Disability Studies Commons^™

Waiting On The World (Of Allied Healthcare) To Change: How Undergraduate Preparedness Curriculum Dis/Includes Ability, Brianna Donnelly

West Chester University Doctoral Projects

Significant concerns for healthcare practitioners and allied health professionals continue to arise regarding treatment of persons with disabilities. Whether disability exists as apparent or non-apparent, temporary, or chronic, people with disabilities tend to be in poorer health and tend to use health care at a significantly higher rate than people who do not have disabilities. Importantly, the absence of professional training on disability competency issues for health care practitioners is one of the most significant barriers that prevent people with disabilities from receiving appropriate and effective health care. This qualitative narrative analysis explores the inclusion of disability concepts and people …

Describing Dictee, Seo-Young J. Chu

Publications and Research

The visual images in Dictee are famously captionless. They resist straightforward explanation. In writing image descriptions of the images in Dictee, I have tried to preserve the "captionlessness" of the original. The point here is not to explain the pictures—an image description is not identical to a caption—but to make Dictee more accessible to readers who are blind and visually impaired. I realize, of course, that in trying to make Dictee's captionless images more "legible," I have inevitably "mistranslated" Dictee as it was originally designed to be experienced. Its captionlessness is lost in translation despite my efforts to preserve it. …

"What Makes A Monster And What Makes A Man?": Exploring The Intersectionality Of Catholicism And Disability Through The Lens Of The Hunchback Of Notre Dame, Daniella Flom

SPARK Symposium Presentations

In 15th century Europe, most viewed the disabled through the lens of Catholicism and treated them accordingly. The off-Broadway musical The Hunchback of Notre Dame closely examines religious influences on various members of society in 15th century Europe through dialogue, lyrics, and characterization and invites us to turn the mirror on our own society, asking, “What makes a monster and what makes a man?”

An Inquiry Into The Accessibility Of Campus Recreation For College Students With Disabilities, Kayla B. Abrahamson

Graduate Theses, Dissertations, and Problem Reports (ETD)

University recreation centers are identified as the main sources of physical activity for college students. However, an estimated 68% of college students with disabilities (SWD) use their campus recreational facilities less than five times per year (Yoh et al., 2008). Structural and programmatic accessibility barriers may account for low facility use and corresponding low physical activity levels among college SWD. An accessibility assessment of facilities and programming is warranted to identify priority areas for barrier removal. This collective case study evaluates the accessibility of three campus recreation facilities at 4-year public universities in the southeast U.S. Adopting a mixed-method approach, …

Decolonizing Disability In Social Work: A Conversation On Colonialism, Autumn Asher Blackdeer

The Journal of Sociology & Social Welfare

The present work seeks to prompt a paradigm shift in the conceptualization of disability within social work through three main goals: a) Problematize the dominant disability discourse in social work, b) Illuminate present day manifestations of settler colonialism and their intersection with disability in social work, and c) Introduce decolonization and its compatibility with disability justice to reckon with disability and colonialism in social work. First, the present work will illuminate social work’s dedication to the medical model, evidence-based practice, and hollow notions of empowerment and inclusion. Next, in viewing intersections of ableism with other forms of oppression, this work …

Global Deaf And Disability-Led Partnerships For Accessible Emergency Response And Humanitarian Action, Alina A. Engelman, Joe Booze, Alexia Izquierdo

The Journal of Sociology & Social Welfare

Disability-serving non-profit, non-governmental organizations (NGOs) play a critical role in fostering care networks and supporting humanitarian action for disabled people before and during emergencies, particularly in the absence of targeted philanthropic and governmental support. However, relatively few NGOs serving disabled people are led or operated by people with disabilities, especially by disabled women. This analysis, based on survey and interview data with leadership, explores the impact of two disability-led operations. Findings have profound implications for how social work practice can center disability justice both in preparing for and responding to emergencies. This paper assesses the needs and impact of two …

