Social and Behavioral Sciences Commons^™

Conceptual Frameworks And Degrees Of Patient Engagement In The Planning And Designing Of Health Services: A Scoping Review Of Qualitative Studies, Umair Majid, Anna Gagliardi

Patient Experience Journal

Increasingly, patients are being recognized as essential partners in the solutions to healthcare system problems. Patient engagement has been referred to as the “holy grail” and next “blockbuster drug” of health care because it may be revolutionary for transforming the design, delivery, and responsiveness of health services. Patients engage in a variety of healthcare activities, and there are multiple frameworks that depict the degrees of patient engagement in these activities. The literature also uses a variety of terms and concepts to depict the degrees of patient engagement. Moreover, meaningful patient engagement is a concept widely utilized in the literature without …

Patient-Initiated Second Opinions During Acute Hospital Care, Roni Gagin, Neta Hagani, Esti Zigelboim, Shiri Shinan-Altman

Patient Experience Journal

Second opinions are used in medicine in order to make better-informed decisions. Only a few studies have examined patient-initiated second opinions, and even fewer have examined it in the context of acute hospitalization. It is not clear whether patients and families are aware of this right and how often they exercise it during acute hospitalization. The objective of this paper is to identify factors associated with the awareness and utilization of patient-initiated second opinions. A survey was conducted among 92 neurosurgical patients who completed a questionnaire that included information regarding: awareness of second opinion consultations, reasons for not seeking a …

Using Patient Experience In Optimizing The Total Knee Arthroplasty Patient Journey, Nienke Wolterbeek, Dieuwertje J. Hiemstra, Fiona A. Van Der Hoeven, Kiem G. Auw Yang

Patient Experience Journal

Information was used to improve the patient journey and to achieve patient-centered care. Patients (>18 years, purposive sampling) were interviewed once at one point of their total knee arthrosis journey within the hospital setting. Patients were accompanied and observed during their hospital visit by one of the 19 healthcare professionals which were trained as interviewers. A qualitative research approach with in-depth and semi-structured interviews using a standardized interview guide were used to gather an in-depth understanding of the perceptions of patients. Interviews were written out with the emphasis on positive and negative feedback, quotes and observations that were made. …

Service User Interview Panels For Recruitment To Uk Child And Adolescent Mental Health Services: A Questionnaire Study Exploring The Experiences Of Young People, Staff And Candidates, Sophie M. Allan Ms, Emma Travers-Hill Dr

Patient Experience Journal

Service user involvement is increasingly important in health and social care policy, including in Child and Adolescent Mental Health Services (CAMHS), but evidence evaluating involvement initiatives is lacking. This questionnaire study evaluated the use of young people’s (YP) interview panels in the recruitment of CAMHS staff, from the perspectives of YP, candidates and members of the staff interview panels. Self-report questionnaires were administered to YP, candidates and staff interview panel. This included quantitative and qualitative “free text” responses. YP’s panels were found to be important in hearing the voices of YP; participants all stated they would like YP to take …

From Diagnosis To Routine Care In Type 1 Diabetes In Children: Parents’ Experiences, Géraldine Heilporn, Maude Laberge, André Côté, Monia Rekik

Patient Experience Journal

Having a child who lives with a Type 1 Diabetes (T1D) can represent a high burden for parents. The objective of our study is to identify and analyze the main challenges expressed by parents so that health care services better meet the needs of parents of T1D children. Semi-structured interviews were conducted with parents of 19 T1D children regarding detection and diagnosis, initial management at the hospital, post-discharge adaptation including daycare or school reintegration, and long-term T1D monitoring. Data analysis was performed following an inductive approach. The results showed a lack of knowledge regarding T1D in the society, especially for …

Refugees' Perceptions Of Primary Care: What Makes A Good Doctor's Visit?, Anne Mutitu, Bev Zabler, Jeana M. Holt

Patient Experience Journal

Redesigning primary care is a national priority, as the United States (US) struggles with issues of poor access, high cost, and suboptimal quality. Refugees are among the populations who suffer from America’s disjointed health care system, resulting in disproportionate health disparities. Although there are many studies on refugee health, few share refugees' perceptions of primary care. We asked local refugees who were seen for primary care services at a midwestern academic nurse-led clinic, what makes a good doctor's visit?  The clinic served as the hub of a federally funded refugee Community Centered Health Home (CCHH) pilot project. This qualitative study …

