Disability Studies Commons^™

Cultural Humility And Cultural Brokering In Professional Training: Insights From People Of Color (Poc) And Persons With Disabilities (Pwd), Victoria Filingeri, Heather M. Mendez, Alisa Ssu Yu Lin, Gyasi Burks-Abbott, Amy Szarkowski, Jason Fogler

Developmental Disabilities Network Journal

This conceptual paper reflects the collaborative work of LEND trainees and faculty exploring the need to shift from “cultural competencies” to “cultural humility” in training programs. The authors draw on their lived experiences as members of racially/ethnically marginalized groups, members of the disability community, and advocates for equity in accessibility. Collectively, the authors highlight some of the challenges and opportunities in supporting diverse trainees in professional- and discipline-specific training programs. and in the provision of services the trainees provide to care-recipients across a variety of fields. This paper includes a series of case vignettes in order to: examine individual authors’ …

An Interactive Training Model To Promote Cultural Humility For Early Childhood Professionals, Anjali G. Ferguson, Chimdindu Ohayagha, Jackie Robinson Brock

Developmental Disabilities Network Journal

The disability population in the United States has grown, with an estimated 2.6 million households having at least one child with a disability in 2019 (Young, 2019). Racially minoritized children disproportionately represent disability categories with Black and Indigenous children being overdiagnosed with emotional disturbance disabilities (Oswald & Coutinho, 2001). Further, minoritized children often experience greater rates of complex trauma (Horowitz, Weine, & Jekel, 1995) and this exposure significantly impacts minoritized children’s mental health (Flannery, Wester, & Singer, 2004). Included in these social determinants of health are the impacts of racism and racial trauma. Racism has been associated with mental health …

Disability Decolonized: Indigenous Peoples Enacting Self-Determination, Nathan J. Rabang, Amy E. West, Eric Kurtz, Jim Warne, Vanessa Y. Hiratsuka

Developmental Disabilities Network Journal

Populations researched often have little if any input in the means of data collection, analysis, or authorship of the findings published. They are excluded from participating in the scientific methods even though they are the subject of the content that is being produced. This is true for Indigenous populations and the disability community around the globe. Researchers usually use colonial methodology that does not encompass the values of these communities or have their well-being in mind. This paper examines the history of colonization and how it has infiltrated science and inhibits self-determination of Indigenous peoples. Indigenous communities need to have …

Exploring Barriers To Diversity, Equity, And Inclusion In Communication Sciences And Disorders Students, Elizabeth Cleveland, Maysoon Biller, Natalie Benafield, Abigail Moss, Mackenzie Jordan, Mary Yang

Developmental Disabilities Network Journal

Introduction: This study investigated university students’ views of barriers and aids toward success in a communication sciences and disorders (CSD) program. The goal of this 11-question survey was to determine if there was a difference in types of barriers or aids between Black, Indigenous, and People of Color (BIPOC) students and White students.

Method: The Communication Sciences and Disorders - Diversity, Equity, and Inclusion (DEI) Survey participants were 62 speech-language pathology and audiology undergraduate and graduate students from a variety of backgrounds. Analyses identified students’ views toward barriers and aids to success in the university program as well as their …

Access To Services For New Americans With Intellectual And Developmental Disabilities: Building Capacity Through The Ramirez June Initiative, Cynthia S.B. Stewart, Carmel Lulihi, Laura González-Murphy, Jacqueline Hayes

Developmental Disabilities Network Journal

New Americans with intellectual and developmental disabilities (IDD) are a significantly underserved community in New York State (NY) facing complex barriers accessing IDD services and fully integrating into their communities. New American communities lack connections with IDD service systems and struggle to find culturally and linguistically accessible information about disability services and resources. New Americans may be fearful of engaging with service providers, especially if they lack lawful immigration status and are undocumented. In acknowledgement of these barriers, NY implemented an initiative to create a navigator model that is the first of its kind in the nation. The Initiative is …

The Promising Practice Of Cultural Brokering Support With Culturally Diverse Families Of Children With Developmental Disabilities: Perspectives From Families, Yali Pang, Dana V. Yarbrough

Developmental Disabilities Network Journal

Background and Purpose: The Parent to Parent model of support has been found to be effective with supporting families of children with DD in navigating complex systems, gaining emotional support, building positive resilience, sharing ideas and learning problem solving skills. Parent to Parent ties can be particularly strong when cultural capital is involved. This study presents a cultural brokering initiative embedded in the evidence-informed Parent to Parent support model that could be a promising practice to support culturally diverse families of children with DD.