Understanding The Effects Of Organizational And Individual Level Motivations On Impression Formation For Persons With Disabilities In The Workplace, Lauren Francesca Luchetti

Graduate Research Theses & Dissertations

In recent years, organizations have begun paying more attention to hiring people with disabilities because of evidence supporting direct and indirect benefits to the organization. The business case for disability outlines the economic benefits for hiring those with disabilities, such as lower rates of turnover and absenteeism. Despite the motivations to hire those with disabilities, this population continues to suffer from higher rates of unemployment and underemployment. The current project attempts to shed light on the mechanisms that can improve the effectiveness of hiring motivations and disability hiring rates. In two experimental studies, the effect of the business case on …

Disability Representation In Contemporary Playwriting, Caroline Hull

Graduate Thesis and Dissertation 2023-2024

Is it possible for a playwright to authentically capture the disabled experience without it becoming privy to stereotypes or utilized as a catalyst for the plot? The thesis aims to challenge the prevalent notion that making the disability intrinsic to a theatrical plot is essential for authentic representation, and instead asserts that authentic portrayal of the disabled experience can exist independently of making the disability a central plot device. To support this claim, In Chapter One, I engage with relevant work in the field of playwriting and narrative media studies, such as the workshop "Inaccessible: Writing Plays with Characters who …

Action Steps Toward Dismantling Ableism In Social Work Education, Laura J. Wernick, Rose C. B. Singh, Natasha M. Lee-Johnson, Shanna K. Kattari, Brendon Holloway

The Journal of Sociology & Social Welfare

Despite social work’s commitment to social justice, ableism remains rampant among social work programs. Students and faculty often have to fight in order to have their basic accommodations and access needs met, disability is frequently missing from social work education’s discussions of diversity, and it is often implied that disabled people will be our clients, while social workers themselves are non-disabled. There is a glaring gap in our profession when it comes to engaging with and supporting disabled individuals. More than that, basic access is not enough; rather, we must work towards active inclusion and affirmation in order to be …

“Everyone Else Gets To Have The American Dream:” How Social Security Disability Policy Shapes Disability Identity, Katie Savin

The Journal of Sociology & Social Welfare

In the United States welfare state, the Social Security Administration (SSA) is the primary institution that shapes the disability experience through its disability benefit programs. This study used qualitative methods to explore 33 disabled adult beneficiaries’ experience with SSI/SSDI policy administration and the impact on their sense of worth, self-concept, and identity. Critical Disability Studies and a constructivist grounded theory approach drove data analysis. What emerged from the data was a negative disability identity experience referred to as the Social Security model of disability. Capitalist ideals that assign morality to formal work meant that disabled participants faced exclusion and stigma …

Expect: A Speculative Documentary Filmed In Vr Utilizing The Role-Playing Method To Explore Disabilities And Ableism In Science Fiction, Leilei Xia

Theses and Dissertations

Expect is a speculative documentary filmed in Virtual Reality (VR) that features Chinese actors with disabilities to explore, challenge and reimagine the conventional ableist Sci-Fi tropes and the transhumanistic tendency to “fix” or eradicate disabilities through technological enhancement. I invited people with disabilities who are interested in Sci-Fi to do a Role-Playing with me in Virtual Reality (VR), in which they imagine themselves to be living in a future civilization, an alien planet, or an alternate universe. The participants came up with their own fictional characters and built their own world views. I interacted with them by asking questions and …

Falling Into Action, Kent Hoffman

The Goose

Kent Hoffman explores human movement, his own mobility, and how it influences the way he moves on land. This personal essay, told through the lens of disability and accessibility, outlines his experience of living with Becker muscular dystrophy. Hoffman's approach to walking and mobility is heavily influenced by a fear of falling. As his mobility is changing, he's adapting and seeking out new ways to move on land. Different modes of mobility determine the way we experience personal movement, but accessibility determines who is welcome in spaces in the first place. Accessibility in the form of providing equal access is …

