Disability Studies Commons^™

Strengthening Community Health Through Dementia Listening Sessions, Raven Albertson

Utah Conference on Community Engagement

"This session explores innovative strategies for strengthening community health through dementia listening sessions and engagement, equipping community partners with the knowledge to make informed decisions regarding dementia care and support. Participants will gain insights into effective partnership-building, impactful dementia education delivery, and strategies for fostering meaningful community involvement through community listening sessions and collaboration. Through a live listening session workshop, attendees will participate in interactive discussions, inform efforts in Utah communities, and acquire practical tools to drive sustainable, community-led improvements in dementia care and support."

Spatial Training For Children With Suspected Auditory Processing Disorder: A Random Control Trial, Taylor Delao

Student Research Symposium

Auditory Processing Disorder (APD), defined here as a deficit in the way sounds are analyzed by the brain, has remained a controversial topic within audiology for decades.

Accuracy Of An Automated Approach To Auditory Brainstem Response Analysis, Katelyn J. Chapman, Jarrod J. Mau, Marlana J. Petersen, Kyler J. Vugteveen, Will J. Allen

Student Research Symposium

• Hearing loss affects 1.5 billion people worldwide [1]
• Hearing loss is primarily diagnosed through pure-tone audiometry
• Pure-tone audiometry is not sensitive to many disorders, especially neural disorders that cause hearing difficulty
• Pure-tone audiometry cannot identify site-of-lesion

Motivations For Engaging In Act Guide: An Online Digital Mental Health Intervention, Willa Freeman, Danny Cottle

Student Research Symposium

Mental Health in the United States

• 24% of Americans, 60 million, experienced a mental health concern in the past year (Reinert et al., 2024).
• In 2024, 1 in 4 adults with continuous mental distress could not see a doctor due to cost (Reinert et al., 2024).
• Online programs can help provide resources to improve quality of life that are cost-effective and easily accessible

Knowledge And Attitude About New Born Hearing Screening Among Gynaecologists: Pre And Post Awareness Session Analysis, Khadija S. Jamnagarwala Miss

Journal of Early Hearing Detection and Intervention

Background: The knowledge and attitudes of healthcare professionals, particularly gynaecologists, significantly impact the success of newborn hearing screening (NHS) programs. Aim: Aim of the study was to explore knowledge and attitudes related to NHS among gynaecologists and factors related to it. Method: It was conducted in two phases. The first phase involved the development of the awareness material and questionnaires assessing knowledge & attitude about NHS during the pre & post-awareness sessions. In the second phase, 45 gynaecologists filled out the questionnaire after attending the awareness session on NHS. Results and Conclusion: The gynaecologists displayed low to moderate awareness of …

Listener Training For Improved Intelligibility Of People With Parkinson's Disease, Stephanie Anna Borrie

Funded Research Records

No abstract provided.

Impact Of County-Level Urbanicity On Quality Of Life For People With Intellectual And Developmental Disabilities In A Rural State., Alyssa M. Smith, Allison Caudill

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) face challenges, such as decreased access to physical, environmental, and social health-related services that can negatively impact their overall quality of life (QoL). Additionally, people living in rural communities may experience geographic distancing and other factors, like decreased transportation and available housing, that contribute to increased isolation and decreased health outcomes, overall. It is important to consider the QoL of people with IDD living in these communities given the additional intersectional constraints of rurality and having an intellectual disability or other co-occurring conditions. A secondary data analysis reviewed closed and open-ended survey data …

Impact Of A Narrative Language Intervention On Language, Behavior, And Self-Concept Among Bilingual Children With Developmental Language Disorder, Nancy Tarshis Ma, Ms, Ccc-Slp, Kathleen Mcgrath Mss, Lsw, Ida Barresi Ma, Ccc-Slp, Risa Battino Ms, Ccc-Slp, Bcs-F, Sarah Henderson Msed, Ms, Ccc-Slp, Shankar Viswanathan Drph, Jee-Young Moon Phd, Karen Bonuck Phd

