Disability Studies Commons^™

Peer-Mediated Family Support Project: Evaluation Of Changes In Family Quality Of Life, Preethy S. Samuel, Elizabeth Janks, Nia S. Anderson, Michael Bray, Christina Topolewski, Sharon Milberger

Developmental Disabilities Network Journal

The Family Quality of Life (FQOL) approach represents a paradigm shift from fixing to supporting people with intellectual/developmental disabilities (I/DD) by changing the focus from the individual to the family and highlighting strengths rather than deficiencies. Aging family caregivers of individuals with I/DD often encounter obstacles, including accessibility, acceptability, and affordability of services. Little is known about best practices to support aging families of adults with I/DD. Understanding how a state-wide peer-mediated family support project implemented in this study helped improve the FQOL of aging caregivers is important in broadening participation of other caregivers in these types of programs. To …

Interdisciplinary Treatment Approach To Youth With Intellectual Or Developmental Disabilities And Co-Occurring Mental Health Conditions, Ashley Greenwald, Erika Ryst, Diane D. Thorkildson, Lauren Brown

Developmental Disabilities Network Journal

Many individuals with Intellectual and/or Developmental Disabilities (IDD) have co-occurring mental health needs, yet service delivery options often do not allow for the integrated delivery of mental health treatment and social behavioral support services. Siloed treatment approaches often result in lack of collaboration between providers, increasing the difficulty in accessing comprehensive and coordinated treatments and reducing treatment potential and effective outcomes. Additionally, many service providers in behavioral support services are not trained to address significant mental health needs; similarly, providers of mental health services lack experience in modifying practices for differing cognitive needs. The lack of cross-training and cross-collaboration makes …

The Link Center: A Federally Funded Technical Assistance And Resource Center Aimed At Improving Mental Health Treatment And Access For People With I/Dd, Brain Injury, And Other Cognitive And Communication Differences., Stacy L. Nonnemacher, Jeanne Farr, Wendy Morris

Developmental Disabilities Network Journal

Although we do not have robust prevalence studies in the U.S., a recent meta-analysis estimated that 33.6% of individuals with intellectual and developmental disabilities (I/DD) have a mental health (MH) condition. We know that this prevalence may be an underrepresentation because of factors like diagnostic overshadowing. We also know that people with I/DD experience inequitable access to quality MH and preventive care. This highlights the chronic lack of and access to holistic, integrated care for individuals with I/DD, especially those who also have MH conditions. Consequently, an increasing number of individuals with I/DD experience MH crises and suffer adverse consequences. …

Building Neuro-Inclusive Community, Strengthening Mental Health: The Autism After 21 Utah Project, Sumiko T. Martinez, Anna Smyth, Ann C. Carrick

Developmental Disabilities Network Journal

Over two decades of research shows strong positive relationships are a consistently powerful indicator of wellbeing and resilience. However, the U.S. Surgeon General notes that loneliness and isolation is an epidemic in the U.S., and that it is exacerbated for individuals with physical and mental disabilities as well as those with isolating economic or environmental situations. A recent review shows that many autistic adults in particular face challenges in finding the connections they want and need. They also often have compounding mental health conditions, such as depression and mental illness, lower incomes, isolating home environments due to a lack of …

Broken Promises: Prolonged Diminished Quality-Of-Life Among Liberian Ebola Survivors Half A Decade After The 2014-16 West African Outbreak, Jessi Hanson-Defusco, Decontee Davis, Meghana Bommareddy, Zainab Olaniyan

Journal of Social, Behavioral, and Health Sciences

The 2014–2016 Ebola outbreak left thousands of Liberian survivors with severely diminished quality of life. Applying a social determinants framework, this mixed method study investigates to what extent Ebola virus disease (EVD) survivors suffer long-haul psychosocial stress, diminished quality-of-life factors, and the impact of EVD-related service provisions on their ongoing healing. We present the results of a quantitative analysis survey of data collected from 19 Liberian EVD survivors in 2022 using snowball sampling. Additionally, a qualitative analysis of survivor statements helps triangulate key statistical findings and inform causal mechanisms. Survivors report experiencing 5.25 of a total of 7 ongoing stressors …

Kajian Literatur Distribusi Kompensasi Dampak Tempat Pengelolahan Sampah Terpadu (Tpst) Bantargebang: Analisis Keadilan Distributif Dan Keadilan Sosial, Wahyu Pratama Tamba

