reinforcement learning (RL) agents remains a fundamental challenge, particularly in environments characterized by sparse rewards, long horizons, or partial observability. This dissertation investigates how RL agents can learn more efficiently through two complementary forms of guidance: mechanisms derived purely from an agent’s own experience and mechanisms that leverage reasoning priors from pretrained large language models (LLMs).

On the experience-driven side, the frst study develops a general framework for incorporating ofine RL algorithms as subroutines within an online RL process. In this framework, an agent periodically repurposes its replay bufer as an ofine dataset and applies …


Patient-Centered Insights Into The Triage And Diagnostic Experience Of Hypermobile Ehlers-Danlos Syndrome In Clinical Genetics Services., Rylan Makenzie Sweitzer Apr 2026

Patient-Centered Insights Into The Triage And Diagnostic Experience Of Hypermobile Ehlers-Danlos Syndrome In Clinical Genetics Services., Rylan Makenzie Sweitzer

Theses and Dissertations

Hypermobile Ehlers-Danlos syndrome (hEDS) is the only form of Ehlers-Danlos syndrome (EDS) without a known genetic etiology. One of the criteria for diagnosing hEDS is the exclusion of other possible causes. This often leads to referrals for a clinical diagnosis with a medical geneticist or genetic testing for other forms of EDS. This study aimed to investigate the education that individuals diagnosed with or suspected to have hEDS are receiving and what genetic providers include in their appointments with these patients. This study included two original online surveys. The first was sent to patients through providers at Indiana University and …