Medicine and Health Commons^™

Exploring The Experience Of Healthcare-Related Epistemic Injustice Among People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Joanne Hunt, Jessica Runacres, Daniel Herron, David Sheffield

The Qualitative Report

Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a chronic, disabling yet clinically “contested” condition, previously theorised through a lens of epistemic injustice. Phenomena conceptually close to epistemic injustice, including stigma, are known to have deleterious consequences on a person’s health and life-world. Yet, no known primary studies have explored how people with ME/CFS experience healthcare through a lens of epistemic injustice, whilst a dearth of research explicitly exploring healthcare-related injustice from a patient perspective has been noted. This qualitative study seeks to address this gap. Semi-structured interviews and interpretative phenomenological analysis (IPA) were used to explore the experiences of …

Los Determinantes Sociales Y El Acceso A La Salud De Las Mujeres Migrantes: Desde La Perspectiva De Las Usuarias Y Los Trabajadores De Salud, Vanessa Gutiérrez

Independent Study Project (ISP) Collection

For the past few years, Chile has developed laws and programs, such as the Program for Access to Healthcare for Immigrants, Decree N° 67, and recently Law N° 21.235, to improve the access that migrants have, however, there has been a failure to comply with these regulations. In this qualitative and descriptive investigation, the main objective is to find out how accessible, adequate, and effective the health resources offered by clinics are for migrant women. In order to carry out the investigation, eight semi-structured interviews were held with five primary healthcare workers who frequently work with the migrant population and …

Complementariedad En La Comuna De Putre: Reflexiones Sobre El Sistema De Salud Y Los Conocimientos Comunitarios Aymaras, Grace Benish

Independent Study Project (ISP) Collection

In the comuna of Putre, which lies in the XV region of Chile, exists a community and culture unique from the rest of the country. Half of the population identifies as part of the Aymara indigenous group, which according to Chilean law, means that a system of intercultural health must exist in the commune. Our objective included establishing the format in which the intercultural system of health functions nowadays and assessing how well the system serves the community, keeping in mind the history of the commune, barriers to access, community needs, and Aymaran culture. Furthermore, the domination of the Aymaran …

Salud Intercultural En La Región De La Araucanía, Chile: Percepción Del Estado Actual De Implementación., Andrew Sunwoo Han

Independent Study Project (ISP) Collection

Salud intercultural está firmemente basada en la teoría y en la legislación de Chile, pero la teoría y la práctica muchas veces se manifiestan de manera diferente. Esta investigación busca responder cómo se comparan las percepciones de salud intercultural de sus funcionarios en la región de la Araucanía con la teoría, y en qué forma se encuentra el estado actual de su implementación. Observación participante, observación no participante, y entrevistas semiestructuradas (n=15) en seis hospitales y en la ruka de una machi Mapuche en la región de la Araucanía, Chile fueron utilizadas para análisis descriptivo mixto. De los 15 entrevistados, …

Tradición En Transición: Como La Medicina Tradicional Oaxaqueña Ha Evolucionado En La Última Década, Celeste Álvarez

Independent Study Project (ISP) Collection

Este proyecto de investigación analizará la evolución de la medicina tradicional en el contexto oaxaqueño como resultado de ocurrencias de la última década, incluyendo la pandemia y el crecimiento de las redes sociales. Basándome en mis conversaciones con curanderas y el análisis de investigaciones previas, usaré un marco teórico de globalización y adaptación cultural para estudiar los cambios en prácticas de las curanderas y el cambio de la popularidad de la medicina tradicional. Adicionalmente, analizaré la relación entre la migración y el uso de la medicina natural como una práctica de salud transnacional. Finalmente, concluiré con analizando la importancia de …

Cultura Y (Ataque De) Corazón: A Training For Health Professionals Needing Medical Interpretation Services, Elizabeth Dudek, Shelby Edwards

11th National Symposium on Spanish as a Heritage Language (Archived)

Limited English proficiency is a known barrier to quality health care outcomes (Green 2017, Helmi 2021). Inclusion of a certified language interpreter during health care encounters improves outcomes among ESL (English as a Second Language) patients (Karliner, Jacobs, Chen, and Mutha 2007). Interpretation with a certified interpreter promotes understanding between patients and their medical providers, and advances both health and race equity (Foiles Sifuentes, Robledo Cornejo, Castaneda-Avila, Tija, and Lapane 2020). Most health care workers receive no formal training in how to use an interpreter with limited English-proficiency patients. Located in the Hispanic Heritage District of an increasingly Latine mid-sized …

