Medicine and Health Commons^™

Exploring The Experience Of Healthcare-Related Epistemic Injustice Among People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Joanne Hunt, Jessica Runacres, Daniel Herron, David Sheffield

The Qualitative Report

Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a chronic, disabling yet clinically “contested” condition, previously theorised through a lens of epistemic injustice. Phenomena conceptually close to epistemic injustice, including stigma, are known to have deleterious consequences on a person’s health and life-world. Yet, no known primary studies have explored how people with ME/CFS experience healthcare through a lens of epistemic injustice, whilst a dearth of research explicitly exploring healthcare-related injustice from a patient perspective has been noted. This qualitative study seeks to address this gap. Semi-structured interviews and interpretative phenomenological analysis (IPA) were used to explore the experiences of …

Cultura Y (Ataque De) Corazón: A Training For Health Professionals Needing Medical Interpretation Services, Elizabeth Dudek, Shelby Edwards

11th National Symposium on Spanish as a Heritage Language

Limited English proficiency is a known barrier to quality health care outcomes (Green 2017, Helmi 2021). Inclusion of a certified language interpreter during health care encounters improves outcomes among ESL (English as a Second Language) patients (Karliner, Jacobs, Chen, and Mutha 2007). Interpretation with a certified interpreter promotes understanding between patients and their medical providers, and advances both health and race equity (Foiles Sifuentes, Robledo Cornejo, Castaneda-Avila, Tija, and Lapane 2020). Most health care workers receive no formal training in how to use an interpreter with limited English-proficiency patients. Located in the Hispanic Heritage District of an increasingly Latine mid-sized …

Human Zoo Healthcare At The 1904 World’S Fair, Angel Blake

Undergraduate Research Symposium

Human Zoo Healthcare at the 1904 World’s Fair

Were precautions taken or put into place for the Human Zoo performers at the 1904 World’s Fair? This topic has been overlooked and understudied by historians, there are few articles written and we do not know the true death toll which shows the racism towards these indigenous peoples. The research for this project was conducted at the State Historical Society of Missouri, the St. Louis Mercantile Library, Newspapers.com, Archives.com, St. Louis Public Library, and the Missouri Historical Society, including research on primary sources such as official World’s Fair committee meeting minutes, hospital …

La Exploración Del Acceso Equitativo A La Atención Médica Para Los Hispanohablantes, Lauren Elizabeth Mcreynolds

Chancellor’s Honors Program Projects

No abstract provided.

Responding To Disproportionate Skin Cancer Rates Affecting Adult Men Aged 18-60, Aaron Thompson

Capstone Collection

Skin cancer is a deadly disease that kills significantly more men than women every year. At the same time, women are more than twice as likely to apply daily sun protection factor (SPF) than men. This research study explores how key stakeholders within the skin care industry have responded to the data showing increasing disparities between male and female skin cancer rates. To fulfill the objectives of this research study, qualitative data was collected from six semi-structured interviews with adult males between the ages of 18 and 60. The interviews were intentionally designed to engage with the American, adult male’s …

“Handicap Removed”: An Alternative Path To The Social Model, Craig M. Rustici

Journal of Gender, Ethnic, and Cross-Cultural Studies

This article identifies an expression of a social model of disability in a 1966 film promoting Hofstra University’s Program for the Higher Education of the Handicapped and traces that model back to books published by the pioneering rehabilitation physician Henry H. Kessler in 1935 and 1947, decades before the UPIAS (Union of the Physically Impaired against Segregation) Fundamental Principles of Disability (1976). In light of Kessler’s articulation of social and minority models, identification of contrasting religious, charity and medical models, and discussion of disability stigma, this article reassesses Ruth O’Brien’s critique, in Crippled Justice (2001), of Kessler and the twentieth-century …

The Development Of The Holistic Pastoral Wellbeing Assessment: A Mixed Methods Study, Timothy Captain

