Health Services Research Commons^™

Patient Feedback: Listening And Responding To Patient Voices, Simon J. Radmore, Kathy Eljiz, David Greenfield

Patient Experience Journal

The study aim was to identify key strategies to improve organisational systems and care experiences, to confront the challenges of achieving effective patient feedback throughout a large healthcare organisation. A mixed methods exploratory approach was used. Purposive and snowball sampling, semi-structured interviews with key stakeholders, and document analysis of existing feedback processes was utilised. The setting was a large metropolitan Local Health District in Sydney, Australia. Data was examined using thematic and content analysis. Participants identified no single feedback process was able to adequately gather all feedback necessary to reflect the patient experience. Patient feedback processes that are most useful: …

Measuring Patient-Centered Care For Specific Populations: A Necessity For Improvement, Sara C. Handley Md, Msce, Ingrid M. Nembhard Phd, Ms

Patient Experience Journal

The measurement of patient-centered care (PCC) is a fundamental component of assessing and improving health care quality. There are a variety of PCC measures available which have been tailored to different health care conditions and settings. These distinct measures are valuable given the diversity of health conditions and contexts encountered in the health care system. However, the type of patient has received significantly less attention when measuring PCC despite the multitude of unique patient populations that exist. Specific patient populations raise several core challenges for PCC measurement to which researchers and practitioners need to attend: identifying what principles to measure, …

Paying It Forward: A Cancer Survivor And His Wife Share Their Reflections And Recommendations As A Patient And Caregiver, Justin Sandler

Patient Experience Journal

I grew up in the north suburbs of Chicago and had a relatively normal childhood but not necessarily an easy one. Shortly after graduating from Indiana University, I moved out west and have been working in the entertainment industry ever since. My life has been a beautiful and interesting adventure with twists and turns I could have never predicted.

In 2016 it seemed like everything was really coming together. I had been happily married to my wife and business partner Mary Lou Sandler since 2011, and we had been growing our photography/film production studio for as many years. I was …

The Essential Nature Of Experience In A Time Of Crisis And Beyond, Jason A. Wolf

Patient Experience Journal

As we have engaged with community members around the world, the last few weeks have provided a unique window into the face of this crisis as we have seen not only the deadliest days on record, but have also had some of the most hopeful conversations at the same time. While we are and still will face challenges in the weeks to come, we too have seen humanity elevated in profound and powerful ways. While it can be offered with little argument that things will never be the same, in moving forward, we too can assert and I believe, that …

The Weekend Effect Among High Ed Utilizers, Wilson Tan, Adam Block

Annual SHSP Student Research and Scholarship Day

No abstract provided.

The Inflammatory Bowel Disease Questionnaire In Randomized Controlled Trials Of Treatment For Ulcerative Colitis: Systematic Review And Meta-Analysis, Aaron Yarlas, Stephen Maher, Martha Bayliss, Andrew Lovley, Joseph C. Cappelleri, Andrew G. Bushmakin, Marco D. Dibonaventura

Journal of Patient-Centered Research and Reviews

Purpose: The 32-item Inflammatory Bowel Disease Questionnaire (IBDQ-32) is the most frequently used instrument to capture disease-specific quality of life in randomized clinical trials for ulcerative colitis. This review and meta-analysis provides the first synthesis of evidence regarding the sensitivity of IBDQ-32 total and domain scores to treatment efficacy.

Methods: A systematic literature search and risk-of-bias assessment yielded 14 articles that were included in the primary analysis. Treatments were categorized as efficacious if they met the primary efficacy endpoint (which was not the IBDQ-32); otherwise they were categorized as non-efficacious. A continuous measure of treatment efficacy was calculated for …

What Outcomes Matter To Patients After Joint Or Spine Surgery?, Robin R. Whitebird, Leif I. Solberg, Christine K. Norton, Jeanette Y. Ziegenfuss, Stephen E. Asche, Elizabeth S. Grossman

Journal of Patient-Centered Research and Reviews

Purpose: Patient-reported outcome measures (PROMs) are increasingly used in clinical care, but there have been few studies of what patients identify as the most important outcomes.

Methods: Semi-structured interviews were conducted with 65 patients undergoing hip or knee replacement, spinal discectomy/laminotomy, or a spinal fusion. Interviews focused on outcomes patients identified as important, perceived usefulness of standardized PROMs measures, and contextual situations important to their care. Data were analyzed using a directed content analysis approach.