Jurnal Ilmu Kesejahteraan Sosial

The waste problem in Jakarta is a complex issue related to the large volume of waste, dependence on Bantargebang TPST, and the various environmental impacts caused. Waste from Jakarta brought to Bantargebang TPST reaches 6,500-7,000 tons daily. This TPST hurts the environment and the health of the surrounding community, as well as the risk of ARI, air pollution, groundwater pollution, and environmental aesthetics. As compensation for these negative impacts, the DKI Jakarta Provincial Government allocates compensation funds for affected communities. This is regulated in Article 10 letter (e) of DKI Jakarta Regional Regulation number 4 of 2019 which states that …

Telaah Konsep Asset Bassed Comunity Development Bagi Pembangunan Pariwisata Berbasis Masyarakat, Silva Amanda, Rudi Saprudin Darwis

Jurnal Ilmu Kesejahteraan Sosial

The tourism sector is one of the sectors that contributes the largest foreign exchange in Indonesia. To develop this, the Ministry of Tourism and Creative Economy continues to encourage the community-based tourism industry, with one of them developing a tourist village program. One way to realize the tourist village program in Indonesia is to use the Asset Based Community Development approach by emphasizing the use of potential assets owned by an area. The purpose of this research is to identify the potential or assets that exist in a village/region that can be developed into a tourist village by emphasizing community …

Dukungan Sosial Dari Orang Tua Asuh Kepada Anak Berhadapan Dengan Hukum Dalam Proses Rehabilitasi Sosial, Muhamad Rizky Hidayat, Annisah Annisah, Dwi Amalia Chandra Sekar

Jurnal Ilmu Kesejahteraan Sosial

The social rehabilitation process in which children face legal conflict is not easy, especially when they are far from their families. This article aims to examine the forms and benefits of social support from foster parents to Children in Conflict with the Law (ABH) who are undergoing the process of social rehabilitation. Descriptive qualitative research was conducted at the Social Rehabilitation Center for Children who Need Special Protection (BRSAMPK). This research was conducted in March-July 2021. Data collection was carried out through in-depth interviews with 13 informants, consisting of children in conflict with the law, heads of social services and …

Advancing Strength-Based Inclusive Mental Health Research In Intellectual And Developmental Disabilities, Luther Kalb, Joan B. Beasley

Developmental Disabilities Network Journal

No abstract provided.

Acknowledgments, Matt Wappett

Developmental Disabilities Network Journal

No abstract provided.

Mata Pencaharian Berkelanjutan Kondisi Masyarakat Adat Lekuk 50 Tumbi Dan Peran Lembaga Adat, Muhamamd Hasan Izzurrahman, Muhammad Azami Nasri

Jurnal Ilmu Kesejahteraan Sosial

Sustainable livelihoods are key for communities to sustain their lives. However, limited access to and utilisation of natural resources, particularly customary forests, has led to a decline in the livelihoods of the Lekuk 50 Tumbi indigenous community. Difficulty in clearing land is a major obstacle for them in finding alternative income. This research aims to evaluate the quality of life of the Lekuk 50 Tumbi indigenous community with a focus on indigenous institutions' initiatives based on sustainable livelihoods, considering the five aspects of capital. Through in-depth interviews and qualitative analysis, natural capital, physical capital, human capital, financial capital and social …

Pelaksanaan Tanggung Jawab Sosial Perusahaan Melalui Program Pemulihan Mata Pencaharian Oleh Lembaga X, Muhammad Hanif Ridho, Mochammad Rizqy Maulana, Muhamad Azami Nasri

Jurnal Ilmu Kesejahteraan Sosial

This study examines the implementation of corporate social responsibility through the Livelihood Restoration Program (LRP) by Institution X. The study employs a qualitative approach with descriptive research methodology. Data collection techniques include in-depth interviews and literature review. The study is motivated by land acquisition conducted by PT Y, which affected the livelihoods of the local community. Consequently, PT Y initiated livelihood restoration for the affected community through the LRP managed by Institution X. The findings indicate that Institution X has two primary roles: providing consultancy services and facilitating the implementation of the LRP. First, as a consultancy agency, Institution X …

