Disability Studies Commons^™

“When I’M Not Heard, I Feel Like I Don’T Matter”: Advancing Equity In Disability Policy Through Critical Participatory Action Research With People With Intellectual Disability, Cris Marchionne

Student Theses

People with intellectual disability deserve a system that offers flexible, timely, and person-centered support — one that is innovative, sustainable, and holistic in enabling them to live fulfilling lives. This qualitative study, grounded in Critical Participatory Action Research (CPAR), examines how people with intellectual disability experience participation in decision-making within New York State's disability service system. By centering lived experience, the study identifies factors that facilitate or hinder participation in decision-making and examines structural, social, and policy-related barriers that limit agency. Through six focus groups and a Photovoice project with self-advocates receiving OPWDD services, participants described systemic barriers that limited …

Breaking The Cycle: From Victimization To Offending Through The Lens Of Human Services, Colette R. Penalosa

Master of Arts in Human Services

The victim-offender overlap challenges the common view that victims and offenders are separately labeled by recognizing that both groups have experienced significant childhood trauma, physical, emotional, and psychological abuse, neglect, and other adverse childhood experiences (ACEs). Current research implies these experiences can increase the risk of offending as they all influence cognitive and behavioral development while leaving criminal behavior undetermined. The purpose of this capstone is to analyze the relationship between childhood victimization and offending from a human service perspective; analyzing the pathways a victim takes on the road to offending. Research conducted will focus on exploring the victim-offender overlap, …

Looking Beneath The Surface: Understanding Fetal Alcohol Spectrum Disorder Through The Caregiver’S Lens—Support, Advocacy, And Self-Care, Melissa Fredin

Master of Arts in Human Services

Fetal Alcohol Spectrum Disorder (FASD) is a lifelong neurodevelopmental disability resulting from prenatal alcohol exposure that can affect cognitive functioning, adaptive skills, communication, emotional regulation, and daily living abilities. Individuals with FASD and their caregivers often face complex challenges while navigating behavioral, educational, healthcare, human service, and criminal justice systems. Although awareness of FASD continues to increase, gaps remain in caregiver education, professional understanding, and access to coordinated, trauma-informed supports. The literature indicates that caregiver education is central to improving outcomes for individuals with FASD and is associated with stronger advocacy, more effective support strategies, greater caregiver resilience, and improved …

Students With Borderline Intellectual Functioning: Dropping The Label And Reducing The ‘Line’, Samantha M. Sitzman

Educational Specialist, 2020-current

Students with Borderline Intellectual Functioning (BIF) often experience significant academic and social-emotional difficulties while remaining ineligible for many formal special education services, creating challenges in identifying and supporting this population within school settings. This convergent mixed methods study examined school psychologists’ perspectives regarding the challenges experienced by students with BIF, the interventions commonly used to support them, and the systemic barriers associated with service delivery. Twenty-two practicing school psychologists in Virginia completed a researcher-developed survey containing quantitative and qualitative items. Quantitative data were analyzed using descriptive statistics, and qualitative responses were analyzed using thematic analysis.

Findings indicated that school psychologists …

A Critical-Constructivist Grounded Theory Exploration Of The Mental Health Experiences Of Individuals With Intellectual Disabilities In Post-Secondary Settings, Alyssa L. Decker

Dissertations, 2020-current

Individuals with intellectual disabilities (ID) now have access to higher education, often through inclusive post-secondary education programs (IPSE), to increase employability and quality of life. IPSE programs, historically, have provided academic and life skill support and not mental health support within programs’ curricula. A recent review of IPSE programs reveals that if mental health services are included, they are often accessed through university health services. Transitioning from high school to college induces high levels of stress, which can exacerbate underlying mental health conditions. Mental health care is defaulted to an already overburdened college counseling center without the knowledge and skills …

Comparing Error Correction Strategies In Discrete Trial Training For Children With Autism, Rachael Litchford

All Graduate Theses and Dissertations, Fall 2023 to Present

Children diagnosed with Autism Spectrum Disorder (ASD) often require structured, evidence-based teaching methods to promote skill acquisition. Discrete Trial Training (DTT) is one such approach widely used in Applied Behavior Analysis (ABA) to teach skills through repeated learning opportunities. However, limited research has compared the efficiency of specific error correction procedures within DTT. This study examined the comparative effectiveness of two error correction strategies, Active Student Response (ASR) and Model-Only, when acquiring tacting skills for children ages 2-10 with ASD. An alternating treatments design (ATD) was used to evaluate each strategy’s impact on skill acquisition, as measured by the percentage …

