Disability Studies Commons^™

Virtual Advocacy: Lived Experience Takes Center Stage During And After Pandemic, Gyasi Burks-Abbott, Amanda V. Gannaway, Amy Szarkowski, Jason M. Fogler, David T. Helm

Developmental Disabilities Network Journal

COVID-19 forced a significant change for participants of the Disability Policy Seminar (DPS) typically held annually in Washington, D.C. The DPS is a policy event that both informs its participants about current policy and supports attendees visiting Capitol Hill to meet with legislators. In 2020, the DPS event, which took place during the early phase of the pandemic, was shifted from “on the Hill” to “across the screen”. Through the various lenses of an autistic self-advocate, a mother of a child with a developmental disability, and faculty of a LEND (Leadership Education in Neurodevelopmental and related Disabilities) program, this paper …

Adapting Participatory Action Research To Include Individuals With Intellectual And Developmental Disabilities During The Covid-19 Global Pandemic, Kaitlyn P. Ahlers, Kara B. Ayers, Suzannah Iadarola, Rosemary B. Hughes, Hyon Soo Lee, Heather J. Williamson

Developmental Disabilities Network Journal

Participatory action research (PAR), or the inclusion of those affected by the issues being studied, is a growing area of emphasis in disability research. The principles of PAR align with those of the disability rights movement, such that full inclusion and “nothing about us without us” extends as much to research as it does to any other area of life. Moreover, PAR allows for meaningful input from people with intellectual and developmental disabilities (I/DD), which enhances the likelihood that research results are relevant and important to the disability community. As research activity resumes and is adapted to the context of …

Perspectives Of Immigrant Families And Persons With Disabilities During Covid-19, Diana Rodriguez Lmsw, Kathleen Mcgrath Msw

Developmental Disabilities Network Journal

Background: The health, economic, social, political, and psychological consequences of COVID-19 have been deeply felt on a global level. Persons with disabilities, including those from Hispanic/Latino immigrant communities, have faced unique challenges during both the peak and fallout of the pandemic. Throughout both the United States and New York City, COVID-19 has disproportionately affected communities of color. However, the impact of COVID-19 on persons with disabilities among immigrant and communities of color is still unfolding.

Aims: In this paper, we aim to better understand the compounded stress of the COVID-19 pandemic experienced by immigrant families who have a child with …

Changing Needs Of Individuals With Disabilities In The Time Of Covid-19 As Observed By A Family Navigation Program In Miami, Fl, Gabriella Llano, Allison Kumnick, Jean-Paul Bryant Ms, Nancy Torres Ms, Jeffrey Brosco Md, Phd, Maite Schenker Phd

Developmental Disabilities Network Journal

The Family Navigator Program (FNP) is designed to help families navigate the complex system of services available to people with intellectual and developmental disabilities (I/DD), chronic health conditions, mental health issues, and other special health care needs. Based at the Mailman Center for Child Development at the University of Miami, the FNP is free and available to all families in South Florida. Most families enrolled in the FNP are receiving medical services from a university clinic; however, the program also accepts referrals from outside agencies and self-referrals. The aim of this study was to investigate the needs of families enrolled …

Coming Together During Covid-19: A Mixed Methods Exploratory Study On Collective Efficacy In A State Developmental Disabilities Network, Arden D. Day, Michele Sky Lee, Ronda Jenson, Erica Mcfadden, Maureen Russell, Kelly Roberts, John Mcdermott, Nicholas Blum

Developmental Disabilities Network Journal

Background: Collective efficacy (CE) is a group’s shared belief that through their united efforts they can overcome challenges to achieve common goals (Bandura, 1993; 1997). CE has been shown to be related to professional growth, stress reduction, and overall collaborative impact in studies of groups responding to ongoing challenges as well as unforeseen circumstances (i.e. teachers, first-responders, and community responses to natural disasters) (Benight, 2004; Donohoo, 2016; Prati et al., 2011). COVID-19 has forced organizations serving individuals with disabilities to come together to adapt and change the ways in which they serve the disability community.

