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Articles 1 - 23 of 23
Full-Text Articles in Medicine and Health
Exploring The Experience Of Healthcare-Related Epistemic Injustice Among People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Joanne Hunt, Jessica Runacres, Daniel Herron, David Sheffield
Exploring The Experience Of Healthcare-Related Epistemic Injustice Among People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Joanne Hunt, Jessica Runacres, Daniel Herron, David Sheffield
The Qualitative Report
Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a chronic, disabling yet clinically “contested” condition, previously theorised through a lens of epistemic injustice. Phenomena conceptually close to epistemic injustice, including stigma, are known to have deleterious consequences on a person’s health and life-world. Yet, no known primary studies have explored how people with ME/CFS experience healthcare through a lens of epistemic injustice, whilst a dearth of research explicitly exploring healthcare-related injustice from a patient perspective has been noted. This qualitative study seeks to address this gap. Semi-structured interviews and interpretative phenomenological analysis (IPA) were used to explore the experiences of …
“Your Brain Isn’T All Backwards”: Asexual Young Women’S Narratives Of Sexual Healthism, Anna Sheppard, Emily S. Mann, Carla A. Pfeffer
“Your Brain Isn’T All Backwards”: Asexual Young Women’S Narratives Of Sexual Healthism, Anna Sheppard, Emily S. Mann, Carla A. Pfeffer
The Qualitative Report
Scholarship on asexuality is a growing but underexplored area in the social sciences. In the U.S., asexual people (i.e., individuals who do not experience sexual attraction) navigate a society in which being a sexual person is regarded as a normal and even compulsory aspect of human health and subjectivity. Utilizing an asexual subsample from a broader study of queer young women, this article integrates Foucault’s theorizing around sexuality and repression with scholarship on healthism to examine how discourses of sexual healthism operate among asexual young women in the U.S. South. We argue that in rejecting theories of sexual repression and …
The Dilemma Of Socrates’ Position: Interview Methods And Feminist Empirical Bioethics, Michiel De Proost
The Dilemma Of Socrates’ Position: Interview Methods And Feminist Empirical Bioethics, Michiel De Proost
The Qualitative Report
There is a growing body of bioethics research that addresses the importance of adapting empirical, predominantly qualitative, methods to generate debate on ethical arguments. However, there is an absence of illustrative work examining how this could be realised from a feminist perspective. This article, seeking to address the research gap, examines interview methods through a reflexive lens. Drawing on the doctoral research I conducted through interviews with women who were interested in social egg freezing (i.e., healthy women freezing their eggs in anticipation of future infertility), I describe how I encountered a dilemma because of my gendered positionality and the …
The Current Youth Sport Culture And Its Impact On Sport Participation Experiences Of Low Socioeconomic Status Families, Mayrena I. Hernandez, Elena C. Miller, Laura A. Prieto, Luis Columna, Kevin M. Biese, David R. Bell
The Current Youth Sport Culture And Its Impact On Sport Participation Experiences Of Low Socioeconomic Status Families, Mayrena I. Hernandez, Elena C. Miller, Laura A. Prieto, Luis Columna, Kevin M. Biese, David R. Bell
Internet Journal of Allied Health Sciences and Practice
Purpose: The rise of sport specialization can jeopardize the opportunities for families of low socioeconomic status (SES) to participate in organized sport. However, obtaining an athletic scholarship may be a motivating factor for low SES youth to sport specialize. Yet, the experiences of low SES athletes in sport participation are not well known. Method: We used an Interpretative phenomenological analysis (IPA) to explore experiences of low SES families with children participating in sport and how this may be impacted by the current youth sport culture that promotes sport specialization. We engaged in semi-structured interviews with 12 low SES parents. Results: …
Choosing To Thrive: An Autoethnographic Journey Of Cancer, Companionship, And Carrots, Bruce Lilyea
Choosing To Thrive: An Autoethnographic Journey Of Cancer, Companionship, And Carrots, Bruce Lilyea
The Qualitative Report
