Disability Studies Commons^™

Measuring Disability Prevalence In Healthcare: A Study Comparing Two Disability Measures, Kristen L. Milefchik, Rhonda K. Dailey, Sharon Milberger

Developmental Disabilities Network Journal

People with disabilities experience significant health disparities and interventions are needed to address them. Measuring disability prevalence is an essential aspect of designing effective, data-driven healthcare strategies. Accurately measuring disability prevalence is challenging given disability is a complex phenomenon, with biological, social, environmental, and cultural components. Previous studies have compared a variety of disability status measurements and found that measurements were incongruent with each other. This study examines the concordance between disability status using two different measures: the nationally recognized American Community Survey (ACS-6) functional difficulty questions and one disability identity question. We used data from 3,621 adult patients participating …

Bridging The Gap: Educating Students On The Neurodiverse Experience, Riley Axtell

Human Development and Family Sciences Undergraduate Honors Theses

Neurodivergent students face misunderstanding, stigma, and systemic barriers that impact academic and emotional well-being. The purpose of this study was to develop and implement a curriculum-based project designed to educate college students about neurodiverse experiences and improve knowledge, empathy, and understanding. The curriculum was administered in two formats: an in-person format with pre- and post-survey measurements and an online “choose your own adventure” implementation utilizing post-survey measurements. Participants engaged in simulated cognitive and sensory activities that represented experiences associated with dyslexia, ADHD, dysgraphia, and dyscalculia. Although limited by a small sample size, reliance on self-report measures, lack of a pre-survey …

Self-Determination, Campus Involvement, And Disability Awareness Of Young Adults With Intellectual Disability, Zoe Bloecher

Honors Theses

This quantitative and qualitative study examined self-esteem; self-efficacy; self-determination; and disability awareness at the beginning and end of the semester in a sample of young adults with intellectual disability enrolled in a post-secondary education program. Participants’ weekly campus engagement in extracurricular activities during the semester was also tracked. The first goal of this study was to observe changes in self-determination satisfaction and frustration, self-esteem, self-efficacy, and disability awareness after one semester of enrollment in the program. There were 16 participants in the study who varied in their length of participation in the program. Dependent t-tests revealed a statistically significant decrease …

Supporting An Inclusive Summer Camp For Children With Developmental Disabilities Who Use Aac And Their Neurotypical Peers: A Practice-Based Report, Jessica Hicks

Communication Disorders and Occupational Therapy Undergraduate Honors Theses

For my honors research, I completed an internship in an augmentative and alternative communication (AAC) lab at the University of Arkansas. For most of my internship work, I helped support an inclusive AAC summer camp for children with and without developmental disabilities, such as autism, for whom speech does not fully meet their communication needs. AAC includes high-tech tools such as communication apps on tablets that serve as speech-generating devices (SGDs). SGDs were used by many of the AAC summer camp participants with developmental disabilities. In this report, I will provide background information on AAC and developmental disabilities. I will …

Towards Dementia-Inclusive Digital Text-Based Health Information: A Multi-Method Investigation Of Cognitive And Affective Accessibility, Margi Engineer

All Dissertations

This dissertation examines the accessibility, readability, emotional tone, and trustworthiness of digital, text‑based dementia information and investigates how older adults with and without dementia cognitively and affectively engage with such content. It further explores the potential of generative AI to improve dementia information delivery through the development of a domain‑specific retrieval‑augmented generation (RAG) large language model (LLM) chatbot designed to deliver accessible, stigma‑free information. The dissertation comprises four studies using complementary quantitative and qualitative methods. Study I conducts a large‑scale content analysis of 300 medical articles, 35 websites, and 50 blogs, applying readability metrics, LIWC‑based linguistic and sentiment analysis, and …

Fitness For All: Education For Gym Staff Supporting People With Disabilites, Bianca Loor, Mary Jan Greer, Alison Skean

Spring 2026 OTD Capstone Symposium

This capstone project, “Fitness for All: Education for Gym Staff Supporting People with Disabilities,” focuses on improving accessibility and inclusion within community fitness settings through staff education. Individuals with disabilities often encounter barriers in gyms due to limited staff training, lack of confidence, and insufficient knowledge of adaptive fitness practices.

To address this gap, a comprehensive, evidence-based training program was developed and implemented for gym staff at Crunch Fitness Orange Park. The program incorporated occupational therapy frameworks, including the Person-Environment-Occupation (PEO) model and the Occupational Therapy Practice Framework (OTPF-4), to promote inclusive and client-centered fitness practices.