Objective: This study examines …

Mental Health Supportive Services During Covid-19: Proposing An Online, Self-Guided Acceptance And Commitment Therapy Program For Parents In The Disability Community, Ty B. Aller, Elizabeth B. Fauth, Sarah Hodgskiss, Jeff Sheen, Michael E. Levin

Developmental Disabilities Network Journal

Parents of Children with Intellectual and Developmental Disabilities (I/DD) often experience stress, and the COVID-19 pandemic has likely increased their stress. In the current paper, we describe four things. First, we describe how mental telehealth treatments can effectively decrease parent stress, including programs that target behavior training and those that provide therapy. Teleheath programs are delivered by phone, computer, or fully online. Second, we describe challenges of these programs and explain how online, self-guided programs may help address these challenges. Third, we explain our online, self-guided program based in Acceptance and Commitment Therapy (ACT). ACT is a specific type of …

Autistic College Students And Covid-19: Anxiety, Support Needs And Responses By Specialized Programs, Jessica Monahan, Laurie Ackles, Amy D. Edwards, Brian Freedman, Pamela Withers Lubbers, Sara Sanders Gardner, Cherie A. Fishbaugh, Jane Thierfeld Brown

Developmental Disabilities Network Journal

Providing resources and support to college students during the COVID-19 global pandemic has produced unique challenges for all students, particularly those with autism. In March 2020, halfway through the spring term, the COVID-19 global pandemic forced most institutions of higher education across the country to move all instruction and support to an online, remote format, including those for students with autism. Colleges and autism support programs are now grappling with how to effectively support students amid a global pandemic. Yet there is little information available about how students’ needs have changed with this new environment. In this exploratory study, 76 …

Assessing And Mitigating Risk For Applied Behavior Analysis Providers During A Pandemic, Joshua B. Plavnick Phd, Krista Clancy, Sharon Milberger

Developmental Disabilities Network Journal

The COVID-19 pandemic has significantly impacted the extent to which human service providers can safely deliver close-contact therapies in which social distancing cannot occur. Applied behavior analysis (ABA) therapy for children with autism spectrum disorder (ASD) is one such example, with the pandemic creating several barriers to safely delivering this essential service. The present paper describes the development and administration of a risk assessment and mitigation toolkit that was designed for ABA providers to make decisions about how to identify and mitigate risk in delivering therapeutic services to children with ASD. The toolkit includes considerations for clients, other household members, …

Using Quality Improvement (Qi)-Focused Evaluation To Redesign Direct Home- And Community-Based Services During The Covid-19 Public Health Emergency:, Marcia Moriarta, Anthony Cahill, Heidi Fredine

Developmental Disabilities Network Journal

Like many UCEDDs in the Developmental Disabilities (DD) network, the Center for Development and Disability at the University of New Mexico offers direct service programs in home and community settings. Before the start of the COVID-19 pandemic, services were delivered in-person to about 1,000 families across the state including clients with intellectual or developmental disabilities and/or from at-risk communities. In March 2020, due to the spread of COVID-19, a public health emergency was declared in New Mexico and home and community services were stopped throughout the state. This meant direct service programs at the Center had to turn to telehealth …

Mental Health Awareness And Advocacy Assessment Tool (Mhaa-At), Ty B. Aller, Elizabeth B. Fauth, Joshua R. Novak, Sarah Schwartz

Human Development and Family Studies Faculty Publications

The Mental Health Awareness and Advocacy Assessment Tool l (MHAA-AT) consists of three types of items: 1) declarative knowledge items (30 items); 2) self-efficacy items (20 items); and 3) behavior items (15 items). These items are then divided into the three micro-processes that define mental health literacy: a) identifying mental health issues; b) locating evidence-based resources; and c) responding to mental health issues (see Figure 1 below).

What Do Nci Data Tell Us About The Characteristics And Outcomes Of Older Adults With Idd?, Valerie J. Bradley, Dorothy Hiersteiner, Henan Li, Alexandra Bonardi, Laura Vegas

Developmental Disabilities Network Journal

The number of older adults with intellectual and developmental disabilities (IDD) is growing and will continue to expand as the baby boom generation moves into older adulthood. This descriptive analysis provides information on the characteristics and outcomes of a subsample of individuals with IDD aged 55 and over in the 2018-2019 National Core Indicators In Person Survey. Selected findings are compared to characteristics of the general population as measured by the National Health Interview Survey (NHIS). Findings suggest the older adults with IDD are more isolated, have smaller social networks than their younger peers, and have less access to transportation …

Cognitive Disability And Postsecondary Education: A National Study On Earnings, John M. Andresen, Derek Nord