Methods: This study used a mixed methods approach to examine the practice and outcomes of a …

Differential Access Of Young Children Of Immigrants To Special Education In Massachusetts, Cady Landa

Developmental Disabilities Network Journal

Accessing services for children with special needs is complex and challenging for even U.S.-born parents. Is it even more difficult for immigrant parents, and what are the consequences for their children? This article reports on a mixed methods approach to examining the access of immigrants’ children to special education and inclusive placement. A multivariate analysis of Massachusetts education data finds that children of immigrants are significantly less likely than children of U.S.-born parents to participate in special education. It also finds that among children who do participate in special education, children of immigrants are more likely to be in substantially …

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

Acknowledgments And A Note From The Editor, Matt Wappett

Developmental Disabilities Network Journal

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Flipping The Script As A Black Mother Living In My Community: A Self-Advocate's Perspective From Baltimore, Jessica Salmond

Developmental Disabilities Network Journal

No abstract provided.

Opportunities For Transformation: Equity, Diversity, And Inclusion Across The Developmental Disabilities Network, Lydia Ocasio-Stoutenburg, Jacy Farkas

Developmental Disabilities Network Journal

No abstract provided.

Loving My Skin: A Self-Advocate’S Perspective From Dayton, Ohio, Shari Cooper

Developmental Disabilities Network Journal

No abstract provided.

Family Perspectives On Developmental Monitoring: A Qualitative Study, Sarah Behrens, Evan Dean, Marisol Torres

Developmental Disabilities Network Journal

Developmental monitoring, an ongoing process to identify children at risk for developmental delays, is an essential component to the identification of a developmental disability in young children. In collaboration with families, medical professionals are expected to monitor the development of a child; however, current research focuses on screening with less attention on developmental monitoring and the role of the family. Here, we show the experiences of families with medical professionals specific to developmental monitoring and how families obtain and develop knowledge on child development. We analyze qualitative data from a sample of family caregivers using semi-structured interviews. With a thematic …

Experiential Learning Through Participatory Action Research In An Interdisciplinary Leadership Training Program, Jessica L. Franks, Stephanie D. Baumann, Marvin So, Angela M. Miles, Jorge M. Verlenden, Teal Benevides, Mark Crenshaw, Stephen Truscott, Daniel Crimmins

Developmental Disabilities Network Journal

Background: Experience in multidisciplinary collaboration among healthcare providers, leaders in public health, and educators is essential to effectively address the diverse needs of children with intellectual and developmental disabilities (I/DD) and their families.

Purpose: We describe three participatory action research (PAR) projects from an interdisciplinary training program, which used experiential learning to enhance leadership competencies and promote inclusive services. Trainees report their leadership growth as providers and advocates for children with I/DD using experiential learning through PAR.

Approach: Trainees discuss their engagement with organizations serving children with I/DD and ways that experiential learning supported leadership skill development, …

Worth In The Workforce: How To Reform The Fair Labor Standards Act 14(C) Provisions For Persons With Disabilities, Todd Robatin

Helm's School of Government Conference - 2021-2024

No abstract provided.

Kebijakan Pemenuhan Kebutuhan Dasar Lansia Dan Optimum Aging: Kajian Literatur, Dini Widinarsih, Departemen Ilmu Kesejahteraan Sosial, Universitas Indonesia

Jurnal Ilmu Kesejahteraan Sosial

Elderly (elderly) is someone who has reached the age of 60 years and over. The United Nations Department of Economic and Social Affairs (UNDESA, 2015) projects that the number of people aged 60 years and over will reach 2 billion by 2050, and will continue to increase to more than three times by 2100. The increasing number of elderly population makes the elderly one of the It is important to pay attention to groups so that they do not become an economic and social burden. Therefore, it is necessary to utilize the potential of the elderly and seek forms of …

Financial Technology In Conditional Cash Transfer Dengan Menggunakan Systematic Mapping Study, Genta Rizkiansyah

Jurnal Ilmu Kesejahteraan Sosial

This article is an initial study that seeks to explore the results of previous studies in the field of Financial Technology in the Conditional Cash Transfer Program using the Systematic Mapping Study (SMS). The purpose of this study is to determine the topic of Financial Technology in the Conditional Cash Transfer Program that has been studied. This study uses a qualitative method by using a literature study. The search was carried out in the Scopus database of 583 articles and after mapping, we found 25 articles with the publication year 2008-2020 that were published in scientific journals and entered the …

