Disability Studies Commons^™

Newsletter Catholic Deaf Of Detroit, January 2019

Newsletter Catholic Deaf of Detroit

A newsletter published for Deaf Catholics in Detroit, MI

Newsletter Catholic Deaf of Detroit Finding Aid

Recruiting And Retaining People With Disabilities For Qualitative Health Research: Challenges And Solutions, Jennifer R. Banas, Susan Magasi, Kim The, David E. Victorson

Health Sciences and Physical Education Faculty Publications

There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this …

Can Accessibility Liberate The "Lost Ark" Of Scholarly Work?: University Library Institutional Repositories Are "Places Of Public Accommodation”, 52 Uic J. Marshall L. Rev. 327 (2019), Raizel Liebler, Gregory Cunningham

UIC Law Review

For any body of knowledge – an ark of power or a corpus of scholarship – to be studied and used by people, it needs to be accessible to those seeking information. Universities, through their libraries, now aim to make more of the scholarship produced available for free to all through institutional repositories. However, the goal of being truly open for an institutional repository is more than the traditional definition of open access. It also means openness in a more general sense. Creating a scholarship-based online space also needs to take into consideration potential barriers for people with disabilities. This …

“She Didn’T Understand It At All”: Harriet The Spy Through The Lens Of Autism Spectrum Disorder, Lisa Krajecki

Children's Literature (MA) Theses

This paper looks at autism spectrum disorder (ASD) traits in the main character of the book Harriet the Spy by Louise Fitzhugh, as well as traits associated with mental breakdown. A brief history of the understanding of autism in the media and in medical circles is explained, as well as some notes on the author’s life. The paper also discusses censorship in diverse literature, specifically books about people with disabilities. The paper notes some attempts at the censorship of the book Harriet the Spy from well-meaning parents, teachers, and librarians, while taking an alternative view of the protagonist. This paper …

Utilizing Music Therapy To Enhance Competency Restoration Treatment, Cory Linder

Graduate School of Professional Psychology: Doctoral Papers and Masters Projects

In Dusky v. the United States (1960), the Supreme Court ruled that the U.S. Constitution requires all defendants to be competent to proceed before the judge issues a verdict. Specifically, to stand trial, defendants must have a factual and rational understanding of court proceedings and the capacity to work with their attorneys. Those who are found incompetent to proceed frequently have severe and persistent mental illness and often exhibit cognitive deficits (Mossman et al., 2007). Competency restoration utilizes therapeutic services to treat symptoms that inhibit defendants from being opined competent to proceed. Existing research suggests music therapy can be used …

The Prediction And Relationship Between Age, Ethnicity, Gender, And Quality Of Life Using Self-Efficacy Scores Among Stroke Survivors, Sabrina Angela Thornton

Walden Dissertations and Doctoral Studies

Stroke is a serious illness that requires urgent attention. The purpose of this study was to investigate whether age, ethnicity, gender, and quality of life predict self-efficacy scores in stroke survivors. The theoretical foundation of the study was the social cognitive theory of perceived self-efficacy that was developed by Bandura. There were 4 specific research questions investigated. A correlational research design was used to sample 115 stroke survivors from several Arkansas rehabilitation facilities who completed a pilot study, demographic form, QOL rating scale, and the Daily Living Self-Efficacy Scale (DLSES). Stepwise multiple regression analysis was applied to identify the independent …

A Critical Ethnographical Exploration Of Disability Under Apartheid Conditions: The Promising Potential Of Palestinian Higher Education Institutions, Yasmin Snounu

Master's Theses and Doctoral Dissertations

Utilizing a critical ethnographical methodology, this dissertation explores the experiences and practices of professors and administrators towards accommodating disabled students mainly in Palestine, but also taking into consideration the importance of the both political and disability contexts of the United States, primarily in light of critical disability studies, while also drawing from critical discourse analysis in regard to aspects of language, power hierarchies, and identity. Elements of teacher development theories are used in relation to transformational ways of thinking and the role of educators in combating stigma and promoting/adopting inclusive pedagogical practices towards accommodating disabled students in higher education. My …

Claiming Our Space: A Quantitative And Qualitative Picture Of Disabled Librarians, Robin Brown, Scott Sheidlower

Publications and Research

Librarianship is made up of many different sorts of people. Until now, while research has been done on nondisabled librarians and who they are, little research has been undertaken on disabled librarians. This piece is based upon a research survey that draws on the experiences of librarians who are willing to self-identify as disabled librarians. The survey was further followed up by interviews. The authors want to enrich everyone’s understanding of what it means to be a librarian and, at the same time, to be disabled.