The Effects Of Functional Coaching On Increasing Functional Play Behaviors In Adults, Abby L. Pattengale

Theses and Dissertations

Play is a critical developmental context for children with autism spectrum disorder (ASD), supporting cognitive, social, communication, and adaptive skill development. However, many adults, specifically registered behavior technicians (RBTs), demonstrate limited engagement in developmentally appropriate play behaviors, which can restrict the quality of play-based interventions, which are essential for effective treatment. However, little research has examined interventions designed to improve adult play behaviors. The purpose of this study was to evaluate the effects of functional coaching on increasing adult functional play behaviors during therapy sessions with children diagnosed with ASD. Two RBTs participated in the study, and two children receiving …

Disproportionality And Possibilities: State-Level Policy Recommendations For Special Education Oversight In A Shifting Federal Landscape, Amanda B. Roberts

Electronic Theses and Dissertations

This study employed a convergent parallel mixed-methods design to explore how U.S. states identify and respond to disproportionality in special education within a shifting federal policy landscape. As uncertainty surrounds the future role of the U.S. Department of Education, questions have emerged about states’ capacity to safeguard educational equity. Without federal oversight, states would assume responsibility for maintaining protections for students with special needs, making it critical to strengthen safeguards for marginalized and underresourced populations.

This study analyzed the current special education governance structures nationwide to inform equity-oriented policy and practice recommendations. Quantitative data were collected from Individuals with Disabilities …

Assessing The Influence Of Disability Views On Perceptions Of Hearing Aids Among Older Korean Adults, Stasha Lee

Dissertations, Theses, and Capstone Projects

Background

Age-related hearing loss, also known as presbycusis, is highly prevalent among older adults, yet hearing aid adoption remains low, in part due to concerns about stigma and negative social perceptions. This study aimed to examine whether attitudes towards disabilities influence perceptions of individuals wearing hearing aids among older Korean adults. It also explored the potential effects of cultural identity and the age of the individual wearing the hearing aid on these perceptions.

Methods

Ten participants completed the Attitudes and Perspectives on Persons with Disabilities (APPD) questionnaire and rated 8 different images of individuals (one younger male and one older …

Enhancing Ecological Validity In Speech-In-Noise Testing: Integrating Virtual Reality For A Multisensory Audiological Experience, Paulina Lee

Dissertations, Theses, and Capstone Projects

Despite the remarkable advances in hearing healthcare technology, the speech recognition tests used in routine clinical audiological assessment have remained essentially the same for decades.  Monosyllabic word recognition tests in quiet, such as the Northwestern University Auditory Test No. 6 (NU-6; Tillman & Carhart, 1966), have served as the audiology field’s default measure of speech understanding.  Modern speech-in-noise (SIN) tests, such as the QuickSIN (Killion et al., 2004), have emerged, yet they remain auditory-only, leaving an unignorable gap between what clinical tests measure and how patients communicate in daily life.  The present study examined whether pairing a standard SIN test …

Disability Experiences Of University Students: An Interview Study, Cece Austin

University Honors Theses

This thesis explores the experiences of college/university students with disabilities within the educational system. Using a qualitative research design, semi-structured interviews were conducted with students who identify as disabled or having disabilities in order to explore impacts of disability on their lives, with a focus on experiences navigating academic environments and accessing accommodations. Findings revealed two recurring themes: 1) the importance of both registered accommodations and accessibility efforts from faculty, and 2) difficulties with accommodations, internalized ableism, and disclosure. This research contributes to broader discussions on disability, inclusion, and educational equity by highlighting the lived experiences of students with disabilities …

Applying A Neurodiversity-Informed Approach To Understanding Resolution In Families Raising A Child With Autism, Emma Manole

Honors College Theses

The first known documentation of the syndrome we today refer to as autism spectrum disorder (ASD) was published by Austrian psychiatrist Leo Kanner (1943), who identified a cluster of disordered symptoms among 11 young children, which he termed “early infantile autism”. Consequently, the psychiatric world became aware of autism as its own disorder separate from schizophrenia or “childhood psychosis” (Wing, 1997). Since then, the ways in which autism is studied, diagnosed, referred to, defined, and treated have seen drastic changes (Blacher & Christensen, 2011) over the course of almost a century. It is only natural that the perceptions held by …

Reclamando Corazón Y Voz: Latinas Speak Their Truth Through Plática As Resistance In California Community College Learning Disabilities Assessments, Maricela Becerra

Dissertations

Although California Community Colleges (CCCs) offer learning disability (LD) assessments to determine eligibility for academic accommodations, for Latina students navigating converging forces of race, gender, language, citizenship, and ableism, these assessments often surface unspoken histories of harm. This study advanced Chicana feminista DisCrit (CFDC), extending disability critical race theory through Chicana spirituality and cultural intuition to examine possibilities when an educadora situates assessments in a plática grounded in consideración—respectful, relational, and unhurried care.