Program Penanganan Fakir Miskin Di Desa Mulyasari Kota Banjar Provinsi Jawa Barat, Aep Rusmana, Eri Susanto, Muhammad Rai Jemadila, Nabila Aulia Putri

Jurnal Ilmu Kesejahteraan Sosial

Poverty is a condition where a person cannot fulfill their basic needs to achieve a more dignified life. This research aims to explain the program for handling the poor in Mulyasari Village which is directed at three things, namely: 1) managing social problems, 2) mechanisms for meeting needs, and 3) providing opportunities for advancement for the poor. The method used in this research is a descriptive qualitative method with a phenomenological tradition. Determining the research sample used purposive sampling technique. There were 6 research informants consisting of Mulyasari Village officials, poor families who received social welfare services, and Community Social …

Keterlibatan Serikat Pekerja Dalam Perubahan Kebijakan Pengupahan Melalui Advokasii Sosial, Zeni Tri Lestari, Arif Wibowo

Jurnal Ilmu Kesejahteraan Sosial

This research is about the involvement of trade unions in changing wage policies through social advocacy from the social welfare perspective. The urgency of conducting this research is to reveal how KASBI's involvement as a worker's union encourages changes in wage policies to ensure better labor welfare through advocacy against the Job Creation Law and advocacy against Minister of Manpower Regulation Number 2 of 2022. This research uses a descriptive qualitative method. Data were collected from February to June 2023 through online and offline interviews involving three informants selected by the purposive sampling technique. The research results reveal that KASBI …

Pengembangan Sistem Informasi Desa Dalam Upaya Penanggulangan Kemiskinan Di Desa Rarang Selatan, Meita Annisa, Bambang Shergi Laksmono

Jurnal Ilmu Kesejahteraan Sosial

Indonesia continues to face challenges in poverty alleviation, with extreme poverty still prevalent in the country. Despite having a social protection system aimed at reducing poverty and cushioning the poor and vulnerable from crises, its implementation often encounters difficulties, particularly in obtaining valid and verified data sources. This study explores how the development of the Village Information System (SID) can contribute to poverty alleviation in Rarang Selatan Village, West Nusa Tenggara Province (NTB). When SID was introduced in 2016, Rarang Selatan was a newly established village classified as underdeveloped. By 2022, the village had progressed to the category of an …

A Scoping Review Of Health Research With Racially/Ethnically Minoritized Adults With Intellectual And Developmental Disabilities, Heather J. Williamson, Tara Chico-Jarillo, Samantha Sasse, Leticia Rennie, Jennifer R. Etcitty, Carol L. Howe, Michele Sky Lee, Julie S. Armin

Developmental Disabilities Network Journal

Living with intersectional identities, having a disability, and being a member of a racial or ethnic minoritized group in the U.S., contributes to marginalization that may result in health disparities and health inequities. The purpose of this scoping review is to describe health research regarding adult racial/ethnic minoritized individuals in the U.S with intellectual and developmental disabilities (I/DD). Eight electronic databases were searched to identify literature on the topic published since 2000. Of the 5,229 records, 35 articles were included in the review. Eligible studies included research conducted in the U.S., published in English, and research focused on adults with …

Differences Among Family And Professional Guardians: A Statewide Survey Of Characteristics, Training, And Practices Related To Decision-Making, Kristin Hamre, Derek Nord

Developmental Disabilities Network Journal

This cross-sectional study sought to examine the differences between family and professional guardians across personal and role characteristics, training received, and their inclusion of people they serve in decision making. A total of 237 subjects serving as guardian to adults in the state of Indiana completed an online survey. Results showed group differences across race, education, as well as diagnosis and age of those served. Overall, training was limited across both groups, and family guardians received significantly less training across several topics. Finally, family and professional guardians were found to significantly differ in their willingness to allow people they serve …

Factors Impacting Access To Community Services By People With Intellectual Disabilities, Caitlin Crabb, Randall Owen, Tamar Heller

Developmental Disabilities Network Journal

Background: People with intellectual disabilities increasingly live in smaller community settings rather than institutional settings. Home- and community-based services (HCBS) are a type of long-term care in which services and supports are provided in people’s homes and communities. HCBS are essential for people with disabilities to remain in the community.