Economic Equity And People With Disabilities: Development And Characterization Of A Novel Index, Bhavneet Walia, Katherine Mcdonald, Joy Hammel, Lex Frieden, Michael Morris, Barry Whaley, Vinh Nguyen

Faculty, Staff and Student Publications

Here we develop two new social indices: The ADA PARC Absolute Economic Opportunity Index and the ADA PARC Relative Economic Opportunity Index. These indices allow us novel examinations of economic equity between people with and without disabilities within a U.S. State and between people with disabilities in different states using aggregations of multiple component economic indicators. These represent the first efforts to offer U.S. indices of this focus, an important development given the distinct economic needs of people with disabilities and the value in accounting for distinct national policies. The indices rely on U.S. Census and other data on economic …

The Spiritual Impact Of Disability On Parents And Caregivers, Grant Azbell

Discernment: Theology and the Practice of Ministry

This study was designed to examine the impact of disability on the faith and faith communities of parents and caregivers of persons experiencing disability. This study proceeded by asking nine parents or caregivers of persons experiencing disability a series of seven questions to evaluate the impact of disability on their faith and on their relationship to their faith community. The interviews were conducted on Zoom and the recordings were transcribed and coded to observe discernable patterns and themes amongst the participants. What emerged from the data is important for ministers, church leaders, and anyone wanting to know more about the …

Disability Awareness, Access & Inclusion Week (Library Resources), Holy Cross Libraries

Library Resources for Campus Events

A bibliography of resources available through the Holy Cross Libraries which provide additional information related to Disability Awareness, Access & Inclusion Week, an awareness event sponsored by the Office of Student Accessibility Services and supported by the Holy Cross Libraries.

This event was held at the College of the Holy Cross from October 16-20, 2023.

Addressing The Absence Of Disability Justice Through An Online Social Work Course, Rose C. B. Singh

Feminist Pedagogy

No abstract provided.

You Don't Need Eyes To See: The Lived-Experience Of College Graduates Who Are Black Men, Born Into Poverty, And Living With A Visual Impairment, Ronald Dillard

Dissertations

The following study seeks to answer this research question: What is the lived experience of college graduates who are Black men, born into poverty, and living with a visual impairment? The researcher has used intersectionality as an aspect of Critical Race Theory (CRT) to conceptualize the research question and develop an interview protocol.

The researcher has conducted in-depth interviews for this qualitative inquiry, resulting in a narrative study. Purposeful sampling was implemented to identify three participants who fit the criteria of being a Black man, born into poverty, and living with a visual impairment. Data was reorganized to tell the …

Health Information Seeking In The Digital Age: A National Survey Of Women With Disabilities, Susan Robinson-Whelen, Rosemary B Hughes, Jeanne L Alhusen, Leanne Beers, Charles G Minard, David Davidson

Faculty, Staff and Students Publications

PURPOSE: Access to high quality and accessible online health information (OHI) is critical for reducing disparities, overcoming barriers, and improving the health of women with disabilities. This study aimed to understand women with physical disabilities' use of the Internet to access OHI, most often searched health topics, perceived usefulness of OHI, and self-reported eHealth literacy and challenges in OHI seeking.

METHODS: We conducted a national online survey with 508 women with physical disabilities who used the Internet.

RESULTS: Respondents utilized a wide variety of OHI resources. They searched a broad array of health and disability-related topics, with bowel/bladder and finding …

Evaluation Of Telemental Health Services For People With Intellectual And Developmental Disabilities: Protocol For A Randomized Non-Inferiority Trial, Luther G. Kalb, Jessica M. Kramer, Tawara D. Goode, Sandra J. Black, Susan Klick, Andrea Caoili, Samantha Klipsch, Ann Klein, Micah P. Urquilla, Joan B. Beasley