Human Zoo Healthcare At The 1904 World’S Fair, Angel Blake

Undergraduate Research Symposium

Human Zoo Healthcare at the 1904 World’s Fair

Were precautions taken or put into place for the Human Zoo performers at the 1904 World’s Fair? This topic has been overlooked and understudied by historians, there are few articles written and we do not know the true death toll which shows the racism towards these indigenous peoples. The research for this project was conducted at the State Historical Society of Missouri, the St. Louis Mercantile Library, Newspapers.com, Archives.com, St. Louis Public Library, and the Missouri Historical Society, including research on primary sources such as official World’s Fair committee meeting minutes, hospital …

Outpatient Fall Prevention In Ambulatory Adults 65 Years Old And Over, Dorothy L. Osborne-White

Doctor of Nursing Practice (DNP) Scholarly Projects - Archive

Background: In the United States (U.S.), falls are the leading cause of injury among adults 65 and over, resulting in 36 million falls yearly (Moreland et al., 2020). According to the Centers for Disease Control and Prevention (CDC, 2023), one in four older adults experiences a fall each year. Falls are the world's second most prominent cause of accidental deaths (World Health Organization [WHO], 2021). Falls are the leading cause of both fatal and non-fatal injuries among older adults (Moreland et al., 2020).

Methods: A quality improvement project that included a fall bundle was implemented in a primary clinic. A …

Differentially Unwell: On Mimi Khúc's "Dear Elia", Seo-Young J. Chu

Publications and Research

[...] Inviting readers to reclaim the stigma of unwellness and collectively to "tend to our unwellness, together," Khúc approaches unwellness as a crucial resource for subverting the "wellness and unwellness" dichotomy entirely. After all, the opposite of "wellness" is not "unwellness"; the opposite of "wellness" does not exist. The opposition itself is an artificial framework, one that reductively harms more than it dialogically helps. We need to move away from these simplistic dualisms, Khúc suggests, and towards more generous, trauma-informed epistemologies. [...]

Identifying Youth Appeals In Alcohol Alternative Social Media Content Through Framing, Melina Oneal

West Chester University Master’s Theses

Proposed regulations for alcohol advertising prevent beverage companies from targeting people under the legal drinking age. However, similar regulations for alcohol alternative beverages are less explored, which could allow alcohol alternative products to create awareness for alcoholic beverages among youth. Alcohol alternatives beverages, including no-alcohol and low-alcohol products, are increasing in popularity and can function as compliments to alcoholic products to decrease the total alcohol volume consumed or as substitutes for alcoholic products. Framing theory can be operationalized through the Content Appealing to Youth Index, an index of content elements found in research literature to be appealing to youth, to …

Autopathography Across Media: Trauma And Fluid Embodied Subjectivity, He (Kristen) Shen

Honors Theses

Illness memoirs with first-person point of view have gained more attention in recent years among medical sociologists and anthropologists. Different from traditional “case histories”written by doctors that are in danger of ignoring patients’ voices, autopathograhical works delineate narrators’ transformative experiences of persons to patients, emphasizing the importance of gaining social understanding of illness. Focusing on three works within the category of autopathography across genres and media forms in the late 1950s and contemporary periods, The Cancer Journals (1980) written by Audre Lorde, The Collected Schizophrenias (2019) written by Esmé Weijun Wang, and The Diving Bell and the Butterfly (2007) directed …

Humor Matters: An Adapted Multiple Case Study Exploring Music Therapists’ Perspectives Of Humor With Older Adults, Caleb M. Posey

Theses and Dissertations--Music

Humor is a ubiquitous human experience and a skill retained in older adulthood. It is also an integral but elusive therapeutic tool with numerous benefits and risks to well-being. Therapeutic humor – the application of humor to client well-being – is an emerging area of study. However, scant music therapy literature on humor is available. The purpose of this qualitative thesis was to explore the use and function of humor in music therapy with older adults from the perspectives of experienced music therapists. There were three research questions: (1) how do music therapists describe their use of humor with older …

