Disability Studies Commons^™

Examining The Effect Of Having A Disability On The College Experience, Grace Dudley

James Madison Undergraduate Research Journal (JMURJ)

Among people 25 or older in the United States in 2022, just 21% of individuals with a disability had earned a bachelor’s degree or higher, while 38% of individuals without a disability had earned a bachelor’s degree or higher. Previous research has identified a variety of barriers that students with disabilities may face as they pursue postsecondary education. The purpose of this study was to examine barriers students with disabilities (SWDs) face once they arrive at college in order to investigate how higher education may be made more accessible. Barriers were assessed by surveying SWDs attending James Madison University, a …

The Legacy, Importance, & Impact Of Lend: Evidence And Personal Stories, Emily Zalimeni, Emma Stone, Alexa Fortier, Leia Getchell, Nataliya Kloyzner, Asha Abdullahi, Elizabeth Barkoudah, Meghan Chapman, Meredith Close, Heather Engholm, Melissa Levin, Aanchal Sharma, Sarah Sparks, Patricia Rissmiller, Amy Szarkowski, Jason M. Fogler

Developmental Disabilities Network Journal

Leadership Education in Neurodevelopmental and related Disabilities (LEND) programs offer an interdisciplinary/interprofessional training opportunity for medical and allied health professionals, and individuals impacted by disability, including family members and self-advocates. Toward the aim of advocating for the enduring need of LEND and similar training programs, this article centers the voices of a subset of our alumni who have advanced the rights and improved the lives of persons with intellectual and developmental disabilities. These stories are intended to illustrate the key lessons and principles of LEND training, including attending to disability issues in education, growing skills within and between individuals working …

Access Intimacy In The Feminist Classroom: Co-Creating Course Policies, Expectations, And Access Measures As Feminist Disability Praxis, Krystal Cleary

Feminist Pedagogy

In this essay, I outline an activity to foster access intimacy (Mingus, 2011) in the feminist classroom through students’ co-creation of course policies, expectations, and additional access measures. This activity transforms the classroom into a praxis laboratory wherein students analyze the normative structures that shape their hyperlocal classroom context and practice building environments characterized by interdependent solidarity rather than atomized competition. As feminist disability praxis, this activity centers the knowledge of disabled, chronically ill, and neurodivergent scholars and students; in doing so, it customizes the classroom to a diversity of learners and builds adaptability for responding to unforeseen challenges into …

Our Children Are Sacred: Faith, Disability Justice, And Educational Hope, Charles E. Becknell Jr., Pricella Morris, Monique Matute-Chavarria, Deirdre A. Williams

The Journal of Faith, Education, and Community

This manuscript examines how Black families interpret dis/ability through faith, caregiving, and communal life using Sacred Narrative Inquiry (SNI), a collaborative approach that treats family stories as sources of sacred and cultural knowledge. Grounded in disability theology and informed by Black liberation theology and Womanist epistemology, the study explores how families understand dis/ability as sacred and embodied, shaped by struggle, endurance, and hope. Through shared storytelling and collective interpretation, the analysis identifies recurring patterns of early moral formation, embodied knowledge that precedes institutional recognition, faith as a sustaining practice under constraint, and moments of recognition that affirm dignity and interrupt …

Collaboration Is Key: Improving And Increasing Inclusive Programming Through Partnership, Brandy D James, Elizabeth Sparks, Fiona S Davey, Burris Duncan, Nadine Chau

Journal of Extension

Collaborative partnerships between Cooperative Extension offices and the University Centers for Excellence in Developmental Disabilities are a key opportunity to assess and improve accessible, inclusive programming for the communities they serve. This article outlines such a partnership between local Extension, the local UCEDD, and the local Network for Down Syndrome. It reviews their collaborative process and the resulting pilot program—-an inclusive cooking class. Evaluations of the program and collaborative process demonstrate that the partners' collaboration enabled organizational capacity building and improved service provision for persons with Down Syndrome.

