Disability Studies Commons^™

"Gross Normality" And "Marked Deviation": A Qualitative Study Of Disability Theory In Three Periods Of Sociological Literature, Kelsey Sullivan

Masters Theses

In the 20th century, three theoretical perspectives concurrently dominated sociological discussions of disability. Functionalism and Talcott Parsons argued for a pathologized framework in the form of a “sick role” occupied by disabled people. Interactionism and Erving Goffman emphasized the stigmas faced by individual disabled people, and the ripple-effects of those stigmas. Finally, disabled activists, inspired by social constructionism, championed the social model of disability. This model purported that disability is a social condition, resulting from systemic barriers imposed upon people who do not fit the mental or physiological norm. This project, through a content analysis of 30 historical journal articles, …

Representation Of Autism Spectrum Disorders In Realistic Fiction For Children And Young Adults Over The Past 20 Years, Jane E. Kelley, Yun-Ju Hsiao, Brenda L. Barrio, Teresa A. Cardon, Madeline G. Joyce

Reading Horizons: A Journal of Literacy and Language Arts

In our study, we analyzed 147 contemporary realistic fiction children’s and young adult books that feature characters with autism spectrum disorder (ASD). We compared these representations with current statistics from the Centers for Disease Control and Prevention. For each book, we examined the character demographics, the main character, the author’s background, and representation prevalence. Our findings revealed a significant increase in the portrayal of characters with ASD over the past decade. There has also been a rise in the number of characters with ASD serving as the main protagonists in stories. We delved into the implications of gender, race, and …

Decolonizing Disability In Social Work: A Conversation On Colonialism, Autumn Asher Blackdeer

The Journal of Sociology & Social Welfare

The present work seeks to prompt a paradigm shift in the conceptualization of disability within social work through three main goals: a) Problematize the dominant disability discourse in social work, b) Illuminate present day manifestations of settler colonialism and their intersection with disability in social work, and c) Introduce decolonization and its compatibility with disability justice to reckon with disability and colonialism in social work. First, the present work will illuminate social work’s dedication to the medical model, evidence-based practice, and hollow notions of empowerment and inclusion. Next, in viewing intersections of ableism with other forms of oppression, this work …

Getting To Disability Justice: A Critical Conceptual Review Of Disability Models In U.S. Social Work, Kathryn M. Wright

The Journal of Sociology & Social Welfare

In 1983, scholar Mike Oliver coined the term the “social model of disability.” While the medical model presents disability as an inherent, immutable, and pathological defect, the social model suggests that disability emerges from external and social barriers (Oliver, 1983). Little research within social work has engaged with sociocultural paradigms of disability and how they might impact social work practice. American social workers generally approach disability as a biological category and an obvious deficit. This paper draws attention to the need to analyze the category of disability through social and cultural lenses in social work research and practice. Via a …

Global Deaf And Disability-Led Partnerships For Accessible Emergency Response And Humanitarian Action, Alina A. Engelman, Joe Booze, Alexia Izquierdo

The Journal of Sociology & Social Welfare

Disability-serving non-profit, non-governmental organizations (NGOs) play a critical role in fostering care networks and supporting humanitarian action for disabled people before and during emergencies, particularly in the absence of targeted philanthropic and governmental support. However, relatively few NGOs serving disabled people are led or operated by people with disabilities, especially by disabled women. This analysis, based on survey and interview data with leadership, explores the impact of two disability-led operations. Findings have profound implications for how social work practice can center disability justice both in preparing for and responding to emergencies. This paper assesses the needs and impact of two …

Lessons From Critical And Transnational Disability Perspectives For Social Work, Katie Savin, Eunkyung Chung, Nev Jones, Paul Sterzing, Vandana Chaudhry

The Journal of Sociology & Social Welfare

This paper calls on social work to incorporate anti-oppressive paradigms in research, practice, education, and policy by developing a critical understanding of disability. Critical disability studies is an interdisciplinary field that challenges hegemonic framings that individualize and pathologize disability and recognizes the ways in which ableism intersects with other systems of oppression. Transnational disability studies provides explicit attention to the power dynamics between the Global North and the Global South. Adopting a perspective grounded in these two frameworks offers direction for social workers to apply the principles of disability justice in their choices for clinical interventions, policy goals, classroom strategies, …

The Potential Of Humor To Joyously Dismantle Ableism+: Considerations For Social Workers, Mia Ocean

The Journal of Sociology & Social Welfare

Social workers are often well-positioned but not adequately equipped to disrupt, unsettle, or counteract ableism. Humor is one approach to disability justice work that can move the social work profession forward in a novel way. Within this practice brief, I use first-person narrative to illustrate the potential and limitations of humor to dismantle ableism+ in everyday interactions between social workers, clinical social work practice, and policy transformation. First, I share an example of how to use humor as a direct, call-in strategy to confront social worker-initiated ableist interactions. Second, I describe how a mixed disabled/abled couple can laugh together at …

Mandatory Supporting As A Radical Ethic Of Care: Supporting, Not Reporting, Black Disabled Mothers, Siobhan M. Pokorney

The Journal of Sociology & Social Welfare

Racism and ableism are intricately linked in the United States. Since the antebellum period, disability has been weaponized against the Black population. As the overriding punitive institution of white supremacy has shifted from slavery to mass incarceration with time, the experiences of Black disabled people within this institution have changed little. Black disabled individuals are at greater risk of harm at every step of the criminal legal system. Furthermore, the prison system exacerbates and creates debilitation and disability for those who are incarcerated. The family regulation system is the adjacent punitive system to mass incarceration, disproportionately impacting Black disabled women …

The Experience Of Growing Up Deaf In A Hearing-Abled Family: A Phenomenological Study, Alison B. Wetmur

