Gerontology Commons^™

Living With Dementia In Kenya: Pathways To Care, Diagnosis And Management, Edna Bosire

Institute for Human Development, East Africa

Background: Sub-Saharan Africa (SSA) is experiencing a sharp rise in the size of theolder population; consequently, the incidence and prevalence of Alzheimer’s DiseaseRelated Dementias (AD/ADRD) is also expected to rise. There is limited research onAD/ADRD lived experiences have been conducted in SSA including Kenya. Our projectaimed to explore patient’s and caregivers lived experiences with Alzheimer’s disease inKenya.

Methods: This ethnographic study was conducted at the Aga Khan University hospital(AKUH), involving in-depth interviews with 21 health care providers, 26 patientswith mild cognitive impairment and 36 caregivers. We also conducted 10 homevisits and observations. Data were transcribed verbatim and thematically analysed.In what …

Cultural Adaptation Of An Innovative Reproductive Health Assessment Tool For Dementia Research In Africa: Insights From The Fember-Africa Study, Alice Moraa Ondieki, Anne Njogu, Cynthia I Sabel Smith, Edna Bosire, Karen Blackmon, Harrison Kaleli, Jasmit Shah, Rachel Maina, Sheila Waa, Chinedu Momoh

Brain and Mind Institute

Background: Dementia research accounts for only 0.1% of all research in Africa,making it the lowest among all low- and middle-income country (LMIC) regions. Thedevelopment and adaptation of biological and psychosocial measures in ethnicallyand culturally diverse populations remain limited but are essential for culturallyinformed research. This is particularly critical for examining sex- and gender-basedvulnerabilities to Alzheimer’s disease and related dementias (ADRD), including factorssuch as reproductive health and fertility.

Method: We conducted a thorough review of our clinical and health questionnaires forcultural relevance and sensitivity through a series (n = 3) of focus groups discussions.These focus groups included a diverse range of …

Reforming Pensions In Africa: Addressing Coverage, Payout Disparities, And Dementia Outcomes For Sustainable Aging, Cyprian Mostert, Catherine Ajalo, David Andai

Brain and Mind Institute

No abstract provided.

Living In Essex: A Community Needs Assessment, Sue Berger, Ceara Somerville, Caitlin E. Coyle

Center for Social and Demographic Research on Aging Publications

This report describes research undertaken by the Center for Social & Demographic Research on Aging (CSDRA) within the Gerontology Institute at the University of Massachusetts Boston, on behalf of the Town of Essex. The goals of this project were to investigate the needs, interests, preferences, and opinions of Essex residents age 18 or older by engaging the community regarding their experiences and needs relevant to the Council on Aging’s (COA’s) objective to identify and serve the needs of all Essex citizens 60 and older.

Livable Marshfield: Age And Dementia Friendly Action Plan: Improving Livability For All Ages And Abilities, Caitlin E. Coyle, Beth Rouleau, Ceara Somerville

Center for Social and Demographic Research on Aging Publications

The Town of Marshfield’s Age and Dementia Friendly action plan signifies a milestone and reflects many years of dedication to creating environments within Marshfield that are supportive of residents of all ages and abilities. Guided by the Council on Aging (COA), the Town of Marshfield is dedicated to understanding and responding to the needs and interests of older adults in the community. Over the years, the share of residents over age 60 has steadily grown. According to 2019-2023 estimates from the American Community Survey, an estimated 28% of Marshfield residents are age 60 or older (approximately 7,200 residents). Projections suggest …

Aging In Newton: A Community Needs Assessment, Claire Wickersham, Katherine Burnes, Shu Xu, Caitlin E. Coyle

Center for Social and Demographic Research on Aging Publications

This report presents the results of a comprehensive examination of issues relating to aging in Newton. A needs assessment was undertaken to support planning on the part of the City of Newton and the Department of Older Adult Services. Results presented here focus on the characteristics and needs of Newton residents who are aged 60 and older. Data was collected via key informant interviews, focus groups with residents and stakeholders and a mailed survey of residents aged 60 and older. Respondents to the community survey included 2,869 Newton residents, which resulted in a response rate of more than 50%. As …

How Did Cognitive Status Impact Health Care Use Among Older Adults During The Covid-19 Pandemic?, Katarina Sako, Janet Wilmoth