Developmental Disabilities Network Journal

Postsecondary education provides an opportunity to increase the economic potential of individuals. Earnings for individuals with cognitive disabilities are a major concern, as occupational outcomes are often dire. The prevalence of individuals with cognitive disabilities in postsecondary education settings is increasing, but little is known about how postsecondary attendance may relate to post-graduation earnings for this population. This article presents findings from the 2017 U.S. Census Bureau’s American Community Survey on the prevalence of individuals with cognitive disabilities who have attended various levels of postsecondary education and a series of linear regressions identifies the relationship between varying degrees and earnings …

The Origins Of University Centers On Developmental Disabilities: Early Expectations And Legislation, Bryce Fifield, Marvin G. Fifield

Developmental Disabilities Network Journal

This article describes the evolution and early expectations of university-based programs to serve people with disabilities. I describe the how the committee that President John F. Kennedy created to make recommendations about how to better serve people with mental retardation suggested university-based programs that would improve the science and provide training to professionals who work with this community. I describe the early legislation and program decisions that were made by stakeholders that created the first generation of University Affiliated Facilities and Programs to serve people with disabilities.

Employment First In A Time Of Pandemic, Julie J. Christensen Phd, Msw

Developmental Disabilities Network Journal

No abstract provided.

Opening Editorial: The Origin And Aims Of The Developmental Disabilities Network Journal, Matthew Wappett

Developmental Disabilities Network Journal

In this article, I share my experience of going to school and noticing different groups of students. I noticed that students with disabilities were treated differently, but I didn't understand why. Throughout history, people with disabilities have often been treated differently. For hundreds of years, people with disabilities did not live with their families or in their communities. People with disabilities were often forced to live in institutions or workhouses. Institutions were not good places; they were dangerous, unclean, and isolated. People with disabilities were not allowed to live the life they wanted. In the 1960s, many advocates wanted to …

Cover And Acknowledgements, Matthew Wappett

Developmental Disabilities Network Journal

No abstract provided.

Using Video Modeling To Teach Staff How To Implement Preference Assessments, Megan Weaver

All Graduate Plan B and other Reports, Spring 1920 to Spring 2023

Identification of reinforcers through preference assessments for individuals with disabilities is an important task because it increases the probability of skill development, including academic tasks, self-help skills, social skills, and behavior modification. Teachers of students with disabilities often experience problems with training paraprofessionals to implement preference assessments using written instructions alone. In this study, researchers will investigate whether video modeling will be more effective than written instruction to staff to implement preference assessments. Participants will include three to five paraprofessionals in a classroom setting with no previous behavior analysis training on preference assessments and three to five students in a …

Evaluation Of A Computer-Based Observer-Effect Training On Mothers' Vocal Imitation Of Their Infant, Kerry A. Shea

All Graduate Theses and Dissertations, Spring 1920 to Summer 2023

Infants begin to learn important skills, such as contingency learning, social referencing, and joint attention through everyday interactions with their environment. When infants learn that their behavior produces a change in the environment (e.g., attention from others), infants engage in behavior that produces that effect (e.g., increases in smiling sustained engagement. When mothers and other caregivers respond immediately to infant behavior, they help their infant learn that the infant’s own behavior is effective, producing a change in the environment. The current investigation evaluated the effect of a computer-based training that aimed at teaching mothers to play a vocal-imitation contingency-learning game. …

Modern Uses Of Assistance Animals In The Usa: Definitions, Access, And The Laws That Protect Them, Tina Reisner

All Graduate Plan B and other Reports, Spring 1920 to Spring 2023

One of the most arguable issues in our society, and within the field of modern disability policy and law is the epidemic surrounding the use of service animals. With several cases for and against the use of service animals in public entities, there is constant discussion of what is a legitimate service animal and who is able to utilize them. In this thesis, I establish the definition of disability and discuss the laws and policies that legitimized the use of service animals within the public sphere. Specifically, this work will draw upon genres such as policies and laws of disability, …

Children With Autism In The Somali Population: Exploring The Inter-Relatedness Of The Somali Immigrant And Refugee Experience Navigating Speech-Language Pathology Resources, Rebecca Houston

Undergraduate Research and Creative Opportunities (URCO) Grant Program

Approximately 15,711 Somali immigrants resettled in Minnesota in 2016 (Rush, 2016). According to the Rochester Post Bulletin, the Med City ranks fourth place in number of Somali immigrants, 333, behind Minneapolis at 3,450, St. Cloud at 1,393, and St. Paul at 960 (Post Bulletin, 2017). In a study conducted by the Minnesota Department of Health in 2008, the most common services needed by Somali families was first housing, followed by speech therapy second (Minnesota Department of Health, 2014). In a study conducted by the Minnesota Department of Health in 2008, the most common family or individual challenges associated with late …

