Disability Studies Commons^™

“Together We Arrived And Together We Shall Leave”: The Gouverneur Parents Association And The Politics Of Race And Disability In Postwar New York, Jorge A. Matos

Publications and Research

This essay documents the history of the Gouverneur Parents Association (GPA), a group of mostly Black and Latinx parents whose disabled children were institutionalized at the Gouverneur Division of the infamous Willowbrook State School in New York City. The GPA, in coalition with Black, Latinx, and White parents and activists, led a campaign during the 1970s and 1980s to close Willowbrook, then part of a national network of sites denounced by disability activists during the heyday of the deinstitutionalization movement. In this essay I argue that the postwar migration of Black and Latinx communities into New York City amid an …

Disability And Star Trek: Analyzing Half A Century Of Science Fiction, Heather Rose Harris

Student Theses

This Master's thesis looks at the intersection between disability and Star Trek. More specifically, it analyzes the way that disability was represented within Star Trek over the last half century and investigated how shifting disability history, advocacy movements, and general sentiment towards disability within society may have affected the way that Star Trek told disabled stories within their works. The author used three disability groups to perform this analysis - blindness, mental illness, and intellectual disability.

Disrupting Inequitable Practices In Special Education: Privileging Student And Family Voices, Armineh E. Hallaran

Theses and Dissertations

Black, Latinx, and other minoritized students have long been overrepresented in the high-incidence, subjective, disability classifications including Learning Disability, Speech and Language Impairment, Emotional Disturbance, and Intellectual Impairment. Special education places these students on trajectories that deny them access to quality education and the same postschool outcomes and opportunities as their nondisabled peers. Using Disability Critical Race Theory (DisCrit), and grounded theory analysis this study foregrounds the voices of minoritized middle school students receiving special education under high-incidence classifications. DisCrit allowed for an investigation of how student’s intersecting marginalized identities impacted their experiences as special education students. Further, Education Journey …

Claiming Ownership Of One’S Body Through Language: The Disability Memoir, Sarah Elizabeth Kaufman

Theses and Dissertations

This paper examines the ways in which the disability memoir creates pathways that generate new ways of thinking. Focusing primarily on the disability memoirs of Simi Linton, Ellen Forney, and Kenny Fries, this analysis will personalize the disability experience as these authors live it and redefine its social stereotypes.

Bigger Dreams, Majolyn N. Nunez

Publications and Research

While at the day program, my new care manager came to me with an application for the Melissa Riggio Higher Education program, and it changed everything for me. Today, I’m 30 years old and a junior at Hostos Community College. I have classes two days a week in education and history and I still live with my sister. I think being an older student has helped me because I’m more mature and independent. I changed. I’m more understanding, and I’m learning to depend on myself.

Medical Norm Of Psychiatric Misdiagnoses In Rare Disease Patients, Rachel Han

Publications and Research

Spring 2022 ENG 120 Student Final Research Paper on the medical norm of psychiatric misdiagnosis throughout the diagnostic journeys of rare disease patients. The idea of a norm was taken from Chimamanda Ngozi Adichie's Tedx Talk "The Danger of a Single Story". Paper discusses prevalence, harmful effects, and origin of this medical norm. Includes discussion of statistical data quoted relating to prevalence of rare diseases as well as anecdotal evidence of the severe ramifications of this norm. Discussion of how medically unexplained symptoms such as mysterious chronic pain often lead to the phenomenon of the psychogenic inference. Origins of this …

Committed To The Fragment: Feminist Literature And The Promise Of Wellness, Lynne Beckenstein

Dissertations, Theses, and Capstone Projects

“I have never been able to blind myself” to the cruelty of a world that “destroys its own young in passing…out of not noticing or caring about the destruction,” Audre Lorde tells us in her 1980 “mythobiography” Zami: A New Spelling of My Name. This quality, Lorde says, “according to one popular definition of mental health, makes me mentally unhealthy.” In rejecting psychological self-possession as a sign of wellness, this passage also rejects it as one of sovereignty’s conditions. At the time of Lorde’s writing, this version of sovereignty already dominated the landscape of therapeutic culture in the United States, …

Agency, Inclusion, And Empathy As Power: The Last Dispatch From My Ma In Engagement Journalism (And My Final Report), Jacqueline Neber

Capstones

My community practicum engaged New York's intellectually and developmentally disabled community, and their families, in the process of making the process of reporting abuse and neglect inside group homes more accessible and transparent. Serious abuse and neglect still happens in group homes for people with disabilities, which has led to death and serious injury, and reporting issues is not necessarily easy. After a year of listening to community concerns, I created a service journalism post that made reporting abuse and neglect easier for families and the public. And most prominently, I created "How to Stand Up for Yourself in Your …

Working In New York City With A Disability: Nowhere Near Easy, Milette S. U. Millington

Capstones

This project investigates the common challenges that people with disabilities faced prior to COVID-19 when finding a job and keeping it, and explores how the pandemic may have changed things.