“Pride Runs Through Our Veins”: A Qualitative Investigation Of Black Parents’ Ethnic-Racial Socialization Practices Among Black Youth With Disabilities, Nicole A. Telfer, Danielle J. Allen, Noreen Yazejian, Iheoma U. Iruka

Developmental Disabilities Network Journal

While ethnic-racial socialization (ERS) practices are crucial in Black/African American families, little is known about ERS practices in Black families of Black children with disabilities. In the current study, we investigated ERS practices among Black/African American parents’ who are raising children with disabilities and how this may influence children’s outcomes. A total of N = 8 Black/African American parents were invited for semi-structured interviews to explore more deeply their ERS practices among their children with disabilities. Several themes emerged from the data, which highlights ERS practices from a DisCrit lens, as well as the overall experiences of parents and their …

The Virtue Of Hope In Sports Through Spe Salvi And Its Role In Faith, Resilience, And Character Formation In Student-Athletes, Hansson G. Labisig, Arvin D. Eballo

Movement and Being: The Journal of the Christian Society for Kinesiology, Leisure and Sports Studies

Pope Benedict XVI, in Spe Salvi, presents hope as a transformative and redemptive virtue that enables believers to live and suffer differently, rooted in faith in God. He writes, “The one who has hope lives differently.” This study develops a theological-pastoral framework for integrating the virtue of hope into the faith formation of student-athletes within Catholic educational institutions, positioning sport as a genuine locus theologicus for Religious Education and evangelization. Employing the See–Judge–Act methodology, it draws from Spe Salvi, Aquinas’s Summa Theologiae, and the Vatican document Giving the Best of Yourself, in dialogue with C. R. Snyder’s psychological theory …

The Voices In Our Heads: Interrogating And Unsettling Internalized Ableism In/For Music Education, Juliet Hess

Visions of Research in Music Education

In this article, I grapple with the internalized ableism I have been navigating upon becoming disabled in 2023. The task of this article is to consider the external forces that shape our ideas about disability with particular attention to socialization processes and larger oppressive systems such as neoliberalism. I specifically consider the messages that different representations, ideologies, and structures communicate to the population at large about disability in order to address why these messages are so often internalized in detrimental ways. Exclusion, I argue, is the societal default for disability and I historicize the different movements that have contributed to …

Advocating For A Care-Based Ethic: Stories Of Pregnancy And Birth From Caregivers Of Children With Down Syndrome, Lydia Ocasio-Stoutenburg, Nayma Sultana Mim

Developmental Disabilities Network Journal

Down syndrome (DS) impacts about 1 in every 640 childbirths in the United States. While quality of life has improved for people with DS, systemic inequities and deficit-based perceptions have persisted throughout history, with material impacts on people with DS and their caregivers. Researchers have documented how caregivers of children with DS have had negative experiences with healthcare providers and genetic counselors, whose biased views about DS translate into subtle and overt pressures. Few studies explicitly focus on the experiences of Caregivers of Color, multilingual families, as well as families with varying economic experiences who have children with DS. This …

Ucedd Innovations Lead To Idd Networks’ Driving Change: Envision, Empower, Employ, Suzzanne Freeze, Jean Winsor, Brittany M. Powers, Amy Huppi

Developmental Disabilities Network Journal

State systems responsible for administering employment services and supports to people with intellectual and developmental disabilities (IDD) must acclimate to changing demands, address new regulations, and continue to meet needs in an era of high workforce turnover and uncertain funding. While improvements have been made across the U.S., there are still far too many individuals seeking meaningful employment and contributory roles in the community who are not supported to achieve those goals. A key success factor is providing publicly funded state systems with the information needed to strategically pivot toward priorities and ensure smooth transitions of organizational change. Our country’s …

Independent Living Skills For The Aging Population Of Adults With Disabilities, Sara K. Fetter Otd, Otr, Jennifer L. Martin Otd, Otr, Cht, Clt, Michele L. Mccarroll Phd, Faacvpr, Acsm-Ccep, Ccrp, Lssbb

Developmental Disabilities Network Journal

Adults with intellectual disability (ID) are living longer and increasingly outlive family caregivers. Strengthening independent living and vocational skills has therefore become a critical public-health priority. Occupational therapy (OT) can address this need through person-centered, community-based programming. This paper describes the co-design, delivery, and preliminary outcomes of a short occupation-based curriculum intended to enhance autonomy and work readiness in aging adults with ID. In partnership with a Dallas, Texas nonprofit, the authors conducted a needs assessment and created an 8-session course rooted in the Independent Living Model and the Occupational Competence Model. The curriculum addressed four domains (physical health, financial …

