Digital Commons Network^™

Storytelling At Board Meetings: A Case Study Of Co-Developing Recommendations, Dawn Richards, Kimberly Strain, Lisa Hawthornthwaite, Isabel Jordan, Carol Fancott

Patient Experience Journal

In healthcare, stories shared by patients often provide details and insights into experiences of illness and care. Stories are a way to educate healthcare providers and others to improve care and systems to become more patient and family centred and to better meet patients’ needs and priorities. Telling stories may bring benefits to both storytellers and audience members but also presents risks of harm. A reflective storytelling practice aims to honor stories and storytellers by ensuring there is time to prepare, reflect, learn, ask questions, and engage in dialogue with the storyteller to explore what went well and where there …

Part Of The Team: Effecting Change And Sharing Power In Healthcare Settings, Jessica Stanier, Rachel Purtell, Dave Thomas, William Murray

Patient Experience Journal

In 2019, we, as a group of patients and researchers, were invited to rethink how the executive board received and responded to patient stories at a specific NHS hospital trust in the UK. Through an iterative series of meetings, we were able to co-identify common concerns and together develop a distinctive narrative framework for effecting change by sharing patient experiences. This narrative framework is designed to help patients position themselves as ‘part of their healthcare team,’ emphasising roles and responsibilities between patients and health practitioners to compare ideals with reality in patient experiences. While the project was promising, several factors …

A Roadmap To Engaging Patients In Research: The Experience Of A Large Academic Research Hospital In Canada, Rabia Zaheer, Sara Morassaei, Sander L. Hitzig, Laurie Legere, Mary Jane Torrie, Lisa Di Prospero

Patient Experience Journal

Recent definitions of patient engagement in research (PER) emphasize that engagement should be meaningful, active and an equal collaboration across the research continuum. The increased interest in patient engagement is predicated on the recognition by researchers of the unique experiential knowledge provided by individuals with lived experience, ethical obligations to democratize science and that patient involvement can potentially lead to improved outcomes for patients and researchers. Sunnybrook Health Sciences Center is a large academic research hospital in Toronto, Canada which aimed to create clearer pathways for patients to have a more prominent voice in the development, implementation, and dissemination of …

Digital Patient Engagement At A Perioperative Surgical Home Implemented Community Hospital, Srinivasan Sridhar, Amy Mount Hunter, Bernadette Mccrory

Patient Experience Journal

Patients in rural areas typically require more perioperative ‘optimization’ for surgery. The rural healthcare systems often overwhelmed with coordinating perioperative services and deliver less than optimal surgical outcomes. This is due to limited supporting microsystems and ability to effectively engage and track patients over the 120-day perioperative period to limit post-surgical complications. The study assessed longitudinal patient engagement within a newly established Perioperative Surgical Home (PSH) at a rural community hospital serving 10+ surrounding counties to identify barriers and best practices for engagement. A digital patient engagement platform was implemented and used to assess longitudinal patient outcomes and engagement from …

Draws And Windfalls: Comparing Patient Experiences In Inpatient Telehealth And Non-Telehealth Acute Care Units, Geoffrey A. Silvera, Erin Blanchard, Varun Natarajan, Eric Wallace, William Steve Stigler, Bart Kelly, Terri Scarborough, Sue S. Feldman

Patient Experience Journal

The global COVID-19 pandemic has challenged health care delivery in many ways. One solution from the pandemic that offers potential upside is the expansion of telehealth as a means to provide high quality, cost-effective, and safe care while also maintaining excellence in patient and family experience. While most examinations of the use of telehealth over the pandemic have focused on the expansion of outpatient telehealth, few have explored the use of telehealth for hospitalized patients. This article will examine the influence of telehealth use on patient experiences among acute care patients. Inpatient telehealth acute care (ITAC) is a …

Strengthening Patient-Family Engagement Amidst A Pandemic: Lessons Learned And Paths Forward, Kyle J. Rehder, Shannon Haney, Jan Freeman, Aaron West