Population Health Research Brief Series

Physical distancing measures during the COVID-19 pandemic disrupted the lives of older adults. Older adults experiencing dementia and other forms of cognitive decline have impaired executive functioning that made it even more difficult to contend with these disruptions. This brief presents findings from research that used data from the 2021 Health and Retirement Study to examine differences in health care delays and health outcomes during the COVID-19 pandemic among a nationally representative sample of U.S. older adults (ages 50+) with versus without cognitive decline. Results show that most older adults did not delay getting health care and did not experience …

Increasing Nursing Aide Knowledge On Benefits Of Light For Sundowning Syndrome, Grace Hilfiker, Julie Masters

Honors Program: Senior Projects (Public)

In this study, the knowledge of nursing aides on the benefits of light for sundowning syndrome was investigated. While dementia and sundowning syndrome is discussed during nursing aide training in the state of Nebraska, there is no discourse focused on how light plays beneficial role in lessening the symptoms of sundowning syndrome for those who are afflicted with dementia. This study asked what the current knowledge base surrounding dementia and sundowning syndrome is of nursing aides in the state of Nebraska. The aim was to justify adding a focus on concrete methods to use when caring for patients with dementia …

What Factors Increase Risk Of Alzheimer's Disease And Related Dementia?, Elizabeth Vásquez, Kai Zhang

Population Health Research Brief Series

Alzheimer’s disease is the most common form of dementia and ranks 7th in the leading causes of death in the United States (U.S.). This data slice uses nationwide data from 3,155 counties in the U.S. to identify the factors that best predict county-level rates of Alzheimer’s Disease and Related Dementias (ADRDs) in 2018. The results indicate that insufficient sleep, consuming less than one serving of fruits and vegetables per day, having no high school diploma, Black population percentage, and social vulnerability were among the leading factors predicting county-level ADRD prevalence.

How Marital Stress May Affect The Onset Of Dementia In Older Adults, Khunza Asma

All Graduate Theses, Dissertations, and Other Capstone Projects

Marital stress has been identified as a significant factor influencing the cognitive health of older adults, with emerging evidence suggesting a potential link between marital discord and the risk of developing dementia. This study will review the existing literature on the relationship between chronic stress, depression, marital discord, and the development of cognitive impairment which can increase the risk of developing dementia in older adults. However, the purpose of studying how marital stress affects the onset of dementia is to deepen our understanding of the complex interplay between psychosocial factors and cognitive health in older adults, with the ultimate goal …

Implementing An Alzheimer’S And Dementia Library Outreach Program: A Partnership Between The Nebraska Chapter Of The Alzheimer’S Association And Nebraska Libraries, Casey Wilkinson

Theses/Capstones/Creative Projects

This paper focuses on the establishment of an Alzheimer’s and dementia library outreach program in Nebraska, initiated by the Nebraska Chapter of the Alzheimer’s Association. The program aims to address the lack of community resources and support for individuals affected by dementia-related diseases in Nebraska. Extensive research, including interviews with successful library outreach programs globally, informed the program's foundation. A survey distributed to Nebraska libraries had a stellar response rate, with 57 libraries expressing interest in collaborating. An in-depth guide was created and distributed to the interested libraries, outlining program components such as educational programming, support groups, and a designated …

Building An Age & Dementia Friendly Barnstable: An Action Plan, Caitlin Coyle, Beth Rouleau, Shayna Gleason

Center for Social and Demographic Research on Aging Publications

The Town of Barnstable has long-been aware of its aging population and, as a result, has initiated a number of planning processes to advance the livability of the community for all ages---this report documents the Age & Dementia Friendly planning process and associated ideas for action.