Rooted in Chicana feminist pláticas methodology and authored from the positionality of a disabled Latina scholar–practitioner, this qualitative decolonial dissertation explored how Latina students reflected on …

Who Gets To Be Taken Seriously? Three Atypical Scholars Navigate Doctoral Education At The Intersections Of Race, Neurodivergence, And Veteran Identity, Sr. Richard De La Garza

Dissertations

As a first-generation, neurodivergent, Mexican American/Chicano veteran, I entered the University of San Diego's doctoral program having had experiences that most institutional intake processes would label as risk factors. The Findings chapter of this dissertation begins by describing those experiences—not as a confession, but as the foundation for a systematic inquiry into how doctoral legitimacy is produced, withheld, and defended. The description of my life experiences is followed by a discussion of the doctoral journeys of two other study participants who also were atypical doctoral candidates.

The central argument being advanced is this: What higher education calls "fit," "rigor," and …

Practitioners’ Experiences Of Developmental, Individual Differences, Relationship-Based (Dir) Approach In Their Professional Practice With Neurodivergent Clients: A Hermeneutic Phenomenological Study, Ekaterina Sidor

Educational Studies Dissertations

This phenomenological study explores how professionals experience integrating the developmental, individual-differences, and relationship-based (DIR) framework in their work with neurodivergent clients. Although DIR is recognized as an evidence-based developmental approach in the field of autism support, little is known about how its integration affects practitioners themselves. Grounded in relational-cultural theory and transformative learning theory, the study examines how engagement with DIR influences practitioners’ professional practice and development. Using a qualitative, hermeneutic phenomenological design, data were collected through open-ended questionnaires and in-depth interviews with multidisciplinary professionals from diverse international contexts who completed DIRFloortime training and actively implement DIR in their work. …

Multiple Interest Holder Perspectives Of The True Grit Sci Residential Program: A Mixed Methods Program Evaluation, Keara Mcnair

Seton Hall University Dissertations and Theses (ETDs)

Young adults with spinal cord injury (SCI) face significant challenges during the transition to adulthood, including barriers to independence, community participation, and psychosocial adjustment (Ingimarsdóttir et al., 2023; Zebracki et al., 2010). Current rehabilitation models in the United States prioritize short-term physical recovery and offer limited support for the developmental and contextual needs that shape long-term outcomes after SCI, particularly during transitions from inpatient rehabilitation to the community (Anderson et al., 2024; Bryden & Gran, 2024). Community-based programs may help address these gaps, though few have been rigorously evaluated using implementation science frameworks that attend to health equity, contextual influences, …

The Use Of Video Modeling With Older Learners With Autism Spectrum Disorder To Increase Adl Skill Acquisition: A Systematic Review, Marianne Feliciano

Seton Hall University Dissertations and Theses (ETDs)

Autism spectrum disorder (ASD) is a lifelong condition that can significantly impact functional independence across the lifespan. Although video modeling is an evidence-based intervention shown to improve adaptive and daily living skills in children and young adults with ASD, its effectiveness for adults aged 40 years and older remains unclear. This systematic review examined the existing literature on the use of video modeling to increase daily living (ADL) skills and independence among older adults with ASD. A systematic review of PsychINFO via EBSCO was conducted according to PRISMA guidelines. Of 578 records initially identified, 20 full-text articles were assessed for …

The Effect Of Dialogic Reading With An Adapted Reader On Narrative Reading Comprehension Of High School Students With Autism Spectrum Disorder, Ramella Lee

UNLV Theses, Dissertations, Professional Papers, and Capstones

Reading comprehension is essential for accessing grade-level content; however, students with autism spectrum disorder (ASD) often demonstrate narrative comprehension difficulties related to language inferencing and self-regulation (Constable, 2013; Duke & Cartwright, 2021). Dialogic reading is an evidence-based shared reading practice that uses systematic prompts and contingent consequences to strengthen verbal behavior (Whitehurst et al., 1988; IES, 2007). Despite demonstrated effectiveness with young children with ASD, experimental research on dialogic reading with secondary school-aged students, particularly those requiring adapted instructional materials, remains limited (Hudson & Test, 2011; Spooner et al., 2012). The purpose of this study was to evaluate the effects …