Engaging Under- And/Or Never-Engaged Populations In Health Services: A Systematic Review, Lesley Moody, Erica Bridge, Vidhi Thakkar, Naomi Peek, Tanvi Patel, Suman Dhanju, Simron Singh

Patient Experience Journal

Patient engagement is a mechanism used to facilitate person-centred care, however, has not been realized in all patient populations. Often, many marginalized populations still remain under- and/or never-engaged. The purpose of this systematic review was to: 1) identify methods or interventions that have been used to engage under- and/or never-engaged populations in health services and 2) identify outcomes that are associated with engaging under- and/or never-engaged populations in health services. A comprehensive search using the Ovid MEDLINE, EMBASE and CINAHL databases was conducted to examine literature between January 2002 and January 2015. Twenty-nine studies met the inclusion criteria. Data was …

Is It Fair To Compare? A Patient And Family Experience Of Two Healthcare Systems And Neurosurgical Teams Within A Two-Week Period, Laura Miller Cpxp

Patient Experience Journal

As the mother of a 28-year-old son with cerebral palsy and hydrocephalus, and as a healthcare consultant focused on patient experience and professional development, I have a unique perspective and skill set. Recently he experienced symptoms that included an excruciating headache, neck pain and lethargy. Fearing his ventriculoperitoneal shunt had malfunctioned, he went to the emergency room and was later admitted on the neuro inpatient floor for a three-day hospitalization. His original shunt had been placed in 1991, and he never had an issue with until August 2018. While in the hospital, he was informed that he was no longer …

Awakening From A Medical Mystery: One Patient’S Experience Of Being Undiagnosed, Dwane Unruh

Patient Experience Journal

This personal narrative pleads for a supportive and comprehensive system or sub-system similar to that which exists for cancer patients, to deal with undiagnosed illnesses. By describing the torment of living with a debilitating illness that medicine could not easily recognize, then by contrasting this experience with my wife’s experience of the cancer care system, and by referring along the way to lessons learned many years ago from reading the works of the inciteful neurologist, Dr. Oliver Sacks, I hope to inspire the medical system to develop a separate, supportive and comprehensive system to deal with the undiagnosed. As it …

The Future Of Patient Experience: Five Thoughts On Where We Must Go From Here, Jason A. Wolf Phd, Cpxp

Patient Experience Journal

In looking to the future, we must never forget it is grounded in today and the steps that brought us to this point. Those efforts and actions that led to where we stand now set the foundation for all we can do and what we will accomplish as we look to the future. This idea of not looking too far ahead without knowing where you stand is fundamental in human nature. Far too often we have let our gaze to the future miss the people right in front of us or overlook the significance of the moment in which we …

Learning Europe, Jesse Giammarino

Showcase of Graduate Student Scholarship and Creative Activities

Learning Europe is an annual project that takes place in the high schools of Florence and Pistoia in Italy. JMU master’s students in the European Union Policies Studies program in Florence attend these high schools for two sessions to teach Italian students about the European Union. JMU students go to these meeting either alone or in pairs of two, but with a JMU faculty member (usually a teaching assistant) who assists in the sessions. The two sessions are broken up by the material taught in them, with a natural progression from topics discussed in the first to the topics discussed …

Font Fails To Improve Reading On Assessment Tasks, Steven L. Powell M.A., Denton S. Warburton M.A., Ashton D. Trice Ed.D

Showcase of Graduate Student Scholarship and Creative Activities

Dyslexie is a font type that was created specifically to address the challenges that individuals with Dyslexia face. This font-type consists of distinctive characteristics in each letter that are suggested to be more easily distinguishable from one another, such as a bolded bottom portion of each letter, additional inter-letter spacing, a greater x-height, and capitalized letters that are slightly italicized and bolded. Although the author claims that it improves the reading performance of individuals with Dyslexia, the literature on its effectiveness is conflicting. The current study investigates the effectiveness of Dyslexie compared to two commonly used fonts on readers’ comprehension …

Evaluating The Outcomes Of Social Media Marketing Alongside Traditional Promotional Techniques In Library Outreach, Liana Bayne, Caroline Hamby

Showcase of Graduate Student Scholarship and Creative Activities

James Madison University MALA (Madison Academic Library Associates) graduate assistants worked together with Special Collections and the library’s Outreach department to help market and support JMU’s First Annual Pulp Studies Symposium in Fall 2016. Social, digital, and physical ultimately came together to highlight and surface Special Collections’ extensive holdings of pulp magazines. Hashtags, archival ephemera, and everything in between melded in this multi-part exhibit. Since one of the least known and studied genre of pulps are the romance pulps, Love Story Magazine was the focus of our social media outreach project. Its florid narratives led organically to the idea of …