An Organic Inquiry Into Teacher Experiences Of Self-Healing, Alison Davis

Antioch University Dissertations & Theses

This dissertation engages the spiritually-inspired methodology of organic inquiry to investigate how teachers practice self-healing in order to become available to students. Self-healing is a vital part of freeing up the teacher’s perceptive capacities to more deeply and fully attend to the needs of students. Self-healing work includes a variety of practices and modalities, including spiritual ones, in order to work through trauma, adversity, dis-ease, stress, and one-sidedness. Research shows that self-healing, especially in regards to mindfulness and meditation, equips teachers to confront compassion fatigue, secondary trauma, burnout, illness, and more. There is also ample evidence that training one’s attention …

Confronting The Doppelganger: Mapping The Ontological Terrain Of An Afro-Caribbean Woman As She Rebrands Diasporic, Feminine Identity Politics: An Autoethnography, Aysha E. Todd-Stone

Dissertations, Theses, and Capstone Projects

This thesis seeks to interrogate the intricacies governing the intra-racial\ intra-gendered relationship of an Afro-Trinidadian woman as she commandeers professional spaces in North America. The intent is to challenge the instrument of Black sisterhood deeming it as an incomplete, social instrument, and to prove using an auto-ethnographic approach how Diasporic, feminine trauma leads to psychically induced, episodic violence that is highly suggestive but subtle to the naked eye which in turn irretrievably damages intra-interpersonal relations. Quantitative studies have produced a composite from the white\black perspective (Goosby et al., 2015, Sims et al., 2012) and others dealing with gender (Braithwaite., 1981, …

Responding To Disproportionate Skin Cancer Rates Affecting Adult Men Aged 18-60, Aaron Thompson

Capstone Collection

Skin cancer is a deadly disease that kills significantly more men than women every year. At the same time, women are more than twice as likely to apply daily sun protection factor (SPF) than men. This research study explores how key stakeholders within the skin care industry have responded to the data showing increasing disparities between male and female skin cancer rates. To fulfill the objectives of this research study, qualitative data was collected from six semi-structured interviews with adult males between the ages of 18 and 60. The interviews were intentionally designed to engage with the American, adult male’s …

“Handicap Removed”: An Alternative Path To The Social Model, Craig M. Rustici

Journal of Gender, Ethnic, and Cross-Cultural Studies

This article identifies an expression of a social model of disability in a 1966 film promoting Hofstra University’s Program for the Higher Education of the Handicapped and traces that model back to books published by the pioneering rehabilitation physician Henry H. Kessler in 1935 and 1947, decades before the UPIAS (Union of the Physically Impaired against Segregation) Fundamental Principles of Disability (1976). In light of Kessler’s articulation of social and minority models, identification of contrasting religious, charity and medical models, and discussion of disability stigma, this article reassesses Ruth O’Brien’s critique, in Crippled Justice (2001), of Kessler and the twentieth-century …

The Development Of The Holistic Pastoral Wellbeing Assessment: A Mixed Methods Study, Timothy Captain

Dissertations

Some pastors are clearly in crisis. Research has indicated that clergy struggle to cope with the stressors of their profession. While pastoral work is overtly spiritual in nature, day-to-day tasks include interactions with God, themselves, congregants, and the world at large. Without multi-dimensional tools to consider their wellbeing, specifically assessments that reflect their worldview and role, pastors may remain unaware of dangerously low levels of wellbeing until they reach a place of crisis. Therefore, in this mixed methods study, the Holistic Pastoral Wellbeing Assessment (HPWA) was developed and tested to offer a validated, useful tool for pastors and those who …

Examining The Use Of Expressive Arts Therapies In Neurorehabilitation Treatment Planning, Rebecca J. Horner

Expressive Therapies Capstone Theses

Those undergoing neurorehabilitation after stroke and traumatic brain injury report a diminished sense of overall wellness. This paper examines the conceivable benefits of introducing expressive arts therapies, which is the therapeutic use and combination of the visual arts, movement, drama, music, writing and other intermodal creative processes, into physical therapy and neurorehabilitation treatment planning. Expressive arts therapies have the capacity to engage with an individual’s physical, emotional, social and spiritual states concurrently. They simultaneously offer the ability to promote an increased sense of well-being, address mind-body disconnects, and process trauma non-verbally.