Neurodiversity In Counseling: Counseling Strategies For Supporting Neurodiverse Clients, Emily R. Plowright

Educational Specialist, 2020-current

Neurodiversity recognizes the natural differences in human functioning, including the unique ways that individuals think, learn, and process information. The neurodiversity movement views these differences as valuable, challenging historical beliefs that label them as deficits. Despite growing awareness of neurodiversity, counseling research and practice have largely overlooked the unique needs of neurodiverse clients, resulting in barriers to accessing mental health care. This paper addresses the concept and models of disability to provide context for understanding neurodiversity. Neurodiverse identities, such as attention-deficit/hyperactivity disorder (ADHD), autism spectrum disorder (ASD), specific learning disorders (SLDs), and tic disorder, are explored through their diagnostic criteria …

Signs Of Belonging: Community Identities Of Deaf Elders In Central And Coastal Massachusetts, Nelia Eaddy

Undergraduate University Honors Capstones

This study focuses on shared experiences and themes of community identities within the elder Deaf community of central and coastal Massachusetts. Lived experiences and linguistic journeys shape our overall senses of belonging and identities; subsequently, they profoundly affect our relationship to our communities (Eastaugh, 2019). This research study discusses how concepts of belonging shift as individuals age within their community and how that impacts their sense of belonging and experiences with language. Communities where individuals feel a sense of belonging encourage identity development. The experiences of elders who identify as “Deaf” (due to their language preference and cultural influences) within …

The Legacy Of Lead: Lead Exposure's Harmful Effects And Its Concentration In Poc Communities, Layla Sophronia Barber

Student Theses 2015-Present

This thesis examines the disproportionate burden of lead exposure carried by low income, POC communities. The systemic nature of this problem is a symptom of a longstanding legacy of environmental injustice in the United States. Decades of federal neglect are reflected in the higher statistics of lead exposure and poisoning in predominantly black communities. While it is understood that lead exposure poses a serious threat to physical health and early cognitive development, there is a discouraging lack of urgency to remove the toxin from non-wealthy communities. The material covered by this thesis aims to identify and correct the discriminatory social …

Prematurity And Special Education: Raising Awareness Of The Connections Between Preterm Births And Special Education, Nadia R. Corder

Honors Theses

In this thesis, the goal was to find the link, if any, between prematurity and special education, with regards to probability of special education and outcomes, and to create a means of professional development for not only special education teachers about prematurity risks and effects on students but also parental education about the possible procedures of their child’s education. This is accomplished through the organization of infographic pamphlets for parents and an online professional development presentation. Both these formats are compliant to the Americans with Disabilities Act (ADA) accessibility parameters. A literature review was conducted to achieve this goal using …

Exploring Identity Through Clay: A Humanistic Art Therapy Case Study With A Blind Chinese Adoptee, Virginia Jade Leicht

Expressive Therapies Theses

This qualitative case study explored how working with clay in art therapy can help support a blind man’s identity exploration. This paper addresses the problem of many traditional therapeutic approaches within the art therapy realm: They rely too heavily on visual engagement, which can limit the accessibility and opportunities for self-exploration and identity development for those who are blind. The study was grounded in current research and foundational theories based on the humanistic art therapy approach. Clay is considered an accessible medium that engages multiple senses and allows for emotional exploration and meaning making, specifically through tactile and sensory-based engagement …

Faculty And Academic Advisor Perspectives On Embedded Certifications Supporting Neurodivergent Learners, Katherine B. Watkins

Human Nutrition and Hospitality Management Undergraduate Honors Theses

This study explores the experiences, strengths, and challenges of neurodivergent individuals within educational and social environments, with a focus on promoting inclusivity and understanding. Neurodivergence, encompassing conditions such as autism, ADHD, dyslexia, and other cognitive variations, is increasingly recognized not as a deficit but as a natural form of human diversity. The research examines how traditional systems often fail to accommodate diverse cognitive styles, leading to barriers in learning, communication, and self-expression. Using a mixed-methods approach, the study combines quantitative survey data with qualitative interviews to capture both broad trends and personal narratives. Participants reported that rigid structures, sensory overload, …