Using a mixed-methods approach, …

Challenging Assumptions: Social Participation And Barriers For Autistic Students In Higher Education, Sue Iliff, Nicole Richard Williams, Siobahn Collins, Abby Noblitt, Meris Gilliam, Tori Knox, Alina Randall

SPARK Symposium Presentations

Autistic students bring diverse social preferences and ways of engaging to college, yet campus structures often do not reflect the full range of these experiences. Understanding how students across neurotypes navigate social participation can inform more inclusive practices. This mixed‑methods study used a convergent parallel design to examine the social experiences of autistic and non‑autistic undergraduates at a mid‑sized private university. Quantitative survey items assessed participation levels, satisfaction, and perceived barriers, while open‑ended responses provided qualitative insights. Quantitative analyses showed no significant group differences in hours of participation, satisfaction, or reported barriers. Qualitative findings highlighted varied social experiences across neurotypes: …

On Speaking Up: Fluency Isn’T Intelligence — Living With A Stutter In A World That Expects Perfection, Dalton D. Conden

The Penguin Review

I-I-I-I’ve lived most of my life in the space between words—the pause, the breath, the moment of uncertainty where my voice decides whether it wants to cooperate. People often assume stuttering is a tiny inconvenience, like forgetting your keys or having bad Wifi. A stutter doesn’t fade just because you enter adulthood, college, or leadership roles. It grows with you. It travels into classrooms, meetings, speeches, and any moment where your voice becomes your first introduction to the world.

Benefits And Barriers: Csd Faculty Attitudes Toward Student Accommodations, Erika Squires, Lori A. Pakulski, Celeste Domsch

Teaching and Learning in Communication Sciences & Disorders

Purpose: Academic accommodations in Communication Sciences and Disorders (CSD) have been explored via university websites and surveys of clinical educators, but little is known about CSD faculty attitudes toward accommodations in higher education. This study explored the types of accommodations faculty report and the benefits and barriers they encounter in doing so.

Method: A cross-sectional, mixed-methods study design was used to survey CSD faculty and instructors about the types of accommodations used by CSD students and the benefits and barriers associated with accommodations. Descriptive statistics were used to summarize participants’ responses. Qualitative analyses were used to identify themes on benefits …

Cripping The Border – Acompañamiento As Access: An Ethnographic Case Study Of Transborder Youth With Disabilities, Marco O. Amaral

Dissertations

The U.S.-Mexico border is a historical, geopolitical site of intense militarization where colonial logics of "othering" converge to marginalize disabled transborder youth. While transborder studies have expanded, students with disabilities remain relegated to the "void" and contained by educational systems that prioritize surveillance over access. Grounded in Sepúlveda’s (2011) acompañamiento and Transborder DisCrit, this ethnographic case study examines the lived experiences of both students and their families who cross the border daily to attend school in the U.S. It frames these journeys not as mere commutes, but as acts of defiance within the broader disability rights movement.

As a teacher-activist, …

Start With What They Know: Using Motivational Interviewing To Create A Cooking Class, A Culinary Intervention For Teens (Autistic And Non-Autistic), Gwendolyn S. Tedder

LEND Trainee Presentations

Autistic teens are at greater risk for having heart disease and diabetes as adults. Food particularity, sensory issues, fixed mindset, and anxiety over trying new things can slow down their interest in preparing food for themselves. Nurturing basic cooking skills and gently encouraging trying new foods would provide more nutritional options to teens as they move into adulthood. A cooking class preceded by Motivational Interviewing (MI) developed further interest in preparing food afterward in teens, both autistic and non-autistic, and in trying new foods for autistic teens with food concerns.