Results: Patients identified desired outcomes that were unique and important to them. Their preferred outcomes focused in the areas of freedom from pain, getting back …

Emergency Department Testing And Disposition Of Deaf American Sign Language Users And Spanish-Speaking Patients, Jason Rotoli, Timmy Li, Suejong Kim, Tina Wu, Jennifer Hu, Julie Endrizzi, Nathan Garton, Courtney Jones

Journal of Health Disparities Research and Practice

Objectives: Non-English speaking patients frequently present to the emergency department (ED) for acute care and may present a challenge to efficient clinical ED management and disposition. This study aimed to assess differences in the disposition and clinical management of Spanish-speaking patients and Deaf American Sign Language (ASL) users, who worked with a certified, in-person interpreter, compared with English proficient patients who did not utilize interpreter services.

Methods: A retrospective study querying electronic medical records was performed at an academic medical center ED. Patients with a chief complaint of abdominal pain were chosen for this study, as this is a common …

Occupational Therapy's Role In The Transition To Employment For Youth And Young Adults, Jeanne M. Ventura

Student Capstone Papers

Employment rates for persons with disabilities are shockingly low at 30%, while 70% remain unemployed. Some of the reasons for this disparity found in the research include a lack of preparation during high school, a lack of occupational therapy involvement in the transition to work process, and limited transition resources in rural communities resulting in students with disabilities graduating from high school without the skills necessary to secure employment. The goal of this project was to create a pre-employment course at a local YMCA in Warsaw, IN with occupational therapy-based curriculum for youth and young adults with disabilities to help …

Adults With I/Dd And Secondary Gastrointestinal Conditions: An Analysis Of Healthcare Utilization Patterns And Clinical Characteristics, And Implications For Patient-Centered Delivery Innovations, Kerry Watson, Kenneth Knapp, Tricia Patrick

Annual SHSP Student Research and Scholarship Day

The objective of this research was to create healthcare transformation policies for adults with intellectual and developmental disabilities (I/DD) who also present with secondary gastrointestinal (GI) conditions. Key perspectives and analyses used to achieve this research aim were the patient-centered medical home for GI patients (DGBI-PCMH), the biopsychosocial model, and population segmentation.

391— Mental Health Supports Readily Available For College Students, Heidi Granville

GREAT Day Posters

College students who struggle with mental illness need more resources and support services readily available to them while they are in school. This would help them succeed both as students and as maturing adults. Data collected from Penn State conclude that mental health issues are increasing as time goes on, more students are seeking counseling services, and more students have considered suicide. This data serves a purpose that the current public policy is not enough. Ultimately, when schools are ill-equipped to helping students who suffer from mental illnesses, those students cannot reach their maximum potential, and consequently, the suicide rate …

Nevada’S Secret Killer: Opioid Deaths, Vanessa Marie Booth

Calvert Undergraduate Research Awards

Emerging Scholars Winner

Presented in this study is an analysis of the Nevada opioid crisis and how a viable solution can impact its severity. It does so in a public policy environment while synthesizing outside sources to support the presented claims. The scope of this study is to present a problem, cause, solution scenario on how to solve this policy problem. This study also takes into consideration Nevada’s current economic state amid the coronavirus (COVID-19). In addition, this analysis also addresses the history behind the opioid epidemic across the United States and how it is impacting Nevada in present times. …

Accessibility Of Hiv Testing In Baton Rouge Metropolitan Statistical Area, Alina Prigozhina

LSU Master's Theses

This study examines HIV testing accessibility in the Baton Rouge Metropolitan Statistical Area (BR MSA) using the two-step floating catchment area (2SFCA) method to calculate accessibility scores for free, low-cost and all other HIV testing facilities. The two goals of this research are to apply accessibility estimation methods to HIV testing facilities, and to examine the accessibility of HIV testing facilities in the BR MSA. To achieve these goals, this study uses several research methods. The data about HIV testing providers and their locations were collected through Internet searches. By means of a fieldwork, the data were checked, revealing that …

Liposomal Bupivacaine Results In Cost Savings While Managing Post-Operative Pain In Fragility Intertrochanteric Hip Fractures, Nainisha Chintalapudi, Avinesh Agarwalla Md, Joana Lu Pa, Hrayr G. Basmajian Md, Joseph N. Liu Md, Nirav H. Amin Md

Annual SHSP Student Research and Scholarship Day

No abstract provided.