The Impact Of Having Foreign Domestic Workers On Informal Caregivers Of Persons With Dementia: Findings From A Multi-Method Research In Singapore, Qi Yuan, Yunjue Zhang, Ellaisha Samari, Anitha Jeyagurunathan, Tee Hng Tan, Fiona Devi, Peizhi Wang, Harish Magadi, Richard Goveas, Li Ling Ng, Mythily Subramaniam

Research Collection School of Social Sciences

Background: Informal caregivers of persons with dementia (PWDs) sometimes engage foreign domestic workers (FDWs) to support their caregiving journey. However, there has not been much research to establish if this is really beneficial. The current study aims to investigate whether engaging FDWs specifically for caregiving of PWDs truly moderates caregiver stress and to explore caregivers’ experiences of engaging FDWs. Methods: A multi-method study design with a quantitative and qualitative sub-study was adopted. For the quantitative sub-study, 282 informal caregivers of PWDs were recruited. Propensity score matching analysis was used. For the qualitative sub-study, 15 informal caregivers with FDWs were interviewed. …

Aging In Middleton: A Community Needs Assessment, Sue Berger, Caitlin Coyle

Center for Social and Demographic Research on Aging Publications

This report describes research undertaken by the Center for Social & Demographic Research on Aging within the Gerontology Institute at the University of Massachusetts Boston, on behalf of the Town of Middleton. The content of this report is meant to inform the Middleton Council on Aging (COA), and organizations that work with and on behalf of older residents of Middleton, for the purposes of planning and coordination of services. Through a process of community engagement and mixed method data collection, the goals of this project are twofold: 1) to inform the planning and design of the future senior center space …

Adult Day Services In Maine: Benefits, Challenges, And Opportunities, Elizabeth Gattine Jd, Eileen Griffin Jd, Kimberly I. Snow Mhsa, Ba

Disability & Aging

In Maine and nationally, adult day services tend to be underfunded and underutilized compared to other types of long term services and supports (LTSS). In part, investment in adult day services is hampered by a lack of standardized data collection and limited research on issues of accessibility, cost-effectiveness, and the impact of adult day services on the broader health system. Lack of uniformity in state regulatory frameworks for licensing, program design, service delivery, and other administrative requirements further complicates cross-state comparisons. Considering these limitations, a key goal of this report is to provide a more detailed and comprehensive understanding of …

Most Home-Delivered Meal Recipients With Dementia Receive Support From Friends And Family, But More Social Activity Is Needed, Claire Pendergrast

Population Health Research Brief Series

Home-delivered meal programs reduce hunger and food insecurity, promote socialization, and improve health and wellbeing for older adults. Regular social support from home-delivered meal drivers, alongside social support from friends and family, may be key to preventing isolation and improving health for older adults with dementia. This research brief shows that home-delivered meal recipients with dementia receive significant support from friends and family, but 83% would like more social activity. To better support older adults with dementia and family caregivers, aging services providers should expand virtual and dementia-friendly social engagement programming.

African-American Lay Pastoral Care Facilitators’ Perspectives On Dementia Caregiver Education And Training, Nik M. Lampe, Nidhi Desai, Tomeka Norton-Brown, Alexandra C. H. Nowakowski, Robert L. Glueckauf

The Qualitative Report

The African-American Alzheimer’s Caregiver Training and Support Project 2 (ACTS 2) is a faith-integrated, skills-training and support program for distressed African American family caregivers of persons living with dementia across Florida. Caregivers participate in a 12-week, telephone-based, skills-building and support program led by faith community workers (i.e., lay pastoral care facilitators) who provide volunteer services to their denominations. In this case study, we examined facilitators’ perspectives and recommendations for supplementary audiovisual and written training materials to optimize group process and goal-setting skills. Utilizing a qualitative approach, we explored facilitators’ needs, experiences in using current training materials, and recommendations for supplementary …

Dementia Care Among Somali Elders, Emmanuel Asante Opoku

All Graduate Theses, Dissertations, and Other Capstone Projects

Caring for persons with dementia is demanding and complicated since there is “no one-size-fits all formula for dementia care. The care needs to be modified to fit the various stages of the condition and each family's unique situation. Racial and ethnic differences place unique demand on all the forms of dementia care; in-home care (IHC), long-term care (LTC), adult day centers(ADC), short term care (STC) and hospice care (HC).