Method: The 2015-2016 National Core Indicators survey data, along with other datasets, were used to determine how factors impacted service utilization and additional services needed for adults with intellectual and development disabilities (I/DD) in the US. Three groups of factors were used: individual, interpersonal, and public policy factors.

Results: Variables …

Parents’ Perceptions Of The Philly Goat Project’S All Abilities Ramble: A Qualitative Study Of Animal-Assisted Intervention For Intellectual And Developmental Disorders, Patricia Flaherty-Fischette, Jenée Lee, Yvonne D'Uva-Howard, Elizabeth P. Cramer, Karen Krivit, Sarah Meehan

Developmental Disabilities Network Journal

Individuals with intellectual and developmental disabilities (IDD) are a growing population. Considering the wide diversity in IDD and the financial burden of traditional treatment modalities, Animal-Assisted Interventions (AAI) has emerged as an innovative and non-traditional treatment for individuals with a range of disabilities, including individuals with IDD. To the authors’ knowledge, the present study was one of the first to explore a goat-assisted therapy experience for children with IDD. This study explored the experiences of 23 children with the All Abilities RAMble – a goat-assisted therapeutic activity offered by the Philly Goat Project (PGP). Key themes in our study included …

Reimagining Disability: A Call To Action, Paritosh Joshi, Julia Pappageorge

Developmental Disabilities Network Journal

This article focuses on how the medical profession, organizations, and universities should incorporate the social model of disability into their regulations and policies to advance justice for individuals with disabilities. Traditionally, disability has been viewed through the medical model, which postulates that one’s individual body or mind is medically impaired and diminishes the person’s quality of life. The model overemphasizes individual difference or disability diagnosis as something that should be treated at an individual level through medical intervention, and ignores social factors that impact the development of physical and mental conditions. Moreover, this pervasive attitude towards disability permeates institutions and …

Reaching Consensus On The Future Direction Of A Resource Center Within A Ucedd: A Quality Improvement Delphi Project, Emily J. Hickey Phd, Amy D. Whitehead Mpa, Rachel Weingarten Bs, Leann Smith Dawalt Phd

Developmental Disabilities Network Journal

Individuals with intellectual and developmental disabilities and their families need access to timely, quality information and assistance about relevant services and supports. Despite statewide systems of information and assistance for this population, there is a need for “in-the-moment” assistance for individuals and family members who participate in on-site research, training and or service delivery at the Waisman Center. The aim of this quality improvement project was to clarify the role of an internal Resource Center so as to align with the staff resources available and not duplicate statewide systems of support.

The Waisman Center at the University of Wisconsin-Madison the …

Caregiver Health: Having A Child With Asd And The Impact Of Child Health Insurance Status, Kristin Hamre, Derek Nord, John Andresen

Developmental Disabilities Network Journal

This study aims to understand the health outcomes of parents with children with autism spectrum disorder (ASD) and the interactive effect of child health insurance status. The study utilized 2014-2018 pooled National Health Interview Survey data to construct weighted national estimates and construct main and interaction effect logistic regression models. Findings show parents of children with ASD experienced significantly poorer health compared to parents of children without autism. Insurance status was found to significantly interact with child ASD status. Compared to parents of children without ASD that used private insurance, parents with a child with ASD who used private insurance, …

Contributions Of Community Organizations To Personal Outcomes For People With Intellectual And Developmental Disabilities: A Study Of Special Olympics Program Participation, Seb M. Prohn, Parthenia Dinora, Kayla Diggs Brody

Developmental Disabilities Network Journal

Community organizations can enhance the intellectual and developmental disability (I/DD) service system’s ability to improve the health, wellness, and participation of people with I/DD. This study added an item about Special Olympics (SO) participation to the 2019-2020 National Core Indicators In-Person Survey to predict active SO participation and to determine whether personal outcomes differed for SO participants. Results of a multinomial logistic regression showed that people who were younger or who did not require mobility aids were more likely to participate in SO. Compared with people who never or formerly participated in SO, current SO athletes had better personal outcomes. …

Acknowledgments, Matt Wappett

Developmental Disabilities Network Journal

No abstract provided.