In this autoethnography, I explore the companionship experience of someone supporting a cancer patient who is endeavoring to thrive in the face of this disease. A wide range of studies has been conducted on the emotional and social issues relating to cancer and specifically to breast cancer. Appropriately, most of the research relating to the personal narrative focuses on the stories of the person who has been diagnosed with cancer, and limited research has highlighted the perspective and experiences of their companions. My primary goals for this autoethnographic research are to: (1) Begin to answer the question: What role do …
Integrative Power Of Illness: A Qualitative Study Of Cancer Patients, Hossein Afrasiabi, Kasra Barzideh
Integrative Power Of Illness: A Qualitative Study Of Cancer Patients, Hossein Afrasiabi, Kasra Barzideh
The Qualitative Report
Our aim of this study was to explore the constructions of cancer patients about their everyday interactions using an interpretive-qualitative approach. We wanted to know how cancer patients understand their condition and the challenges they face in family and everyday relationships. Accordingly, a basic qualitative research method was used, and interviews were conducted with 21 cancer patients and their caregivers. Participants were selected through the purposeful sampling in Ahvaz City, Iran. The collected data were firstly transcribed and then analyzed by the grounded theory coding analysis. The findings were represented in five main categories included: pressure on relatives, the limitation …
A Rapid Review Of Internet Mediated Research Methods With People With Dementia: Practical, Technical And Ethical Considerations, Tharin Phenwan Dr, Judith Sixsmith Prof, Linda Mcswiggan Dr, Deans Buchanan Dr
A Rapid Review Of Internet Mediated Research Methods With People With Dementia: Practical, Technical And Ethical Considerations, Tharin Phenwan Dr, Judith Sixsmith Prof, Linda Mcswiggan Dr, Deans Buchanan Dr
The Qualitative Report
Doing research with People with Dementia (PwD) can be challenging given that disease symptoms of anxiety, forgetfulness, and fluctuating mental capacity can make recruitment and data collection difficult. Once COVID-19 made face-to-face data collection impractical, using internet-based methods became an alternative option to continue with research. However, data collection with PwD over the internet requires strategies to observe, support, and enable them to engage with research, especially with qualitative approaches. Nine articles were selected via a decade rapid scoping review (undertaken March-June 2020) to identify qualitative online methods used with PwD and associated challenges. Methods used were online interviews, clinical …
Implementing Strategies For Strengthening Australia’S Rural Allied Health Workforce, Catherine Cosgrave
Implementing Strategies For Strengthening Australia’S Rural Allied Health Workforce, Catherine Cosgrave
Internet Journal of Allied Health Sciences and Practice
Purpose: In many rural places, health services struggle to maintain an adequate health workforce to meet their communities’ health care needs. Shortages of allied health professionals are of particular and growing concern. To address this challenge, a two-year Whole-of-Person Retention Improvement Project was developed involving a research partnership with two rural public health services in Victoria, Australia. This project was informed by the author’s Whole-of-Person Retention Improvement Framework (WoP-RIF), aimed to produce new knowledge for rural health services to attract, recruit, and improve the retention of allied health professionals. A set of evidence-informed and contextually relevant recommendations were made in …
The Embodiment Of Discovery: An Adapted Framework For Qualitative Analysis Of Lived Experiences, Helen B. Hernandez, Laurie P. Dringus
The Embodiment Of Discovery: An Adapted Framework For Qualitative Analysis Of Lived Experiences, Helen B. Hernandez, Laurie P. Dringus
The Qualitative Report
We reflect on our process of working with an adapted framework as an effective strategy for analyzing and interpreting the results of our qualitative study on the lived experiences of insulin pump trainers. Interpretative Phenomenological Analysis (IPA) was applied as the overarching research methodology and was encapsulated into a framework adapted from Bonello and Meehan (2019) and from Chong (2019). We describe this framework as the “embodiment of discovery” to posit the researcher’s tangible experience of discovering the meaning of data that also brought transparency to the researcher’s process for data analysis and interpretation. We present challenges the doctoral student …