"I Belong Here": The Ucla Leadership Academy For Emerging Disability Rights Leaders, Blake E. Warner, Jasper A. Estabillo, Elisabeth Cincione, Julianna Martinez, Yasamin Bolourian, Kashia A. Rosenau, Elizabeth A. Laugeson

Developmental Disabilities Network Journal

The UCLA Leadership Academy for Emerging Disability Rights Leaders was developed to address the gap between advocacy training and systems-level leadership opportunities for disabled people. Rooted in the principles of co-production, accessibility, and relevance, the Leadership Academy equips participants with advocacy, storytelling, and testimony skills through a structured, interactive curriculum supported by coaches and program graduates with lived experience. This paper presents findings from two phases of evaluation: (1) a pilot study with the first cohort, examining the program's feasibility and acceptability through retention, attendance, and participant satisfaction data; and (2) interviews with program graduates who returned in a mentorship …

Engaging Immigrant Families Of Children With Disabilities: Recommendations For Practitioners, Robai N. Werunga, John William Mckenna, Rocio Rosales

Developmental Disabilities Network Journal

Family involvement is essential for positive school outcomes. Yet research suggests that family engagement for students with disabilities may be marked by conflict. Furthermore, creating an environment that promotes active engagement for immigrant families may be challenging. In this paper, we synthesize existing research, legal guidance, and community-engaged insights to present four practice-oriented recommendations for educators and practitioners working with immigrant families of children with disabilities. Grounded in Hans and Love’s stages of immigrant family engagement, these recommendations aim to support meaningful and culturally responsive participation in special education processes.

Sermon On The Spectrum, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.

"Everyone Leaves Me Behind”: How Harmful Tropes In Fiction Impact Autistic Women, Sara E. Allard

Ought: The Journal of Autistic Culture

Until now, females with ASD have been ignored by healthcare professionals, policymakers, and the general public. The unique presentation of autistic women and girls is now in the cultural spotlight within not just the advocacy and scientific community, but also the arts. Female autistic characters are getting increased representation across literature and television, yet their narratives are still often stuck in the past. Most authors and screenwriters have yet to understand the specific struggles that female autistics face compared to their male counterparts, relying on the outdated, reductive perceptions that have plagued them for decades.

This article outlines three harmful …

Living Through Misinformation: An Autoethnography Of Autism In Chinese Communities, Joy Lu

Ought: The Journal of Autistic Culture

This critical autoethnographic essay examines how misconception, misinformation, and disinformation shape understandings of autism within Chinese communities and produce tangible harm for autistic individuals and their families. Drawing on lived experience, advocacy work, digital observation, and cross-cultural analysis, it explores how language, medical practices, social media, and professional authority sustain persistent misrepresentation.

The essay argues that this misinformation is not merely the result of ignorance, but a socially reinforced and institutionally supported system of knowledge. By situating personal encounters within broader cultural and structural contexts, it highlights the interconnected roles of language, power, and exclusion in shaping autistic lives. It …

The Unexpected Gift: Using Hip-Hop And Autoethnographic Methods To Challenge The “Symbolic Death” Discourse Of A Child’S Autism Diagnosis, Adam Ellis

Ought: The Journal of Autistic Culture

This article explores the social construction of autism through an autoethnographic account of parenting an autistic child in Canada. Drawing on Elisabeth Kübler-Ross’s grief model, neurodiversity scholarship, and post-traumatic growth theory, the paper examines how parents may experience grief, uncertainty, and the collapse of imagined futures following an autism diagnosis, while also arguing that much of this distress is produced by ableist and deficit-oriented social systems rather than autism itself. Using arts-based research, including a rap song and music video, the article explores: (1) what it is like to receive an autism diagnosis as a parent; (2) the grieving process …

When Distress Is Misread: Autistic Credibility And The Politics Of Interpretation, Katrine Callander

Ought: The Journal of Autistic Culture

Misinformation about autism is often understood as a problem of inaccurate facts, stereotypes or public misunderstanding. This essay argues that misinformation also operates through dominant interpretive frameworks that shape how autistic experiences are recognised, understood and believed. Drawing on participatory narrative research with autistic women, the essay examines how institutions frequently reinterpret experiences of harm as personality dysfunction, emotional instability or individual deficit rather than recognising them as relational and socially produced. Autistic forms of communication and storytelling are often treated as signs of unreliability, shaping whose accounts are considered credible within clinical and institutional contexts. By reframing these patterns …

Misinformation Machine, Jan A. Wozniak

Ought: The Journal of Autistic Culture

No abstract provided.