Spanish Validation Of The Piccolo (Parenting Interactions With Children: Checklist Of Observations Linked To Outcomes), Rosa Vilaseca, Magda Rivero, Rosa M. Bersabé, Esperanza Navarro-Pardo, Maria Jose Cantero, Fina Ferrer, Clara Valls Vidal, Mark S. Innocenti, Lori A. Roggman

Institute for Disability Research, Policy & Practice Publications

Background/Objective: The aim of this study was to explore the psychometric properties of the Spanish version of the Parenting Interactions with Children: Checklist of Observations Linked to Outcomes (PICCOLO; Roggman et al., 2013a). This observational measure is composed of 29 items that assess the quality of four domains of parenting interactions that promote child development: affection, responsiveness, encouragement, and teaching.

Methods: The sample included 203 mother-child dyads who had been video-recorded playing together. Fifty-six percent of the children were male, and 44% were female, aged from 10 to 47 months. Video-recorded observations were rated using PICCOLO items.

Results: Confirmatory …

Assessing Speech & Swallowing Therapy Needs Of Childhood Cancer Survivors, Kierstin Dewey

Research on Capitol Hill

Approximately 420,000 childhood cancer survivors are currently living in the United States. The rise in survival rates makes the need for professionals to help improve quality of life for pediatric cancer survivors a high priority.

Speech and swallowing can be largely impacted In children receiving radiation therapy for cancers of the head, neck, or brain (hereafter referred to as HNBC). Cancer tumors themselves, as well as cancer treatments, cause acute and long-term side effects that cause pain, restricted range of motion, and decrease in overall function of the structures necessary to communicate, eat, and drink.

To help design interventions to …

Application Of Coaching And Behavioral Skills Training During A Preschool Practicum With A College Student With Autism Spectrum Disorder, Summer Gunn, Tyra P. Sellers, Benjamin Lignugaris/Kraft

Special Education and Rehabilitation Counseling Faculty Publications

The current study looked at the effects of coaching using behavioral skills training (BST) outlined by Parsons, Rollyson, and Reid (2012). The participant was a young adult with autism spectrum disorder (ASD) enrolled in a preschool practicum course as part of the early childhood special education (ECSE) licensure program at the university that she attended. Impairment in social-pragmatics and executive functioning are associated with ASD, and are critical for engaging in an evaluative and analytic process necessary for success as an ECSE teacher. Coaching, using the BST model paired with observation and immediate feedback in the practicum environment, was used …

Selective Mutism: The Little Known Disorder That Causes Big Problems, April Meyer Vogt

Undergraduate Honors Capstone Projects

For my senior thesis/project, I planned on delving into the subject of Selective Mutism (SM) and how it interferes in a child's education, and what treatments and evaluations are available to help treat and diagnose a child with SM. SM is a type of anxiety disorder that can occur when a child develops an acute fear of speaking. Treatment of a child with SM usually focuses on techniques to lower anxiety and increase self-esteem and confidence in communication and social settings. I focused my presentation towards treatment models and options, including, but not limited too: behavioral therapy, cognitive behavioral therapy, …

Case Study Of Phonological Awareness And Narrative Intervention, Elizabeth Ann Degraffenried

Undergraduate Honors Capstone Projects

My Senior Thesis was a year long case study. I provided Phonological Awareness Training and Narrative Intervention to a seven year old girl, S.C., diagnosed with Muscular Dystrophy of a nondenerative type. S.C. has sever speech and physical impairments secondary to the Muscular Dystrophy. She also has visual perceptual deficits secondary to Duanes Syndrome (a disorder of visual convergence). Because of her disabilities, S.C. is unable to use speech or sign language as her primary means of communication and an Augmentative and Alternative communication device is required for communication purposes. S.C. currently uses a Dyna Vox 4000 to communicate. This …

Effects Of Otitis Media On Language Development In Native Populations: A Review Of The Literature, Monica Malmgren

Undergraduate Honors Capstone Projects

From the time a fetus reaches about 20 weeks gestational age, its auditory system is functioning. Before we are ever born, we are exposed to sounds within our environment. With birth, we begin to interact with, experiment with, and learn to interpret the sounds around us. Before learning to speak, we are bombarded by the sounds of our language. An infant's head is known to perk up at the sound of a voice, a sudden noise, music... all the sounds of the environment, which is evidence that children are aware of the sounds around them before they are ever able …