Data Note: Employment Rates For People With And Without Disabilities, John Shepard

All Institute for Community Inclusion Publications

Data show that people with disabilities are consistently less likely to be working than their non-disabled counterparts. In this Data Note, the employment rate for working-age people is compared across disability types, as well as those without disabilities.

The Numbers And The Stories Behind Them: Higher Performing State Employment Systems, John Butterworth

All Institute for Community Inclusion Publications

This document contains the slides from a presentation given at the APSE national conference in 2019. It presents statistics that illustrate the characteristics of relatively higher-performing state systems with regard to employment and community engagement outcomes for individuals with IDD.

Data Note: Exiting Vocational Rehabilitation With Employment, By Race, For Individuals With Intellectual Disability, Cady Landa, Alberto Migliore

All Institute for Community Inclusion Publications

There is a long-standing pattern of black/white racial disparity in employment in the general U.S. population. This Data Note explores whether this racial employment disparity, that characterizes the general population, is also found in the employment outcomes of people with intellectual disability (ID) who receive services from the vocational rehabilitation (VR) system.

Data Note: Social Security Administration Data Show A Record Low Level Of Pass Usage Among Ssi Recipients, Daria Domin, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

The Social Security Administration (SSA) offers a set of work incentives for Supplemental Security income (SSI) beneficiaries. Work incentive employment supports help SSI recipients go to work by minimizing the risk of losing their SSI or Medicaid benefits (Social Security Administration, 2018). One such incentive, the Plan to Achieve Self-Support (PASS), allows approved individuals to set aside earned or unearned income and resources to achieve an employment goal. The money or resources set aside are excluded from SSI income and resource tests and can be used to pay for goods or services needed to reach the goal, such as education, …

Service Provider Promising Practice - Arc Of Westchester: Annual Employer Appreciation Breakfast, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

The Arc of Westchester was established in in New York State in 1949 as a day school for children with developmental disabilities. It has since grown to over 800 hundred employees serving over 2000 individuals throughout Westchester county supporting children, teens, and adults with intellectual and developmental disabilities. The organization’s vision is a world where the population that they serve enjoy fulfilled lives and an inspired future while the mission focuses on strengthening families and encouraging personal choices, abilities and interests. The programs focus on the individual, helping them discover their interests, develop their talents and prepare for meaningful careers. …

Key Elements Of Organizational Transformation: Lessons Learned From The Provider Transformation Network, John Butterworth, Stephanie Leblois, Susan Klingal

All Institute for Community Inclusion Publications

This document contains slides from a presentation given at The Arc Summer Leadership Institute in 2019. The information covers key lessons in organizational transformation that can help disability services providers implement best practices.

Deaf Mis-Interpretation During Hurricane Irma: A Case Study And Evaluation, Sherilyn D. Burris

International Crisis and Risk Communication Conference

In 2017, Manatee County Government (Florida, USA) used an untrained sign language interpreter during a media briefing on Hurricane Irma evacuation orders. The individual signed incorrectly, resulting in confusion for the community and embarrassment for the organization. This case study presents the background of accessible information in crisis management -- why and how disaster preparedness information is interpreted for the deaf community; provides the event's consequences, as well as local and global implications; and discusses ways to incorporate deaf and hard-of-hearing stakeholders and groups into existing structures and programs.

The Experience Of Parents Of Children With Autism Participating In Aba Treatment, Monica Labrie

Walden Dissertations and Doctoral Studies

Having a child with autism results in a unique set of challenges for both parents and siblings. Applied behavior analysis (ABA) has significant empirical support demonstrating its effectiveness as a treatment for children with autism. However, effective behavioral interventions should also consider how the family is affected. The purpose of this phenomenological study was to explore the lived experiences of 8 parents of children with autism who have received ABA treatment and their perceptions of how the family system is impacted by ABA outcomes, specifically focusing on parental well-being and sibling relationship quality. A family systems theoretical framework and phenomenological …

Experiences Of Postsecondary Students With Physical Disabilities With Online Learning, Amanda Elizabeth Cole

