Development And Psychometric Properties Of Surveys To Assess Patient And Family Caregiver Experience With Care Transitions, Joann Sorra, Katarzyna Zebrak, Deborah Carpenter, Theresa Famolaro, John Rauch, Jing Li, Terry Davis, Huong Q. Nguyen, Megan Mcintosh, Suzanne Mitchell, Karen B. Hirschman, Carol Levine, Jessica Miller Clouser, Jane Brock, Mark V. Williams

Center for Health Services Research Faculty Publications

Background

The purpose of this study was to develop and administer surveys that assess patient and family caregiver experiences with care transitions and examine the psychometric properties of the surveys. The surveys were designed to ask about 1) the transitional care services that matter most to patients and their caregivers and 2) care outcomes, including the overall quality of transitional care they received, patient self-reported health, and caregiver effort/stress.

Methods

Survey items were developed based on a review of the literature, existing surveys, focus groups, site visits, stakeholder and expert input, and patient and caregiver cognitive interviews. We administered mail …

Conflicts Of Interest: An Invisible Force Shaping Health Systems And Policies, Afifah Rahman-Shepherd, Priya Balasubramaniam, Meenakshi Gautham, Eleanor Hutchinson, Freddy E. Kitutu, Robert Marten, Mishal S. Khan

Community Health Sciences

No abstract provided.

Patient Reported Outcomes In Sickle Cell Disease Examined Within A Conceptual Model, Swapandeep Mushiana, Marsha Treadwell Phd, Sherif M. Badawy Md, Ms, Liliana Preiss Phd, Allison King Md Mph Phd, Barbara Kroner Phd, Yumie Chen Bs, Jeffrey Glassberg, Victor Gordeuk Md, Nirmish Shah Md, Angie Snyder Phd Mph, Theodore Wun Md

Doctoral Dissertations

Objective: To examine the relations between patient reported outcomes (PROs) within a conceptual model for adults with sickle cell disease (SCD) ages 18 – 45 years enrolled in the Sickle Cell Disease Implementation Consortium (SCDIC) registry. We hypothesized that patient and SCD related factors and barriers to care would independently contribute to functioning as measured using the PRO domains. Additionally, pain and other SCD related complications are expected to impact the relation between the variables. Methods: Participants completed a 48-item survey that included socio-demographics and PRO measures, such as social functioning, pain impact emotional distress, and cognitive functioning. …

Building Patient Participation In Quality Of Care Through The Healthcare Stories Project: A Demonstration Program In New York State Hiv Clinics, Abigail Baim-Lance, Freda Coren, Margaret Brown, Hazel Lever, Daniel Tietz, Bruce Agins

Patient Experience Journal

There is growing recognition that patients should play a central role in defining, assessing, and improving the quality of healthcare, thereby enhancing patient experiences. Healthcare organizations struggle to meet these goals, which require becoming more patient-centered and patient-involved. The Healthcare Stories Project (HCSP), a demonstration program of the NYS Department of Health AIDS Institute, aimed to address this. HCSP comprises three, stepwise activities to: 1) Capture how patients define and experience ‘quality of care’ in the clinic; 2) Engage patients and providers as equal partners in understanding and improving the quality of care; and through partnerships, 3) Support the building …

The Right Premtm: Rasch Analysis Of A New Patient Reported Experience Measure For Use By Older People In Hospital, Louise Heuzenroeder, Jyoti Khadka, Alison Kitson

Patient Experience Journal

Healthcare rights exist to protect older people from harm and to empower older people to participate in their care with independence, choice and control. Multiple investigations revealing abuse provide evidence that older people’s rights are being breached. Older people must have the opportunity to report on their experience of care against their rights. The Right PREM^TM is a new instrument designed to measure older people’s experience of care against their healthcare rights. The objective of this cross-sectional validation study was to assess the psychometric properties of a new instrument to measure the experience of care consistent with the healthcare …

Measuring Cancer Care Experiences Of Aboriginal And Torres Strait Islander People In Australia: Trial Of A New Approach That Privileges Patient Voices, Monica Green, Joan Cunningham, Kate Anderson, Kalinda Griffiths, Gail Garvey