Developmental Disabilities Network Journal

The growing research on narrative interventions is promising but has gaps regarding cultural/linguistic diversity and outcomes beyond language. We evaluated whether a structured, oral narrative intervention affects narrative language, problem behaviors, and self-concept in a diverse group of children with developmental language disorder. A 10-session intervention was implemented within routine care. Baseline and follow-up data included: (a) Narrative recordings—coded by therapists using the CUBED Narrative Language Measure, (b) Child Behavior Checklist—a parent-reported behavioral assessment, and (c) the Piers-Harris Children’s Self-Concept Scale. Among the sample’s n = 33 children, aged 6-16, 55.6% were bilingual. Post intervention, participants’ narrative language scores improved …

An Examination Of Transition Professional Profiles Based On Value-Based Principles: A Latent Profile Analysis, Anthony Plotner, Angie Starrett, Charles Walters, Rebecca Smith Hill

Developmental Disabilities Network Journal

This paper presents findings from a study utilizing Latent Profile Analysis to examine the value-based principles of transition professionals from two distinct disciplines: special education and Centers for Independent Living (CIL). Specifically, this paper aimed to identify profiles emerging from the value orientations of special education and CIL professionals, and to explore how individual factors such as professional role, disability status, education, and years’ experience differ across these profiles. Findings revealed a taxonomy comprising four distinct profiles within the transition professionals sampled. These profiles delineate varying dominant values that encapsulate the convergence of special education and independent living philosophies. Implications …

Inclusion In Disability Evaluation And Surveillance Projects: Reflections And Recommendations For Inclusive Project Teams, Tamara M. Douglas, Nathan J. Rabang, Marlene A. Attla, Tasha Boyer, Vanessa Hiratsuka

Developmental Disabilities Network Journal

Disability rights advocates emphasize “Nothing about us without us,” yet a program evaluation or surveillance team’s composition rarely reflects inclusion of the individuals from the disability populations they focus on. Individuals who have lived experience with disabilities should be present during all steps of program evaluation and surveillance projects in meaningful ways to progress the impact of disabilities work. In this paper, we describe a process used by staff at Alaska’s University Centers for Excellence in Developmental Disabilities (UCEDD) to hire, train, and work with individuals with intellectual, development disabilities (IDD) as team members. The case example for the inclusion …

Applying A Framework Of Epistemic Injustice To Understand The Impact Of Covid-19 On People With Intellectual And Developmental Disabilities, Sarah Lineberry, Matthew Bogenschutz

Developmental Disabilities Network Journal

Epistemic injustice, the theory of unfairness related to knowledge, is a useful framework for understanding the ways in which historic and ongoing marginalization and stereotypes have shaped the ways that people with intellectual and developmental disabilities (IDD) have been impacted by the COVID-19 pandemic. We conducted a scoping review of the literature and divided findings into physical health (cases, hospitalization, and death) and psychosocial outcomes (access to services, mental health symptoms, community participation, etc.). Impacts were then analyzed using the key principles of epistemic injustice. Findings suggest that people with intellectual and developmental disabilities (IDD) experienced high rates of negative …

Technology Skill Building For Adults With Intellectual And/Or Developmental Disabilities, Heather J. Williamson, Hailee E. Riddle, Cynthia Sloan, Cameron Dogan, Byran Dai, Jon Meyers

Developmental Disabilities Network Journal

Compared to their peers without disabilities, adults with intellectual and/or developmental disabilities are less likely to be employed. Adults with intellectual and/or developmental disabilities also face a digital divide, with less access to and use of technology in their daily lives. This lack of technology use also limits the types of employment available to adults with intellectual and/or developmental disabilities. The purpose of this paper is to describe the implementation of an individualized technology skill-building program for adults with intellectual and/or developmental disabilities in Arizona. The community-engaged project was overseen by a Community Advisory Board who provided insights on program …