“I Should’Ve Listened!”: Lived Experiences Of Postsecondary Transitions Among Students With Emotional And Behavioral Disorders From Non-Traditional High Schools, Kristen De Rose

Dissertations

This phenomenological study explored the lived experiences of former students with EBD who attended a non-traditional high school. Eight semi-structured individual interviews were conducted to understand how students experienced emotional and academic supports during high school and throughout the transition into adulthood. Results revealed that participants appreciated attending a non-traditional school for its school connectedness, emotional and instructional supports, and school-based counseling. Additionally, findings suggest the school did not prepare them for the transition to post-secondary life. These findings suggest that emotional and academic support for students with EBD in non-traditional high school settings positively affected students’ sense of success …

Exploring Autistic Children’S Play Cycles Using The Play Cycle Observation Method (Pcom), Eleanor C. Mugford, Pete King

International Journal of Playwork Practice

The Play Cycle Observation Method (PCOM) enables researchers to observe and record the process of play based on the theory of the Play Cycle. While the PCOM has been used with both video footage and in real-time observation of neurotypical children, it has not previously been applied with neurodivergent children. This study involved ten one-hour naturalistic PCOM observations with nine autistic children during play sessions. The results demonstrated variability in play processes, with several styles of play behaviour observed, including differences in how play was initiated, sustained, and terminated. The findings both corroborate and challenge strands of the existing literature …

Transformational Leadership In Higher Education, Dr. Jewel Hale, Jr., Kristi Apostel

Tapestry: Journal of Research in Education

A crisis can highlight the critical need for resilient leadership within higher educational settings. Educational leaders encounter extraordinary difficulties, ranging from different learning options to prioritizing the well-being of both staff and students, necessitating flexible and innovative methods. By exploring how school leaders apply transformational techniques in actual educational environments, this article addresses the impact of the four I’s of transformational leadership, idealized influence, inspirational motivation, intellectual stimulation, and individualized consideration, on building educator resiliency, sustaining school effectiveness, and promoting student achievement in higher education.

Fierce Leadership-Perspectives Of Black Women Educational Leaders: A Transcendental Phenomenological Study, Janice Taylor, Dianne Reed

Tapestry: Journal of Research in Education

The authors of this transcendental phenomenological study aimed to describe the lived experiences of Black women based on their perceptions, values, and beliefs about the complexities of leadership and the kind of leadership required to succeed in their respective roles, as educational leaders. This study was framed by the adaptive leadership theory. Adaptive leadership recognizes the need for leaders to stay flexible and resilient in fast-paced environments (Nelson & Squires, 2017). The three Black women leaders in this study were fierce adaptive leaders. The information acquired from this study is significant and highlights how Black women educational leaders developed the …

Research Literacy And Research Production Skills As Core Competencies In Leaders, Kk O'Byrne

Tapestry: Journal of Research in Education

No abstract provided.

Beyond Words: Supporting Nonverbal Autistic Preschoolers With Exceptional Cognitive Abilities, Dawn Timms

Knowledge and Creativity Expo

This project explores how caregivers can support autistic preschoolers who are nonverbal yet demonstrate advanced cognitive abilities. Grounded in communication theory and neurodiversity‑affirming practice, it reframes communication as a shared, relational process that extends beyond spoken language. Drawing from interdisciplinary research, I created a strengths‑based caregiver communication toolkit that translates complex theory into clear, practical strategies families can use in everyday routines. This work honors the intelligence of children whose thinking outpaces their speech and equips caregivers with tools that make communication more accessible, responsive, and affirming.

Evaluating The Impact Of A Lend-Based Family Mentorship Program For Pre-Service Professionals, Matthew Bogenschutz, Sarah Lineberry, Jackie Robinson Brock, Flip Grey, Kathryn Flinn

Developmental Disabilities Network Journal

Family-led pre-professional mentoring programs have been shown in past literature to have multiple positive outcomes, including better provider communication, increased sensitivity to the needs and contributions of family members in clinical settings, and better understanding of disability policy contexts among professionals. Yet there have been relatively few examples of exemplary programs that have developed successful models for family mentoring of pre-service professionals. Using qualitative evaluative data from one such program, a component of a Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program, this study shares the experiences of both families and trainees. Common themes shared between these two groups …

Boundless Community: A Developing Disability Arts Movement, Sarah K. Benson, Khaldoun Hijazin, Alaa Qattam, Suha Khuffash

Journal of Social Theory in Art Education

Over several years, individual organizations in Jordan have been focused on increasing the participation of individuals with disabilities in the arts. Increasing inclusion can provide a powerful tool to create visibility, amplify marginalized voices and disrupt normative narratives. However, these isolated efforts had a limited impact until a cohesive effort borne by a burgeoning community of practice led to the first Amman Arts and Disability Summit. Bringing together youth, artists and gallery owners, the movement leaders are using models of social learning and communities of practice to create a more inclusive arts community. The movement stands on the precipice of …