Project link: https://milettem98.wixsite.com/portfolio/capstone

Shhh-Tereotypes: A Conversation Among Librarians With Hearing Loss, Jill Cirasella, Lee Ann Fullington, Monica Berger, William Gargan

Publications and Research

We are four hard of hearing librarians dependent on hearing aids. Our hearing loss complicates our work, often in ways that are not apparent to colleagues and patrons. In this article, based on our panel at the 2021 LACUNY Institute, we share our experiences, challenges, and self-accommodations, and offer suggestions for supporting and effectively communicating with hard of hearing colleagues.

Shhh-Tereotypes: A Conversation Among Librarians With Hearing Loss, Jill Cirasella, Lee Ann Fullington, Monica Berger, William Gargan

Urban Library Journal

We are four hard of hearing librarians dependent on hearing aids. Our hearing loss complicates our work, often in ways that are not apparent to colleagues and patrons. In this article, based on our panel at the 2021 LACUNY Institute, we share our experiences, challenges, and self-accommodations, and offer suggestions for supporting and effectively communicating with hard of hearing colleagues.

"Never Forget": Embodied Absence And Extended Relations Of Care After 9/11, Sophie L. Riemenschneider

Dissertations, Theses, and Capstone Projects

This dissertation is a reflection on how loss was articulated in the wake of 9/11. The terror attacks engendered a memorial style that sought to give shape to grief, acknowledging it without filling it in or erasing it. This new style, which I term embodied absence, exists across a range of mediums, from literature to architecture. It is such a potent memorial form because it also captures the traumatic process, which is prolonged, layered, and potentially open-ended. However, despite their ability to mirror the nature of trauma, instances of embodied absence never verbalize the attacks’ root trauma—the disconnect between our …

Negotiated Access: Haccessibility, Autonomy, And Infrastructure In The Age Of The Abstraction, Patrick Smyth

Dissertations, Theses, and Capstone Projects

Negotiated Access asks how we can exercise our values from within systems and structures over which we have little control. The project, fundamentally, is about autonomy, a specific form of resistance to control, or the ability to act on values or goals despite influence from outside or above. Negotiation, here, is the ongoing encounter with enclosing or encircling systems, entities, or spaces. It is the gap, the small room for maneuver, between ourselves and the physical or social environment.

The project begins with local and concrete challenges and radiates outward to analyze and critique broader structures, forces, and institutions that …

The Role Of Placental Genes On Intellectual Disability And Developmental Delay, Maedot A. Yidenk

Dissertations, Theses, and Capstone Projects

The complex interaction between gene expressions and environmental factors plays a key role in the pathogenesis of various diseases, including neurodevelopmental disorders (Lenroot & Giedd, 2008). This study aimed to evaluate first, the magnitude of association between placental gene Methyl-CpG Binding Protein 2 (MeCP2) and intellectual disability (ID) in the offspring and second, the synergy between placental gene Forkhead box protein 1(FOXP1) and developmental delay (DD) in the offspring. We focused on assessing two specific paradigms, i) placental gene expressions of MeCP2 among children that have ID vs. children without ID; and ii) placental gene expression of …

The Intersectional Perspective On Women And Girls With Disabilities: A Comparative Analysis, Kathryn F. Guzmán

Dissertations and Theses

People, including women and girls with disabilities have faced oppression and exclusion in society for centuries due to negative beliefs, stereotypes and attitudes that have led to stigma, discrimination and lack of support for them. For women and girls in particular, having a disability has historically meant that they were no longer considered beautiful and were seen as being incapable of meeting social and cultural expectations like marriage and motherhood. In recent decades, however, some progress has been made towards combating disability-based discrimination and promoting inclusion and full participation in society. Additionally, the adoption of the United Nations Convention on …

Accessibility Compliance And Assessments For Gateway Websites In Life Sciences: Toward Inclusive Design, Noreen Y. Whysel, Shari Thurow, Bev Corwin

Publications and Research

One main purpose of information architecture and site navigation is to enhance the effectiveness of user interfaces (UIs) by supporting and enabling task completion, accessibility, and sustainability. This is of particular importance for science gateways given the complexity of information on portal sites.