Remembering Postpartum Depression In Later Life: An Interpretative Phenomenological Analysis, Walker Ladd Phd
Remembering Postpartum Depression In Later Life: An Interpretative Phenomenological Analysis, Walker Ladd Phd
The Qualitative Report
Postpartum depression (PPD) occurs in as many as 1 in 7 women (Gavin et al., 2005). PPD remains underdiagnosed and largely untreated, contributing to high societal costs and increased maternal mortality. Despite the wealth of research reporting the adverse effects of PPD on childbearing women and their offspring, little is known about how women who have experienced PPD describe or interpret the meaning of the experience in later life. I conducted semi-structured interviews with a purposive sample of 10 women self-identifying as having had PPD a minimum of 13 years in the past. Using interpretative phenomenological analysis (IPA) I identified …
What Does It Mean To Be Never Married In Later Life? Application Of Phenomenology In An Aging Study, Arya Hamedanchi, Nasibeh Zanjari, Hamid Reza Khankeh, Yadollah Abolfathi Momtaz
What Does It Mean To Be Never Married In Later Life? Application Of Phenomenology In An Aging Study, Arya Hamedanchi, Nasibeh Zanjari, Hamid Reza Khankeh, Yadollah Abolfathi Momtaz
The Qualitative Report
The growth of the aging population and the increase of age at marriage will result in a rise in the number of never-married people in the future, although there is not sufficient qualitative evidence on this emerging phenomenon. The present study aimed to explore the lived experience of never-married older adults. The lived experiences of 12 never-married older adults were collected using an in-depth interview. The hermeneutics method of Van Manen was used for identification, description, and interpretation of emergent themes. Reflection on the lived experiences of the participants uncovered six themes, including: feeling of independence, combating loneliness, moving up …
The Determinants Of The Development Of Russian Assistive Technologies Market: Analysis Of Experts’ Interviews, Aleksandra Goriainova, Alina Pishnyak, Elena Khabirova
The Determinants Of The Development Of Russian Assistive Technologies Market: Analysis Of Experts’ Interviews, Aleksandra Goriainova, Alina Pishnyak, Elena Khabirova
The Qualitative Report
Not all people with disabilities are provided with assistive technologies and devices (ATD) they need. The Russian researchers appeal to the development of assistive technologies, however, focus only on one specific social objective of ATD provision or on engineering, economic and production aspects of the problem. This study identifies the key determinants of the development of the assistive technologies market in Russia and trends over the next 10–15 years. We conducted a qualitative study using a grounded theory based on open and axial coding procedure. We collected data using semi-structured interviews with 12 experts recruited through snowball sampling with multiple …
Creatively Exploring Self: Applying Organic Inquiry, A Transpersonal And Intuitive Methodology, Larisa J. Bardsley Phd
Creatively Exploring Self: Applying Organic Inquiry, A Transpersonal And Intuitive Methodology, Larisa J. Bardsley Phd
The Qualitative Report
This article explores the merit of using Organic Inquiry, a qualitative research approach that is most effectively applied to areas of psychological and spiritual growth. Organic Inquiry is a research approach where the psyche of the researcher becomes the instrument of the research, working in partnership with the experiences of participants and guided by liminal and spiritual influences. Organic Inquiry is presented as a unique methodology that can incorporate other non-traditional research methods, including intuitive, autoethnographic and creative techniques. The validity and application of Organic Inquiry, as well as its strengths and limitations are discussed in the light of the …
Changing Weight Management Self-Efficacy Among Obese Puerto Rican Adults: A Quantitative Study Using A Health Coaching Intervention, Richard Valentin Ayala, Josh Bernstein
Changing Weight Management Self-Efficacy Among Obese Puerto Rican Adults: A Quantitative Study Using A Health Coaching Intervention, Richard Valentin Ayala, Josh Bernstein
Internet Journal of Allied Health Sciences and Practice