Patient Experience Journal

This study examined a new method for measuring the care experiences of Aboriginal and Torres Strait Islander people with cancer: the Indigenous People’s Experiences of Cancer Care Survey (IPECCS). The study assessed IPECCS’s: 1) performance; 2) ability to elicit information useful for service improvements; and 3) implementation potential. Three participant groups were recruited from five Australian cancer treatment sites: 1) Aboriginal and Torres Strait Islander people with cancer (+/- support person); 2) interviewers; and 3) health services staff. Trained interviewers administered IPECCS to participants with cancer in audiotaped sessions. Paper forms and transcripts were compared to assess performance, and problems/potential …

Sociodemographic Characteristics And Patient And Family Experience Survey Response Biases, Lauren N. Brinkman, Myra S. Saeed, Andrew F. Beck, Michael C. Ponti-Zins, Ndidi I. Unaka, Mary C. Burkhardt, Jareen Meinzen-Derr, Samuel P. Hanke

Patient Experience Journal

Enhancing Patient and Family Experience (PFE) is vital to the delivery of quality healthcare services. Sociodemographic differences affect health outcomes and experiences, but research is limited on biases in PFE survey methodology. We sought to assess survey participation rates across sociodemographic characteristics. This retrospective study analyzed a health system’s ambulatory PFE survey data, collected January 1 – July 31, 2019. Outcomes of interest were rates of survey response, completion, and comments. Predictors included respondent-reported race, ethnicity, language, and measure of social deprivation attached to a respondent’s home address. Addresses were geocoded to census tracts. The tract’s degree of socioeconomic deprivation …

Cost-Effectiveness Analysis Of Tisagenlecleucel, Blinatumomab, And Clofarabine For Treatment Of B-Cell Precursor Acute Lymphoblastic Leukemia, Kamron Lotfi

Pharmaceutical Sciences (MS) Theses

Acute lymphoblastic leukemia (ALL) is a common type of adolescent and young adult leukemia in the United States (U.S.). Patients who are refractory or relapsed after receiving two or more lines of systemic therapy have the option of taking tisagenlecleucel. Due to the high cost of this treatment, a cost-effectiveness analysis was performed to assess the treatments for tisagenlecleucel, clofarabine combination, and blinatumomab. Objectives

The objective of this study is to evaluate the cost-effectiveness of tisagenlecleucel; clofarabine, etoposide, cyclophosphamide; and blinatumomab for the treatment of relapse- refractory ALL for adolescents and young adults from the U.S. health care payer perspective. …

Factors Affecting Maternal-Care During Labour At Maternity Centres Of Karachi, Pakistan: Exploratory Study, Nirmal Shahzaib, Tazeen Saeed Ali, Nousheen Pradhan, Farina Abrejo, Shahnaz Shahid Ali, Amir Ali Samnani

School of Nursing & Midwifery

Globally 529,000 women die every year due to harmful consequences of childbirth. This study aimed to explore the barriers and facilitators that influence the provision of quality care during labour at maternity centres in Karachi, Pakistan. The qualitative exploratory study design was used to study such factors from public and private maternity health facilities of Karachi, Pakistan. A total of 12 in-depth interviews were conducted through purposive sampling by using validated semi-structured interview guide. Data was analysed using content analysis manually. Among major barriers, unhygienic environment, lack of basic equipment, supplies and medicine, unprofessional attitude of staff, physical infrastructre and …

“I Don’T Want The Next Generation Of Children To Be In Pain Like Me”: The Chab Dai Ten-Year Butterfly Longitudinal Research Project On Sex Trafficking Survivors In Cambodia, Glenn M. Miles, James Havey, Siobhan Miles, Eliza Piano, Lim Vanntheary, Nhanh Channtha, Sreang Phaly, Ou Sopheara

Dignity: A Journal of Analysis of Exploitation and Violence

The Butterfly Longitudinal Research Project started in 2010 and is the only research project of its kind listening to sex trafficking victims over ten years. The project was started in Cambodia by Chab Dai (translated “Hands Together”), a coalition of Non-Government Organisations since 2006 who have focused on human trafficking. The project was founded with the express purpose of listening to the survivors’ voices and recording their experiences in order to better understand their physical, emotional and spiritual needs during their initial recovery in shelters and reintegration back into their communities. The team of researchers and the participants, all of …

Mental Health Awareness Training Manual: For Faculty To Help Students, Ricardo Vega

Electronic Theses, Projects, and Dissertations

Mental health issues and stigma can affect students in many ways. The teacher-student relationship can be affected by the fear and inconsistent thoughts to be successful in college settings caused by mental health issues. First-generation college students face mental health issues due to support, education degree expectations, inhibition of uncertainty, and resources (Pascarella et al., 2004). This project is about providing communication strategies for faculty to help reduce stigma and provide students with resources to support their mental health.

