Disability Studies Commons^™

Neuroqueering Art Therapy: Bringing Neurodivergent Gender Diversity Into The Creative Arts Therapy Room: A Literature Review, Avital Eisen

Expressive Therapies Capstone Theses

Recent research across disciplines has established the significance of the overlap between neurodivergence and gender diversity, a truth long espoused by the community. Acting on this research, some mental health disciplines have begun addressing neurodivergent transgender and gender diverse people as a unified population in their research, but the field of art therapy has not yet followed suit. Theoretical frameworks of intersectionality, queer theory, and disability justice highlight the importance of centering the unique experiences and needs of neurodivergent gender diversity. Using these frameworks, this literature review synthesizes community knowledge with art therapy research on both neurodivergence and gender diversity, …

Evaluation Of The Psychometric Properties Of The Social Communication Questionnaire In Rural Kenya, Patricia Kipkemoi, Jeanne Savage, Joseph Gona, Kenneth Rimba, Martha Kombe, Paul Mwangi, Collins Kipkoech, Danielle Posthuma, Charles Newton, Amina Abubakar

Institute for Human Development

Children can be reliably diagnosed with autism as early as 3 years of age, and early interventions are initiated. There is often a significant gap between the age of onset of symptoms (2–3 years) and diagnosis (8–10 years) in Africa. We conducted a study to validate the Social Communication Questionnaire (SCQ) as a screening instrument in a rural setting in Kenya. The study was conducted along the Kenyan Coast. Study participants included 172 children with a neurodevelopmental disorder (NDD) diagnosis (84 of which were autism) and 112 controls. Internal consistency was evaluated through the use of Cronbach’s alpha, confirmatory factor …

Autism And The Body Of Christ: Understanding, Accommodating, And Accepting Autistic Believers In The Church, Kaitlyn Cook

Senior Honors Theses

Autism is a neurotype that causes a different set of strengths and weaknesses and thus should be embraced and accommodated within the church. Not only are autistic believers able to grasp Christian concepts, but they also have different perspectives and skills that can be instrumental in building up the church. Promoting a correct view of autism and accommodating neurodiversity within the church will allow autistic believers to follow God’s command to be part of a body and build up the church. The church can employ several strategies to create an accessible environment for believers on the spectrum, including creating sensory-safe …

Learning Within The Autism Perspective, Sarina Alvarez, Rebecca King

Spring 2024 Virtual OTD Capstone Symposium

The project addresses the needs of children with Autism Spectrum Disorder (ASD) within school settings, aiming to improve educational outcomes and quality of life. It highlights the role occupational therapists play in fostering collaboration and creating a supportive environment. The program utilizes a variety of activities to positively impact students education and encourage educational participation. Recommendations include further distribution of the activities to different campuses to promote program adoption.

Project Attain: Advancing Trauma-Informed Care For Youth With Intellectual And Developmental Disabilities And/Or Gender Diverse Youth, Kady F. Sternberg, Charlotte E. Bausha, Charlotte Jones, Erin Knight, Crystal N. Steltenpohl, Rebecca R. Parton, Jennifer L. Mclaren, Erin R. Barnett

Developmental Disabilities Network Journal

Children with Intellectual and Developmental Disabilities (IDD) and/or gender diversity are at higher risk of experiencing trauma. Provider knowledge is lacking; trauma, disability, and LGBTQ+ resources are often siloed; and few providers screen for trauma in this population. This paper describes the design, delivery, and initial evaluation of Project ATTAIN (Access to Trauma-informed Treatment and Assessment for Neurodivergent and/or Gender-expansive Youth).