Purpose: Obesity and associated healthcare-related issues continue to increase. The prevalence of obesity is on the rise, which has led many health professionals to find ways to improve health interventions. Health coaching can be a viable tool to reduce the obesity epidemic. The purpose of this quantitative study was to investigate the effects of an 8-weekhealth coaching intervention in obese individuals from Puerto Rico and to determine if self-esteem and body image influence weight managementself-efficacy. Method: A pretest-posttest design using a weight management self-efficacy scale helped the researcher evaluate the effectof the coaching sessions. In addition, body image …
Neverland: A Critical Autoethnography Of Aging With Cystic Fibrosis, Alexandra Ch Nowakowski
Neverland: A Critical Autoethnography Of Aging With Cystic Fibrosis, Alexandra Ch Nowakowski
The Qualitative Report
In this autoethnography, I analyze stereotypes and misconceptions about people with cystic fibrosis (CF). I examine these illness representations and their social underpinnings through critical analysis of my journey to conclusive diagnosis with CF after first being tested for the disease in early life, and the events that have followed from that turning point. Using experiential data and prior research, I explore and refute harmful misconceptions about life with CF. I challenge the notion that people with CF never grow old. I also contest the idea that people who receive conclusive diagnoses during adulthood only then transition into patient identities. …
Hepatitis C And The Social Hierarchy: How Stigma Is Built In Rural Communities, Charley D. Henderson, Atsuko Kawakami
Hepatitis C And The Social Hierarchy: How Stigma Is Built In Rural Communities, Charley D. Henderson, Atsuko Kawakami
The Qualitative Report
Although Hepatitis C has profound impacts on individuals living in communities, most research has been conducted in a hospital or laboratory setting. Additionally, there is a lack of research exploring the social effects of Hepatitis C in rural communities. In this qualitative study, we focus on perceptions on Hepatitis C within a rural community, describe how the local residents perceive social hierarchy within their community, and explore the process of stigma building. Informed by a grounded theory approach, we employed a snowball sampling strategy in a southern rural area to conduct in-depth, open-ended interviews. In our findings we describe how …
The Micro-Politics Of A New Mental Condition: Legitimization In Maladaptive Daydreamers' Discourse, Orit Bershtling Ph.D., Eli Somer Ph.D.
The Micro-Politics Of A New Mental Condition: Legitimization In Maladaptive Daydreamers' Discourse, Orit Bershtling Ph.D., Eli Somer Ph.D.
The Qualitative Report
This study illuminates legitimization efforts in the discourse of individuals who suffer from excessive, uncontrolled daydreaming: a contested mental condition that has not yet been recognized by the medical establishment. It aims to explore the rhetorical maneuvers employed by these “Maladaptive Daydreamers” in 35 email exchanges with the second author and two petitions, submitted to the American Psychiatric Association and to the UK Parliament, with a demand for recognition. Our analysis, anchored theoretically and methodologically in Critical Discourse Analysis, identified several verbal strategies employed by the participants to persuade their interlocutors about the realness of their suffering. The main strategies …
Hiv In The Heartland: Experiences Of Living With Hiv In Urban And Rural Areas Of The Midwest, Sarah B. Donley, C. Patrice Lockett
Hiv In The Heartland: Experiences Of Living With Hiv In Urban And Rural Areas Of The Midwest, Sarah B. Donley, C. Patrice Lockett
The Qualitative Report
Scholarly research on HIV/AIDS and stigma has largely demonstrated a different experience for people living with HIV and AIDS (PLWHA) who inhabit urban and rural areas. Largely missing from this scholarship are experiences in low prevalence areas. Low prevalence areas typically have fewer resources, social networks, and HIV infection and prevalence is less common. In this paper, we examine the challenges PLWHAs in rural and urban areas of the Midwest face and how these individuals manage, respond, and combat HIV/AIDS related stigmas in their communities. This paper utilizes interview data to understand the lived experiences of 18 persons living with …
Career Morph: Quantitizing Adversity In Academic Medicine, Carol Isaac, Rebecca Mcsorley, Alexandra Schultz
Career Morph: Quantitizing Adversity In Academic Medicine, Carol Isaac, Rebecca Mcsorley, Alexandra Schultz
The Qualitative Report