Walden Dissertations and Doctoral Studies

Over one tenth of students in postsecondary education have a documented disability as defined by the Americans with Disability Act. However, faculty and course designers often lack understanding of these students' experiences, which leads to insufficient accommodations. The purpose of this basic qualitative study was to explore the experiences of students with physical disabilities (SWD) in online courses. The research was grounded in self-determination theory, which posits 3 basic needs for self-actualization: autonomy, competence, and relatedness. This theory in combination with universal design for learning provided a lens for exploring these experiences. Data collection included 8 interviews with postsecondary students …

Caregivers Of Parents With Alzheimer’S Disease: Quality Of Life For Caregivers: Perspectives & Family Dynamics, Matthew Cornu

Theses and Dissertations--Family Sciences

This study furthers Alzheimer’s family literature regarding the impact of caregiver attachment, readiness to provide care, and caregiver quality of life. A sample of 33 participants caring for a parent with Alzheimer’s disease in the state of Kentucky was recruited to complete a questionnaire for the study. The questionnaire consisted of an online survey about participants’ experiences and attachments growing up with their parents, their experiences becoming caregivers to their parents with Alzheimer’s disease, and participants’ current perspectives of their own quality of life. Positive perspectives in regards to quality of life among caregivers seem to be a predictor of …

Social Workers' Experiences With Deaf And Hard Of Hearing People With Mental Illness, Makoto Ikegami

Walden Dissertations and Doctoral Studies

The social work practice problem for this study was a lack of knowledge about social workers' experiences of working with deaf and hard of hearing people with mental illness. This study was needed to fill a practice gap by increasing an understanding of the experiences of social workers to inform best practices and address the needs of deaf and hard of hearing population through culturally and linguistically competent mental health services. The research questions focused on the experiences and challenges of social workers working with deaf and hard of hearing people and best practices identified by these social workers. Ecological …

Disability, Neurodiversity, And Feminism, Hannah Simpson

Journal of Feminist Scholarship

This position statement explores the overlap between feminist and disability studies as a strand of intersectional feminism, with particular attention to the graduate school and early career context.

Hiring Individuals With Ambulatory Disabilities: An Employer's Perspective, Lindsay Aslan

Walden Dissertations and Doctoral Studies

Statistics show that approximately 30.6 million individuals in the United States had an ambulatory disability (AD), the most prevalent disability in the country. In 2010, 17.5% of the disabled population was employed, and only 5% of that employed population had an AD. The purpose of this multiple case study was to understand the decision-making process of small businesses owners in New Jersey when deciding on whether to hire those with AD. Ajzen's theory of planned behavior was utilized in this study to make predictions and explain why individuals engage in a behavior. Interviews were conducted with 16 participants and 22 …

Parental Needs Regarding The Future Of Their Adult Intellectually Disabled Child, Jeannie Brown

Walden Dissertations and Doctoral Studies

The problem examined in this study was the lack of policy in New York State regarding the provision of prioritized residential services for intellectually disabled individuals who are being cared for by an aging caregiver. The purpose of this qualitative phenomenological study was to explore and document the needs experienced by aging parents regarding securing the future of their intellectually disabled adult child. The theoretical framework for this study was based on Sabatier’s advocacy coalition framework. The research questions examined the lived experiences of aging parents caring for an adult child with an intellectual disability what parents perceive their needs …

Learners With Disabilities Can Contribute To Waste Management, Arvie S. Andal, Maria Corazon C. Colendrino, Monaliza U. Guce-Vinas

Angelo King Institute for Economic and Business Studies (AKI)

Encouraging the community to shift into a more environmentally friendly practice would entail a consideration of several factors, more so if it includes the participation of individuals with disabilities. The result of the study highlights several actions needed to maximize the potential of the program: 1) the continuous training of learners with disabilities to build capacity and capability; and continuous funding for such; 2) the continuous improvement of product quality to meet specific market needs; and 3) the development of programs to increase the community’s awareness, understanding, and appreciation of the benefits of recycling.