Patient Experience Journal

The COVID-19 pandemic was highly disruptive to healthcare and negatively affected healthcare worker and patient experience on multiple levels. Patient Family Advisors serve an important role in partnering with health systems to improve patient experience, yet the work of many volunteer programs were interrupted by the onset of the pandemic, at a time when integrating patient voice into care delivery was sorely needed. This case study presents one health system’s experience adapting a system-wide Patient Family Advisory program in the setting of the COVID-19 pandemic, including the transition to a virtual format and increased flexibility in how Patient Family Advisors …

Living With Covid-19 In The Community During The First Wave Of The Pandemic: Lessons From Patients For Healthcare Providers And Policy Makers, Linda Rozmovits, Michelle Marcinow, Ilja Ormel, Terence Tang, Elizabeth Mansfield, Kerry Kuluski, Seema Marwaha, Susan Law Dr

Patient Experience Journal

This qualitative descriptive study explores patients’ experiences of living with COVID-19, in the community, during the early stages of the pandemic. Between October 2020 and April 2021, fifteen semi-structured, video-recorded interviews were conducted, via Zoom, with participants in five Canadian provinces. Participants self-identified as having had a confirmed or suspected case of COVID-19. The constant comparative method was used to produce a thematic analysis of findings. Key findings include 1) PCR tests were not widely available in Canada, during the first wave, so many participants lacked a confirmed diagnosis and, subsequently, encountered challenges accessing specialist medical care; 2) Rapidly changing …

Interventions That Improve Patient Experience Evidenced By Raising Hcahps And Cg-Cahps Scores: A Narrative Literature Review, Heather Mckee Hurwitz, Marybeth Mercer, Susannah L. Rose

Patient Experience Journal

Hospital administrators and researchers often use large, standardized surveys that examine patient satisfaction to evaluate whether interventions improve patient experience. To summarize the breadth of these interventions and how large, standardized surveys are used to evaluate them, a multidisciplinary research team conducted a review. They used PubMed and Google Scholar searches, reviews of reference lists and targeted searches to locate studies. They evaluated one hundred and twenty-four articles and fifty-eight articles met the inclusion criteria for the narrative review. Using the standard methodology for narrative reviews, the authors synthesize salient themes in the articles and highlight exemplar studies. The review …

Patients’ And Family Caregivers’ Experiences With A Newly Implemented Hospital At Home Program In British Columbia, Canada: Preliminary Results, Sean P. Spina Bsc(Pharm), Acpr, Pharmd, Fcshp, Rounak Haddadi Bsc, Bhsc, Pg Dip Sc, Katy Mukai Ba, Mpa, Michelle Riddle, Beth Bourke Bscn, Rn, Lisa Thompson Bsc, Elizabeth Borycki Rn, Phd, Facmi, Fcahs, Fiahsi, David Forbes Bsc(Pharm), Mpa, Acpr, Bcps, Cte, Taylor Hainstock Bhsc, Ma, Curtis K. Harder Bsc(Pharm), Acpr, Pharmd, Fcshp, Nancy Humber Bsc, Md, Ccfp, Cfpc, Mha, Ffrms, Andre Kushniruk Phd, Facmi, Fcahs, Fiahsi, Tara Mcmillan Bsc, Shauna Tierney Md, Ccfp, Melinda Zeron Mullins Md, Phd, Ccfp

Patient Experience Journal

The Hospital at Home (HaH) model of care, which enables the provision of acute-level care in the patient’s own home as an alternative to brick and mortar hospital admission, was introduced in British Columbia, Canada in November 2020, starting with 9 inpatient “beds” in the community. The AT-HOME research group applied a patient-oriented approach to evaluate the patients’ and family caregivers’ (FCGs) experiences with the program as it was implemented and expanded throughout Victoria, BC. In this paper, we discuss the development of the survey instruments, including process and timelines (three phases); and present preliminary findings of the observational research …