Minimizing The Gap Between Church And Disability In Churches Of Christ, Paris Freeman

Discernment: Theology and the Practice of Ministry

Church members with intellectual and developmental disabilities often experience disconnection from their churches. This qualitative study examined this disconnect in three suburban Church of Christ congregations within the North Texas area. Using an ethnographic approach, data was collected through interviews with ministry leaders, participatory observation, and a literature review. The analysis of the data, in conjunction with family systems theory, was utilized to construct a model for disability ministry which validates personhood and promotes awareness of self and others. The impact of the church growth movement on disability was also examined, but no definitive correlation could be determined. Further research …

Cross-Cultural Differences Among Children And Youth With Special Health Care Needs: A Mixed-Methods Analysis Of Chinese, Spanish, And English-Speaking Families, Kathleen Mcgrath, Miriam Franco, Amy Morales-Lara, Karen Bonuck Phd, Joanne Siegel

Developmental Disabilities Network Journal

One in five U.S. children has a special health care need, with prevalence rates rising each year. Children and youth with special health care needs (CYSHCN) from immigrant and/or non-English speaking families face heightened barriers to care, unmet health needs, and worsened health outcomes. This mixed-methods study explores cross-cultural similarities and differences among English-, Spanish-, and Chinese-speaking families of CYSHCN across four key domains – (1) the diagnostic process, (2) access to essential services, (3) community integration, and (4) social supports. As part of a statewide, New York State Department of Health funded initiative implemented across three University Centers for …

From Access To Success: Addressing Barriers For Students With Disabilities In Higher Education, Melissa Wood

Inquiry: The Journal of the Virginia Community Colleges

Over the past several decades, enrollment of students with disabilities in higher education has steadily increased. However, disparities in retention and degree completion persist. Although federal laws such as the ADA and Section 504 of the Rehabilitation Act guarantee equal access, many students continue to encounter barriers that affect their academic experience. These challenges are often more pronounced in community colleges, which serve diverse populations and often operate with limited resources. This paper examines two key barriers and highlights best practices that institutions can implement to improve accessibility, strengthen support systems, and promote persistence and success for students with disabilities.

An Equity-Based And Culturally Responsive Bill Of Rights For Early Childhood Students Of Color With Exceptionalities, Evette Simmons-Reed, Michelle Frazier Trotman Scott, Gloria Tardash, Mildred Boveda, Donna Y. Ford

Perspectives on Early Childhood Psychology and Education

The COVID-19 pandemic exacerbated existing disparities in early intervention (EI) and early childhood special education (ECSE) services for culturally and linguistically diverse (CLD) disabled children, exposing critical gaps in access, services and support. systemic inconsistencies in implementation, training, and funding, remain barriers limit opportunities for CLD students to benefit, despite the aims of the Individuals with Disabilities Improvement Act (IDEA). To address these inequities, this manuscript proposes an expanded and updated Culturally Responsive Equity-Based Bill of Rights for EI and ECSE. Building upon Ford and colleagues' (2018) work, this revised document extends protections to children aged zero to five, emphasizing …

Guest Editor's Introduction: Methodological Innovations For Advancing Early Childhood Educational And Psychological Research, Anthony Mangino Ph.D.

Perspectives on Early Childhood Psychology and Education

The goal of this special issue is to provide you, the inquisitive reader and developmental scientist, with some of the methodological tools to aid in augmenting your analytic capacity.

Service-Learning In Adapted Physical Activity: Student Experiences With And Without Course Integration, Courtney Jost, Nicole Fiscella Nicole Fiscella, Roxanne Bahn-Bales, Tze-Hsuan Wang, Jennifer Beamer, Jennifer Taylor, Willie Chun Wai Leung

Educational Practices in Kinesiology

Service-learning is widely used in adapted physical activity/education (APA/APE) courses to enhance student learning through community engagement. However, limited research has explored how the presence or absence of an APA/APE course influences students’ perceived learning, confidence, and engagement in inclusive physical activity settings. This quasi-experimental, cross-sectional study examined how course-enhanced and purely experiential models of a university-based APA service-learning program, PA PALS, shaped undergraduate students’ experiences. Students (N = 58) participated; 41.4% (n = 24) were concurrently enrolled in an APA/APE course (course-enhanced group), while 58.6% (n = 34) participated as volunteers (purely experiential group). A validated …