Dissertations

Some pastors are clearly in crisis. Research has indicated that clergy struggle to cope with the stressors of their profession. While pastoral work is overtly spiritual in nature, day-to-day tasks include interactions with God, themselves, congregants, and the world at large. Without multi-dimensional tools to consider their wellbeing, specifically assessments that reflect their worldview and role, pastors may remain unaware of dangerously low levels of wellbeing until they reach a place of crisis. Therefore, in this mixed methods study, the Holistic Pastoral Wellbeing Assessment (HPWA) was developed and tested to offer a validated, useful tool for pastors and those who …

Examining The Use Of Expressive Arts Therapies In Neurorehabilitation Treatment Planning, Rebecca J. Horner

Expressive Therapies Capstone Theses

Those undergoing neurorehabilitation after stroke and traumatic brain injury report a diminished sense of overall wellness. This paper examines the conceivable benefits of introducing expressive arts therapies, which is the therapeutic use and combination of the visual arts, movement, drama, music, writing and other intermodal creative processes, into physical therapy and neurorehabilitation treatment planning. Expressive arts therapies have the capacity to engage with an individual’s physical, emotional, social and spiritual states concurrently. They simultaneously offer the ability to promote an increased sense of well-being, address mind-body disconnects, and process trauma non-verbally.

The sections of this narrative literature review focus on …

Calculating Risk: A Scoping Review Of Ncaa D1 Football Players’ Motivations To Play And The Correlation To Demographic Characteristics And Injury Experiences, Kathleen D. Walsh

Honors Theses

The purpose of this research was to investigate the motivations of National Collegiate Athletic Association (NCAA) Division 1 (D1) football players for playing the game and how these motivations are associated with their socioeconomic status (SES). Further, the research aimed to investigate how the uncovered motivations were linked to injury experiences. The original project was designed as a survey-based mixed methods study on a national scale. However, issues with participant recruitment led to sidelining of that primary research. The research presented is a scoping review of the available literature pertaining to the research question: What is known from existing literature …

Perceptions Of Varying Types Of Health Conditions Among Arkansas Tech University Students, Leala A. Sorrell

ATU Research Symposium

Attitudes towards minor ailments, psychological conditions, chronic illnesses, and disabilities were measured among students of Arkansas Tech University through an online questionnaire. 10 questions were asked for each condition type for a total of 40 questions. Participants were asked to rate their level of agreeance from 1-5, 1 being “highly disagree” and 5 being “highly agree”. High scores (higher response rate of “strongly agree”) represented attitudes of Talcott Parsons’ sick role theory. Low scores (higher response rate of “strongly disagree”) represented attitudes of the ICF model and inclusiveness. The minor ailments/illnesses scale had the lowest mean score of 27.186. The …

The Artist's Arsenal: Hiv+ Women Artists, The ‘War On Aids’, And Reclaiming Illness Narratives, Mekha Varghese

Art and Art History Honors Papers

This work uses the methodologies of both art history and medical sociology through the ‘syndemic’ framework to engage in close readings of two selected artworks, Exit (1997) by Nancer LeMoins and Violation of Africa (1984) by Affrekka Jefferson. An interdisciplinary approach to these works enables consideration of how multiple marginalized identities—i.e., living with a stigmatized illness, being a woman, being LGBTQIA+, being a person of color—appear in visual art and shape illness experience; these ideas are investigated through a formal and iconographic reading of the selected artworks. Placing art as the foundation of this analysis reveals its astounding impact and …

Conflicting Socio-Cultural Attitudes And Community Factors Resulting In Backstreet Abortion In Cato Manor, Kwazulu Natal, Chloe Sachs

Independent Study Project (ISP) Collection

Abortion in South Africa is a complex topic, rife with augmenting and limiting political, social, religious, and cultural factors. In South Africa, abortion has been legal since 1996; however, abortions have been performed for centuries in the region. Although abortion is legal, many factors influence a woman’s choice and ability to terminate a pregnancy. Religious and cultural norms within morally conservative societies contribute to negative abortion sentiments and hesitation to seek formal medical abortions. This study explored multiple age groups within Cato Manor and whether the attitudes towards abortion and factors impacting the choice of where and whether to receive …

The State Of Transgender And Kinnar Communities In Delhi: Case Studies Connecting Socioeconomic Factors To Health, Ray Craig