Conducting A Pilot Evaluation Of A Civic-Engagement Program For Youth With Disabilities, Megan Best, Amanda Johnston, Sarah Demissie, Julianna Kim, Ruchi Mendiratta Khanna, Kelly Fulton, Abby Hardy, Catherine Cheung, Timothy Kunzier, Oscar Hughes, Meghan M. Burke, Zachary Rossetti

Developmental Disabilities Network Journal

The Individuals with Disabilities Education Act (IDEA) is the federal law that ensures all students with disabilities have access to a free and appropriate public education. In the last IDEA reauthorization in 2004, only 1% of public comments were from individuals with disabilities—the population that IDEA serves. To ensure that the feedback of individuals with disabilities is reflected in the next IDEA reauthorization, it is important to support them to learn about IDEA and advocate. To this end, for this pilot study, 16 transition-aged youth with disabilities participated in a 6-hour civic-engagement program across four states to learn about IDEA …

Acknowledgments, Matthew T. Wappett Ph.D.

Developmental Disabilities Network Journal

No abstract provided.

"We Are In A Complete Crisis": Navigating The Lack Of Resources To Mental Health Care For Individuals With Idd, Abby Julian, Lindy Strand

Student Research Symposium

IDD and Mental Health

●What is IDD?

●Approximately 7.3 million Americans with IDD (University of Minnesota)

●59% of people with IDD have 1+ mental health conditions (Reichard et al., 2019)

●Many Utah families experience significant difficulty

Trip Production Models For Persons With Disabilities, Pouyan Saeidian

All Graduate Theses and Dissertations, Fall 2023 to Present

Nearly 13% of the US population consists of people with disabilities, yet finding an equitable and comprehensive approach to meet their travel needs remains a challenge. Our research delves into the mobility patterns of people with disabilities to understand how their daily travel—both the frequency of trips and the distance covered—compares to those without disabilities. We also explore the factors influencing their travel behaviors and how these insights can guide policymakers in improving accessibility and mobility for this community. Utilizing data from the 2022 US National Household Travel Survey, we applied a blend of statistical analysis and machine learning methods. …

Using An Interactive Computer Training To Train Teachers In Function-Based Assessment And Intervention, Kristin R. Griffith

All Graduate Theses and Dissertations, Fall 2023 to Present

Since many educators receive little-to-no formal training in evidence-based classroom management strategies, it may be helpful to train general education teachers in strategies that direct them to the underlying causes of problem behavior. One such strategy is functional behavior assessment, which is the process of gathering information to determine the function of problem behavior, or why behavior is occurring. One potentially effective way of training teachers in this process may be to use an interactive computer training, which has previously been used to train a variety of complex behavior analytic skills with other populations. In the current study, we trained …

Professional Development Strategies For Treating People With Idd And Mental Health Needs, Jennifer L. Mclaren, Elizabeth Grosso, Karen L. Weigle

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) experience significant health and mental health inequities and difficulties accessing care. There are few initiatives that train mental health professionals to care and advocate for the health and mental health care needs of people with intellectual and developmental disabilities.

We developed a Mental Health and Intellectual and Developmental Disabilities Professional Learning Community (PLC) with Clinical Education Teams (CET) training components through The National Center for START (Systemic-Therapeutic-Assessment-Resources-Treatment) Services^® to further educate providers in the United States. The National Center for START Services^® utilizes multiple training and collaboration forums to build the …

Peer-Mediated Family Support Project: Evaluation Of Changes In Family Quality Of Life, Preethy S. Samuel, Elizabeth Janks, Nia S. Anderson, Michael Bray, Christina Topolewski, Sharon Milberger

Developmental Disabilities Network Journal

The Family Quality of Life (FQOL) approach represents a paradigm shift from fixing to supporting people with intellectual/developmental disabilities (I/DD) by changing the focus from the individual to the family and highlighting strengths rather than deficiencies. Aging family caregivers of individuals with I/DD often encounter obstacles, including accessibility, acceptability, and affordability of services. Little is known about best practices to support aging families of adults with I/DD. Understanding how a state-wide peer-mediated family support project implemented in this study helped improve the FQOL of aging caregivers is important in broadening participation of other caregivers in these types of programs. To …

