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Training The Church To Support Sufferers Of Mental Illness Through Comfort Clinics, Jonathan D. Blankenship Mar 2026

Training The Church To Support Sufferers Of Mental Illness Through Comfort Clinics, Jonathan D. Blankenship

Doctoral Dissertations and Projects

The problem at Laurel Baptist Church (LBC) is the lack of trained members who are equipped to support those suffering from mental illness. The purpose of this DMIN action research project is to create Comfort Clinics, a structured program to train members to support sufferers of mental illness. Normative-sized churches are often uninformed on the topic of mental illness. Subsequently, in those environments, stigmas are nurtured, sufferers feel unseen, and church members lack the necessary training to provide the comfort and support that mental sufferers need. Building on the ecclesiastical call to “comfort those who are in any affliction” (2 …


2026-03-10 University Graduate Committee - Minor Curriculum Change Proposal - M.A. In Counseling, Morehead State University. Faculty Senate., University Graduate Committee. Mar 2026

2026-03-10 University Graduate Committee - Minor Curriculum Change Proposal - M.A. In Counseling, Morehead State University. Faculty Senate., University Graduate Committee.

Faculty Senate Records

Minor curriculum change proposal for M.A. in Counseling: Counseling Concentration as submitted to the University Graduate Committee on February 4, 2026 and approved on March 10, 2026.


2026-03-10 University Graduate Committee - Minor Curriculum Proposal - M.A. In Counseling, Morehead State University. Faculty Senate., University Graduate Committee. Mar 2026

2026-03-10 University Graduate Committee - Minor Curriculum Proposal - M.A. In Counseling, Morehead State University. Faculty Senate., University Graduate Committee.

Faculty Senate Records

Minor curriculum change proposal for M.A. in Counseling: School Counseling Concentration as submitted to the University Graduate Committee on February 4, 2026 and approved on March 10, 2026.


2026-03-10 University Graduate Committee - Course Proposal For Soc 631, Morehead State University. Faculty Senate., University Graduate Committee. Mar 2026

2026-03-10 University Graduate Committee - Course Proposal For Soc 631, Morehead State University. Faculty Senate., University Graduate Committee.

Faculty Senate Records

Course proposal for SOC 631 Health Structures and Behavior submitted to the University Graduate Committee on February 6, 2026 and approved on March 10, 2026.


Incarcerated Geriatric Patients’ Experiences Of Aging And Healthcare, Michelle I Suh, Stephen Chen, Megan Benavides, Sumin Yoon, Nia Lucas, Josiah D Rich, Marc David Robinson, Anita N Chary Mar 2026

Incarcerated Geriatric Patients’ Experiences Of Aging And Healthcare, Michelle I Suh, Stephen Chen, Megan Benavides, Sumin Yoon, Nia Lucas, Josiah D Rich, Marc David Robinson, Anita N Chary

Faculty, Staff and Students Publications

Older adults comprise the fastest growing demographic in correctional facilities in the United States. Studies have shown older adults in prison report difficulty accessing healthcare and navigating the prison environment. Little is known about how older adults navigate aging and access healthcare in the jail setting. We sought to explore experiences of older adults incarcerated in a county jail. We conducted semi-structured qualitative interviews with 20 older adults (> 50 years old) who were incarcerated at a local county jail and were referred to the emergency department for acute care needs. Interviews focused on experiences of aging while incarcerated and …


Examining A Mindfulness-Based Intervention For Anxiety: A Single Case Analysis With A Mixed Research Method., Aysun Parlar Yazici, Alyson Norman, Alison Bacon Mar 2026

Examining A Mindfulness-Based Intervention For Anxiety: A Single Case Analysis With A Mixed Research Method., Aysun Parlar Yazici, Alyson Norman, Alison Bacon

School of Psychology

This single-case study examines the impact of a 6-week Mindfulness-Based Intervention (MBI) on an individual experiencing anxiety, with a particular focus on intolerance of uncertainty (IU). A mixed-methods approach was used, combining quantitative measures with qualitative data from session notes, interviews, and participant feedback. Quantitative findings indicated reductions in stress (DASS-21: pre-test = 36, post-test = 26), anxiety (pre-test = 30, post-test = 18), and depression (pre-test = 38, post-test = 28) scores from pre- to post-intervention. Increases were observed in mindfulness (pre-test = 42, post-test = 64) and resilience (pre-test = 28, post-test = 36), alongside a reduction in …