Patient Experience In An Interprofessional Collaborative Practice For Underserved Patients With Heart Failure, Connie White-Williams, Maria R. Shirey, Reid Eagleson, Wei Su, Terri Poe, Brittany Fitts, Vera Bittner

Patient Experience Journal

Heart failure is a complex chronic condition that results in multiple patient visits throughout the care continuum. Patient experience has associations with clinical outcomes. The purpose of this study was to examine patient experience among the underserved in a specialized interprofessional collaborative practice heart failure clinic. This prospective study utilized both qualitative and quantitative data to describe the patient experience within an interprofessional collaborative practice. Data were collected from patient experience surveys in 1128 patients seen in the Heart Failure Transitional Care Services for Adults (HRTSA) clinic between January 1, 2018, and December 31, 2021. Interprofessional collaborative practice surveys were …

Patient Experiences Through Head And Neck Cancer: Information Delivery Combatting Psychological Distress, Eleah Stringer Msc., Julian J. Lum Phd., Jonathan Livergant Dr., Andre Kushniruk Phd.

Patient Experience Journal

As part of a larger study investigating the utility of electronic decision support tools for patients with head and neck cancer (HNC), this article describes the patient experience of receiving cancer treatment in British Columbia, Canada. It aims to give voice to the patient experience and recommend a model of psychological adjustment for clinicians and clinical service management to consider to refine patient centric care pathways for HNC. Based in phenomenology, semi-structured interviews were conducted with 12 survivors of HNC, audio-video recorded, and thematically analyzed. Three themes were identified: (1) patients have high, though varying information needs; (2) an emotional …

Listening As Medicine: A Thematic Analysis, Rachel Kishton M.D., Heta Patel, Divya Saini, Jeffrey Millstein M.D., Aaron Levy Ph.D.

Patient Experience Journal

Realizations of the importance of “the art of medicine” in trust-building and patient satisfaction have resulted in the incorporation of narrative medicine programs into training curricula. By learning how to respond to patient stories as well as communicate their own, healthcare providers can ensure that their patients feel heard and respected. This study seeks to define what constitutes empathetic listening through a qualitative analysis of personal narratives collected from patients, caregivers, and providers across an urban academic healthcare system. Stories (n=41) underwent thematic analysis to note common experiences related to listening during a health system encounter. Eighteen grounded codes were …

A Concept Analysis Of The Patient Experience, Tanja Avlijas Rn, Mscn, Janet E. Squires Rn, Phd, Michelle Lalonde Rn, Phd, Chantal Backman Rn, Phd

Patient Experience Journal

Patient experience, an essential indicator of quality patient care, is of increasing importance to hospitals that want to improve and maintain strong patient experience metrics to remain competitive in the business of healthcare. The aim of this study was to clarify the concept of the patient experience by identifying its existing definitions, methods of measurement, and underlying themes and attributes, to differentiate it from similar concepts and propose an operational and theoretical definition to guide valid and reliable development of future assessment tools. Walker and Avant’s eight-step methodology served as the framework for this concept analysis. A literature search, using …

Seeking Answers Through The Pain, Gillian Pearce Dr

Patient Experience Journal

This article tells the story of the history and outcome of a 64-year-old woman who had suffered pain and other symptoms for over a decade. The woman thought nothing could be done to help her condition. The procedure that was eventually undertaken brought about a huge transformation in pain reduction and helped with mobility and posture. This operation came into being in relatively recent times and has revolutionised the treatment of people with hip-spine syndrome. The technique called an in-situ arthroplasty operation allows accurate restoring of leg length, together with restoring the natural alignment of hip structures.