Independent Study Project (ISP) Collection

The paper seeks to draw connections between socioeconomic barriers faced by the transgender (trans) community in Delhi, India and the healthcare that the community receives. It primarily discusses transgender people who are not part of the kinnar population, with as much consideration to the experiences of the kinnar community as possible, given limited access to their circles. Five transgender individuals and two cisgender individuals who have worked with trans communities participated in semi-structured qualitative interviews to understand various factors that affect trans people’s daily lives and their healthcare experiences in Delhi. Interviews were transcribed and coded, finding common themes of …

Las Barreras Sociales, Económicas, Y Políticas Que Deben Enfrentar Las Mujeres Víctimas De Violencia Al Momento De Realizar La Denuncia Y De Recibir Protección En El Departamento De Maipú, Provincia De Mendoza En El Año 2023 / The Social, Economic, And Political Barriers That Female Victims Of Domestic Violence Face When Reporting Violence Or Accessing The Corresponding Protection Services In Maipú, Mendoza In 2023, Amelia Opsahl

Independent Study Project (ISP) Collection

Este informe analiza las barreras que enfrentan las víctimas de la violencia contra las mujeres al momento de realizar una denuncia y acceder a los servicios de ayuda en el departamento de Maipú, Mendoza en el año 2023. Realicé este trabajo a través de cinco entrevistas presenciales con profesionales que trabajan con el tema en el departamento. Cada una de mis entrevistadas tiene una profesión distinta y trabajan sea con las víctimas, sea con los políticos, o bien con los propios agresores. Por eso, mis entrevistas ofrecen una mirada amplia de la problemática y me permite investigar las barreras que …

Observaciones De La Medicina Mapuche Y El Mito De La Medicina Interculturalidad En Chile Con La Machi Rosita Barboza, Anat Gilligan-Steinberg

Independent Study Project (ISP) Collection

Chile cuenta con un sistema de salud intercultural, que promueve el acceso a servicios de salud culturalmente competentes para la población indígena. A través de mi pasantía con la machi Rosita Barboza, acompañándola a centros de salud, en ceremonias de sanación mapuche y ayudando en la preparación y distribución de remedios; he llegado a la conclusión de que no es más que un mito de la interculturalidad. Existe un conflicto constante entre las definiciones de salud occidental e indígena, que impiden la disponibilidad de salud complementaria. La salud occidental se basa en una definición biomédica de la salud, la cosmovisión …

Moral Injury To Inform Analysis Of Post-Traumatic Stress Disorder, Amanda Julia Manea

Senior Theses

Post-traumatic stress disorder (PTSD) is a mental health condition that almost one out of ten veterans struggle with. Although the National Center for PTSD has made extensive progress in characterizing and developing new treatments for PTSD, most veterans still experience symptoms of PTSD following treatment. Novel avenues of investigation, such as developing algorithms to review electronic health record (EHR) data and better understanding moral injury, are being pursued to address the gap that still exists when it comes to treating veterans. Moral injury is the individual evaluation of exposure to a potentially morally injurious event (PMIE) and can lead to …

El Impacto Del Diagnóstico De Cáncer De Mama En Los Vínculos En Mujeres De La Ciudad Autónoma De Buenos Aires (2023) / The Impact Of A Breast Cancer Diagnosis On The Relationships Of Women Living In The Autonomous City Of Buenos Aires (2023), Devin O’Loughlin

Independent Study Project (ISP) Collection

El siguiente trabajo de investigación busca describir las relaciones sociales de una persona con cáncer de mama. Para colectar datos, se entrevistó a cuatro mujeres argentinas CIS que han padecido cáncer de mama para investigar sus relaciones con sus amigos, sus parejas, y sus familias, y si estas relaciones han cambiado como resultado de su diagnóstico. Estas entrevistas estaban destinadas a informar cómo se distribuyen los roles de cuidado y acompañamiento durante el tratamiento por la enfermedad e indagar cómo pueden ayudar los amigos y la familia a la gente durante el tratamiento para el cáncer de mama. El trabajo …

Obesity Heterogeneity By Neighborhood Context In A Largely Latinx Sample, Ashley W. Kranjac, Dinko Kranjac, Zeev N. Kain, Louis Ehwerhemuepha, Brooke N. Jenkins