ATTAIN is an ongoing 5-year state-wide initiative aiming to assess readiness to engage in new roles and practices over time; provide state-wide training and consultation in trauma, disability, and LGBTQ+-informed practices; install screening and assessment of trauma exposure and …

Online Learning As A Tool For Accessibility For Autistic Higher Education Students, Keirnan E. Brown

STEMPS Theses & Dissertations

Online learning is becoming more prevalent (Aylmer, 2020) and institutions are seeing an increase in disabled students (HEFCE, 2017; Italian National Agency for the Evaluation of the University System and Research [ANVUR], & National Conference of University Delegates for Disability [CNUDD], 2021; Rao, Edelen-Smith, & Wailehua, 2015). Meanwhile, this group experiences an achievement gap concerning learning and outcomes (ECU, 2017; Eurostat, 2014; Eurostat, 2019; Pearson et al., 2019). Therefore, exploring potential uses of online learning may be beneficial. One related use for online learning is its potential as a tool for accessibility for autistic students. Moreover, a literature gap exists …

Autism At Work Across The Career Span: A Scoping Review, Kate Noel Warnock

Psychology Theses & Dissertations

This scoping review takes a career-span approach to the experiences of autistic people at work. Using Super’s (1994) life-span, life-space theory as a framework, I divided the literature into five career phases: Growth, Exploration, Establishment, Maintenance, and Disengagement. In each phase, I reviewed the challenges and facilitators that autistic people face, highlighting themes that have strong support in the literature, and areas that need further examination in future research. Additionally, I argue that Super’s career framework is not the most parsimonious way to describe the career trajectories of autistic individuals and propose modifications to the framework to better represent their …

The Real Experts: Understanding Autism And Adhd Through The Lens Of The Individual, Mary Little

National Youth Advocacy and Resilience Conference

This presentation aims to spark intentional conversation and change geared towards shattering stigmas around the autistic and ADHD experience. Attendees will enhance their understanding of neuro-divergent populations in order to modify environments and provide interventions aligning with trauma informed care and inclusion. Attendees will also be given the opportunity to embrace the power of self disclosure and mentorship.

Implementation Of The Academic Autistic Spectrum Partnership In Research And Education (Aaspire)-Based Guidelines To Improve Perioperative Care Of Patients With Autism Spectrum Disorder, Kayleigh Brink

Graduate Theses, Dissertations, and Problem Reports

ABSTRACT

Implementation of the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE)-based Guidelines to Improve Perioperative Care of Patients with Autism Spectrum Disorder

Kayleigh Brink

Introduction: Autism Spectrum Disorder (ASD) is becoming more prevalent with an increasing need to identify and eliminate barriers to care. Healthcare Providers (HCP) have shown limited knowledge and confidence when managing patients with ASD. The inability to provide specialized care and recognize symptoms of pain or discomfort could result in behavioral difficulties.

Purpose: The purpose of this project was to improve confidence among HCPs to identify ASD characteristics and to improve the use of …

The Future Of Critical Autism Studies (Cas): Thinking Through Critical Discourse Studies And Postcolonial Feminism, Cansu Elmadagli

Ought: The Journal of Autistic Culture

The field of Critical Autism Studies (CAS) has evolved significantly since its inception, with scholars continually redefining its key tenets and objectives. CAS emerged as a response to conventional medical and social deficit-based models of autism and seeks to challenge the prevailing norm that considers neurotypicality as the unquestioned standard. This article, written by an autistic scholar, aims to contribute to the ongoing discussions in CAS. The article introduces novel perspectives by suggesting connections between CAS, Critical Discourse Studies (CDS), and postcolonial feminism. It advocates for the incorporation of concepts and tools from these traditions to enrich CAS’s approach. Furthermore, …

Critical Autism Studies Beyond Academia: An Annotated List, Alyssa Hillary Zisk

Ought: The Journal of Autistic Culture

This is an introduced and annotated list of sources from beyond academia which are, have been, or may yet be important texts for critical autism or neurodiversity studies. The defining actions of critical autism studies, or of critical neurodiversity studies, have been taken outside academia and will continue to be taken outside academia. This list serves as a reminder of this reality through examples.