Experience Framework

This …

Everything I Needed To Know To Be A Pediatric Emergency Room Doctor, I Learned As A Waitress, Sarah Gard Lazarus

Patient Experience Journal

When I began my career as a pediatric emergency medicine physician, I believed I was prepared to take on any medical emergency. However, I was not prepared to provide a good patient family experience. Throughout my years of training, I was not taught productive ways of interacting with patients and was unaware of how impactful the patient family experience would be. Negative patient family experience scores affected my interactions with patients, my shared decision making and my ability to provide quality care. After working to improve my scores, I focused on skills I obtained in a non-medical setting, as a …

Partnering With Healthcare: The Experiences Of Consumer Representatives, Corey Adams, Anthony J. Brown

Patient Experience Journal

The importance of consumer advocacy in person-centred healthcare service planning and delivery is growing. In Australia, the role of the "Consumer Representative" (known internationally as "Patient and Family Advisors") is to advocate for patients and their families' needs to improve service planning, healthcare design, and service evaluation. As the role of consumer representatives evolves and matures within the healthcare setting, it is crucial to comprehend their experiences and identify key insights to support and enhance their role within healthcare organizations. To achieve this, a focus group of four Consumer Representatives was conducted and their views were compiled into a single …

Building On A Decade Of Hope: Why We Must Champion The Human Experience, Jason A. Wolf

Patient Experience Journal

The pages of PXJ have served a primary purpose, to expand the evidence on patient experience and push the boundaries of innovation in this critical work. But through this commitment, PXJ has seen much more happen. The contributions of our thousands of authors, reviewers and editors have also fostered an environment of connection. PXJ has emerged as something more than just a journal. It has become a place for conversation. It has served as a conduit for expanding excellence in practice. It has fostered new thinking. And it has broadened our global community. There is something very special found on …

Competent Forum And Applicable Law In Personal Data Protection With A Foreign Element, Muhammad Faqih Adhiwisaksana, Tiurma Mangihut Pitta Allagan

Indonesian Journal of International Law

This research analyses on personal data protection with a foreign element as a private international law issue, focusing on competent forum and applicable law. The author uses a juridical-normative research method with literature studies to explain the relevant private international law principles, as well as Indonesian laws and regulations surrounding competent forum and applicable law regarding competent forum and applicable law on personal data protection with a foreign element. The study found that various private international law principles may be used to determine the applicable law in personal data protection with a foreign element dispute, such as nationality, place where …

The Protection And Preservation Of Underwater Cultural Heritage: The Practice Of Indonesia, Dhiana Puspitawati, Rangga Vandy Wardana

Indonesian Journal of International Law

The United Nations Convention on the Law of the Sea (UNCLOS) recognizes the protection and preservation of underwater cultural heritage found at sea by emphasizing preferential rights of the State of country of origin, the State of cultural origin, or the State of historical and archaeological origin. To preserve the rights of such States, the UNCLOS implicitly allows the removal of underwater cultural heritage upon prior approval from coastal States based on the State’s cooperation. On the other hand, the Convention for the Protection of the Underwater Cultural Heritage 2001 (2001 UCH Convention) strictly prohibits any exploitation and commercialization of …

Automated Techniques To Identify Most Relevant Duplicates For Bug Deduplication, Aman Singh, Vidhi Gupta, Richa Gupta, Vineet Jain, Subham Mishra, Babu Prasad Elumalai

Defensive Publications Series

During bug deduplication, selecting top bugs based on scores from a binary classification model does not work well if the model tends to return lower scores. Further, the selected top candidate bugs are not ranked based on relevance, which means that there is no mechanism to mark a bug as a duplicate without verifying each candidate. This disclosure describes automated techniques to identify ancestor bugs for a newly reported bug, to retrieve the top candidates for duplicate bugs, and rank the candidates based on a scoring function. The techniques are robust to pairwise matches between a newly reported bug and …

Adaptive Personalized Navigation Guidance Based On Co-Presence Detection, Matthew Sharifi