Institute on Disability

Background: Roughly 40% of those with intellectual/developmental disabilities (IDD) have mental health needs, twice the national average. Unfortunately, outpatient mental health services are often inaccessible, increasing reliance on hospital-based services. While telemental health services hold potential to address this gap, little is known about the effectiveness of telemental health for the diversity of persons with IDD, especially as it relates to crisis prevention and intervention services. Accordingly, the aims of this study are to: (1) compare telemental health versus in-person crisis prevention and intervention services among people with IDD; and (2) understand if outcomes vary across subpopulations, in order to …

Differences Among Family And Professional Guardians: A Statewide Survey Of Characteristics, Training, And Practices Related To Decision-Making, Kristin Hamre, Derek Nord

Developmental Disabilities Network Journal

This cross-sectional study sought to examine the differences between family and professional guardians across personal and role characteristics, training received, and their inclusion of people they serve in decision making. A total of 237 subjects serving as guardian to adults in the state of Indiana completed an online survey. Results showed group differences across race, education, as well as diagnosis and age of those served. Overall, training was limited across both groups, and family guardians received significantly less training across several topics. Finally, family and professional guardians were found to significantly differ in their willingness to allow people they serve …

Toward An Equity-Driven Conceptual Model Of Covid-19 Vaccine Decision-Making For People With Idd, Lydia Ocasio-Stoutenburg, Reese Triana, Shelly Baer, Jairo Arana, Ana C. Sale, Douglene Jackson, Michelle Schladant, Nastasia Boulos, Grace Dima, Jeffrey Brosco

Developmental Disabilities Network Journal

COVID-19 presented a public health emergency in the U.S., resulting in severe illness, hospitalizations, high mortality rates, and long-term adverse health care conditions. Several studies examined the disparities in transmission rates, barriers to care, and negative health outcomes for persons with disabilities, particularly people with intellectual and developmental disabilities (I/DD). While data revealed similar trends among Black, Hispanic or Latino/a/x/e, Native, Indigenous, and Asian people, outcomes are compounded for people of color with I/DD. Several historical, pervasive, systemic, structural, and attitudinal barriers have constrained healthcare access and adequate treatment, instigating feelings of distrust among those in systems of care. Although …

Health And Quality Of Life Among People With Intellectual And Developmental Disabilities And Direct Support Professionals During The Early United States Covid-19 Pandemic, Erin Vinoski Thomas, Bridgette M. Schram, Sombal Bari, Rachel Odunlami, Kristina M. Ormond, Sydnie E. Smith

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) and the direct support professionals (DSPs) who support them have faced unique risks to their health and quality of life (QoL) throughout the COVID-19 pandemic. We sought to understand how COVID-19 has influenced QoL and overall well-being among these populations. We conducted a Rapid Qualitative Inquiry study with a sample of people with IDD and DSPs (n = 18) to gain deeper perspectives about QoL and well-being during the pandemic. Participants described that changes in QoL were typically negative and influenced primarily by reduced socialization and impacts on health and independence; however, …

Improving Communication Access With Deaf People Through Nursing Simulation: A Cross-Disciplinary Collaboration, Jamie L. Mccartney Ph.D., Tracy Gidden, Jennifer Biggs, Kathy Geething, Karl Kosko Ph.D.

Journal of Gender, Ethnic, and Cross-Cultural Studies

Baccalaureate nursing and sign language interpreting students participated in a pediatric discharge simulation with a deaf person playing the role of the baby’s parent. At the conclusion of the simulation, participants were emailed a consent letter and a link to a 17-item questionnaire developed by the authors. Responses were analyzed both quantitatively and qualitatively, whereby nonparametric statistics were calculated to examine Likert-scale items. A Mann-Whitney test statistic was calculated, instead of an independent samples t-test, given the smaller sample in the current study (n = 26). A question was posed to participants that evaluated their self-perception of the effectiveness of …

“She Was No Taller Than Your Thumb. So She Was Called Thumbelina”: Gender, Disability, And Visual Forms In Hans Christian Andersen’S “Thumbelina” (1835), Hannah J. Helm