Ethics And Equity In Nonprofits, Jennifer K. Morgan

Showcase of Graduate Student Scholarship and Creative Activities

When considering modes of delivery of public services, traditionally people depend on the government to supply these goods and services. Citizens believe in the social contract and that it is the duty of the government to deliver services to the public. However, beginning in the 1970s, the traditional form of public goods delivery moved away from strictly government distribution, towards market delivery in hopes of greater responsiveness and ability to deliver at a lower cost. However, can nonprofits deliver goods and services once provided by the government with the same equity standards as the government? When examining the literature on …

Impacts Of Giving Circles On Participants: Giving Style And Civic Engagement, Eric Thomas Busche

Showcase of Graduate Student Scholarship and Creative Activities

Giving circles are an emerging form of philanthropy in which members contribute and pool funding with the intent to distribute said funding to grantees, with such efforts often identified based on group-generated consensus with members voting on both what issues to address and which recipients to fund, in order to generate an increased impact on the grantee. Giving circles present a way in which individuals may exert greater control over the way in which their donations are appropriated without needing to donate relatively large sums of money. In this way giving circles may present an attractive option to individuals who …

A Rubric For Evaluating And Designing Survey Research In Neuropsychology, Emily F. Matusz, Bernice A. Marcopulos, Thomas M. Guterbock

Showcase of Graduate Student Scholarship and Creative Activities

The current study presents recommended guidelines for neuropsychologists in accordance with best practices used in survey research design and data reporting. Although there have been improvements in the quality of research design and data reporting of neuropsychological surveys over time, several areas are still in need of improvement. A rubric, created from these recommended guidelines, is intended to provide neuropsychologists with an easily accessible tool to help further improve the quality of of survey research in neuropsychology.

Assessment Project, Caroline Hamby 5887520

Showcase of Graduate Student Scholarship and Creative Activities

My project presents research related to prescription drug abuse. It lays out a brief, hypothetical intervention focused on psychoeducation around potential negative effects of prescription drug abuse. It proposes that patients being placed on strong painkillers must go though a brief program before they obtain their first refill. This will hopefully result in less prescription drug abuse over time, as measured by tools assessing problematic use.

Using The Reflective Functioning Scale To Predict Counseling Outcomes, Matthew Swartzentruber

Showcase of Graduate Student Scholarship and Creative Activities

It is my proposal to demonstrate the usefulness of the Reflective Functioning Scale within counselors-in-training populations to promote effective counseling clinicians and improve counseling competencies.

A Bereavement Support Group For The Non-Religious, Charles L. Miller

Showcase of Graduate Student Scholarship and Creative Activities

In American culture, the approach of many to death and bereavement is couched in religious messaging. For much of the country, this approach resonates with a mourner's worldview. However, this is not the case with a growing segment of the population: individuals who identify as non-religious. While well-meaning, common strategies intended to comfort these individuals and help them navigate the mourning process may be less than effective, and in some cases even distressing due to religious content.

The design of the proposed intervention is intended to provide a purely secular support environment in which group members explore the cultural context …

Improving Relationships, Brittany D. Dioszeghy

Showcase of Graduate Student Scholarship and Creative Activities

This project is a proposal for a program that improves individuals' experiences in relationships.

A Home For The Spirit: Mental Health Care Delivery And The Homeless, John D. Rogers

Showcase of Graduate Student Scholarship and Creative Activities

I propose to present a poster summarizing a needs analysis for delivery of mental health care services to homeless people in small cities. The poster will provide highlights of a review of the relevant literature, best practice from current shelters, a summary of needs, a proposed model agency.

Homelessness is a significant and persistent issue in the United States and around the world. With public policy support, integrated care modalities, and new conceptualizations of treatment, those without homes can find help for mental health issues, and those in the helping profession can find rewarding opportunities to contribute to improved prognosis …

Congruence And Therapy: The Real Relationship Inventory (Rri), Jean F. Ndzana

Showcase of Graduate Student Scholarship and Creative Activities

I am interested in looking at the process of psychotherapy, and how specific under-represented groups (that are already reluctant to entering therapy), experience this process and the genuineness of the therapist. I am interested in exploring concerns that are parallel to the initial concern that brought the person for counseling, and how such processes, if unexplored, that can damage therapeutic alliance, and result in poor therapy outcome. The ultimate goal is not to get people in therapy, but to deliver successful therapy.