Implementasi Kebijakan Bantuan Pangan Non Tunai Dalam Rangka Pengatasan Kemiskinan Di Era Covid - 19, Haura Ariesta, Fentiny Nugroho

Jurnal Ilmu Kesejahteraan Sosial

This study focuses on the implementation of the Non-Cash Food Assistance (BPNT) policy in poverty alleviation efforts in Kembangan District, West Jakarta, during the COVID-19 pandemic. While the BPNT program managed by the Ministry of Social Affairs of the Republic of Indonesia adheres to the distribution procedures, several challenges have emerged, including delays in disbursing aid funds, invalid beneficiary data, issues with E-waroeng (food stalls), account registration, delayed distribution, and occasional inadequacy of food supplies. However, supportive factors such as effective coordination, improved data management, education, active participation from local authorities, and the commitment of E-waroeng owners have contributed to …

Desa Wisata Atau Wisata Desa:Menelaah Fase Kesepian Masyarakat Pasca Pandemi Covid -19, Maureen Wanda Sabrina, Kania Saraswati Harisoesyanti

Jurnal Ilmu Kesejahteraan Sosial

The Tourism Village Policy launched by the government has developed into an ambitious initiative that can boost the community's economy. However, behind this dream, there is a complex discussion about how ready the village community is to undertake this transformation. This article discusses the stages of the community undergoing the tourism village program against the background of Taraju Village having limited access, the existence of newly formed supporting community self-help groups, and even the community's initial rejection of the development of a tourism village. Meanwhile, this tourist village has achieved achievements on a provincial and national scale. The research used …

Peran Program Pengembangan Petani Sebagai Implementasi Csr Pt. Smgp Terhadap Resistensi Masyarakat, Ahmad Taufik, Indra Lestari

Jurnal Ilmu Kesejahteraan Sosial

The presence of mining projects or power plants that utilize or exploit natural resources has the potential for environmental, social, and economic problems for the community. There are many cases of rejection from communities around the project area, which can even lead to conflict and anarchic actions that cause losses for several parties. Meanwhile, there are demands for energy sustainability amidst the current crisis in the availability of fossil energy. Therefore, the government provides support through several policies, one of which is encouraging the implementation of Corporate Social Responsibility so that core project activities can take place with attention to …

Implementasi Tahapan Pengembangan Masyarakat Dalam Program Perhutanan Sosial, Ahmad Nur Faizal, Moch. Ilham Noer Sunan

Jurnal Ilmu Kesejahteraan Sosial

The community's dependence on the forest makes the community's position vulnerable when access to the forest is restricted. The restrictions on community access to forests impact on emerging social problems such as poverty, conflict, and illegal logging. Responding to this problem, the government rolled out a social forestry program to improve people's lives. This research uses a qualitative approach with data collection techniques through observation, semi-structured interviews, and documentation to study in depth how the community development stages are implemented in the social forestry program in Burno Village. The results showed that there were community development efforts from CDK Lumajang …

Model Perencanaan Strategis Dalam Service Organization : Sebuah Kajian Literatur, Rakhmiana, Johanna Debora Imelda

Jurnal Ilmu Kesejahteraan Sosial

In Indonesia, several types of HSOs include government organizations, private organizations, and non-profit organizations. Strategic planning is crucial for HSOs as it helps them to map their direction and goals, manage their resources, identify opportunities and challenges, coordinate their activities, and measure and evaluate their performance. To assist in strategic planning, various mapping models can be used. One of the models that can be used is Scenario- Based Road Mapping (SBRM). This research is a literature review that discusses different strategic planning models for HSOs, which can help organizations formulate more effective and adaptive strategies. These models can help HSOs …

Advancing Diversity, Equity, And Inclusion In Developmental Disabilities: The Essential Role Of Leadership For Cultural And Linguistic Competence, Tawara D. Goode, Oluwatosin Ajisope, Sharonlyn Harrison, Betelhem Eshetu Yimer, Deborah Perry, Wendy Jones

Developmental Disabilities Network Journal

ABSTRACT

There is a clear and compelling need to approach equity, diversity, and inclusion not as problems to be solved,but rather as opportunities to be realized. The Developmental Disabilities Bill of Rights and Assistance Act of 2000,states the need for cultural competence, specifically to ensure that supports and services “are provided in a manner that assure maximum participation and benefit for persons with IDD.” Cultural and linguistic competence (CLC) are evidence-based or proven practices that reduce disparities, advance diversity, and promote equity. Achieving CLC requires strong and informed leadership to spark the necessary changes within systems, organizations, and practice. …