Addressing Health Inequities For People With Intellectual And Developmental Disabilities In The Hospital Through Partnerships In Nurse Training, Suzannah Iadarola, Amanda Laprime, Samantha Hochheimer, Tabby Anvari, Carrie Baker, Jacqueline Goodman

Developmental Disabilities Network Journal

People with intellectual/developmental disabilities (IDD) deserve the same access to quality healthcare yet are at increased risk of medical and/or psychiatric conditions as compared to the general population. Patients with IDD have less health satisfaction, shorter life expectancy, less access to preventative care, higher chronic health conditions, overuse of certain medications, and increased mortality. This population and their caregivers report high levels of dissatisfaction with emergency/inpatient care. Nurses also express frustration with lack of training, limited resources, and competing priorities.

We developed the Advancing Supportive Care through Education for Nurses on Disability (ASCEND) Program, to build the capacity of inpatient/Emergency …

Parents’ Lived Experiences With Competitive Integrated Employment For Children With Intellectual And Developmental Disability, Dr. Aisha J. Omar

Developmental Disabilities Network Journal

This phenomenological qualitative study explores the lived experiences of Kentucky parents seeking Competitive Integrated Employment (CIE) for their children with intellectual and developmental disabilities (I/DD). Guided by the research questions—How do parents experience this process, and what barriers or supports do they encounter?—the study highlights systemic challenges despite legislative efforts such as the Americans with Disabilities Act and the Workforce Innovation and Opportunity Act. In-depth interviews with five parents revealed three themes: (a) parental transformation and the pursuit of meaningful work, (b) systemic challenges in accessing CIE, and (c) overcoming protective instincts: navigating fear, independence, and self-advocacy. Findings suggest a …

Inaccessibility Harms: Exploring The Impact Of Inaccessible Campus Organizations On Disabled Students, Francis W. Q. Corvin, Natalie G. Horgan

Purdue Journal of Service-Learning and International Engagement

There are 3.5 million Disabled college students in the United States, with 4,671 utilizing disability services at Purdue University. Nationwide, 8–14% of students in higher education are Disabled, indicating a substantial number of students whose needs should be prioritized and supported. Inaccessibility impacts the way Disabled college students are able to engage with the college experience. Inaccessible classes, restrooms, clubs, job fairs, and campuses create significant barriers thatthat extend far beyond the classroom. Disabled students face challenges in securing scholarships, finding employment, graduating on time, and achieving long-term socioeconomic stability. Recognizing these barriers, HonorServes, a community service student committee at …

From Strain To Strength: A Narrative Review Of Wellness Dimensions In Caregiving, Valerie Perkoski

Developmental Disabilities Network Journal

This narrative review investigates the positive aspects of being a family caregiver for individuals with developmental disabilities (DDs) using the National Wellness Institute’s Six Dimensions of Wellness (Emotional, Physical, Intellectual, Occupational, Spiritual, and Social). While much research has traditionally focused on “caregiver burden,” this review highlights the often-overlooked beneficial outcomes of caregiving. Emotional wellness is enhanced through gratitude and resilience. Physical wellness is discussed through interventions like physical activity, which can reduce caregiver distress. Intellectual wellness emphasizes personal growth and self-actualization, helping caregivers find fulfillment in their roles. Occupational wellness shows that employment and community engagement can reduce anxiety among …

The Social And Cultural Challenges Experienced By Children With Send Through Quasi-Inclusion Practices In Two Mainstream Primary Schools In Postcolonial Guyana, Lidon Lashley, Clevelon Gordon

IALS Journal

This ethnographic study investigates the sociocultural experiences of 36 children with SEND and two non-SEND peers in two rural mainstream primary schools in Guyana. Through interviews, observations, and situational analysis, the study explores how ableism, colonial legacies, prejudice, poverty, linguistic barriers, and inadequate educational support shape the experiences of children with SEND. Findings reveal persistent stigmatization, discrimination, marginalization, exclusion, and "fated failure" discourses that negatively affect learning, participation, agency, and wellbeing. The study concludes that teachers require greater support, training, and specialist resources to foster genuine inclusion within Guyana's mainstream schools.