Women's Perceptions On The Effects Of Covid-19 On Access And Use Of Private Sector Family Planning Services In Nigeria: The Integrate Project, The Integrate Project

Reproductive Health

In Nigeria, Community Pharmacists (CPs) and Patent and Proprietary Medicine Vendors (PPMVs) are the first point of care for many common illnesses. Although CPs and PPMVs are not formally recognized as family planning (FP) service providers, 22% of modern contraceptive users report receiving their last method from a PPMV and 12% from a private pharmacy. PPMVs are popular for FP because of their widespread availability, consistent drug stocks, extended hours, personable interactions, and lack of separate fees for consultations. As in many places, the COVID-19 pandemic poses unprecedented challenges to health services in Nigeria. By limiting person-to-person contact, especially during …

Integrate Project Results: Family Planning Knowledge And Quality Of Care Received From Community Pharmacists And Patent And Proprietary Medicine Vendors, The Integrate Project

Reproductive Health

In Nigeria, Community Pharmacists (CPs) and Patent and Proprietary Medicine Vendors (PPMVs) are the first point of care for many common illnesses. Although CPs and PPMVs are not formally recognized as family planning (FP) service providers, 22% of modern contraceptive users report receiving their last method from a PPMV and 12% from a private pharmacy. PPMVs are popular for FP because of their widespread availability, consistent drug stocks, extended hours, personable interactions, and lack of separate fees for consultations. As the Federal Ministry of Health explores expanding its task sharing policy to include CPs and PPMVs, evidence is needed on …

Prevalence And Determinants Of Inappropriate Antibiotic Dispensing At Private Drug Retail Outlets In Urban And Rural Areas Of Indonesia: A Mixed Methods Study, Luh Putu Lila Wulandari, Mishal Khan, Marco Liverani, Astri Ferdiana, Yusuf Ari Mashuri, Ari Probandari, Tri Wibawa, Neha Batura, Gill Schierhout, John Kaldor

Department of Pathology and Laboratory Medicine

Introduction: The aim of this mixed-method study was to determine the extent and determinants of inappropriate dispensing of antibiotics by licensed private drug retail outlets in Indonesia.
Methods: Standardised patients (SPs) made a total of 495 visits to 166 drug outlets (community pharmacies and drug stores) between July and August 2019. The SPs presented three clinical cases to drug outlet staff: parent of a child at home with diarrhoea; an adult with presumptive tuberculosis (TB); and an adult with upper respiratory tract infection (URTI). The primary outcome was the dispensing of an antibiotic without prescription, with or without the client …

California's Master Plan For Aging, Health Reimagined: A Case For Seniors To Age-In-Place, Remonia A. Bowie

Master's Projects and Capstones

Abstract

In 2021 Worldwide, communities face a singular yet common challenge; and this is the significant aging of their senior adult populations. Current evidence from the literature suggests that older adults prefer to stay in their homes as they age. However, the facilitators and challenges older people encounter in realizing their aging goals have been inadequately addressed by the current body of literature given the projected increase in the number of older people in the United States preferring to age from their homes. Aging adults are vulnerable to daily frustration, which could negatively impact their aging process. However, knowledge of …

A Retrospective Review Of Lvhn Compliance With Diagnostic Workup For Pancreatic Cancer Per Nccn Guidelines, Caitlin Scialla, Dennis Sopka Md, Savitri Skandan Md, Melissa Kratz Rn, Msn, Aocn

Research Scholars

No abstract provided.