Sociology Faculty Articles and Research

Neighborhood socioeconomic context where Latinx children live may influence body weight status. Los Angeles County and Orange County of Southern California both are on the list of the top ten counties with the largest Latinx population in the USA. This heterogeneity allowed us to estimate differential impacts of neighborhood environment on children’s body mass index z-scores by race/ethnicity using novel methods and a rich data source. We geocoded pediatric electronic medical record data from a predominantly Latinx sample and characterized neighborhoods into unique residential contexts using latent profile modeling techniques. We estimated multilevel linear regression models that adjust for …

Mommy, Me, And We: Why Black Mothers Have Turned To Doulas, Janessa Harris

Crossings: Swarthmore Undergraduate Feminist Research Journal

Maternal mortality mates have disproportionately affected black mothers for far too long due to the lack of value that black bodies hold in medical spaces. Because of this concerns voiced by black people are often disregarded and ignored until the very last minute. But what if this was changed? This paper will focus on how black mothers have worked against Western medical systems that silence our voices, but instead turn to doulas who work to make these mothers feel seen, heard, and cared for. Through this, we make birthing a careful and collective effort to turn Mommy&Me to Mommy&We.

Skin Stories And Family Feelings: The Contradictions Of Skin Picking In Mother And Daughter, Katrina Jacinto

Crossings: Swarthmore Undergraduate Feminist Research Journal

Skin picking, otherwise known as dermatillomania, is considered to be a medical disorder by the DSM-5. However, the embodied experiences of skin picking in myself and my mother do not align with the neat definitions offered by psychiatry. Through autoethnographic material and an ethnographic interview with my mother, I argue that skin picking is a bodily technique that is pathologized through stigma. In particular, I suggest that skin picking reveals the body as a polyvalent entity, in which the same features and practices take on different meanings in different bodies. This frames the discrepancies between mine, and my mother's, experiences. …

Healthcare Access And Experiences Among Transgender University Students, Micah Reisner

Honors Undergraduate Theses

Background

As transgender identification rises in younger generations, it is imperative that colleges and universities account for the health and wellbeing of this growing subset of the student body. Previous research indicates that transgender populations experience unique barriers to accessing healthcare, including socioeconomic barriers and a lack of healthcare providers experienced in transgender medicine. These barriers contribute to low rates of healthcare utilization and significant health disparities in transgender populations.

Methods

A community health assessment of transgender and gender-nonconforming (TGNC) students at the University of Central Florida was conducted in order to assess: (1) students' access to and experiences with …

Revisiting The Rainbow: Culturally Responsive Updates To A Standard Clinical Resource, Angela M. Dietsch, Richard Mocarski, Debra A. Hope, Nathan Woodruff, Miechelle Mckelvey

Department of Special Education and Communication Disorders: Faculty Publications

Purpose

Cultural responsivity is essential for efficacious and affirming clinical relationships. This may be especially important with historically marginalized clients, such as transgender and gender-diverse (TGD) people seeking behaviorally based affirming communication services. We recommend modifications to standard tools for diagnostics and training that otherwise might undermine our efforts to create an inclusive and affirming environment.

Method

Modifications to the Rainbow Passage, a standardized paragraph utilized for eliciting speech samples in clinical settings, focused on nongendered terminology and the elimination of content with religious connotations.

Results

The recommended edits to the Rainbow Passage maintain similar length, cadence, and phonetic balance …

Gender Studies Fall Colloquium, 2022 - “What Is Next For Reproductive Rights And Reproductive Justice?", Ederlina Co

Gender Studies Colloquium

No abstract provided.