An Interpretable Machine Learning Model For Predicting Prognosis Of Medulloblastoma Integrating Genetic And Clinical Features, Yu Su, Kaiwen Deng, Xuan Chen, Zhaoyang Feng, Dongyang Wang, Craig Daniels, Hyun Yong Koh, Ricardo Daniel Gonzalez, Hiromichi Suzuki, Tsubasa Miyauchi, Fei Liu, Wei Wang, Jiankang Li, Shuaicheng Li, Rui Chen, Xiaoguang Qiu, Chunde Li, Tao Jiang, Michael D Taylor, Jiao Zhang, Hailong Liu, Yu Tian Mar 2026

An Interpretable Machine Learning Model For Predicting Prognosis Of Medulloblastoma Integrating Genetic And Clinical Features, Yu Su, Kaiwen Deng, Xuan Chen, Zhaoyang Feng, Dongyang Wang, Craig Daniels, Hyun Yong Koh, Ricardo Daniel Gonzalez, Hiromichi Suzuki, Tsubasa Miyauchi, Fei Liu, Wei Wang, Jiankang Li, Shuaicheng Li, Rui Chen, Xiaoguang Qiu, Chunde Li, Tao Jiang, Michael D Taylor, Jiao Zhang, Hailong Liu, Yu Tian

Faculty, Staff and Students Publications

Background: Medulloblastoma (MB), the most common malignant pediatric brain tumor, lacks prognostic tools integrating clinical, molecular, and treatment-related characteristics for individualized management.

Methods: We developed machine learning models using multicenter data from 729 Chinese patients (2001-2023), of whom 509 were assigned to the training set and 220 to the testing set, and further validated the models on 201 patients from international MB consortia. To accommodate patients and researchers with varying datatypes, four application scenarios were established, including clinical-molecular-radiotherapy (CMR), clinical-molecular (CM), clinical-radiotherapy (CR), and clinical-only (CO).

Results: We construct four model scenarios and assess their predictive performance in the testing …


Hematopoietic Cell Transplantation For Wiskott-Aldrich Syndrome: A Pidtc Report, Jessie L Alexander, Blachy J Dávila Saldaña, Ruta Brazauskas, Sravya Gethika Dammalapati, Linda M Griffith, Ami J Shah, Kristin A Shimano, Hans D Ochs, Jack J Bleesing, Christen L Ebens, Malika Kapadia, Andrea Bauchat, Neena Kapoor, Joseph H Oved, Hesham Eissa, Hannah Lust, Michael D Keller, Hilary Haines, Shanmuganathan Chandrakasan, Julie-An Talano, Ahmad Rayes, Lisa Madden, Evan Shereck, Holly K Miller, Lisa Forbes Satter, Caridad Martinez, Jacob Rozmus, Jeffrey J Bednarski, Lolie C Yu, Deepakbabu Chellapandian, Victor M Aquino, Alan Knutsen, Hey Chong, Ashley Chopek, Alfred P Gillio, Avni Joshi, Hemalatha Rangarajan, Theodore B Moore, Jeffrey R Andolina, Kenneth B Desantes, Mark Vander Lugt, Susan E Prockop, David C Shyr, Kathleen E Sullivan, Suhag Parikh, Katja G Weinacht, Troy R Torgerson, Rebecca Marsh, Christopher C Dvorak, Alice Y Chan, Elie Haddad, Jennifer R Heimall, Michael A Pulsipher, Jennifer W Leiding, Donald B Kohn, Jennifer M Puck, Luigi D Notarangelo, David J Rawlings, Morton J Cowan, Aleksandra Petrovic, Sung-Yun Pai, Lauri M Burroughs Mar 2026