Analisis Spasial Kasus Diare Pada Balita Di Kabupaten Banyumas Tahun 2019, Dyah Nurmarastri Sasabil Sidqi, Novia Anasta, Pralampita Kori Mufidah

Jurnal Biostatistik, Kependudukan, dan Informatika Kesehatan

Diare merupakan penyebab kematian balita terbesar kedua di seluruh dunia. Indonesia sendiri prevalensi diare untuk balita merupakan tertinggi dari seluruh kelompok umur sebesar 11,5% pada tahun 2018. Hingga tahun 2019 angka penemuan diare pada balita di Kabupaten Banyumas masih belum mencapai target yang ditentukan. Belum adanya gambaran spasial daerah yang rentan akan peningkatan kasus diare balita mempersulit upaya penemuan kasus yang penting dilakukan untuk mencegah terjadinya KLB. Tujuan penelitian ini yaitu mendeskripsikan, dan melakukan analisis spasial untuk melihat korelasi faktor risiko dengan kasus diare pada balita secara geografis melalui peta kerentanan serta menghasilkan peta buffer jangkauan pelayanan puskesmas di Kabupaten …

Hubungan Kondisi Psikologis Stress Dengan Hipertensi Pada Penduduk Usia Diatas 15 Tahun Di Indonesia, Aenaya Delavera, Kemal N. Siregar, Ryza Jazid Bahar, Tris Eryando

Jurnal Biostatistik, Kependudukan, dan Informatika Kesehatan

Stress adalah bagian normal dari kehidupan yang tidak bisa dihindari. Tetapi terlalu banyak stress dapat mempengaruhi kesehatan. Bertambahnya tingkat stress akan memungkinkan terjadinya peningkatan prevalensi hipertensi. Hipertensi adalah masalah kesehatan masyarakat global dan menjadi penyebab utama kematian dini di seluruh dunia dan memiliki tren yang selalu meningkat setiap tahunnya. Penelitian ini bertujuan untuk mengetahui hubungan antara kondisi psikologis stress dengan hipertensi pada penduduk usia ≥ 15 tahun di Indonesia. Metode penelitian dilakukan dengan analisis data sekunder Indonesian Family Life Survey 5 (IFLS 5) tahun 2014 yang memiliki desain cross sectional. Sampel berjumlah 13.667 responden yang memiliki data lengkap terkait …

Analisis Penerimaan Sistem Informasi Pencatatan Dan Pelaporan Kasus Covid-19 (Aplikasi Silacak Versi 1.2.5) Menggunakan Technology Acceptance Model (Tam) Di Upt Puskesmas Cipadung Kota Bandung, Nurfatia Negari, Tris Eryando

Jurnal Biostatistik, Kependudukan, dan Informatika Kesehatan

Salah satu upaya untuk mengendalikan laju COVID-19 ialah dengan memperkuat sistem surveilans di fasilitas kesehatan tingkat dasar. Salah satu poin yang menjadi peran kunci dalam pemutusan rantai penularan COVID-19 adalah kegiatan pelacakan kontak. Kegiatan ini mengharuskan pelacak kontak untuk terus mencatat dan melaporkan kasus. Untuk itu, penggunaan sistem pencatatan dan pelaporan pelacakan kontak (Silacak) menjadi penting dalam menentukan kebijakan yang akan dibuat. Tujuan penelitian ini adalah menelaah penggunaan sistem pencatatan dan pelaporan COVID-19 dengan aplikasi Silacak serta penerimaan pengguna terhadap sistem informasi Silacak di UPT Puskesmas Cipadung Kota Bandung. Penelitian ini merupakan studi kualitatif dengan menggunakan desain studi kasus. Aplikasi …

Latihan Senam Dapat Menurunkan Kadar Glukosa Darah Pada Penderita Diabetes Melitus Tipe Ii, Rifa Fadhilah Lubis, Ramadya Kanzanabilla

Jurnal Biostatistik, Kependudukan, dan Informatika Kesehatan

Diabetes melitus tipe II adalah suatu keadaan hiperglikemia yang disebabkan gangguan pada resistensi insulin dan sekresi insulin sehingga metabolisme tubuh juga terganggu, merupakan masalah yang serius dan menjadi salah satu penyakit penyebab kematian yang cukup besar di Indonesia. Salah satu cara diabetes ini adalah dengan latihan fisik. Latihan fisik yang dianjurkan salah satunya adalah senam aerobik, yang bertujuan meningkatkan dan mempertahankan kesegaran tubuh dan dilaksanakan sesuai prinsip F.I.T.T (Frekuensi, Intensitas, Time dan Tipe). Penelitian ini bertujuan untuk menunjukkan dengan latihan senam secara rutin dapat mengontrol dan menurunkan kadar glukosa darah pada penderita diabetes melitus tipe II. Metode yang digunakan adalah …