Disability Studies Commons^™

Unheard Victims Of Covid-19: The Impact Of Mask Use On Communication For D/Deaf And Hard Of Hearing People, Kym Couch

Boise State University Theses and Dissertations

Masks are effective at preventing the spread of COVID-19, but they also impact communication for d/Deaf and hard of hearing (DHH) people. This research is a mixed methods approach to analyzing the impact that the widespread use of masks in response to COVID-19 has had on DHH people. Building on the allowance for nuance and paradox presented by Deborah Stone in her book Policy Paradox: The Art of Political Decision Making (2012) and holding to the Social Model of Disability, this research involves the qualitative and quantitative analysis of a survey of one-hundred and ninety-eight (198) DHH people, interviews with …

Ableism, Ableist Microaggressions, And Psychological Thriving: A Mixed-Methods Study Of College Students With Physical Disabilities, Tonya Barnhill Dawsey

Electronic Theses and Dissertations

Microaggressions are daily insults to individuals that communicate messages of exclusion, inferiority, and abnormality. The term microaggression was originally used to explain the experiences of racial minorities. This term has also been used to explain the experiences of other individuals with oppressed identities. More recently, the term ableist microaggression has been used to describe these types of experiences for individuals with disabilities. Like other oppressed groups, individuals with disabilities experience ableism through interpersonal discrimination which is often delivered in a subtle, ambiguous, and unintentional manner that is difficult to address. Qualitative studies in the field of education and disability studies …

Chronic Sorrow And The Impact On Parents Of Children With Disabilities, Rhianna Mayra Nordlund

Electronic Theses, Projects, and Dissertations

Purpose: Chronic sorrow was assumed to be a common feeling experienced by parents of children with disabilities, and if not supported properly it would impede a parent’s ability to support their child through the treatment of a disability and other life stressors that come with a lifetime diagnosis. This research looked to see how family type, the child’s diagnosis, feelings of support expressed by the parent, societal stigma about disability, and coping abilities impacted the parents’ experiences of chronic sorrow and who is was most at risk of chronic sorrow.

Methods: Through a positivist research design, the researcher addressed the …

The Myth Of Perfection: Charting The Rhetoric Of Veteran Disability For A Course To Stability, Nicholas Rader

All Dissertations

This dissertation rhetorically analyzes discrimination in Western institutional discourses and documentation procedures, such as architectural texts and procedures, through a historiographic lens. An analytical methodology will be offered to show how discrimination of intersectional bodies is historically informed and reaffirmed by the manipulation of Western myths and mythos. Specifically, by mapping navigational mathematics and cartographic methods over rhetorical, architectural, and historiographic theory, it will be shown how the manipulation of Western myths establishes and reifies patriarchal discrimination that eventually fissions into eugenicist logics in nineteenth and twentieth century France, England, and the United States. In modernity, the practice of manipulating …

Circumventing Ableism: A Grounded Theory Study Exploring Caregiver Strategies To Promote A Positive Identity, June Furr

All Dissertations

This qualitative research study explores how caregivers and persons with disabilities navigate the rhetoric of disability and caregiving through the interviews of fifteen caregivers and fifteen persons with disabilities using the lens of grounded theory and Burke’s (1952) dramatistic pentad. Significant findings describe how focused disability description can circumvent ableism when rhetorical resources that assist caregivers and persons with disabilities to navigate the rhetoric in disability descriptions are provided. Disability description theory includes the three stages that define, collaborate and revise, and practice and apply a disability description. This qualitative research offers an introduction into the phenomenon of …

Utilization Of Routine And Recommended Preventive Care Among Individuals With Disabilities In Nebraska, Snehal Jadhav

Capstone Experience: Master of Public Health

Background: Healthcare access disparities exist among individuals with and without disabilities (IWD, IWoD). There is a scarcity of studies focused on Nebraskans living with disabilities.

Methods: Access to Care Nebraska surveyed adults (age 19+) in Oct 2020-Mar 2021. We used Andersen’s model of healthcare utilization to group risk factors for non-compliance with routine care and recommended cancer screening. A multivariate log-binomial regression compared the non-compliance between IWD and IWoD to compute adjusted prevalence ratios (aPR) for risk factors.