This paper aimed to study how Somali elders think and interact with dementia care services, from in-home care to hospice care. Some recommendations to study this issue is to do a …

A Rapid Review Of Internet Mediated Research Methods With People With Dementia: Practical, Technical And Ethical Considerations, Tharin Phenwan Dr, Judith Sixsmith Prof, Linda Mcswiggan Dr, Deans Buchanan Dr

The Qualitative Report

Doing research with People with Dementia (PwD) can be challenging given that disease symptoms of anxiety, forgetfulness, and fluctuating mental capacity can make recruitment and data collection difficult. Once COVID-19 made face-to-face data collection impractical, using internet-based methods became an alternative option to continue with research. However, data collection with PwD over the internet requires strategies to observe, support, and enable them to engage with research, especially with qualitative approaches. Nine articles were selected via a decade rapid scoping review (undertaken March-June 2020) to identify qualitative online methods used with PwD and associated challenges. Methods used were online interviews, clinical …

Life Satisfaction: Aging Female Informal Caregivers Of Persons With Dementia, Deborah Ann Monson

Dissertations

Purpose/Aims

The purpose of this study was to describe the relationship between aging female informal caregivers of persons with dementia (PWD) and care recipients’ PWD demographic factors, aging female informal caregivers of PWD social support factors, positive and negative feelings, a sense of flourishing, stress, and life satisfaction.

Background/Rationale

Older adults with dementia are living longer and the majority are receiving care by aging female informal caregivers. Dementia incrementally worsens over time impacting informal caregiver life satisfaction. Most studies have focused on negative aspects of informal caregiving. Therefore, this study investigated both positive and negative aspects of caregiving.

Conceptual Basis …

A Person-Centered Care Model’S Effectiveness For Older Adults With Dementia: A Systematic Review And Meta-Analysis, Karen Goeschel

Honors Program: Senior Projects (Public)

I evaluated the effectiveness of person-centered care interventions for older adults with dementia. Quality of life and agitation levels were used as primary outcomes for the effectiveness of the intervention. Electronic databases were searched for studies which satisfied the inclusion principles and did not satisfy exclusion principles. Cluster-randomized trials and non-randomized control trials which compared person-centered care approaches to usual care were included. I performed two random-effects meta-analyses. Six studies with 1,384 patients were included. For older adults with dementia, person-centered care had no significant impact on quality-of-life improvement (SMD = -0.116, p = 0.206) or agitation reduction (SMD = …

Analyzing The Use Of A Montessori-Based Activity & Its Effect On Engagement & Affect In Persons With Dementia: A Replication Study, Emilee J. Andersen

All Graduate Theses, Dissertations, and Other Capstone Projects

Activities are an essential element in institutionalized settings for persons with dementia. Challenges are faced, however, when developing and implementing stimulating and meaningful activities for this population. Over the past two decades, Montessori-based activities (MBAs) have been investigated as a means for meeting the needs of persons with dementia residing in long-term care facilities. MBAs were developed to enhance the quality of life for individuals experiencing dementia through maximization of engaging and meaningful activities. The purpose of the current study was to expand on the empirical literature related to the use of MBAs for persons with dementia by replication of …

Caregiver Knowledge And Perceptions Of Dementia-Specific Nutritional Approaches, Danielle Freitag

All Graduate Theses, Dissertations, and Other Capstone Projects

Dementia is a syndrome that affects millions worldwide. The syndrome can cause great distress not only for the diagnosed individual but also for the family and friends who provide care. It is known that many caregivers for people with dementia face difficulties in planning and preparing meals, feeding, and making nutritional decisions for their loved ones. Several diets have been shown to assist with dementia-related symptoms pre and post diagnosis. However, what is unknown is whether caregivers are aware of the benefits of these diets and what the barriers are to implementing them into their nutrition regime. This study surveyed …

Loneliness, Sense Of Control, And Risk Of Dementia In Healthy Older Adults: A Moderated Mediation Analysis, Hwajin Yang, Germaine Tng, Wee Qin Ng, Sujin Yang

Research Collection School of Social Sciences

Objectives: Despite the rising prevalence of dementia, little research has been conducted to identify modifiable psychological factors that alleviate the risk of dementia in older adults and the underlying mechanisms. Given that loneliness is, in part, concomitant with a weakened sense of control, we examined whether sense of control would mediate the relation between loneliness and dementia risk. Further, considering that working -memory capacity is a critical cognitive resource that serves as a buffer against age-related cognitive decline, we examined a second-order moderated mediational model whereby working-memory capacity moderates the relation between control beliefs and dementia risk in older adults. …

Harmony Study: Pimavanserin Significantly Reduces Risk Of Relapse Of Dementia-Related Psychosis, Erin P. Foff, Jeffrey L. Cummings, Maria-Eugenia Soto-Martin, Pierre Tariot, Bradley Mcevoy, Srdjan Stankovic

Integrated Health Sciences Faculty Research

No abstract provided.