Evaluasi Program Asistensi Sosial Penyandang Disabilitas Berat, Djulaiha Sukmana, Mahasiswa Program Megister Ilmu Kesejahteraan Sosial, Fisip Universitas Padjajaran

Jurnal Ilmu Kesejahteraan Sosial

This study aims to determine the extent of the implementation of the Social Assistance Program for Persons with Disabilities (ASPD) and the impact on the fulfillment of basic needs. Individuals with severe disabilities cannot be rehabilitated and are unable to carry out daily activities such as eating, drinking, and bathing, therefore need the help of others. They are unable and do not have a steady source of income either from themselves or from others to meet basic needs. Families are their life foundation because they are unable to access key services such as health care programs and food distribution, due …

Menakar Arah Kebijakan Kesejahteraan Sosial Melalui Program Asistensi Rehabilitasi Sosial (Atensi) Bidang Lanjut Usia, Puspitasari Nurul Darojati Prayoga, Universitas Binawan Jakarta

Jurnal Ilmu Kesejahteraan Sosial

The elderly is the final stage in the human life cycle which is marked by a decrease in functional capability and balance of physiological functions. Problems experienced by the elderly in general are decreased cognitive function, decreased functional ability, namely self-care and instrumental dependence, disability, violence, depression, dementia, self-concept disorders, loneliness, poverty, and neglect. In addition, other problems experienced by the elderly are acts of violence, exploitation, and legal problems. The range of 2020-2021 is the starting point for the development of social welfare policies, especially social rehabilitation programs for the elderly, which is a national priority with a target …

Older Supplemental Security Income (Ssi) Recipients Work Less Frequently Than Their Younger Counterparts, But Use Work Incentive 1619(B) At Higher Rates, Daria Domin

All Institute for Community Inclusion Publications

Data Note 77 examines Social Security Administration data that shows that younger SSI recipients were three times more likely to be working than older SSI recipients. However, younger recipients participated in work incentives at a lower rate compared to older SSI recipients.

Facultas Marginem: Assessing Disability Data And Public Aau Universities’ Affirmative Action Plans For Systemic Barriers Facing Faculty With Disabilities, Joseph Carlton Barry

Theses and Dissertations--Education Sciences

This dissertation contributes to education equity scholarship produced by academics seeking to develop understandings of disability, Persons with Disabilities (PWD), and how both are situated amongst faculty in institutions of higher education. As such, this dissertation centers on a study of public US universities belonging to the Association of American Universities (AAU). This study looks for institutional level associations between respective rates by which college and university faculty with disabilities (FWD) are employed, certain aspects of disability policy drawn from each institution’s 2020 Affirmative Action Plans (AAP), and various other instances of empirical disability data (EDD).

While this study contributes …

Testing A Wellness Indicators Measure For People With Intellectual And Developmental Disabilities, Matthew Bogenschutz, Michael Broda, Sarah Lineberry, Parthenia Dinora, Seb Prohn

Developmental Disabilities Network Journal

Background and Purpose: People with intellectual and developmental disabilities (IDD) often have health and wellness issues that are not as good as people without disabilities. States are required to monitor health and wellness for people with IDD who use many disability services. However, there are few ways to monitor wellness between states or at different points in time. In this study, we share a new model that states may use to monitor wellness of people with IDD.

Methods: We used data from a survey called the National Core Indicators (NCI) to develop this model. First, we developed the model using …

College Students’ Knowledge Of And Openness To Students With Autism Spectrum Disorder, Louis W. Turchetta, Valerie Ryan

Developmental Disabilities Network Journal

College students with autism spectrum disorder (ASD) face challenges due to limited understanding of this condition. This study investigates college students' awareness of and openness to peers with ASD using an educational intervention. Data were analyzed via a pre–post survey design with two groups.