Interdisciplinary Treatment Approach To Youth With Intellectual Or Developmental Disabilities And Co-Occurring Mental Health Conditions, Ashley Greenwald, Erika Ryst, Diane D. Thorkildson, Lauren Brown

Developmental Disabilities Network Journal

Many individuals with Intellectual and/or Developmental Disabilities (IDD) have co-occurring mental health needs, yet service delivery options often do not allow for the integrated delivery of mental health treatment and social behavioral support services. Siloed treatment approaches often result in lack of collaboration between providers, increasing the difficulty in accessing comprehensive and coordinated treatments and reducing treatment potential and effective outcomes. Additionally, many service providers in behavioral support services are not trained to address significant mental health needs; similarly, providers of mental health services lack experience in modifying practices for differing cognitive needs. The lack of cross-training and cross-collaboration makes …

Project Attain: Advancing Trauma-Informed Care For Youth With Intellectual And Developmental Disabilities And/Or Gender Diverse Youth, Kady F. Sternberg, Charlotte E. Bausha, Charlotte Jones, Erin Knight, Crystal N. Steltenpohl, Rebecca R. Parton, Jennifer L. Mclaren, Erin R. Barnett

Developmental Disabilities Network Journal

Children with Intellectual and Developmental Disabilities (IDD) and/or gender diversity are at higher risk of experiencing trauma. Provider knowledge is lacking; trauma, disability, and LGBTQ+ resources are often siloed; and few providers screen for trauma in this population. This paper describes the design, delivery, and initial evaluation of Project ATTAIN (Access to Trauma-informed Treatment and Assessment for Neurodivergent and/or Gender-expansive Youth).

ATTAIN is an ongoing 5-year state-wide initiative aiming to assess readiness to engage in new roles and practices over time; provide state-wide training and consultation in trauma, disability, and LGBTQ+-informed practices; install screening and assessment of trauma exposure and …

The Link Center: A Federally Funded Technical Assistance And Resource Center Aimed At Improving Mental Health Treatment And Access For People With I/Dd, Brain Injury, And Other Cognitive And Communication Differences., Stacy L. Nonnemacher, Jeanne Farr, Wendy Morris

Developmental Disabilities Network Journal

Although we do not have robust prevalence studies in the U.S., a recent meta-analysis estimated that 33.6% of individuals with intellectual and developmental disabilities (I/DD) have a mental health (MH) condition. We know that this prevalence may be an underrepresentation because of factors like diagnostic overshadowing. We also know that people with I/DD experience inequitable access to quality MH and preventive care. This highlights the chronic lack of and access to holistic, integrated care for individuals with I/DD, especially those who also have MH conditions. Consequently, an increasing number of individuals with I/DD experience MH crises and suffer adverse consequences. …

Building Neuro-Inclusive Community, Strengthening Mental Health: The Autism After 21 Utah Project, Sumiko T. Martinez, Anna Smyth, Ann C. Carrick

Developmental Disabilities Network Journal

Over two decades of research shows strong positive relationships are a consistently powerful indicator of wellbeing and resilience. However, the U.S. Surgeon General notes that loneliness and isolation is an epidemic in the U.S., and that it is exacerbated for individuals with physical and mental disabilities as well as those with isolating economic or environmental situations. A recent review shows that many autistic adults in particular face challenges in finding the connections they want and need. They also often have compounding mental health conditions, such as depression and mental illness, lower incomes, isolating home environments due to a lack of …

Exploring Parent/Caregiver Perspectives Of Self-Determination And Its Impact On Mental Health In Adolescents With And Without Disabilities, Jessica Schuttler, Sydney Walls, Tyler Hicks, Karrie Shogren, Hannah Adams, Richard A Chapman