The Journal of Sociology & Social Welfare

d/Deaf Americans constitute a cultural and linguistic minority in America. Most d/Deaf people, 90–95%, are born to hearing-abled parents. By a wide margin, hearing-abled families prefer that their d/Deaf children learn spoken English and enroll their children in oral-education programs. Existing literature must highlight the unique struggles d/Deaf people face when growing up in hearing-abled families. By interviewing 14 d/Deaf adults born into hearing-abled families, this study explored the lived realities of growing up different in ability than other family members. These d/Deaf adults spoke about their childhood feelings of shame and isolation and ongoing frustrations. Respondents also often spoke …

Re-Imagining Neoliberal Ideologies In Social Work Education Using Critical Feminist And Disability Theories: A Phenomenological Autoethnographic Account, Stephanie L. Baird, Ami Goulden

The Journal of Sociology & Social Welfare

This brief commentary paper provides a phenomenological autoethnographic account of our personal and reflexive experiences of re-imagining dominant neoliberal ideologies in social work education. We draw upon our involvement as instructors of an individual and families social work practice course to illustrate how we problematized and disrupted traditional bio-medicalized and ableist practice approaches by adopting an intersectional crip lens. Our reflections are organized into four areas of consideration: 1) the theorization of an intersectional crip lens, 2) re-envisioning course content and traditional frameworks of practice, 3) examining and disrupting ableism within social work education, and 4) centering the voices of …

Action Steps Toward Dismantling Ableism In Social Work Education, Laura J. Wernick, Rose C. B. Singh, Natasha M. Lee-Johnson, Shanna K. Kattari, Brendon Holloway

The Journal of Sociology & Social Welfare

Despite social work’s commitment to social justice, ableism remains rampant among social work programs. Students and faculty often have to fight in order to have their basic accommodations and access needs met, disability is frequently missing from social work education’s discussions of diversity, and it is often implied that disabled people will be our clients, while social workers themselves are non-disabled. There is a glaring gap in our profession when it comes to engaging with and supporting disabled individuals. More than that, basic access is not enough; rather, we must work towards active inclusion and affirmation in order to be …

“Everyone Else Gets To Have The American Dream:” How Social Security Disability Policy Shapes Disability Identity, Katie Savin

The Journal of Sociology & Social Welfare

In the United States welfare state, the Social Security Administration (SSA) is the primary institution that shapes the disability experience through its disability benefit programs. This study used qualitative methods to explore 33 disabled adult beneficiaries’ experience with SSI/SSDI policy administration and the impact on their sense of worth, self-concept, and identity. Critical Disability Studies and a constructivist grounded theory approach drove data analysis. What emerged from the data was a negative disability identity experience referred to as the Social Security model of disability. Capitalist ideals that assign morality to formal work meant that disabled participants faced exclusion and stigma …

You Don't Need Eyes To See: The Lived-Experience Of College Graduates Who Are Black Men, Born Into Poverty, And Living With A Visual Impairment, Ronald Dillard

Dissertations

The following study seeks to answer this research question: What is the lived experience of college graduates who are Black men, born into poverty, and living with a visual impairment? The researcher has used intersectionality as an aspect of Critical Race Theory (CRT) to conceptualize the research question and develop an interview protocol.

The researcher has conducted in-depth interviews for this qualitative inquiry, resulting in a narrative study. Purposeful sampling was implemented to identify three participants who fit the criteria of being a Black man, born into poverty, and living with a visual impairment. Data was reorganized to tell the …

Occupational Therapy In Secondary Transition: A Case Report, Latoya Harvey, Susan Zapf, Sandra E. Groger

The Open Journal of Occupational Therapy

Introduction: This case report aims to inform the occupational therapy profession of best practice by providing an example of the profession’s role in secondary transition for students with disabilities.

Method: This qualitative case report examines the value of occupational therapy during transition in the life of one student with a disability. Six weeks of coaching and collaboration were provided to facilitate student engagement to enhance independent living skills, work-related skills, and self-determination. Pre-test and post-test results of the Roll Evaluation of Life Activities (REAL), the Goal-Oriented Assessment of Lifeskills (GOAL), the Goal Attainment Scaling (GAS), interviews, informal discussions, …

Disability And Health In African Americans: Population Research And Implications For Occupational Therapy Community-Based Practice, Emily Schulz, Debarchana Ghosh, Eddie M. Clark, Beverly R. Williams, Randi Williams, Lijing Ma, Crystal L. Park, Cheryl L. Knott

The Open Journal of Occupational Therapy

Background: Population-based research and community-based interventions are integral to occupational therapy’s scope of practice, yet they are underdeveloped in actual implementation. Therefore, this paper focuses on some health challenges facing the African American population, guided by the Person-Environment-Occupation-Performance Model.

Method: Using data from an observational cross-sectional nationwide telephone survey of African American adults, we examined differences between African Americans who are receiving disability payments (RDP) and those who are employed full time (FTE) on several physical health behaviors and psychosocial health indicators. We further compared the differences between African Americans RDP versus those FTE on those physical health …

14-12 Capacity Analysis Of Pedestrian Facilities Involving Individuals With Disabilities, Mohammad Sadra Sharifi, Keith Christensen, Anthony Chen

Transportation Research Center Reports

Walking facilities are important infrastructures that must be designed to accommodate the behavior of pedestrians in order to be effective. Heterogeneity in pedestrian composition is one important factor generally overlooked in walking facility design guidelines. Particularly, individuals with disabilities are often ignored due to lack of available data on their pedestrian behaviors. A controlled, large-scaled walking experiment involving individuals with disabilities was conducted at Utah State University to observe individual pedestrian behaviors in various walking facilities; these facilities include passageway and bottleneck formations. The purpose of this report is twofold: (1) to model time headway between different individual types using …