Toxic Tropics: Purity And Danger In Everywhere In Everyday Life, Liza Grandia

Journal of Ecological Anthropology

In contrast to popular images of the tropics as verdant Edens, forest dwellers face various pollutants with little-understood environmental health impacts. Drawing upon long-term ethnographic research in northern Guatemala through the lens of Mary Douglas' work on purity, danger, and culture, this paper describes how the inventive re-use of modern waste exposes rural people to new and unknown toxic substances from “matter out of place.” While environmental justice literature has emphasized industrial, extractive, and military disasters, this note draws attention to the less dramatic yet lethal pollutants encountered in the everyday lives of the rural poor through “chemical trespass.”

Sustainable Solutions, Fall/Winter 2020, Issue 41

Sustain Magazine

No abstract provided.

Conversation Over Controversy

St. Norbert Times

• News
  • Conversation Over Controversy
  • The 30^th Tail of the Fox Regatta
  • Run for Lungs
  • Week of Homecoming Recap
  • Tom Kunkel on the Man on Fire
• Opinion
  • Celebrities Are Just Like Us, Right?
  • It’s Okay Not to be Okay
  • Finding Beauty in New Ways
  • The Everlasting Struggle of the Kurdish People
  • Finding Myself
  • War, Revolution and Love
• Features
  • Growing to Our Highest Potential
  • Why Luna=Local
  • Finding Religion Through Art
• Entertainment
  • Student Spotlight
  • Word Search
  • Did You Know??
  • Book Review: “Recursion” by Black Crouch
  • What to Watch This Fall
  • “Destiny 2: Shadowkeep” Review
  • “Civil War”: The Best… in Audio
  • Junk Drawer: …

Spartan Daily, November 6, 2019, San Jose State University, School Of Journalism And Mass Communications

Spartan Daily, 2019

Volume 153, Issue 32

Beyond The School: Opportunities For School Psychologists In Community Change, Alyssa Boltson, Aline Milfort, Angela M. Waguespack

Faculty Proceedings, Presentations, Speeches and Lectures

No abstract provided.

Legacy Missions In Times Of Change: Defining And Shaping Collections In The 21st Century, Antje Mays, Oya Y. Rieger

Library Presentations

Despite the rapidly changing information and technology landscape, collections remain at the heart of academic libraries, signifying their enduring importance in providing access to our cultural heritage. Given broader trends in research and the current information ecology of an increasingly networked, distributed, and licensed environment, building collections and developing collection polices is increasingly ambiguous. These trends impact librarians in form of ever-expanding portfolios, diffusion of effort, weakened sense of focus, and a rising sense of persistent yet unmet needs for developing new skills. This paper outlines current research on collection trends and summarizes the interactive exchanges from the 2019 Charleston …

What Do Editors Want?: Assessing A Growing Library Publishing Program And Finding Creative Solutions To Unmet Needs, Julia Lovett, Andrée Rathemacher

Technical Services Faculty Presentations

Poster, “What Do Editors Want?: Assessing a Growing Library Publishing Program and Finding Creative Solutions to Unmet Needs," presented at the 2019 Charleston Conference: Issues in Book and Serial Acquisition, “The time has come… to talk of many things!” on November 6, 2019 in Charleston, South Carolina.

"The University of Rhode Island University Libraries publishes six open access, peer-reviewed scholarly journals on our DigitalCommons@URI platform. Our journal publishing program has grown slowly over the last decade, with new services added incrementally as needed. We decided it was time that we assess our journal publishing efforts — to ask editors to …

Falling Down The Rabbit Hole: Exploring The Unique Partnership Between Subject Librarians And Scholarly Communication, Buenaventura (Ven) Basco, Sandy Avila, Sarah A. Norris

Faculty Scholarship and Creative Works

Conference Presentation presented at Charleston Conference 2019 in Charleston, South Carolina.

Subject librarians are uniquely poised to facilitate conversations and assistance about scholarly communication topics to faculty and students -- helping make the connections between scholarly communication and discipline-specific research. The University of Central Florida (UCF) Libraries offers a unique intersection between scholarly communication and subject librarians by implementing a robust subject librarian model that includes activities related to scholarly communication and partnering with UCF’s Office of Scholarly Communication to provide support on a variety of topics to the campus community. In particular, this model has been particularly effective with …