Post-Hurricane Sandy Coping Strategies And Resilience Factors Among People With Disabilities, Miriam Mukasa

Walden Dissertations and Doctoral Studies

People with disabilities are likely to experience difficulties overcoming the impact of natural disasters. Few scholars have focused on this population's ability to recover and handle stress following a natural disaster. The purpose of this phenomenological study was to explore and describe coping strategies and resilience factors that people with physical or mental disabilities used in the aftermath of Hurricane Sandy. Resilience theory was used as the theoretical framework. Through face-to-face interviews, 10 persons with disabilities shared their experiences of coping and resilience. A lens of interpretative phenomenological analysis was used to identify emergent themes related to persons with disabilities' …

Navigating The Michelle P. Waiver: A Narrative Examination Of The Impact Of Parent Caregiver-Related Uncertainty And Decision Making For Children With Disabilities, Whittney H. Darnell

Theses and Dissertations--Communication

The Michelle P. Waiver (MPW) is the primary means of health insurance for more than 10,000 people in the state of Kentucky. The waiver is especially popular among families with young children with disabilities because it is robust in its benefit offerings and also one of the few Medicaid resources that does not include parental income as a qualifying factor in eligibility. Through the waiver, children receive a medical card as well as additional coverage for medical expenses that fall beyond the scope of traditional health insurance. For these young children to gain access to the comprehensive offerings of the …

Post-Hurricane Sandy Coping Strategies And Resilience Factors Among People With Disabilities, Miriam Mukasa

Walden Dissertations and Doctoral Studies

People with disabilities are likely to experience difficulties overcoming the impact of natural disasters. Few scholars have focused on this population's ability to recover and handle stress following a natural disaster. The purpose of this phenomenological study was to explore and describe coping strategies and resilience factors that people with physical or mental disabilities used in the aftermath of Hurricane Sandy. Resilience theory was used as the theoretical framework. Through face-to-face interviews, 10 persons with disabilities shared their experiences of coping and resilience. A lens of interpretative phenomenological analysis was used to identify emergent themes related to persons with disabilities' …

An Exploration Of Law Enforcement Officers’ Training Experiences, Training Needs, And Interactions Related To Autism Spectrum Disorder, Kirsten Scheil Railey

Theses and Dissertations--Educational, School, and Counseling Psychology

Although research confirms the effectiveness of training to improve law enforcement officers’ awareness and knowledge of people with intellectual disability, learning disabilities, and mental health disorders (Bailey, Barr, & Bunting, 2001; McAllister, Bailey, & Barr, 2002; Scantlebury et al., 2017; Wood & Watson, 2017), research related to the efficacy of autism-specific law enforcement training is limited. In order to provide up-to-date information regarding training for LEOs related to autism spectrum disorder (ASD), a systematic review of the literature was conducted for the first study. Adhering to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Protocols 2015 (PRISMA), a …

Parent Stress Adaptation Among Caregivers Of Youth With Autism Spectrum Disorder, Victoria M. Ambrus

Walden Dissertations and Doctoral Studies

This study was a nonexperimental correlational study that took a strengths-based approach and utilized family systems theories to examine parenting stress, as measured by the Parenting Stress Index-Short Form, and posttraumatic growth (PTG), as measured by the Posttraumatic Growth Inventory, and the relationship between the two constructs. The study was conducted with a national sample of 136 maternal caregivers of transition-age youth on the autism spectrum (ASD), ages 14 to 22 years, recruited through social media, flyers, and referrals. Participants were primarily biological mothers (83.9%), White (87.5%), and resided in the South (68.4%); the mean age of the adolescent with …

Factors Contributing To Burnout Levels Among Public Sector Rehabilitation Counselors, Monica Elizabeth Jackson

Walden Dissertations and Doctoral Studies

Burnout has led to turnover and poor counselor performance within public sector rehabilitation. Scholarly literature on burnout among mental health counselors and school counselors are abundant. However, few researchers have compiled studies to evaluate burnout among rehabilitation counselors. No research could be found that examined the relationships among job demand, control, support, and burnout among public sector rehabilitation counselors. The Job Demand Control- Support (JDC-S) model indicates that stress from work is developed based on work demands, perceptions of control, and the perceived support that is received. The purpose of this research study was to determine the extent of the …

The Relationship Between Social Skills And Problem Behaviors In Adolescent Males With Autism Spectrum Disorders, Amanda Armstrong Randall

Graduate Theses, Dissertations, and Problem Reports (ETD)

Adolescent males with autism spectrum disorder commonly display an increased prevalence of problem behaviors and persistent deficits in social skills when compared to their typically developing peers. The present study deployed a single subject, multiple-baseline design to investigate the use of the social skills training program Super Skills: A Social Skills Group Program for Children with Asperger Syndrome, High-Functioning Autism and Related Challengesto promote enhanced social skills and minimize problem behaviors. Two groups of adolescent males with autism (N = 6) participated in weekly social skills training groups also containing typically developing peers (N = 3) once …