Results: Of the 1101 participants,96(8.7%) were IWD. IWD had a higher proportion of non-compliance to routine preventive care (61.7% vs 54.1%) and …

An “Other” Experience Of Videogames: Analyzing The Connections Between Videogames And The Lived Experience Of Chronic Pain, Gracie Straznickas

College of Computing and Digital Media Dissertations

In this dissertation I argue for the connections between the lived experience of chronic pain and videogames, exploring what interacts with and influences them. To answer this, I draw on cripistemology as I engage in autoethnography, close-reading and close-gameplay, restorying, mixed methods design, formal interviews, surveys, and inductive coding. I further argue for pushing back against the unhelpful binaries that define the “human” and a false idea of “universal” experience or ability, instead pointing to the intersectionality that better reflects the biopolitics of disability, including both debility and capacity. I engage with these methods in three specific projects that consider …

Inhabiting "Sore Butt Cracks": Queering The U.S. Long-Term Care System, Alison Lawrence

Women's and Gender Studies: Student Scholarship & Creative Works

In the face of a failing long-term care system, the author positions a queer theoretical lens as a potential source of creativity and empathy to help us build a care system that supports the dignity and personhood of all patients. The comedic work of a long-term care patient, Youtuber Clay-The-Comedian, is analyzed through a queer-theories lens as a new approach to long-term care that celebrates the personhood of all types of bodies, while also never diminishing the often difficult reality that folks in need of care face. This queer rhetoric engages with the messy, embodied experiences of patients to develop …

An Interactive Training Model To Promote Cultural Humility For Early Childhood Professionals, Anjali G. Ferguson, Chimdindu Ohayagha, Jackie Robinson Brock

Developmental Disabilities Network Journal

The disability population in the United States has grown, with an estimated 2.6 million households having at least one child with a disability in 2019 (Young, 2019). Racially minoritized children disproportionately represent disability categories with Black and Indigenous children being overdiagnosed with emotional disturbance disabilities (Oswald & Coutinho, 2001). Further, minoritized children often experience greater rates of complex trauma (Horowitz, Weine, & Jekel, 1995) and this exposure significantly impacts minoritized children’s mental health (Flannery, Wester, & Singer, 2004). Included in these social determinants of health are the impacts of racism and racial trauma. Racism has been associated with mental health …

Beyond Representation: Partnerships, Intersectionality, And The Centering Of The Disability, Family, And Community Lived Experience, Lydia Ocasio-Stoutenburg, Julieta Hernandez, Douglene Jackson

Developmental Disabilities Network Journal

The COVID-19 pandemic introduced a public health crisis, overlaying the disparities in healthcare access, treatment, and outcomes that were already prevalent in Black and Latino communities across the U.S., particularly persons with disabilities (PWD) at the intersection of racial and ethnic identities. In addition, the concurrent social and political climate mirrored the pandemic in its action of magnifying existing systemic inequities for historically marginalized populations, calling for institutions to galvanize efforts toward diversity, equity, and inclusion (EDI). Our University Center on Excellence in Disabilities (UCEDD) serves a range of families whose children have disabilities or complex health care needs and …

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

Unlocking Potential: The School-To-Prison Pipeline For Students With Disabilities, Navena F. Chaitoo

Dissertations, Theses, and Capstone Projects

This research uses quasi-experimental, matched sampling to examine the school-to-prison pipeline for students with disabilities using data from the National Longitudinal Study of Adolescent to Adult Health. This study presents novel insights into an at-risk group that has faced disproportionate rates of school discipline and incarceration. The study finds school suspension to be associated with future involvement in the criminal legal system and lower educational attainment. Disability was not found to mediate the relationship between suspension and future involvement in the criminal legal system or the relationship between suspension and academic outcomes. However, disability was found to be a statistically …

A Grounded Theory Of Counselors’ Post-Graduation Development Of Disability Counseling Effectiveness, Michele Rivas, Nicole R. Hill

Journal of Counselor Preparation and Supervision

Many persons with disabilities engage in counseling services in a variety of settings. However, the development trajectories of counselors who seek to compensate for the lack of training and advance their post-graduation skillset to work effectively with clients with disabilities has not been explored. This grounded theory study illuminated several dimensions involved in twenty-one Licensed Professional Counselors’ post-graduation development of disability counseling effectiveness. In this study, counseling effectiveness refers to self-perceived improved skillset rather than a benchmark (i.e., competence). The core category, Evolving Commitments, was common to all participants’ trajectories when developing disability counseling effectiveness. The other categories (causal conditions, …

When Sexuality Becomes Healing: An Interview With Elsbeth Fraanje On Her Documentary Sexual Healing, Johan Roeland

Journal of Religion & Film

This is an interview with Elsbeth Fraanje, the director of Sexual Healing.