Using Linked Digital Activity Schedules To Promote Cooperative Thematic Play, Vincent E. Campbell

All Graduate Theses and Dissertations, Spring 1920 to Summer 2023

Previous research has shown that children with autism spectrum disorder (ASD) may struggle to engage in social play, which may impact their willingness to engage in contextually appropriate cooperative play (Koegel et al., 2014). Researchers suggest that activity schedules targeting cooperative play may increase appropriate play for children with ASD (Brodhead et al.,2014; Pellegrino, 2018). However, previous studies did not include opportunities for interactive choice responding or the implementation of generic picture cues during script training. We investigated the impact of a linked digital activity schedule on promoting cooperative thematic play in children with ASD. Six children with ASD engaged …

Evaluation Of Telemental Health Services For People With Intellectual And Developmental Disabilities: Protocol For A Randomized Non-Inferiority Trial, Luther G. Kalb, Jessica M. Kramer, Tawara D. Goode, Sandra J. Black, Susan Klick, Andrea Caoili, Samantha Klipsch, Ann Klein, Micah P. Urquilla, Joan B. Beasley

Institute on Disability

Background: Roughly 40% of those with intellectual/developmental disabilities (IDD) have mental health needs, twice the national average. Unfortunately, outpatient mental health services are often inaccessible, increasing reliance on hospital-based services. While telemental health services hold potential to address this gap, little is known about the effectiveness of telemental health for the diversity of persons with IDD, especially as it relates to crisis prevention and intervention services. Accordingly, the aims of this study are to: (1) compare telemental health versus in-person crisis prevention and intervention services among people with IDD; and (2) understand if outcomes vary across subpopulations, in order to …

Breaking Me Down And Lifting Me Up: An Autoethnography Of Being A Black Autistic Woman Online, Morgan Harper-Nichols

Ought: The Journal of Autistic Culture

This autoethnography investigates the diverse challenges associated with being a Black, undiagnosed autistic woman coming of age on the internet, and examines how online experiences shaped my identity over the past twenty years. Early encounters with racism and cautious self-expression on platforms such as forums, GeoCities, Myspace, and YouTube are explored as my initial efforts to "fit in" in virtual spaces. I discuss how engaging with platforms like Instagram and Etsy enabled my participation in the gig economy while grappling with my pre-diagnosis social struggles. I also share how I navigate post-2020 experiences as a Black autistic online creator, how …

The Autistic Perspective: Interviewing Autistic Adults On Lived Experiences With Behavior Modification And How It Has Shaped Their Communication, Lighla R. Whitson

Graduate Theses and Dissertations

The use of behavior modification (BM) based treatment, the best-known example being Applied Behavior Analysis (ABA), is established as an evidence-based practice for promoting communication and other outcomes for Autistic individuals. As such, many Speech Language Pathologists (SLPs) use it in their practice to target various forms of communication. Among many autistic advocacy groups, however, ABA and other BM informed therapies are often described as a detriment to mental and emotional health. Organizations such as the Autistic Self Advocacy Network (ASAN) have come out against the practices and recommend finding different approaches to teaching communication skills. Much research is needed …

The Impact Of Music Therapy On Language Acquisition In Children With Nonverbal Autism, Alecia Bernau

Senior Honors Theses

Through an experimental method, the researcher investigated whether children with autism spectrum disorder (ASD) are more likely to develop verbal communication skills after consistent exposure to songs with lyrics. Six children with nonverbal ASD were exposed to the same song with lyrics, with the goal of increased vocalization and language acquisition. Over nine sessions, subjects were pulled to participate in the experiment. The researcher played the song for the participants, recording the responses from each trial and categorizing them as either full words, verbal approximations, or miscellaneous verbalizations. The findings of the study suggest that there is a relationship between …

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

Preparing For The Next Disaster: Lessons Learned From The Early Experiences Of Autistic Adults During The Covid-19 Pandemic, Amber Pomponio Davidson, Cecilia Feeley, Beth Pfeiffer, Mark Salzer

Internet Journal of Allied Health Sciences and Practice

Purpose: Disasters, such as the worldwide COVID-19 pandemic, create significant disruptions for individuals and their communities. Understanding these disruptions is a first step towards planning for future events and disaster recovery. This research aims to explore how the initial COVID-19 restrictions, including lockdowns, impacted adults with Autism (ASD). Method: Using semi-structured interviews to understand how individuals with ASD experienced the early months of the COVID-19 pandemic, twelve participants were interviewed: six individuals with ASD (ages 20-38), three parents of individuals with ASD, and three support staff for individuals with ASD. Analysis: Grounded theory methods were used to analyze the impacts …