Defensive Publications Series

Navigation guidance provided via digital map applications and/or in-car infotainment systems includes turn-by-turn instructions. Personalization of such instructions, e.g., based on a user’s places visited or routes taken, can make navigation easier and more natural. However, if there is a co-passenger in the vehicle when personalized navigation guidance is provided, it may inadvertently reveal information about places that a user has visited. Per techniques described in this disclosure, co-presence information is detected based on various factors such as determining whether additional devices that do not belong to the user are present, based on ambient sound detection, based on in-vehicle sensors …

Naming Shared Links From Message Content, Liy Opor

Defensive Publications Series

Sometimes users in chat services post links to documents or wiki pages. These links may direct to a source that members of the chat team are authorized to access, but that the chat service is not, itself, authorized to access. Therefore, the chat service may not be able to load the shared document or web page in order to obtain a readable title for displaying in place of a potentially cryptic link URL. As a result, many links posted to a chat team may be displayed as mere URLs, which are difficult to distinguishable from each other. Even worse, some …

Inserts With Soft Structures And Pur Flooding, Axel Unger

Defensive Publications Series

No abstract provided.

Family Drug Courts, Jacob Ashley

Critical Questions

Surprisingly few people know very much about the role of family drug courts. These courts are intimately involved with issues related to criminal justice, child welfare, drug abuse, mental health, and rehabilitation. The work of family drug courts has been shown to be highly effective in supporting drug rehabilitation and family reunification.

In Season Heart Rate And Session Rate Of Perceived Exertion In Collegiate Softball Athletes, Erin R. Pletcher, Phd, Atc, Cscs

Department of Exercise Science Posters

Introduction

• Monitoring of workload is vital to minimize risk of overuse musculoskeletal injuries in athletes while optimizing performance
• Heart rate (HR) and session rate of perceived exertion (sRPE) have been shown to be reliable measures of training intensity in steady state and interval exercise
• Relationship between training load and injury in running-based team sports has been established
• Limited studies have investigated internal load in throwing-dominant athletes despite rigorous competition season

Developing Augmentative Systems To Assist Both Irish L1 Users And L2 Learners, Muireann Nic Corcráin

The Quiet Corner Interdisciplinary Journal

Background and context:

The period of not being able to attend school during the pandemic has been challenging for both students and educators from an education, communication, connection and relationship perspective. Furthermore, it has been argued that there has been an even greater challenge for students with specific and additional education needs, including those with who use augmentative and alternative communication (AAC) systems to communicate effectively. The availability of AAC systems for students for whom Irish is their first language and for L2 learners of Irish has been limited to date and is an additional challenge. Notwithstanding this however, ongoing …

The Chanticleer, 2023-04-27, Coastal Carolina University

The Chanticleer Student Newspaper

The editorially independent student produced weekly newspaper of Coastal Carolina University.

More Than Shamrocks And Leprechauns, Katie Jones

2022-23 Field Notes

While still in the midst of their study abroad experiences, students at Linfield University write reflective essays. Their essays address issues of cultural similarity and difference, compare lifestyles, mores, norms, and habits between their host countries and home, and examine changes in perceptions about their host countries and the United States. In this essay, Kathleen Jones describes observations during their study abroad program at the University of Galway in Galway, Ireland.

Living A Balanced Life, Faith Kahiau Bonacorsi

2022-23 Field Notes

While still in the midst of their study abroad experiences, students at Linfield University write reflective essays. Their essays address issues of cultural similarity and difference, compare lifestyles, mores, norms, and habits between their host countries and home, and examine changes in perceptions about their host countries and the United States. In this essay, Faith Kahiau Bonacorsi describes observations during their study abroad program at the University of Otago in Otago, New Zealand.

An Analysis Of Multi-Culturalism And Ecuador, Cassie Klagge

2022-23 Field Notes

While still in the midst of their study abroad experiences, students at Linfield University write reflective essays. Their essays address issues of cultural similarity and difference, compare lifestyles, mores, norms, and habits between their host countries and home, and examine changes in perceptions about their host countries and the United States. In this essay, Cassie Klagge describes observations during their study abroad program at Universidad San Francisco de Quito in Quito, Ecuador.