Developmental Disabilities Network Journal

Introduction. Parents and caregivers play key roles in supporting the development of self-determination and mental health needs in adolescents with and without disabilities. This study explored parent/caregiver perceptions of the relationships among mental health and self-determination constructs for youth with disabilities, across gender and disability status. Method. Parents/caregivers of adolescents with and without disabilities completed rating scales regarding adolescents’ self-determination status (Self Determination Inventory) and mental health symptoms (Behavior Assessment System for Children, 3^rd Edition). Bayesian analyses examined the relationships among self-determination and mental health status. Results. Results are mixed, indicating moderate to robust relationships for self-determination as a …

The Person Experiences Interview Survey: A Measure Addressing Ableism In Mental Healthcare For Patients With Intellectual And Developmental Disabilities, Micah Peace Urquilla

Developmental Disabilities Network Journal

Many People with Intellectual and Developmental Disabilities (IDD) also have mental health needs requiring the support of mental health service providers, yet they may experience barriers to full engagement in their care due to ableism. Ableism is a kind of prejudice that impacts People with IDD in many parts of life, even in mental health care. This article proposes how an adapted Patient Reported Experience Measure (PREM) can be a response to ableism, with an impact at three distinct yet interrelated levels that reflect the parties involved in the mental healthcare of People with IDD-MH: provider, caregiver, and patient.

At …

Advancing Strength-Based Inclusive Mental Health Research In Intellectual And Developmental Disabilities, Luther Kalb, Joan B. Beasley

Developmental Disabilities Network Journal

No abstract provided.

Acknowledgments, Matt Wappett

Developmental Disabilities Network Journal

No abstract provided.

Psychosocial Development Measures Modification For Adolescents With Intellectual And Developmental Disabilities, Myles Maxey, Troy E. Beckert, Diana Meter, Trenton Landon

Human Development and Family Studies Faculty Publications

Background: Although diagnosis and identification of IDD is improving, adolescents with IDD receive limited attention in research, particularly concerning their psychosocial development. Measures developed and normed with typically developing populations may not be appropriate for IDD populations and may result in biased assessment. Aim: This study aimed to develop and validate modified psychosocial development assessments for adolescents with intellectual and developmental disabilities (IDD), addressing the absence of such assessments.

Method: It involved two phases: modifying existing instruments and validating the revised versions. Four stakeholder groups participated: adolescents with IDD, parents, and scholars in adolescent developmental and disabilities. Validation included two …

Using Linked Digital Activity Schedules To Promote Cooperative Thematic Play, Vincent E. Campbell

All Graduate Theses and Dissertations, Spring 1920 to Summer 2023

Previous research has shown that children with autism spectrum disorder (ASD) may struggle to engage in social play, which may impact their willingness to engage in contextually appropriate cooperative play (Koegel et al., 2014). Researchers suggest that activity schedules targeting cooperative play may increase appropriate play for children with ASD (Brodhead et al.,2014; Pellegrino, 2018). However, previous studies did not include opportunities for interactive choice responding or the implementation of generic picture cues during script training. We investigated the impact of a linked digital activity schedule on promoting cooperative thematic play in children with ASD. Six children with ASD engaged …

A Scoping Review Of Health Research With Racially/Ethnically Minoritized Adults With Intellectual And Developmental Disabilities, Heather J. Williamson, Tara Chico-Jarillo, Samantha Sasse, Leticia Rennie, Jennifer R. Etcitty, Carol L. Howe, Michele Sky Lee, Julie S. Armin

Developmental Disabilities Network Journal

Living with intersectional identities, having a disability, and being a member of a racial or ethnic minoritized group in the U.S., contributes to marginalization that may result in health disparities and health inequities. The purpose of this scoping review is to describe health research regarding adult racial/ethnic minoritized individuals in the U.S with intellectual and developmental disabilities (I/DD). Eight electronic databases were searched to identify literature on the topic published since 2000. Of the 5,229 records, 35 articles were included in the review. Eligible studies included research conducted in the U.S., published in English, and research focused on adults with …