We examined the accessibility of 50 randomly selected gateway websites in the Life Sciences category in the Science Gateways Community Institute (SGCI) catalog, using both manual and automated methodologies. None of these sites produced an accessible website as per W3C, WCAG 2.1, and Section 508 standards. The most common accessibility success in these websites was URL structure, …

Life Expectancy And Active Life Expectancy By Disability Status In Older U.S. Adults, Haomiao Jia, Erica I. Lubetkin

Publications and Research

Objectives

The Medicare Health Outcome Survey (HOS) is the largest longitudinal survey of the U.S. community-dwelling elderly population. This study estimated total life expectancy, active life expectancy (ALE), and disability-free life expectancy (DFLE) by disability status among HOS participants.

Methods

Data were from the Medicare HOS Cohort 15 (baseline 2012, follow-up 2014). We included respondents aged ≥ 65 years (n = 164,597). Participants’ disability status was assessed based on the following six activities of daily living (ADL): bathing, dressing, eating, getting in or out of chairs, walking, and using the toilet. The multi-state models were used to estimate life expectancy, …

Misuse Of Social Behavior In Down Syndrome: Caregiver Conducted Functional Analysis, Sally M. Izquierdo

Dissertations, Theses, and Capstone Projects

Young children with Down syndrome often engage in charming non-contextual social behaviors. The developmental literature suggests that non-contextual social behaviors may function to escape from difficult activities to preferred social interactions. Caregivers may reinforce the behavior, perceiving it as evidence of the child’s social strength, when in fact, the pattern of behavior may also contribute to missed learning opportunities and a developmental gap between children with Down syndrome and their typically developing peers. We investigated the pattern by subjecting it for the first time to functional analyses. We identified non-contextual social behavior, confirmed function(s) of escape to attention, and compared …

Self-Determination In Transportation: The Route To Social Inclusion For People With Disabilities, Jessica Murray

Dissertations, Theses, and Capstone Projects

People with disabilities encounter many challenges with transportation but are not usually considered in research about travel behavior and well-being. Research on transportation challenges is often disability-specific even though different access needs can complement or conflict with each other. I argue that disability should be centered in the study of travel and well-being because it magnifies problems that may also frustrate people who do not currently consider themselves disabled. The goal of the dissertation was to identify how basic psychological needs for autonomy, relatedness, and competence apply to the context of transportation and identify ways to measure fulfillment and frustration …

Using Engagement Journalism To Serve The Needs Of Caregivers Of People With Autism, Ariam Alula

Capstones

I’m Ariam. I worked with a diverse group of families who are intimately impacted by the autism spectrum disorder and other disabilities through caring for a loved one with the diagnosis. During the program, I used my journalism education, advocacy work, and interpersonal skills to support the emotional and informational needs of the community. The majority of the caretakers I engaged over the duration of the program reside in the Bronx, my home borough. I chose to focus on the lived experiences of people in this community because they represent my own. I have an older brother on the spectrum …

Illness And The American Workplace: Issues And Implications For Employers And Employees, Victoria R. Dolan

Student Theses and Dissertations

This project aims to identify American employee experiences and existing workplace policies and cultures surrounding illness, disability, and sick leave. This approach was taken in order to closely examine what looks to be working well for companies and workers, and what could benefit from a more human centric approach in regards to workplace policy and employee support programs. The study of employee experiences in particular represents a gap in the current scholarly literature regarding illness and illness policy in the American workplace, and more accurately represents the experiences for both employees and employers. Furthermore, it assists with distinguishing the types …

American Sign-Language (Asl) For Audiologists, Colette Vossler-Welch

Dissertations, Theses, and Capstone Projects

The goal of this project is to provide a means for Audiologists, Speech-Language-pathologists and related personnel to improve their ability to communicate and connect with culturally Deaf individuals through the use of video-animated sign-language interpretations. Arguments for or against the bilingual approach of using ASL and the spoken language with regards to Deaf education will be discussed through both a personal memoir and a review of current literature. This study will also shed light upon the history of the American Deaf population, American Sign-Language (ASL) and will conclude with a training module in ASL. The training module will be available …

Radical Solace And Young Adult Writing: Racialized Dis/Ability, Fan Fiction, And Feel(Ing)S In Composition, Jenn Polish