The sections of this narrative literature review focus on …

Calculating Risk: A Scoping Review Of Ncaa D1 Football Players’ Motivations To Play And The Correlation To Demographic Characteristics And Injury Experiences, Kathleen D. Walsh

Honors Theses

The purpose of this research was to investigate the motivations of National Collegiate Athletic Association (NCAA) Division 1 (D1) football players for playing the game and how these motivations are associated with their socioeconomic status (SES). Further, the research aimed to investigate how the uncovered motivations were linked to injury experiences. The original project was designed as a survey-based mixed methods study on a national scale. However, issues with participant recruitment led to sidelining of that primary research. The research presented is a scoping review of the available literature pertaining to the research question: What is known from existing literature …

Attitudes Towards Gluten Free Foods And Celiac Disease In Italy, Joellyn Speredelozzi

Senior Honors Projects

This project addresses the perception and realities of living with Celiac’s Disease in Italy. I combine a literature review with my own anecdotal experiences as an individual with Celiac’s Disease who has lived and studied in Italy. In my paper, I first describe the high awareness of gluten-free living that I noted the first time I studied abroad, being the impetus of this project. I follow this with the history and science of Celiac’s Disease for those who may be unaware of this serious chronic medical condition. I then continue to describe personal experiences I had while living in Naples, …

Perceptions Of Varying Types Of Health Conditions Among Arkansas Tech University Students, Leala A. Sorrell

ATU Scholars Symposium

Attitudes towards minor ailments, psychological conditions, chronic illnesses, and disabilities were measured among students of Arkansas Tech University through an online questionnaire. 10 questions were asked for each condition type for a total of 40 questions. Participants were asked to rate their level of agreeance from 1-5, 1 being “highly disagree” and 5 being “highly agree”. High scores (higher response rate of “strongly agree”) represented attitudes of Talcott Parsons’ sick role theory. Low scores (higher response rate of “strongly disagree”) represented attitudes of the ICF model and inclusiveness. The minor ailments/illnesses scale had the lowest mean score of 27.186. The …

The Artist's Arsenal: Hiv+ Women Artists, The ‘War On Aids’, And Reclaiming Illness Narratives, Mekha Varghese

Art and Art History Honors Papers

This work uses the methodologies of both art history and medical sociology through the ‘syndemic’ framework to engage in close readings of two selected artworks, Exit (1997) by Nancer LeMoins and Violation of Africa (1984) by Affrekka Jefferson. An interdisciplinary approach to these works enables consideration of how multiple marginalized identities—i.e., living with a stigmatized illness, being a woman, being LGBTQIA+, being a person of color—appear in visual art and shape illness experience; these ideas are investigated through a formal and iconographic reading of the selected artworks. Placing art as the foundation of this analysis reveals its astounding impact and …

Las Barreras Sociales, Económicas, Y Políticas Que Deben Enfrentar Las Mujeres Víctimas De Violencia Al Momento De Realizar La Denuncia Y De Recibir Protección En El Departamento De Maipú, Provincia De Mendoza En El Año 2023 / The Social, Economic, And Political Barriers That Female Victims Of Domestic Violence Face When Reporting Violence Or Accessing The Corresponding Protection Services In Maipú, Mendoza In 2023, Amelia Opsahl

Independent Study Project (ISP) Collection

Este informe analiza las barreras que enfrentan las víctimas de la violencia contra las mujeres al momento de realizar una denuncia y acceder a los servicios de ayuda en el departamento de Maipú, Mendoza en el año 2023. Realicé este trabajo a través de cinco entrevistas presenciales con profesionales que trabajan con el tema en el departamento. Cada una de mis entrevistadas tiene una profesión distinta y trabajan sea con las víctimas, sea con los políticos, o bien con los propios agresores. Por eso, mis entrevistas ofrecen una mirada amplia de la problemática y me permite investigar las barreras que …

The State Of Transgender And Kinnar Communities In Delhi: Case Studies Connecting Socioeconomic Factors To Health, Ray Craig

Independent Study Project (ISP) Collection

The paper seeks to draw connections between socioeconomic barriers faced by the transgender (trans) community in Delhi, India and the healthcare that the community receives. It primarily discusses transgender people who are not part of the kinnar population, with as much consideration to the experiences of the kinnar community as possible, given limited access to their circles. Five transgender individuals and two cisgender individuals who have worked with trans communities participated in semi-structured qualitative interviews to understand various factors that affect trans people’s daily lives and their healthcare experiences in Delhi. Interviews were transcribed and coded, finding common themes of …

Moral Injury To Inform Analysis Of Post-Traumatic Stress Disorder, Amanda Julia Manea