Hematopoietic Cell Transplantation For Wiskott-Aldrich Syndrome: A Pidtc Report, Jessie L Alexander, Blachy J Dávila Saldaña, Ruta Brazauskas, Sravya Gethika Dammalapati, Linda M Griffith, Ami J Shah, Kristin A Shimano, Hans D Ochs, Jack J Bleesing, Christen L Ebens, Malika Kapadia, Andrea Bauchat, Neena Kapoor, Joseph H Oved, Hesham Eissa, Hannah Lust, Michael D Keller, Hilary Haines, Shanmuganathan Chandrakasan, Julie-An Talano, Ahmad Rayes, Lisa Madden, Evan Shereck, Holly K Miller, Lisa Forbes Satter, Caridad Martinez, Jacob Rozmus, Jeffrey J Bednarski, Lolie C Yu, Deepakbabu Chellapandian, Victor M Aquino, Alan Knutsen, Hey Chong, Ashley Chopek, Alfred P Gillio, Avni Joshi, Hemalatha Rangarajan, Theodore B Moore, Jeffrey R Andolina, Kenneth B Desantes, Mark Vander Lugt, Susan E Prockop, David C Shyr, Kathleen E Sullivan, Suhag Parikh, Katja G Weinacht, Troy R Torgerson, Rebecca Marsh, Christopher C Dvorak, Alice Y Chan, Elie Haddad, Jennifer R Heimall, Michael A Pulsipher, Jennifer W Leiding, Donald B Kohn, Jennifer M Puck, Luigi D Notarangelo, David J Rawlings, Morton J Cowan, Aleksandra Petrovic, Sung-Yun Pai, Lauri M Burroughs

Faculty, Staff and Students Publications

Wiskott-Aldrich syndrome (WAS), an X-linked disorder characterized by immunodeficiency, thrombocytopenia, autoimmunity, and malignancy, can be effectively treated with allogeneic hematopoietic cell transplantation (HCT). Older age at HCT and mismatched donors are known to affect overall survival (OS). However, the influence of specific clinical manifestations or WAS variant class on OS and factors associated with event-free survival (EFS) remain incompletely defined. We analyzed outcomes of 308 patients with WAS who underwent HCT at 37 institutions of the Primary Immune Deficiency Treatment Consortium from 1990 to 2018. With a median follow-up of 5.3 years, the 5-year OS and EFS were 87.2% and …


Bacterial Fecal Microbiome Composition Associated With Hiv Stage Among Rural And Peri-Urban Adults Living With Hiv In Uganda, Bożena M Morawski, Elise R Morton, Miya Yunus, Claudia Muñoz-Zanzi, Rojelio Mejia, Ran Blekhman, David R Boulware, Sarah M Lofgren Mar 2026

Bacterial Fecal Microbiome Composition Associated With Hiv Stage Among Rural And Peri-Urban Adults Living With Hiv In Uganda, Bożena M Morawski, Elise R Morton, Miya Yunus, Claudia Muñoz-Zanzi, Rojelio Mejia, Ran Blekhman, David R Boulware, Sarah M Lofgren

Faculty, Staff and Students Publications

Background

Gut microbiome composition in HIV-infection provides insight into HIV pathogenesis and potentially offers avenues to adjunctive HIV therapies. Although two-thirds of people living with HIV (PLHIV) are in Africa, studies of the gut microbiome PLHIV have focused on non-African populations. Additionally, social, cultural, and environmental factors influence the gut microbiome and differ substantially between African and Western and urban and rural communities. Here, we quantify the relationships between immune status and fecal microbiome composition in 175 rural Ugandan PLHIV.

Methods

In 2013, 175 Ugandan PLHIV contributed a single fecal sample as part of a cohort study of 202 participants. …


Underexplored Maternal Microbiomes: Immune, Metabolic, And Microbial Pathways Shaping Pregnancy Outcomes, Rafael Tomoya Michita, Nicole Jimenez, Melissa M Herbst-Kralovetz, Indira U Mysorekar Mar 2026

Underexplored Maternal Microbiomes: Immune, Metabolic, And Microbial Pathways Shaping Pregnancy Outcomes, Rafael Tomoya Michita, Nicole Jimenez, Melissa M Herbst-Kralovetz, Indira U Mysorekar