Factorial analysis of variance showed no significant differences between groups. However, a Wilcoxon signed-rank test revealed significant differences in the treatment group’s ranks on the openness scale and knowledge scale between pre- and post-intervention surveys. Findings yielded small (openness) and large effect sizes (knowledge) as expected. Brief educational interventions in required courses can thus potentially enhance …

Community Conversations: Finding Solutions To Increase Employment For Individuals With Intellectual And Developmental Disabilities, James Sinclair, Kyle Reardon, Katherine W. Bromley, Christen Knowles, Dana Cohen Lissman, Megan Kunze

Developmental Disabilities Network Journal

This study describes the implementation and findings of a pilot community conversations event in the state of Oregon to identify innovative solutions to under- and unemployment experienced by individuals with intellectual and developmental disabilities (IDD). The event was facilitated in partnership with the University of Oregon UCEDD, local Arc chapter, and other relevant community stakeholders. A total of 36 diverse individuals (e.g., school personnel, business owners, individuals with IDD, and caregivers of individuals with IDD) participated in a two-hour community conversations event about how to improve employment opportunities for those experiencing IDD. Participants engaged in discussions about solutions to employment …

Daily Life Experiences Of Families Of People With Disabilities During Covid-19 Pandemic, Evan E. Dean, Karrie A. Shogren, Courtney Sanchez, Sean Swindler

Developmental Disabilities Network Journal

Background. For people with IDD and their families, COVID-19 has introduced additional challenges including significant disruptions to daily life and increased risk in accessing services and supports. Understanding how families are adapting and navigating through the crisis is critical both to inform ongoing supports as the pandemic continues and beyond as there will likely be ongoing changes in service and support delivery both directly and indirectly related to COVID-19. The purpose of this study was to survey families in one Midwest state in the U.S. to document experiences during COVID-19 with a focus on understanding how families are navigating current …

Advance Care Planning Within Individualized Care Plans: A Component Of Emergency Preparedness, Heather L. Church, Christina Marsack-Topolewski, Jacqueline M. Mcginley, Victoria Knoke

Developmental Disabilities Network Journal

Federally-legislated Medicaid requirements for recipients with intellectual and/or developmental disabilities (IDD) to have a person-centered plan (PCP) do not specifically require that advanced care plans (ACP) be a component of the plan. However, coronavirus disease 2019 (COVID-19) has provided a salient reminder of the importance of incorporating ACP within the PCP for people who have IDD. As demonstrated by situations arising from COVID-19, emergencies and crises can dramatically alter access to care for people with IDD. This paper synthesizes results from an environmental scan related to ACP for adults with IDD. Findings suggest that the use of ACP, particularly when …

Editorial: Increasing Accessibility In Academic Publishing And Upcoming Initiatives, Matt Wappett

Developmental Disabilities Network Journal

This editorial provides an overview of the current issue, and then several initiatives that DDNJ is working on to increase the accessibility of academic publishing. This editorial introduces our new podcast and our upcoming presentation at the Fall 2021 AUCD Conference.

The Origins Of University Centers On Developmental Disabilities: Second Generation Expectations And Growth, Bryce Fifield, Marvin G. Fifield

Developmental Disabilities Network Journal

Part two of a two part publications tracing the evolution of University Centers on Disabilities. Originally University Affiliated Facilities evolved into University Affiliated Programs on disabilities. Early expectations outlined by President Kennedy's Committee on Mental Retardation grew as funding for disability services and programs became available. Key legislation, program developments and organizational decisions are described for the time frame of 1970 through 2000.

Praktik Baik Pemberdayaan Difabel Oleh Kelompok Difabel Desa Makmur Jati Mandiri, Damiana Damiana Puspita, Eka Zuni Lusi Astuti

Jurnal Ilmu Kesejahteraan Sosial

The participation of people with disabilities is a crucial issue in Indonesia that has emerged along with the development of the concept of social inclusion that encourages the involvement of people with disabilities in social life. Based on the 2015 SUPAS, the most people with disabilities in Indonesia are people who have a little difficulty seeing, which is 5.51%. Meanwhile, the least number of people with disabilities in Indonesia are residents who cannot hear at all, which is 0.09% (Central Bureau of Statistics, 2016). The problems faced by people with disabilities in Indonesia are varied, ranging from limited accessibility in …

Peran Kampung Kb Sendangsari Untuk Mencegah Stunting, Rahmisutar Rahmisutar, Eka Zuni Lusi Astuti

Jurnal Ilmu Kesejahteraan Sosial

The 2020-2024 RPJMN places stunting as a priority issue in health development. The 2019 Study on the Nutritional Status of Toddlers in Indonesia (SSGBI) which was integrated with the March 2019 Susenas showed that the prevalence of stunting in Indonesia in 2019 was still high, at 26.67%. One of the efforts taken by the government is to focus the Quality Family Village Program (KB) on the issue of stunting prevention. KB Villages can mobilize participation and synergy of various institutions in the community to play a role in preventing stunting. This paper discusses the role of the Sendangsari KB Village …