Senior Theses

Post-traumatic stress disorder (PTSD) is a mental health condition that almost one out of ten veterans struggle with. Although the National Center for PTSD has made extensive progress in characterizing and developing new treatments for PTSD, most veterans still experience symptoms of PTSD following treatment. Novel avenues of investigation, such as developing algorithms to review electronic health record (EHR) data and better understanding moral injury, are being pursued to address the gap that still exists when it comes to treating veterans. Moral injury is the individual evaluation of exposure to a potentially morally injurious event (PMIE) and can lead to …

Conflicting Socio-Cultural Attitudes And Community Factors Resulting In Backstreet Abortion In Cato Manor, Kwazulu Natal, Chloe Sachs

Independent Study Project (ISP) Collection

Abortion in South Africa is a complex topic, rife with augmenting and limiting political, social, religious, and cultural factors. In South Africa, abortion has been legal since 1996; however, abortions have been performed for centuries in the region. Although abortion is legal, many factors influence a woman’s choice and ability to terminate a pregnancy. Religious and cultural norms within morally conservative societies contribute to negative abortion sentiments and hesitation to seek formal medical abortions. This study explored multiple age groups within Cato Manor and whether the attitudes towards abortion and factors impacting the choice of where and whether to receive …

El Impacto Del Diagnóstico De Cáncer De Mama En Los Vínculos En Mujeres De La Ciudad Autónoma De Buenos Aires (2023) / The Impact Of A Breast Cancer Diagnosis On The Relationships Of Women Living In The Autonomous City Of Buenos Aires (2023), Devin O’Loughlin

Independent Study Project (ISP) Collection

El siguiente trabajo de investigación busca describir las relaciones sociales de una persona con cáncer de mama. Para colectar datos, se entrevistó a cuatro mujeres argentinas CIS que han padecido cáncer de mama para investigar sus relaciones con sus amigos, sus parejas, y sus familias, y si estas relaciones han cambiado como resultado de su diagnóstico. Estas entrevistas estaban destinadas a informar cómo se distribuyen los roles de cuidado y acompañamiento durante el tratamiento por la enfermedad e indagar cómo pueden ayudar los amigos y la familia a la gente durante el tratamiento para el cáncer de mama. El trabajo …

Observaciones De La Medicina Mapuche Y El Mito De La Medicina Interculturalidad En Chile Con La Machi Rosita Barboza, Anat Gilligan-Steinberg

Independent Study Project (ISP) Collection

Chile cuenta con un sistema de salud intercultural, que promueve el acceso a servicios de salud culturalmente competentes para la población indígena. A través de mi pasantía con la machi Rosita Barboza, acompañándola a centros de salud, en ceremonias de sanación mapuche y ayudando en la preparación y distribución de remedios; he llegado a la conclusión de que no es más que un mito de la interculturalidad. Existe un conflicto constante entre las definiciones de salud occidental e indígena, que impiden la disponibilidad de salud complementaria. La salud occidental se basa en una definición biomédica de la salud, la cosmovisión …

Obesity Heterogeneity By Neighborhood Context In A Largely Latinx Sample, Ashley W. Kranjac, Dinko Kranjac, Zeev N. Kain, Louis Ehwerhemuepha, Brooke N. Jenkins

Sociology Faculty Articles and Research

Neighborhood socioeconomic context where Latinx children live may influence body weight status. Los Angeles County and Orange County of Southern California both are on the list of the top ten counties with the largest Latinx population in the USA. This heterogeneity allowed us to estimate differential impacts of neighborhood environment on children’s body mass index z-scores by race/ethnicity using novel methods and a rich data source. We geocoded pediatric electronic medical record data from a predominantly Latinx sample and characterized neighborhoods into unique residential contexts using latent profile modeling techniques. We estimated multilevel linear regression models that adjust for …

Mommy, Me, And We: Why Black Mothers Have Turned To Doulas, Janessa Harris

Crossings: Swarthmore Undergraduate Feminist Research Journal

Maternal mortality rates have disproportionately affected black mothers for far too long due to the lack of value that black bodies hold in medical spaces. Because of this concerns voiced by black people are often disregarded and ignored until the very last minute. But what if this was changed? This paper will focus on how black mothers have worked against Western medical systems that silence our voices, but instead turn to doulas who work to make these mothers feel seen, heard, and cared for. Through this, we make birthing a careful and collective effort to turn Mommy&Me to Mommy&We.