Faculty, Staff and Students Publications

Maternal microbial ecosystems play critical roles in shaping reproductive physiology and pregnancy outcomes. During the pre-conception and prenatal periods, these communities modulate maternal physiology by regulating immune tolerance, nutrient metabolism, and susceptibility to pregnancy complications such as preterm birth, hypertensive disorders, and gestational diabetes. While the gut microbiota has been extensively studied, the roles of cervicovaginal, urinary, respiratory, oral, and upper reproductive tract microbiomes remain less clear. In this minireview, we synthesize current knowledge on these underexplored maternal microbiomes, with an emphasis on the cervicovaginal and urinary microbiota and their interactions with the placenta and fetus. We discuss cross-niche microbial …


Sunflower Cut Flower Production In Utah, Calee Garn, Alison Bingham, Melanie Stock, Claudia Nischwitz Mar 2026

Sunflower Cut Flower Production In Utah, Calee Garn, Alison Bingham, Melanie Stock, Claudia Nischwitz

All Current Publications

Sunflower is low-maintenance, full-sun crop that is well-adapted to Utah’s hot and dry conditions. Single-stem cultivars are most popular for cut flower production. This fact sheet provides information on sunflower production, including cultivars, site preparation, germination, irrigation, pests, and disease, nutrient management, harvest and storage, postharvest bed management, and economics.


A Practice-Based Implementation Strategy Bundle For Integrating Behavioral Health In Primary Care: A Matrixed Multiple Case Study, Gretchen Buchanan, Kelley Mccall, Lorella Palazzo, Michelle Bagwell, Shivani Patel, Shravya Allena, Byron J Powell Mar 2026

A Practice-Based Implementation Strategy Bundle For Integrating Behavioral Health In Primary Care: A Matrixed Multiple Case Study, Gretchen Buchanan, Kelley Mccall, Lorella Palazzo, Michelle Bagwell, Shivani Patel, Shravya Allena, Byron J Powell

2020-Current year OA Pubs

BACKGROUND: Integrated behavioral health (IBH) is an evidence-based approach to addressing mental health in primary care settings. It typically involves augmenting a primary care team with a behavioral health professional (e.g., psychologist, licensed clinical social worker) who sees patients for brief, focused concerns; can function as a bridge to specialty care; and provides medical providers with support and education about patient behavioral health concerns. IBH has slowly begun to disseminate across the United States, but practices encounter significant implementation barriers. How IBH is implemented has not been systematically studied outside of trials, yet this study could provide a rich foundation …


Enhancing Seventh-Grade Students’ Scientific Literacy Through The Science-Poly Game, Shita Dhiyanti, Imra’Atul Mufidah, Dyne Rizki Puspitasari, Siti Zubaidah Mar 2026

Enhancing Seventh-Grade Students’ Scientific Literacy Through The Science-Poly Game, Shita Dhiyanti, Imra’Atul Mufidah, Dyne Rizki Puspitasari, Siti Zubaidah

Journal of Innovation and Teacher Professionalism

This study aims to improve seventh-grade junior high school students’ scientific literacy through the use of the science-poly game on the topic of motion. The learning process was implemented using the lesson study approach, which consists of three stages: plan, do, and see. In the planning stage, teachers collaboratively designed learning activities and literacy-based questions integrated into the science-poly game. During the implementation stage, students participated in the game while engaging with scientific problems that required them to analyze questions, identify key scientific terms, and formulate conclusions. In the reflection stage, teachers discussed the learning outcomes and evaluated the effectiveness …


The Influence Of Diorama Learning Media On Science Learning Outcomes For Class Iii Elementary Schools, Sunya Tiara Putri, Dya Ayu Agustina Putri Mar 2026

The Influence Of Diorama Learning Media On Science Learning Outcomes For Class Iii Elementary Schools, Sunya Tiara Putri, Dya Ayu Agustina Putri

Journal of Innovation and Teacher Professionalism

Education plays a crucial role in shaping intellectually capable and well-prepared generations, which necessitates the use of effective and engaging learning media at the elementary school level. This study aims to examine the influence of diorama-based learning media on science learning outcomes of third-grade elementary school students, particularly on the topic of butterfly metamorphosis. A quantitative approach employing a quasi-experimental design with a nonequivalent control group was used. The sample consisted of Grade III students selected purposively, involving an experimental group taught using diorama media and a control group receiving conventional instruction. Learning outcomes were measured using a 20-item achievement …