Bridging The Gap: Educating Students On The Neurodiverse Experience, Riley Axtell

Human Development and Family Sciences Undergraduate Honors Theses

Neurodivergent students face misunderstanding, stigma, and systemic barriers that impact academic and emotional well-being. The purpose of this study was to develop and implement a curriculum-based project designed to educate college students about neurodiverse experiences and improve knowledge, empathy, and understanding. The curriculum was administered in two formats: an in-person format with pre- and post-survey measurements and an online “choose your own adventure” implementation utilizing post-survey measurements. Participants engaged in simulated cognitive and sensory activities that represented experiences associated with dyslexia, ADHD, dysgraphia, and dyscalculia. Although limited by a small sample size, reliance on self-report measures, lack of a pre-survey …

Self-Determination, Campus Involvement, And Disability Awareness Of Young Adults With Intellectual Disability, Zoe Bloecher

Honors Theses

This quantitative and qualitative study examined self-esteem; self-efficacy; self-determination; and disability awareness at the beginning and end of the semester in a sample of young adults with intellectual disability enrolled in a post-secondary education program. Participants’ weekly campus engagement in extracurricular activities during the semester was also tracked. The first goal of this study was to observe changes in self-determination satisfaction and frustration, self-esteem, self-efficacy, and disability awareness after one semester of enrollment in the program. There were 16 participants in the study who varied in their length of participation in the program. Dependent t-tests revealed a statistically significant decrease …

Ableism In Higher Education: Platicas Framing Faculty Perception Of Student Accommodations And A Call To Action, Stephanie P. Rivas

Electronic Theses, Projects, and Dissertations

Academic ableism and traditional educational practices hinder the success of disabled students (Dolmage, 2017). As a student with disabilities, I have witnessed gradual improvements in the perception of disabilities in education. However, academic ableism persists in today’s higher education institutions, which can be disheartening for students like me, an unapologetically disabled person. This study employs framing theory, a communication theory that explains how people interpret and organize information (Goffman, 1947). These frames influence how accommodations are perceived, shaping attributes and connections between behaviors and potential causes (Tewksbury & Scheufele, 2019). Using platicas, a kind of cultural method of open conversational …

Ptsd, Policy, And Passion: An Advocate's Autoethnographic Journey To Improve Veteran Care, Christopher L. Stansbury

Dissertations

                                                                Abstract

This autoethnographic study focuses on Post-Traumatic Stress Disorder (PTSD) among U.S. veterans and the policies and practices that impact life outcomes. The research answers the questions: (1) what insights emerge from the author’s embedded advocacy experience; (2) what systemic barriers impede veterans’ access to PTSD treatment; and (3) how does military culture shape help-seeking behavior. This research draws on the author’s multigenerational and institutional ties to military service—as descendant of a Korean-era veteran, Marine and Army servicemember, VA employee, and veteran advocate. The researcher constructs detailed autoethnographic and composite narratives of the lived experiences of service members who develop …

Supporting An Inclusive Summer Camp For Children With Developmental Disabilities Who Use Aac And Their Neurotypical Peers: A Practice-Based Report, Jessica Hicks

Communication Disorders and Occupational Therapy Undergraduate Honors Theses

For my honors research, I completed an internship in an augmentative and alternative communication (AAC) lab at the University of Arkansas. For most of my internship work, I helped support an inclusive AAC summer camp for children with and without developmental disabilities, such as autism, for whom speech does not fully meet their communication needs. AAC includes high-tech tools such as communication apps on tablets that serve as speech-generating devices (SGDs). SGDs were used by many of the AAC summer camp participants with developmental disabilities. In this report, I will provide background information on AAC and developmental disabilities. I will …

Towards Dementia-Inclusive Digital Text-Based Health Information: A Multi-Method Investigation Of Cognitive And Affective Accessibility, Margi Engineer

All Dissertations

This dissertation examines the accessibility, readability, emotional tone, and trustworthiness of digital, text‑based dementia information and investigates how older adults with and without dementia cognitively and affectively engage with such content. It further explores the potential of generative AI to improve dementia information delivery through the development of a domain‑specific retrieval‑augmented generation (RAG) large language model (LLM) chatbot designed to deliver accessible, stigma‑free information. The dissertation comprises four studies using complementary quantitative and qualitative methods. Study I conducts a large‑scale content analysis of 300 medical articles, 35 websites, and 50 blogs, applying readability metrics, LIWC‑based linguistic and sentiment analysis, and …