Many qualitative researchers reject textual conversion based on philosophical grounds although others believe it facilitates pattern recognition and meaning extraction. This article examined interview data from 52 physicians from a large academic medical center regarding work–life balance. Analysis ranked men and women in four career tracks: Clinician-Educator, Clinician-Researcher, Clinician-Practitioner, and residents. The purpose of this paper is to illustrate how a qualitatively driven (QUAL→quan) mixed method design illustrated differences between stratified groups. Although many initial codes were similar for men and women, their language was gendered and generational in context of work-life balance. Results indicated that women (and low-status men) …
You Poor Thing: A Retrospective Autoethnography Of Visible Chronic Illness As A Symbolic Vanishing Act, Alexandra Ch Nowakowski
You Poor Thing: A Retrospective Autoethnography Of Visible Chronic Illness As A Symbolic Vanishing Act, Alexandra Ch Nowakowski
The Qualitative Report
In this autoethnography, I outline a framework for understanding illness as deviance, contextualizing general sociological theory on sick role dynamics to the specific case of chronic conditions that manifest with visible physical differences. I demonstrate two distinct ways in which chronic conditions can foster labeling and stigma. First, I explore how social norms can result in sanctions for showing physical evidence of chronic conditions. I describe sanctions I have experienced for violating conventional ideas about youth and female beauty, and associated behavioral expectations. Second, I explore how double jeopardy can result from failing to meet usual social expectations for sickness. …
The Components Of Attentiveness In Oncology Care, Klaartje Klaver, Andries Baart
The Components Of Attentiveness In Oncology Care, Klaartje Klaver, Andries Baart
The Qualitative Report
This article presents the first findings of a qualitative empirical study of caregivers' attentiveness in hospital oncology care. It takes a care ethical perspective, in which attentiveness is considered an indispensable element of good care. The data are derived from participant observation at the oncology department of a general hospital in the Netherlands. The analysis shows a descriptive exploratory model of attentiveness, which comprises a coherent set of the clusters perception (A), object finding (B), and space for attentiveness (C). The methodological output of this article is an important one: the presented descriptive model of attentiveness promotes further research into …
Electronic Medical Records (Emr): An Empirical Testing Of Factors Contributing To Healthcare Professionals’ Resistance To Use Emr Systems, Emmanuel Patrick Bazile
Electronic Medical Records (Emr): An Empirical Testing Of Factors Contributing To Healthcare Professionals’ Resistance To Use Emr Systems, Emmanuel Patrick Bazile
CCE Theses and Dissertations
The benefits of using electronic medical records (EMRs) have been well documented; however, despite numerous financial benefits and cost reductions being offered by the federal government, some healthcare professionals have been reluctant to implement EMR systems. In fact, prior research provides evidence of failed EMR implementations due to resistance on the part of physicians, nurses, and clinical administrators. In 2010, only 25% of office-based physicians have basic EMR systems and only 10% have fully functional systems. One of the hindrances believed to be responsible for the slow implementation rates of EMR systems is resistance from healthcare professionals not truly convinced …
Uncovering Meanings Of Death, Trauma, And Loss As Experienced By Hospice Bereavement Coordinators: A Phenomenological Study, Rochelle S. Clarke
Uncovering Meanings Of Death, Trauma, And Loss As Experienced By Hospice Bereavement Coordinators: A Phenomenological Study, Rochelle S. Clarke
Department of Family Therapy Dissertations and Applied Clinical Projects
This study examined the experiences of Hospice Bereavement Coordinators (HBCs) and Hospice Chaplains working with grief narratives from patient-family units exhibiting signs of anticipatory or complicated grief. While a significant amount of research has been conducted on Hospice employees, no qualitative studies have examined the interpretation of meaning from employees whose primary role focused on the psychosocial-spiritual aspects of clients exhibiting anticipatory or complicated grief. The researcher identified shared meaning of death, trauma, and loss from six participants in the context of a high stress and high loss environment. This study‘s findings revealed ten central themes: Death is an earthly …