Music And Movement For Individuals With Parkinson's Disease, Jordan Butler

The Corinthian

Parkinson’s disease, affecting approximately 10 million people worldwide, causes deficits in fine motor function, speech, and movement, as well as many other secondary symptoms, such as depression (Parkinson’s Foundation, 2020, para. 1). Past researchers have outlined many different studies and interventions regarding Parkinson’s and the effects of various types of music therapy (Andrejeva et al., 2019; Bukowska et al., 2016; Tamplin et al., 2019; Thaut, Rice, Braun Janzen, Hurt-Thaut, & McIntosh, 2019; Zhang, Liu, Ye, Li, & Chen, 2017). This review includes numerous ways that music therapy has benefited, and assisted people diagnosed with Parkinson’s. Vocal practices, auditory stimulation, and …

Strength In Collaboration: A Unified Dd Network Approach To A Statewide Needs Assessment, Emily R. Lanchak, Julie Lounds Taylor, Bruce L. Keisling

Developmental Disabilities Network Journal

To strengthen collaboration, improve efficiency, and reduce respondent burden, the Tennessee Developmental Disabilities (DD) Network launched a first-of-its-kind integrated statewide needs assessment. This two-year, mixed-methods effort gathered input from nearly 1,500 individuals with disabilities, family members, and professionals through an accessible survey and follow-up focus groups. Tennessee DD Network partners co-developed measures, coordinated outreach efforts, and pooled resources to ensure broad representation and inclusive participation across communities statewide. Community members with lived experience were involved throughout the process, helping to ensure materials were usable, relevant, and respectful of diverse needs. The resulting shared dataset provides a foundation for each organization’s …

Developing Self-Determination Through Physical Activity Courses In Inclusive Post-Secondary Education Programs, Shannon P. Zimmerman, Samantha Ross-Cypcar, Peter R. Giacobbi, Lesley Cottrell, Emily Murphy, Andrea Taliaferro, Jeanette Garcia

Developmental Disabilities Network Journal

Adults with intellectual and developmental disabilities (IDD) often experience low physical activity levels, with only 23% meeting recommended guidelines, increasing their risk for secondary health conditions. Inclusive Post-Secondary Education (IPSE) programs in the U.S. present an opportunity for physical activity promotion. This study examined physical activity strategies across a national sample of IPSE programs (n = 27) using a sequential mixed-method approach, including surveys and follow-up interviews, focusing on alignment with Self-Determination Theory (SDT). While 70.37% of programs offered formalized physical activity courses, all promoted physical activity informally. Common practices included peer mentorship (96.3% of programs), goal setting (100%), and …

Measuring Disability Prevalence In Healthcare: A Study Comparing Two Disability Measures, Kristen L. Milefchik, Rhonda K. Dailey, Sharon Milberger

Developmental Disabilities Network Journal

People with disabilities experience significant health disparities and interventions are needed to address them. Measuring disability prevalence is an essential aspect of designing effective, data-driven healthcare strategies. Accurately measuring disability prevalence is challenging given disability is a complex phenomenon, with biological, social, environmental, and cultural components. Previous studies have compared a variety of disability status measurements and found that measurements were incongruent with each other. This study examines the concordance between disability status using two different measures: the nationally recognized American Community Survey (ACS-6) functional difficulty questions and one disability identity question. We used data from 3,621 adult patients participating …

Neurodiversity Works--Literally: A Scoping Review Of Neurodivergence In The Workplace, Daisy V. Dimatos

Binghamton University Undergraduate Journal

In recent years, the importance of utilizing inclusive practices in the workplace has become much more widely-known, especially in regards to supporting neurodivergent employees. The systemic barriers and challenges faced by neurodivergent job-seekers and employees mean this population is often limited in their employment prospects, in turn depriving human resources professionals and their organizations of the chance to hire and benefit from diverse talent. As neurodivergent individuals exist within the workforce and general public, it is critical that organizations properly accommodate their needs in order to ensure optimal inclusivity, business efficiency, and productivity. This scoping review of the literature on …