Journal of Gender, Ethnic, and Cross-Cultural Studies

This article explores representations of femininity and disability in Hans Christian Andersen’s fairy tale “Thumbelina” (1835) and select examples of his paper art. In this article, I argue that, on one level, the fairy tale and Andersen’s own paper cuttings uphold feminine and ableist norms. However, on another level, these literary and visual forms simultaneously work to destabilise social prejudices and challenge bodily normativity. I explore how characters and themes associated with the fairy tale and paper art can be (re)read in strength-based ways. In the story, Thumbelina experiences the world through her smallness, and key themes including accessibility, physical …

Enigmatic, Tragic, Crip; Or, Crip Time In Sophocles’S Oedipus And Aristotle’S Poetics, Maxwell Gray

Journal of Gender, Ethnic, and Cross-Cultural Studies

Tragedy represents a classical literary genre the field of disability studies often prefers not to approach too closely, lest disability also be called a tragedy by association. At the same time, my thinking is organized around my personal experience of chronic illness, pain, and disability that appear in early adulthood, when it’s maybe least expected and most difficult to comprehend; or, in a word, tragic. I turn to the literary genre of classical Greek tragedy to think about/with more enigmatic and tragic forms of disability and crip temporality. In particular, I read Sophocles’s classic tragedy Oedipus and Aristotle’s foundational interpretation …

Judging The Body: Disability, Class And Citizen Identity—A Case Study From An Ancient Greek Lawcourt, Justin L. Biggi

Journal of Gender, Ethnic, and Cross-Cultural Studies

This paper aims to showcase how one person's disabled identity—that of the unnamed defendant of the legal speech Lysias 24, who was accused of faking his disability to obtain social security payments—interacted with wider conceptions of citizen identity and citizenship in 5^th century BCE Athens. This paper brings a much-needed intersectional approach to the speech: by viewing the speaker's disabled identity as shaped by his economical status (and vice-versa), this in turn shapes the way we can interpret his experience of citizen identity, as well as his sense of belonging to a citizen body. Recent approaches in critical theory …

The Meaning Of A Choice, Julie-Louise Zeitoun

Masters Theses

If you are disabled or disadvantaged, you will be dismissed and stifled. Few people will actively care for your struggles. As a person with autism, I was deeply fearful of the persecution I had faced throughout my life; it was a fear that followed me with terrifying determination. I desperately wanted to blend into society. So I designed myself to be devoid of any weakness, and productivity was the way I chose to conceal any difficulties I faced. It was a way to measure my success — a way to measure my normalcy.

Standard medical textiles are generic, cumbersome devices. …

Dissecting The Musical Body: Analyzing The Influence Of Body Norms On Musical Discourse, Lauren Del Rosario '23

Honor Scholar Theses

No abstract provided.

External Support: The Importance Of Community Support In Disability Healthcare, Kian Mccabe

Undergraduate Theses and Capstone Projects

Inequalities in healthcare is a common discussion topic every day in the United States and although most Americans are not able to get adequate healthcare, they need one subtopic that I believe is not discussed enough about disability healthcare. More specifically the importance of community support and resources in disability health care. My internship this semester was helping lower-income families find the resources they need for their children with autism spectrum disorder. In this position, I learned that many of the positive activities and resources that would be helpful for their children most families are unable to get because they …

Investigating The Viability Of Virtual Job Interview Training Through Pre-Ets, Elyse Hayes

Honors Theses

This study used a between-subjects repeated measures design to determine the efficacy of virtual reality job interview training (VR-JIT) as an instrument for providing workplace readiness training under pre-ETS when compared to current real-world methods. Of the total participants (N=19), 57.89% were male and 42.11% were female, and autism (36.84%) and cognitive impairment (47.37%) were the most frequently reported diagnoses. The results of a paired samples T-test were non-significant with t (8) = 0.13, p = 0.9029 with the use of mock interviews and t (9) = 0.68, p = .5156 with the use of virtual reality. The results of …