Addressing Failing Water Systems: A Qualitative Protocol For Intervention Research On Water Insecurity, Patrick Thomson, Melissa Beresford, Jobayer Hossain, Cara Jacob, Carolina Jordão, Oswaldo Medina-Ramírez, Sophie Neems, Daniel Salcedo Serrano, Dave White, Amber Wutich Mar 2026

Addressing Failing Water Systems: A Qualitative Protocol For Intervention Research On Water Insecurity, Patrick Thomson, Melissa Beresford, Jobayer Hossain, Cara Jacob, Carolina Jordão, Oswaldo Medina-Ramírez, Sophie Neems, Daniel Salcedo Serrano, Dave White, Amber Wutich

Faculty Research, Scholarly, and Creative Activity

It is increasingly acknowledged that high income countries do not enjoy universal drinking water coverage, with pockets of water insecurity persisting close to areas that have had high-quality, centralized water provision for half a century or more. The reasons behind this are complex, and effective ways to improve water security in these areas defy simple prescriptions. Nuanced measures that disaggregate the different facets of water insecurity are especially important as we attempt to understand and, crucially, improve water security in high-income countries.In this paper, we describe a qualitative protocol for assessing water insecurity at the household level in a study …


Time-Robust Evaluation For Multi-Dataset Intrusion Detection Reveals Temporal Shortcuts And Strong Baselines, Kyle A. Mccleary Mar 2026

Time-Robust Evaluation For Multi-Dataset Intrusion Detection Reveals Temporal Shortcuts And Strong Baselines, Kyle A. Mccleary

LSU Master's Theses

Pooled multi-dataset benchmarks are an attractive way to evaluate intrusion detection systems (IDS) across heterogeneous public corpora, but they can quietly reward shortcut features tied to capture schedules and dataset identity. This work introduces TRACER, an auditable benchmark specification that standardizes seven public IDS corpora into a shared transaction-window prediction unit and a shared label ontology, enabling controlled comparisons between compact sequence backbones and strong tabular baselines under matched splits, training budgets, and scoring rules.

Under this protocol, absolute clock time is a strong shortcut under pooled random splits. Enforcing time-robust controls (timestamp rebasing, circular shifts, and schedule-token masking) reduces …


Melanoma Incidence, Mortality, And Dermatologist Availability Across Selected Urban And Rural Counties In Southwest Missouri, George Ladas, Derek S. Towery Mar 2026

Melanoma Incidence, Mortality, And Dermatologist Availability Across Selected Urban And Rural Counties In Southwest Missouri, George Ladas, Derek S. Towery

Student Publications

Melanoma is the most lethal of the common skin cancers, and its incidence continues to rise in the United States. Access to dermatologic specialty care remains below recommended benchmarks, particularly in rural and nonmetropolitan regions. This descriptive, population-based analysis examined melanoma incidence and dermatologist availability across five selected counties in southwest Missouri, with limited county-level mortality reporting. Age-adjusted melanoma incidence data were obtained from the State Cancer Profiles database (National Cancer Institute and Centers for Disease Control and Prevention) and standardized to the 2000 U.S. population. Dermatologist availability was calculated using National Provider Identifier data and reported as dermatologists per …


Monthly Progress Report Butte Priority Soils Operable Unit Consent Decree Partial Remedial Design/Remedial Action And Operation And Maintenance, Josh Bryson Mar 2026

Monthly Progress Report Butte Priority Soils Operable Unit Consent Decree Partial Remedial Design/Remedial Action And Operation And Maintenance, Josh Bryson

Silver Bow Creek/Butte Area Superfund Site

No abstract provided.


Individual Differences In Alexithymia Modulate Cognition-Emotion Interactions In Daily Life Ongoing Experiences, Anqi Lei, Md Faysal, Louis Chitiz, Raven Wallace, Samyogita Hardikar, Brontë Mckeown, Jonathan Smallwood, Elizabeth Jefferies, Robert Leech, Nerissa Ho Mar 2026

Individual Differences In Alexithymia Modulate Cognition-Emotion Interactions In Daily Life Ongoing Experiences, Anqi Lei, Md Faysal, Louis Chitiz, Raven Wallace, Samyogita Hardikar, Brontë Mckeown, Jonathan Smallwood, Elizabeth Jefferies, Robert Leech, Nerissa Ho