Examining The Power Dynamics In The Patient-Doctor Relationship In Bio-Medicalized Countries: A Historical And Sociocultural Framework, Molly Dickerson

Independent Study Project (ISP) Collection

Medical humanities research is an increasingly important field of study for medical care. Power dynamics that exist between doctor and patient during the clinical encounter are an integral factor for improving health outcomes and patient satisfaction with their clinician. This research study sought to determine the power dynamics that exist within the patient-doctor relationship in Switzerland and other bio-medicalized countries with similar patient-provider experiences through a historical and sociocultural lens. Four interviews were conducted alongside preliminary research, and the power dynamics identified through this study were social, economic, knowledge-based, and communication. Historical human philosophies about the universe, the role of …

Fighting Heroin Abuse With Heroin: How Legalizing Prescription Heroin Has Changed The Way New Generations Use Drugs, Claire Ridley

Independent Study Project (ISP) Collection

In the 1980s, Switzerland was embroiled in two simultaneous crises: widespread heroin use and spreading HIV/AIDS. Zurich became the capital of heroin consumption, with groups gathering in public parks and sharing needles to inject heroin. In response to these crises, several Swiss cities started conducting randomized control trials where they offered prescription heroin to help people addicted to heroin consume the drug safely and eventually recover from their addiction. As these trials reported positive results of maintaining better health outcomes for those undergoing treatment, the Swiss people supported federally legalizing heroin-assisted treatment and expanding access to harm reduction services in …

“The Worst Part About My Pregnancy Was Stuff That Didn’T Have To Do With My Pregnancy”: Medicaid Beneficiaries’ Pregnancy Intentions & Experiences In South Carolina, Andrew Michael Chen

Senior Theses

Low-income women and women of color experience adverse birth outcomes at disproportionately higher rates in the United States than most people who give birth. This thesis examines individual interviews conducted with 30 low-income women whose most recent birth was covered by Medicaid, the United States’ largest means-tested public health insurance program. The aim of this thesis is to examine how the women in the study thought about pregnancy, and how they described their intentions to become or avoid becoming pregnant at various times in their life. While public health researchers often frame pregnancy as an event that is either intended …

Tattoos In Medicine, Marcus Ibrahim

HCA Healthcare Journal of Medicine

I am a second-year family medicine resident with a rather large arm-sleeve tattoo. As you can probably deduce by reading the title of this editorial, it will focus on how tattoos in healthcare may be perceived by others. My goal is to illustrate some of my perspectives, opinions, and experiences regarding making my tattoos visible in the clinical setting.

The Politics Of The Self: Psychedelic Assemblages, Psilocybin, And Subjectivity In The Anthropocene, Joshua Falcon

FIU Electronic Theses and Dissertations

This dissertation examines how psychedelic substances become drawn into particular sociohistorical and political arrangements, and how psychedelic experiences with psilocybin ‘magic mushrooms’ are used as tools of subjectivation. Guided by literatures in philosophy, critical theory, and the social sciences that focus on subjectivity, assemblage theory, and critical posthumanism, I argue that psychedelics are drawn into variegated assemblages, each of which conceptualizes the nature of psychedelics in highly specific ways that reflect implicit conceptions of the world and the self. In developing the concept of psychedelic assemblages, this research provides a window onto the politics of the self in the Anthropocene. …

The Tale Of Two Counties: A Case Study Analysis Of Sociological And Systemic Health Barriers In Powhatan And Galax County, Virginia, Rebecca Rogers

Undergraduate Honors Theses

The year of 2020 will famously be known by most as the year “the world stopped working.” Unfortunately, the world had not been functioning sufficiently prior to the COVID-19 pandemic. Utilizing 2019 as a pre-pandemic baseline, the not so evident discrepancies in healthcare systems were illuminated during the pandemic, not only between countries but also between states, cities, and even counties. My research, being inductive, aims to dissect the pathways that allow health inequities to exist alongside providing realistic solutions that could be implemented through health policy. To accomplish my research goal, I conducted a case study that compares the …

The Effects Of Hormonal Contraceptive Use On Perceptions Of Social Stress In Women, Ashton Jones

Biological Sciences Undergraduate Honors Theses

Hormonal contraceptives are widely used due to their efficiency in preventing pregnancy. Although women are often informed of the physical effects of hormonal contraceptives, there is little emphasis on mental effects, such as increased rates of depression and changes in social perception. The current study examined perceptions of social stress among women before beginning hormonal contraceptives, and two months after using hormonal contraceptives. I hypothesized that women would experience increased social stress after beginning hormonal contraceptives, compared to a control group of women who were also assessed twice. Results did not support this hypothesis; there was no difference in interpersonal …