Parent Perceptions Of Post-Secondary Programming Completed By Their Adult Children With Autism Spectrum Disorder, Christopher Ramos, Katherine Wheeler, Jennifer Hamrick, Alexis Favela, Katelyn Pennington, Anthonia Prince

Journal of Human Services: Training, Research, and Practice

Texas Tech University's Burkhart Center for Autism Education and Research works with communities & families in the greater West Texas area to provide supports and services to individuals with Autism Spectrum Disorder with a primary focus on building independent living and vocational skills in a post-secondary environment. In this study, parents of individuals with ASD who had completed the Burkhart Center’s Transition Academy completed an online survey. Parents identified areas in which they were satisfied with their child’s post-secondary experience as well as dissatisfaction, and of additional need. The findings of this current study may provide critical information to post-secondary …

Remote Working And Online Education Among Neurodiverse Individuals, Kendall Smith

Emerging Writers

Many jobs and schools closed in response to the Covid-19 pandemic, and a vast majority of students and employees found it difficult to resume their education and careers online; however, those on the neurodiverse spectrum found it much harder. Upon first glance, it was easy to see how frustrating and stressful online schooling was for special needs students. Many had difficulty concentrating during virtual lectures or lacked motivation to stay on task. Likewise, many neurodiverse employees found that at-home distractions were far worse than in-office ones, and the loneliness from staying home all day was jarring. But after pulling research …

“For All My Students, I Just Want Them To Love Learning, I Just Want Them To Love Life. To Love The Possibility Of Who They Are”: A Qualitative Study Investigating The Multifaceted Roles Of Special Educators At A Small Autism School In The Hudson Valley, Sydney Simone Darling

Senior Projects Fall 2023

This is a qualitative study which investigates the multifaceted roles of special educators.The United States is currently facing a crisis in teacher attrition. Attrition destabilizes schools, and negatively impacts student outcomes. Special education teachers are the teachers most likely to leave their field. In hopes of reducing attrition, this study seeks out the unique perspectives of special educators. Six special educators from a small school in the Hudson Valley completed 15-45 minute semi structured interviews. Interviews were transcribed and coded in a software MAXQDA. 3 themes were generated. These themes are: continuous learning, expending emotional labor, and balancing care with …

Everything’S Gonna Be Kinda Queer: Autistic Gender & Sexuality In Everything’S Gonna Be Okay, Jinx Mylo

Ought: The Journal of Autistic Culture

This paper analyzes the representations of autistic characters in the television show Everything’s Gonna Be Okay in relation to gender and sexuality. In contrast to previous screen representations, the four autistic characters provide a variety of gender expressions and sexual orientations, challenging the stereotypes that perpetuate the idea of autism being limited to heterosexual men. Issues explored include attitudes toward autistic sexual consent and agency, sexual experimentation, and the impacts of communication norms on romantic relationships.

The Road To Championship: An Example Of An Individual With Autism Spectrum Disorder, Halil Sarol, Rıfat Kerem Gürkan, Bülent Gürbüz

Baltic Journal of Health and Physical Activity

The aim of this research is to investigate the road to championship of an individual with Autism Spectrum Disorder (ASD) who began physical activity in childhood under parental influence and won medals in competition as an athlete. In this research, founded on the phenomenological pattern from qualitative research models, data were collected in a semi-structured interview. Face-to-face interviews were held with the family, coach and the research participant. The content analysis method was used. The individual with ASD began a physical activity program in a special education center in childhood under parental influence and psychiatric referral. The individual with ASD …

Belonging Amidst Bias: Embracing Difference On The Path To Common Humanity, Alyssia Sheikh

Mindfulness Studies Theses

The mindfulness community prioritizes self-awareness and common humanity, but is often entrapped by the idea that oneness is equivalent to sameness. This inclination for objectivity is rooted in the same neural propensities that facilitate bias; the brain is a subjective organ, however, and so neurologically speaking, bias is inevitable. This paper asks: Is striving for sameness separating us from interconnectedness? A human experience is a subjective, diverse, and variable one. The path to shared humanity and social justice co-occurs with increasing cultural humility through mindful awareness and acknowledging our subjective nature. Exploring our neurological tendency to make assumptions, we …