Sexual Healing, Johan Roeland

Journal of Religion & Film

This is a film review of Sexual Healing (2022) directed by Elsbeth Fraanje.

Examining Ableism In Music Therapy Education And Clinical Training: Student And Educator Perspectives, Rebecca Warren

Expressive Therapies Dissertations

Ableism is the discrimination against disabled people and favoring of nondisabled people. Ableism can pervade societal expectations, medical systems, educational systems, and culture. Within higher education, ableism can prevent disabled students from succeeding in programs with unique requirements, like music therapy. College music therapy programs combine aspects of music, psychology, and clinical training. While music therapy students frequently will work with disabled clients, there is a lack of consideration for disabled music therapy students and disabled music therapists. The purpose of this phenomenological study was to examine ableism in music therapy education and training. Participants completed a creative writing response …

Diversity, Not Division, Elaine Chapman

Support services (Former ITT) - Other Resources

This paper will contain observations about the library field, the wider societal barriers that are impacting the potential staff we could employ. It will also be talking a bit about TU Dublin and what we hope to do and become, and will finish with looking towards the future of third level education. The aim of the paper is for readers to be able to partake in an open dialogue about disability, and wider social struggles. Through enabling this it will help to increase action on equity, and reduce staff's fear of acting.

Treatment Of The Differently Abled: Representations Of Disability From Victorian Periodicals To Contemporary Graphic Narratives, Rachelle Echevarria

Honors Undergraduate Theses

In recent years, a number of efforts have been made to promote diversity, equity, and inclusion in academic institutions, the workplace, and to examine and analyze representations of marginalized populations in a variety of literary and cultural contexts. These efforts usually acknowledge past mistakes, emphasizing the idea that history shall not and should not repeat itself. While analyzing the representations of disability is important in its own right, it's also important to understand why these perceptions exist. This thesis suggests that when the representations of disabilities from different mediums and from different time periods are examined in relationship, readers may …

Flipping The Script As A Black Mother Living In My Community: A Self-Advocate's Perspective From Baltimore, Jessica Salmond

Developmental Disabilities Network Journal

No abstract provided.

We Didn’T Know: How A Mid-Career Research Project Taught Us About Disability, Advocacy, And Ourselves, Lee Ann Fullington, Jill Cirasella

Publications and Research

We—Lee Ann and Jill—are mid-career faculty librarians at different campuses of the City University of New York (CUNY), and we are both hard of hearing. Lee Ann has bilateral hearing loss and uses two hearing aids; Jill has single-sided hearing loss and uses only one. However, even with hearing aids, which do not restore normal hearing, our hearing loss complicates our lives at work and in the broader world. This chapter describes how we found community in each other, how our conversations about hearing loss led to a mid-career research collaboration, and how that collaboration launched us into a larger …

"I'M Not Your Inspiration, Thank You Very Much.", Yoseph Mamo, Justin A. Haegele

Human Movement Studies & Special Education Faculty Publications

The development of interactive social media platforms has expanded how disability is communicated or shared with the public. Despite the potential of social media to challenge and educate nondisabled people's understanding of disability, little empirical research has been conducted in this area. In this study, we analyzed comments from a YouTube video from a seminal TED Talk by the late Australian disability rights activist, educator, and comedian Stella Young. The video titled "I'm not your inspiration, thank you very much | Stella Young" had accumulated 1,374,878 views, 22,000 likes, and 975 interactions (comments and responses) at the time of the …

Loving My Skin: A Self-Advocate’S Perspective From Dayton, Ohio, Shari Cooper

Developmental Disabilities Network Journal

No abstract provided.

Spotlight On Research. Leveraging Data To Deliver Quality Employment Services:, Alberto Migliore

All Institute for Community Inclusion Publications

Ensuring that job seekers with disabilities receive high-quality supported and customized employment services is key for increasing their chances of achieving their career goals. This paper describes the findings from piloting ES-Coach with nine employment programs in Minnesota and Massachusetts. ES-Coach is a tool designed to help teams of employment consultants visualize their employment support practices and leverage that information to reflect, set goals, and take action for continuous quality improvement.