Exploring Teacher Perspectives On The Self-Esteem Of Students With Emotional And Behavioral Disorders: A Qualitative Study, Bahaa Al Ghraibeh

Archives of Assessment Psychology

Self-esteem affects many other abilities of students with Emotional and Behavioral Disorders (EBD). Teachers can play a crucial role in influencing the self-esteem of these students. This interpretive qualitative study aims to investigate teachers' perceptions of the self-esteem of students with EBD, identify the factors they believe affect these students’ self-esteem, and explore the strategies they employ to enhance the self-esteem of these students. The results reveal three key themes: first, teachers perceive that students with EBD frequently face challenges related to self-esteem; second, they recognize that a variety of factors influence the self-esteem of these students; and third, teachers …

The Indispensable Role Of The Sister Disability Agencies: Safeguarding Progress And Enhancing Outcomes Through Collaboration, Lesley Cottrell, Susan Given, Christina E. Wiseman

Developmental Disabilities Network Journal

This manuscript emphasizes the critical importance of having a Disability Network of services—including University Centers for Excellence in Developmental Disabilities (UCEDDs), State Councils on Developmental Disabilities, and Protection & Advocacy organizations - in promoting systemic innovation and improved outcomes for individuals with developmental disabilities. Highlighting a case study from West Virginia, where collaboration between West Virginia University’s Center for Excellence in Disabilities, Disability Rights of West Virginia, and the West Virginia Developmental Disabilities Council has resulted in cost-effective, sustainable improvements, this paper underscores the urgent need to protect and expand these programs amidst current policy threats. The evidence underscores that …

Increasing Participation Through Online Focus Groups With Adults With Intellectual Disabilities, Emily L. Cary, Chris A. Taylor, Susan Havercamp, Andrea Witwer

Developmental Disabilities Network Journal

The aim of this study was to develop and describe methods on how to conduct virtual focus groups with adults with intellectual disability. Using a community-engaged research approach, adults with intellectual and developmental disabilities helped develop virtual focus group methods. We report on the implementation of these methods through an illustrative application of applying these adaptations to virtual focus groups with 13 adults with intellectual disability in a study assessing their perspectives on mental health therapy.

This work resulted in several adaptations that can enhance inclusivity of focus group research to individuals with intellectual disability. Adaptions broadly included: involving guardians …

Training On "Learn The Signs. Act Early." In Head Start And Early Head Start Shows Ineffective Without Supporting Implementation Policy, Kayla Livingston, Mary O'Donnell, Kate G. Barlow

Developmental Disabilities Network Journal

Early identification and intervention for children with developmental delays improves child outcomes, yet many children are not monitored, screened, or identified early despite its effectiveness. The relationship between the use of the Centers for Disease Control and Prevention’s “Learn the Signs. Act Early.” developmental monitoring program and referrals to intervention services is not well understood. This study investigated how “Learn the Signs. Act Early.” implementation practices within Massachusetts’ Head Start and Early Head Start agencies correlated with the rate of referrals to intervention services. Researchers utilized a non-experimental quantitative design. Secondary data on referral rates from Head Start and Early …

Educating Medical Trainees On Mental Healthcare And Intellectual And Developmental Disabilities, Andrea Palmieri, Joan B. Beasley, Micah Peace Urquilla, Jennifer Mclaren

Developmental Disabilities Network Journal

Many children and adults with intellectual and developmental disabilities (IDD) experience mental health conditions and commonly receive treatment with psychotropic medications. Prescribers often overuse these medications in children with IDD, who are frequently treated with polypharmacy and antipsychotics, a trend that continues into adulthood. Medical trainees receive little training regarding the IDD patient population. This paper describes the development and evaluation of an evidence-informed, easy-to-use training curriculum. The 6-hour training establishes a foundation for medical trainees regarding the treatment of mental health conditions in people with intellectual and developmental disabilities (IDD-MH) as part of an integrated health, interdisciplinary treatment approach. …

Faculty, Staff, And Counselor Awareness Of The Challenges Faced By Autistic Students: A Quantitative Descriptive Study Of Resources, Training, And Support For Autistic Student Success In Higher Education, Erika Rosario

Doctoral Dissertations

Higher education institutions should establish two essential measures to support students with autism spectrum disorder (ASD): they need to implement standardized training for all personnel working on campus and create opportunities for hands-on experience through peer programs and collaborative educational events. The pursuit of equity in education demands nothing less. This study investigates the extent to which university faculty, staff, and counselors are aware of the challenges faced by autistic students, how knowledgeable they are about resources available to aid them, and the degree of their training, support, and collaboration in addressing students’ needs. By answering these research questions, the …