Evaluating The Use Of Inclusive Teaching Materials For Learners With Autism, Juliana Aguilar

All Graduate Theses and Dissertations, Spring 1920 to Summer 2023

In the last decade, the field of applied behavior analysis (ABA) has committed to working on diversity, equity, and inclusion (DEI). The work began with call-to-action papers, empirical work on cultural accommodations, and most recently, the certifying board has changed the professional standards for board-certified behavior analysts (BCBAs). An objective and measurable step that BCBAs can take to adhere to the new ethical and professional standards is to use inclusive teaching materials. Inclusive teaching materials are teaching materials that reflect the diversity of society. This study compared the rate of learning and generalization between an inclusive and non-inclusive set of …

The Social Ontology Of Psychiatry: Psychiatric Diagnosis As An Ontogenetic, Interpellative Speech Act, Ashton Sorrels

Graduate Theses and Dissertations

Psychiatry is the study, evaluation, and treatment of mental disorders – disorders that affect the behavior and cognition of individuals and which are associated with underlying dysfunctions in the brain and nervous system. Though psychiatry is a medical and scientific discipline, it also takes place within a social context that modifies its effects, particularly in its application of diagnostic categories to individuals. In this thesis, I argue that, because of this context, psychiatric diagnosis can be modeled as an ontogenetic, interpellative speech act. A speech act is an utterance or sign that constitutes an action through its performance, called an …

Autism: A Teacher's Guide, Kaitlyn Schaps

Dissertations, Theses, and Projects

Studies have shown that many educators are not prepared to teach children with ASD in their classrooms, as they may not be familiar with the characteristics of these children (Jiar Yeo & Teng, 2020) and do not have the knowledge needed to help them succeed.

In this guide, we discuss the different characteristics of ASD, how they affect a child’s education, how to collaborate with families, and research and evidence based (proven to be effective through research and quality studies) intervention strategies that will assist general education teachers, paraprofessionals, special education teachers, and any other professional in the educational field …

It's Just Caring: Improving The Museum Experience For Visitors With Autism Through Social Narratives, Reagan R. Stone

Honors Theses

This project explores how museums can improve the visitor experience for visitors with disabilities, more specifically for visitors with autism. In general, museums are environments that have a specific set of rules, guidelines, and built-in social interactions that visitors are expected to understand and follow. These guidelines, as well as the sensory overload that exists within a new environment, can make visiting the museum a stressful, and even negative experience for individuals with autism and their families. A social narrative, a simple written and visual guide that explains characteristics of new environments and various aspects of social situations, is a …

Autism: A Qualitative Content Analysis Of Counseling Journals, 1986-2021, Danielle Weller

Dissertations, Theses, and Projects

Abstract

This qualitative content analysis (QCA) examined three American Counseling Association (ACA) journals and how Autism Spectrum Disorder (ASD) is covered in them: Journal of Counseling Development (JCD), Journal of Multicultural Counseling Development (JMCD), and Counselor Education and Supervision (CES). Within the three listed journals, there were a total of 4,749 articles published from the years 1986 to 2021, with a total of 6 articles found related to ASD. Throughout the QCA process, four themes were established: Diagnosing Autism Spectrum Disorder, Considerations for Counseling Individuals with Autism Spectrum Disorder, Treatment for Children with Autism Spectrum Disorder, and Neurofeedback in Counseling. …

Square Pegs Community Arts On Campus, Gabrielle Marina Ortega-Miller

MSW Capstones

My capstone project started with a qualitative research study exploring the value of music through the voices of Autistic adults, for without their voices—whether verbal, non-verbal, or verbally limited—it is difficult to know what the value of music is in their lives. The inclusion and leadership of Neurodivergent Black, Indigenous, and students of color (BIPOC) in the UWT Neurodiverse community is one focus of this project; the other is to provide a community space for all Neurodivergent students at UWT to feel welcome and safe, create art, and support each other. Square Pegs Community Arts on Campus is built on …