A Qualitative Study Of Ableism On The Postsecondary Campus, George Stuart Fuller

Doctoral Dissertations

This study aimed to learn about the experiences and challenges of disabled students on college campuses. The qualitative research gave voice to the nine disabled students so we can hear, in their own words, their lives, successes, failures, most enjoyable aspects of campus life, and the least pleasant parts of the campus environment. Zoom interviews took place with nine undergraduate disabled students, eight with non-visible disabilities and one with visible disabilities, located on four different campuses within the United States. During the nVivo data analysis, three themes emerged. The three themes identified were: the disabled students' connections with the campus, …

Disability Identity In Samuel Taylor Coleridge's Letters, Jackson Fields

Master's Theses

This thesis focuses on letters written by British Romantic author Samuel Taylor Coleridge, who wrote about his chronic illness during the period of emerging modern ideas of disability. Coleridge’s letters are valuable to readers in the twenty-first century because they enable us to track the formation and negotiation of Coleridge’s disability identity. As one of the most important thinkers and authors in the English language, Coleridge has a lot to teach us about how one can understand their illnesses, medical authority, and the influences of disability on friendships and social roles. This thesis considers Coleridge’s letters to his loved ones …

Moments Of Excess: Type 1 Diabetes And The Myth Of Control In Adolescent Fiction For Girls, Michelle E. Legault

Master's Theses and Doctoral Dissertations

This thesis is the first academic work to analyze the stories of the Type 1 diabetic teen girls of adolescent fiction. In novels for adolescent readers, these girls are often White, female, heterosexual, and middle class—resulting in a collective disability narrative that portrays an “every girl” and lacks cultural or political dimensions. This thesis explores the narratives of five fictional teen protagonists with Type 1 diabetes. They are: Stacey McGill from the Baby-Sitters Club series by Ann M. Martin, Rachel Deering in Lurlene McDaniel’s Will I Ever Dance Again? (1982), Mackenzie “Zie” Clark in Sarah White’s Let Me List the …

Examining The Lived Experiences Of Families With Children With Developmental Disabilities Participating In Recreational Dance Programs, Isabella Seguin

Theses and Dissertations (Comprehensive)

Objective

Families with children with developmental disabilities (DDs) experience effects on family functioning and will often turn to physical activity (e.g., dance) to mitigate these effects. This research examines the lived experiences of families with children with DDs participating in recreational dance programs to understand the myriad of effects on all participants: children with DDs, families, and dance instructors.

Methods

In order to fully understand the lived experiences of participants, phenomenology was used as the theoretical orientation to guide this research. Each case (5 cases, N=19) consisted of a primary parent, a child with a developmental disability, sibling(s) (if applicable), …

Tabletop Role-Playing Games As Autism Psychotherapy: A Video-Cued Multivocal Clinical Ethnography, Adina Rubin-Budick

Electronic Theses and Dissertations

This qualitative study is a video-cued multivocal ethnography that analyzed the clinical reasoning and perspectives of psychotherapists using Tabletop Role-Playing Games (TRPG) as a therapeutic treatment for children and adolescents diagnosed with Autism Spectrum conditions. With a growing number of TRPG therapists nationwide using this modality in their clinical practices, this study aimed to develop a clearer understanding of the ways in which their therapeutic orientation, gaming practices, and knowledge of Autism Spectrum Conditions informs their use of TRPG psychotherapy with Autistic clients.

Research that focuses on clinical decision-making and the knowledge that informs clinical interventions and technique generally refers …

Agentive Intertextual Insertions: (Re)Presentation Of Albinism In Nwelezelanga: The Star Child’S Subtext, Spemba E. Spemba

Journal of Humanities and Social Sciences

The relationship between African traditional healers (sangomas) and persons with albinism is contradictory. Sangomas are rumoured to fuel the narrative that body parts of persons with albinism have magical powers, and so can be harnessed and used by quick wealth-seekers. That narrative has claimed lives and agency of many albinos. There is, however, an emerging trend for sangomas to revert this narrative through media. A good example is Unathi Magubeni, a South African practicing sangoma, who has authored the novel: Nwelezelanga: The Star Child (2016), on the topic. Borrowing from critical ideas on intertextuality, disability studies and agency, this study …

Hearing Impaired And Leadership: Struggles Of Individuals With Hearing Loss In The Workplace, John Cleese Relihan

Doctoral Dissertations

With the passing of federal legislations such as the Rehabilitation Act of 1973 and the Americans with Disabilities Act of 1990, Americans believe all issues relating to disability have been addressed. While Americans with disabilities gained civil rights under these two federal laws and educational opportunities have expanded, they are still struggling against the stigma of disability. They encounter many barriers as they enter the workplace and navigate toward leadership roles in their organizations. This narrative phenomenological qualitative study seeks to understand the experiences of individuals with hearing loss as they enter and navigate through their careers. Its purpose is …