Effects Of Bingocize® On Overall Physical Activity, Functional Performance, Blood Glucose Level, Sleep Quantity, And Quality Among Older Adults In Assisted-Living Facilities, Sepehr Rassi

Masters Theses & Specialist Projects

Bingocize® has been established as an effective falls prevention exercise program for older adults, but its effects on older adults residing in assisted-living facilities have not been examined. The purpose of this investigation was to assess the effects of Bingocize® on overall physical activity level, functional performance, blood glucose level, sleep quantity and quality in older adults who live in assisted-living facilities. Participants (N = 13; mean age 86.23 ± 3.90) were asked to participate in Bingocize® while wearing activity trackers (Fitbit Charge 3 HR) for 10 weeks. The activity trackers were used to assess the average number of steps …

Effects Of A Rehabilitation Program For Individuals With Chronic Spinal Cord Injury In Shanghai, China, Fengshui Chang, Qi Zhang, Haixia Xie, Yuhui Yang, Mei Sun, Airong Wu, Jinghua Wu, Gang Chen, Feng Shen, Chengyue Li, Jun Lu

Community & Environmental Health Faculty Publications

Background: Specialized Institution-Based Rehabilitation (SIBR) is the cornerstone of care and treatment for individuals with spinal cord injury, but most people with chronic spinal cord injury (CSCI) living in China have no SIBR experience after acute care hospital discharge. In 2009, an SIBR facility was set up in Shanghai (China) to fill this important gap in care. The purpose of the study was to evaluate the effectiveness of an integrated rehabilitation training program among individuals with CSCI living in Shanghai.

Methods: A within-subject pre-posttest design was used to evaluate the SIBR. The sample included 455 individuals ≥1 year post-SCI, who …

An Exercise Program To Prevent Frailty In Community-Dwelling Older Adults: A Proposed Pilot Study, Kendra Harrington, Mikhail Beg, Laura Kelly, Jinto Mathew, Neil Ryan

Annual SHSP Student Research and Scholarship Day

No abstract provided.

A Survey Of Patients With Congenital Orthopedic Conditions In Malawi: Factors That Influence Late Presentation, Brianna Wallis

Undergraduate Honors Thesis Projects

Staff at CURE International, a non-profit organization that provides orthopedic care in Malawi, noticed a high prevalence of patients with congenital orthopedic conditions who are presenting late for treatment. Late presentation results in prolonged pain or discomfort for the patient and has the potential for increased cost to the institution, longer duration of treatment, and decreased quality of outcomes. To identify the factors that influenced presentation delays, we surveyed the caregivers of patients with congenital conditions that were seen in out-patient clinics, in-patient wards, and mobile clinics across the country. Sixty-two caregivers were surveyed; forty-two patients had a diagnosis of …

Vaccine Confidence, Coverage, And Hesitancy Worldwide: A Literature Analysis Of Vaccine Hesitancy And Potential Causes Worldwide, Jordan Hammond

Senior Theses

Vaccines are one of the world’s most impactful medical therapies. They are cost-effective, successfully proven, and one of the quickest treatment options available today (Clark et al., 2016). They save millions of lives every year and have eliminated certain diseases on a national and international level. However, millions of people worldwide still remain unvaccinated. In developed nations, mainly The United States (U.S.) and the European countries, many of the unvaccinated are a result of rising vaccine hesitancy of parents in conjunction with the anti-vaccination movement. Vaccine hesitancy is defined as “a delay in acceptance or refusal of vaccines despite availability” …

Association Of Dairy Consumption With Metabolic Syndrome, Hypertension And Diabetes In 147 812 Individuals From 21 Countries, Balaji Bhavadharini, Mahshid Dehghan, Andrew Mente, Sumathy Rangarajan, Patrick Sheridan, Viswanathan Mohan, Romaina Iqbal, Rajeev Gupta, Scott Lear, Edelweiss Wentzel-Viljoen

Community Health Sciences

Objective: Our aims were to assess the association of dairy intake with prevalence of metabolic syndrome (MetS) (cross-sectionally) and with incident hypertension and incident diabetes (prospectively) in a large multinational cohort study.
Methods: The Prospective Urban Rural Epidemiology (PURE) study is a prospective epidemiological study of individuals aged 35 and 70 years from 21 countries on five continents, with a median follow-up of 9.1 years. In the cross-sectional analyses, we assessed the association of dairy intake with prevalent MetS and its components among individuals with information on the five MetS components (n=112 922). For the prospective analyses, we …