School of Psychology

Individual differences modulate our thoughts and emotional experiences, yet how thought and emotion interact in daily life remains largely unclear. We leverage alexithymia, a trait reflecting atypical emotional awareness, to reveal these interactions in naturalistic settings. Using multi-dimensional experiencesampling via smartphones, we captured moment-to-moment thought patterns and concurrent affective states (valence, arousal, stress) in people’s daily life (N = 190 undergraduate students, age range = 18 to 36, 159 females). Using Principal Component Analysis and Linear Mixed Models, we identified four thought dimensions that relate differently to these affective states: future-self orientation, intrusive distraction, sensory engagement, and task-focus. Alexithymia modulated …


Undergraduate Science Writing Performance And Perceptions Following An Online Guided Writing Module, Amanda Gunlefinger, Hannah Smith, Jeffrey Klemens, Nanette Tomicek Mar 2026

Undergraduate Science Writing Performance And Perceptions Following An Online Guided Writing Module, Amanda Gunlefinger, Hannah Smith, Jeffrey Klemens, Nanette Tomicek

College of Life Sciences Faculty Papers

Undergraduate students often struggle with scientific communication, particularly in writing clear and concise lab reports. A retrospective cohort study was conducted in a multi-section Anatomy and Physiology laboratory course to examine patterns in student writing performance and perceptions of science writing following the implementation of an online guided writing module. The module, developed in Nearpod integrated with Canvas, provided task-specific instruction and embedded questions with immediate feedback focused on authoring a results section for a lab report assignment. Student enrolled during the 2024 implementation term who completed the module (n = 278) demonstrated higher lab report writing scores compared to …


Ultrasound-Guided Skeletal Muscle Biopsy Technique Permits Measurement Of Structural, Functional, Cellular And Biochemical Properties, Addison Barber, Amber Willbanks, Guadalupe Meza, Jeremie L A Ferey, Gretchen A Meyer, Sudarshan Dayanidhi, W David Arnold, Richard L Lieber, Ishan Roy Mar 2026

Ultrasound-Guided Skeletal Muscle Biopsy Technique Permits Measurement Of Structural, Functional, Cellular And Biochemical Properties, Addison Barber, Amber Willbanks, Guadalupe Meza, Jeremie L A Ferey, Gretchen A Meyer, Sudarshan Dayanidhi, W David Arnold, Richard L Lieber, Ishan Roy

2020-Current year OA Pubs

Human muscle biopsies are often required to study or diagnose diseases. However, traditional approaches are challenging due to limited sample size, quality, or participant discomfort. Fine-gauge needle biopsies (≥ 14-gauge), present an alternative but may yield insufficient tissue for comprehensive analysis. Ultrasound guidance, coupled with vacuum-assisted, single needle-insertion multiple sampling addresses these challenges. In 19 healthy participants (mean age: 30.1 ± 10 years, 42% male), 2-3 samples were collected from a single needle insertion into the vastus lateralis (VL) and tibialis anterior (TA). Summed VL and TA sample masses averaged 148 ± 38 mg and 166 ± 64 mg, with …


Adaptations To An Implementation Study For Integrating Hypertension Management Into Hiv Care In Lagos, Nigeria: Application Of The Frame, Chioma Hope Nwankwo, Juliet Iwelunmor, Et Al. Mar 2026

Adaptations To An Implementation Study For Integrating Hypertension Management Into Hiv Care In Lagos, Nigeria: Application Of The Frame, Chioma Hope Nwankwo, Juliet Iwelunmor, Et Al.

2020-Current year OA Pubs

BACKGROUND: Implementation strategies are dynamic and multi-faceted, and may require adaptations to fit implementation contexts, especially in lower-and-middle income countries. We report the adaptations for an ongoing late-stage implementation science trial (R01HL147811) that integrates hypertension management into HIV care in Lagos, Nigeria - a country with a high dual-disease burden - through the Task Strengthening Strategy for Hypertension (TASSH) intervention and Practice Facilitation implementation strategy.