Early Detection Of Mild Cognitive Impairment With In-Home Sensors To Monitor Behavior Patterns In Community-Dwelling Senior Citizens In Singapore: Cross-Sectional Feasibility Study, Iris Rawtaer, Rathi Mahendran, Ee Heok Kua, Hwee-Pink Tan, Hwee Xian Tan, Tih-Shih Lee, Tze Pin Ng

Research Collection School Of Computing and Information Systems

Background: Dementia is a global epidemic and incurs substantial burden on the affected families and the health care system. A window of opportunity for intervention is the predementia stage known as mild cognitive impairment (MCI). Individuals often present to services late in the course of their disease and more needs to be done for early detection; sensor technology is a potential method for detection.Objective: The aim of this cross-sectional study was to establish the feasibility and acceptability of utilizing sensors in the homes of senior citizens to detect changes in behaviors unobtrusively.Methods: We recruited 59 community-dwelling seniors (aged >65 years …

Rural Caregivers: Identification Of Informational Needs Through Telemedicine Questions, Shoshana H. Bardach, Allison Gibson, Kelly Parsons, April Stauffer, Gregory A. Jicha

Sanders-Brown Center on Aging Faculty Publications

OBJECTIVES: The prevalence of Alzheimer's disease and associated disorders is increasing. Rural residents in the United States have less access to memory care specialists and educational and community resources than in other areas of the country. Over a decade ago, we initiated an interdisciplinary rural caregiving telemedicine program to reach Kentucky residents in areas of the state where resources for supporting individuals with dementia are limited. Telemedicine programs involve a short informational presentation followed by a question and answer session; programs are offered 4 times a year. The purpose of this study was to explore questions asked over 1 year …

Barriers To Utilizing Resources For The Dementia Caregiver, Rebecca L. M. Shanafelt

All Graduate Theses, Dissertations, and Other Capstone Projects

The family caregiver of a person with dementia (PwD) provides valuable care and experiences negative health outcomes as a result. These negative health outcomes can be mitigated utilizing resources, however utilization rates remain low. While there is some research on barriers to accessing resources there is very little focused on caregivers of PwD. This study through semi-structured interviews with caregivers of PwD takes a deep look into the experience of first signs, diagnosis, and utilization of resources to better understand what those barriers might be. This study found that because of the healthcare structure caregivers do not learn about resources …

Objective Sleep Quality As A Predictor Of Mild Cognitive Impairment In Seniors Living Alone, Brian Chen, Hwee-Pink Tan, Irus Rawtaer, Hwee Xian Tan

Research Collection School Of Computing and Information Systems

Singapore has the fastest ageing population in the Asia Pacific region, with an estimated 82,000 seniors living with dementia. These figures are projected to increase to more than 130,000 by 2030. The challenge is to identify more community dwelling seniors with Mild Cognitive Impairment (MCI), a prodromal state, as it provides an opportunity for evidence-based early intervention to delay the onset of dementia. In this paper, we explore the use of Internet of Things (IoT) systems in detecting MCI symptoms in seniors who are living alone, and accurately grouping them into MCI positive and negative subjects. We present feature extraction …

Toward An Understanding Of Behavioral And Sensory Experiences When Living With Dementia And Related Disorders: An Environmental Gerontology Perspective, Elizabeth K. Rhodus

Theses and Dissertations--Gerontology

Behavioral and psychological symptoms of dementia create challenges for those living with neurodegenerative cognitive impairment and their care partners. Pharmacological approaches for treatment of challenging behaviors seen in dementia have limited success and serious side effects. Because of this, nonpharmacological approaches are being investigated with increasing frequency. Of particular interest are nonpharmacological approaches involving environmental stimulation to change behaviors. Success of such approaches relies on sensory processing systems, personal preferences, and environmental congruence. There is limited evidence describing behaviors of persons with cognitive impairment in relation to these components. Currently, there is no guiding model for implementation of environmental and …