Dissertations, Theses, and Capstone Projects

Deficit-model pedagogies too often abound in our writing classrooms, in everything from punitive attendance policies to content selection and course design methodologies that inadvertently favor students whose bodies fit a white supremacist, ableist norm. I develop conceptions of fandom and consent-based pedagogical practices, and I argue that these can bring us closer to radical solace in our college writing classrooms, particularly when our classrooms are full of variously marginalized students. These students too often must endure deficit-model pedagogies that assume inexpert writing styles in both their written compositions and, indeed, in the very composition of their bodies. What happens, I …

Guilty By Association: A Critical Analysis Of How Imprisonment Affects The Children Of Those Behind Bars, Whitney Q. Hollins

Dissertations, Theses, and Capstone Projects

As 2.2 million individuals in the United States are currently incarcerated and an additional 5 million are under some form of correctional surveillance, the push for prison reform has reached new heights. Intimately and inextricably connected to mass incarceration and the push for its reform (and in some cases abolition) are the children have been impacted by incarceration. About half of the individuals currently incarcerated are parents to at least one child under the age of 18. Current estimates suggest that 2.7 million children currently have an incarcerated parent and that 10 million children in the United States have experienced …

Building Bridges: Fostering Dynamic Partnerships Between The Library Department And Office Of Student Disability Services In Higher Education, Nilda Alexandra Sanchez-Rodriguez, Joseph Logiudice

Publications and Research

Building effective communication and interdepartmental partnerships are essential components of strengthening services, policies, and procedures to meet the individual information needs of students, faculty, and the college community. Despite major advancements in library services for users with disabilities, there are ongoing challenges, which need to be addressed. It is essential to develop inclusion and accessibility frameworks that serve mutual departmental interests to share and document lessons learned along the way.

This article explores the evolving shared leadership between an Architecture Librarian/Liaison to the AccessAbility Center; and the Director of Student Disability Services at the City College of New York to …

Claiming Our Space: A Quantitative And Qualitative Picture Of Disabled Librarians, Robin Brown, Scott Sheidlower

Publications and Research

Librarianship is made up of many different sorts of people. Until now, while research has been done on nondisabled librarians and who they are, little research has been undertaken on disabled librarians. This piece is based upon a research survey that draws on the experiences of librarians who are willing to self-identify as disabled librarians. The survey was further followed up by interviews. The authors want to enrich everyone’s understanding of what it means to be a librarian and, at the same time, to be disabled.

Trapped In The Towers, Jaclyn Jeffrey-Wilensky

Capstones

New York City’s public housing, known as NYCHA, is a popular choice for disabled and elderly adults. 40% of NYCHA residents receive support from government programs intended to help older New Yorkers and New Yorkers with disabilities, and 32% of NYCHA households include an elderly person. Contrast that to New York City as a whole, where 11.2% of the population is disabled and 13% is elderly. For many disabled and elderly New Yorkers, NYCHA is one of precious few affordable options in an increasingly expensive city. But recent reporting suggests that NYCHA housing may be especially poorly suited for people …

Offset: How The Government Improperly Takes Money From The Disabled, Carmen Reinicke

Capstones

The US Department of Education is supposed to use its computers to match its borrowers who now suffer from total permanent disabilities based on Social Security or Veteran Administration rolls. If the borrower has been disabled for more than five consecutive years, then deductions for unpaid student loans are supposed to cease.

A report from the U.S. Government Accountability Office, a federal agency that reviews government work, shows that the program, now a computerized system that matches Social Security numbers, fails to identify thousands of individuals who deserve student debt relief.

Link: https://medium.com/@careinicke/offset-how-the-government-improperly-takes-money-from-the-disabled-8928cd556f93

Science Fiction And Postmemory Han In Contemporary Korean American Literature, Seo-Young J. Chu

Publications and Research

In this essay, Seo-Young Chu explores representations of a specifically Korean American type of postmemory that she calls "postmemory han."

Letter From Paisley Currah, Outgoing Executive Director, Paisley Currah

Center for LGBTQ Studies (CLAGS)

"Unzipping the Monster Dick." I thought nothing of this title when planning the fall 2003 CLAGS and a speaker, Santiago Solis, suggested it. It seemed to me, a denizen of the world of queer studies, unremarkable, even normal as I jotted it down. Solis, who was finishing his PhD in Learning Dis/abilities at Teachers College, Columbia University at the time, had the requisite explanatory subtitle: "Deconstructing Ableist Penile Representations in two Ethnic Homoerotic Magazines."