METHODS: FRAME (Framework for Reporting Adaptations and Modifications-Enhanced) modules were used to record adaptations to the intervention (i.e., TASSH) respectively, enhance participant recruitment and retention rates, and increase frequency of trainings. Data collection sources included …


Recommendations For The Diagnosis And Management Of Cln3 Disease (Batten Disease) Using The Delphi Consensus Methodology, Jonathan W Mink, Jonathan D Cooper, Et Al. Mar 2026

Recommendations For The Diagnosis And Management Of Cln3 Disease (Batten Disease) Using The Delphi Consensus Methodology, Jonathan W Mink, Jonathan D Cooper, Et Al.

2020-Current year OA Pubs

BACKGROUND: CLN3 disease, also called Juvenile Neuronal Ceroid Lipofuscinosis (JNCL), or Batten disease, is an ultra‑rare, neurodegenerative lysosomal storage disorder generally affecting individuals during the first decade of life. There can be a delay in diagnosis or misdiagnosis due to a lack of awareness, and when the most common presenting symptom of visual loss is attributed to more common conditions affecting vision. METHODS: We used a previously published Expert Mapping Tool (EMT) to identify multidisciplinary professionals with diagnostic or clinical management expertise, as well as patient advocates with experience of CLN3 disease. A systematic literature review of published evidence using …


Hematopoietic Cell Transplantation For Wiskott-Aldrich Syndrome: A Pidtc Report, Jessie L Alexander, Jeffrey J Bednarski, Et Al. Mar 2026

Hematopoietic Cell Transplantation For Wiskott-Aldrich Syndrome: A Pidtc Report, Jessie L Alexander, Jeffrey J Bednarski, Et Al.

2020-Current year OA Pubs

Wiskott-Aldrich syndrome (WAS), an X-linked disorder characterized by immunodeficiency, thrombocytopenia, autoimmunity, and malignancy, can be effectively treated with allogeneic hematopoietic cell transplantation (HCT). Older age at HCT and mismatched donors are known to affect overall survival (OS). However, the influence of specific clinical manifestations or WAS variant class on OS and factors associated with event-free survival (EFS) remain incompletely defined. We analyzed outcomes of 308 patients with WAS who underwent HCT at 37 institutions of the Primary Immune Deficiency Treatment Consortium from 1990 to 2018. With a median follow-up of 5.3 years, the 5-year OS and EFS were 87.2% and …


Differential Contributions Of Clpx And Clpp To Pulmonary Virulence In Classical And Hypervirulent Klebsiella Pneumoniae, Nathan M Lin, Emily C Marino, Jordan M Schlotmann, David A Rosen Mar 2026

Differential Contributions Of Clpx And Clpp To Pulmonary Virulence In Classical And Hypervirulent Klebsiella Pneumoniae, Nathan M Lin, Emily C Marino, Jordan M Schlotmann, David A Rosen

2020-Current year OA Pubs

No abstract provided.


Hukum Islam Dalam Pembinaan Hukum Nasional, Moh. Daud Ali, S.H. Mar 2026

Hukum Islam Dalam Pembinaan Hukum Nasional, Moh. Daud Ali, S.H.

Jurnal Hukum & Pembangunan

Abstract


Tax Fuasion Dan Akibatnya Di Bidang Ekonomi, Bochari, S.H. Mar 2026

Tax Fuasion Dan Akibatnya Di Bidang Ekonomi, Bochari, S.H.

Jurnal Hukum & Pembangunan

Abstract


Peraturan Perundang-Undangan Lingkungan Hidup, Prof. Koesnadi Hardjasumantri, S.H. Mar 2026

Peraturan Perundang-Undangan Lingkungan Hidup, Prof. Koesnadi Hardjasumantri, S.H.

Jurnal Hukum & Pembangunan

Abstract


Pelaksanaan Keputusan Arbitrase Luar Negeri Di Dalam Wilayah Indonesia, Prof. Dr. Mr. Sudargo Gautama Mar 2026

Pelaksanaan Keputusan Arbitrase Luar Negeri Di Dalam Wilayah Indonesia, Prof. Dr. Mr. Sudargo Gautama

Jurnal Hukum & Pembangunan

Abstract


Antropologi Hukum Sebagai Penunjang Studi Hukum Adat, Prof. Dr. Soerjono Soekanto, S.H., M.A. Mar 2026

Antropologi Hukum Sebagai Penunjang Studi Hukum Adat, Prof. Dr. Soerjono Soekanto, S.H., M.A.

Jurnal Hukum & Pembangunan

Abstract