Disability Studies Commons^™

Virtual Advocacy: Lived Experience Takes Center Stage During And After Pandemic, Gyasi Burks-Abbott, Amanda V. Gannaway, Amy Szarkowski, Jason M. Fogler, David T. Helm

Developmental Disabilities Network Journal

COVID-19 forced a significant change for participants of the Disability Policy Seminar (DPS) typically held annually in Washington, D.C. The DPS is a policy event that both informs its participants about current policy and supports attendees visiting Capitol Hill to meet with legislators. In 2020, the DPS event, which took place during the early phase of the pandemic, was shifted from “on the Hill” to “across the screen”. Through the various lenses of an autistic self-advocate, a mother of a child with a developmental disability, and faculty of a LEND (Leadership Education in Neurodevelopmental and related Disabilities) program, this paper …

Perspectives Of Immigrant Families And Persons With Disabilities During Covid-19, Diana Rodriguez Lmsw, Kathleen Mcgrath Msw

Developmental Disabilities Network Journal

Background: The health, economic, social, political, and psychological consequences of COVID-19 have been deeply felt on a global level. Persons with disabilities, including those from Hispanic/Latino immigrant communities, have faced unique challenges during both the peak and fallout of the pandemic. Throughout both the United States and New York City, COVID-19 has disproportionately affected communities of color. However, the impact of COVID-19 on persons with disabilities among immigrant and communities of color is still unfolding.

Aims: In this paper, we aim to better understand the compounded stress of the COVID-19 pandemic experienced by immigrant families who have a child with …

Changing Needs Of Individuals With Disabilities In The Time Of Covid-19 As Observed By A Family Navigation Program In Miami, Fl, Gabriella Llano, Allison Kumnick, Jean-Paul Bryant Ms, Nancy Torres Ms, Jeffrey Brosco Md, Phd, Maite Schenker Phd

Developmental Disabilities Network Journal

The Family Navigator Program (FNP) is designed to help families navigate the complex system of services available to people with intellectual and developmental disabilities (I/DD), chronic health conditions, mental health issues, and other special health care needs. Based at the Mailman Center for Child Development at the University of Miami, the FNP is free and available to all families in South Florida. Most families enrolled in the FNP are receiving medical services from a university clinic; however, the program also accepts referrals from outside agencies and self-referrals. The aim of this study was to investigate the needs of families enrolled …

Autistic College Students And Covid-19: Anxiety, Support Needs And Responses By Specialized Programs, Jessica Monahan, Laurie Ackles, Amy D. Edwards, Brian Freedman, Pamela Withers Lubbers, Sara Sanders Gardner, Cherie A. Fishbaugh, Jane Thierfeld Brown

Developmental Disabilities Network Journal

Providing resources and support to college students during the COVID-19 global pandemic has produced unique challenges for all students, particularly those with autism. In March 2020, halfway through the spring term, the COVID-19 global pandemic forced most institutions of higher education across the country to move all instruction and support to an online, remote format, including those for students with autism. Colleges and autism support programs are now grappling with how to effectively support students amid a global pandemic. Yet there is little information available about how students’ needs have changed with this new environment. In this exploratory study, 76 …

Using Quality Improvement (Qi)-Focused Evaluation To Redesign Direct Home- And Community-Based Services During The Covid-19 Public Health Emergency:, Marcia Moriarta, Anthony Cahill, Heidi Fredine

Developmental Disabilities Network Journal

Like many UCEDDs in the Developmental Disabilities (DD) network, the Center for Development and Disability at the University of New Mexico offers direct service programs in home and community settings. Before the start of the COVID-19 pandemic, services were delivered in-person to about 1,000 families across the state including clients with intellectual or developmental disabilities and/or from at-risk communities. In March 2020, due to the spread of COVID-19, a public health emergency was declared in New Mexico and home and community services were stopped throughout the state. This meant direct service programs at the Center had to turn to telehealth …

Narrative Experiences Of Fathers Of Children With Down Syndrome, Corey Rose

Educational Studies Dissertations

This dissertation explores the narrative experiences of fathers raising children born with Down syndrome. The study joins a recent stratum of research on parents of children with Down syndrome which is grounded in critical disability theory, adheres to a social model of disabilities, and adopts narrative methodology, but which thus far has not investigated fathers’ experiences. 22 fathers, recruited by means of snowball sampling, participated in a two-question, semi-structured interview with a follow-up conversation. Findings from question one indicated that, in the initial moment of diagnosis, fathers experienced adverse encounters with medical personnel, intense negative emotions about the diagnosis, distressing …

Building A Strength-Based Support Program For College Students With Autism, Deann Lechtenberger, Wesley H. Dotson, Eriko Fukuda, Rebecca Beights, Jennifer Hamrick, James Williams, Barry Lovelace

Journal of Human Services: Training, Research, and Practice

Abstract

Disabling Injustice In The Higher Education Classroom, Daniel W. Eadens, Danielle M. Eadens, Christopher Lanterman

Faculty Scholarship and Creative Works

This chapter explores perspectives in higher education classrooms, specifically the need for social justice in education through inclusive and universal design/ universal design for learning (UD/UDL). The authors contacted colleagues regarding what worked to change paradigms and perspectives around issues of social justice and advocacy in classrooms. Three themes emerged, mirroring those of the literature reviewed: scholarly strategies, structured activities, and amplifying marginalized voices. The authors also discuss how accessible and inclusive approaches disable injustice and ableism in higher education classrooms by recognizing disability as an element of diversity and the need for inclusive approaches on college campuses and beyond. …

The Efficacy Of Art And Movement Treatment Modalities On An Individual With Autism Spectrum Disorder, Tristen Valentino

Graduate Student Theses, Dissertations, & Professional Papers

Current statistics report 1 in 54 children have been identified with Autism Spectrum Disorder (ASD), many of whom have co-occurring mental health disorders. However, minimal research has been conducted on adults with autism with co-occurring mental health disorders and the efficacy of art and movement therapy techniques. This is the case study by Tristen Valentino, clinical therapist, of a client, David Smith (who was given the pseudonym to maintain confidentiality), a 35-year-old, obese, single, cisgender, heterosexual, Caucasian, male. The implications of this case study are discussed relative to the diagnosis and treatment of adults with ASD who possess comorbid clinical …

Support For Students With Disabilities: How Awareness And Accommodations Differ Across Faculty Members Within The Postsecondary Context, Toby Tomlinson Baker

Theses and Dissertations

This case study sought to determine the most salient needs of higher education faculty who instruct and accommodate students with disabilities (SWDs). Therefore, the faculty were analyzed as a community in a university setting. Currently, the accommodations that faculty provide for SWDs vary from institution to institution. Additionally, certain variables, such as faculty’s years with the university, budget, size, and location of the institution impact the level of support provided and what specific accommodations SWDs receive.The purpose of this qualitative case study was to develop an in-depth understanding of the current level of knowledge that faculty obtain for accommodating SWDs. …

“Accept The Idea That Neurodiverse Kids Exist”: Dyslexic Narratives And Neurodiversity Paradigm Visions, Monica Van Schaik

Theses and Dissertations (Comprehensive)

The neurodiversity paradigm has received support from many autistic self-advocates and scholars. Although definitions of neurodiversity are always framed to include dyslexia, research into the neurodiversity paradigm that seeks the perspectives of dyslexic people is limited. This qualitative study sought to fill this gap by asking 12 self-identified dyslexic adults how they imagined their life stories would change within a neurodiversity paradigm. A narrative inquiry methodology was combined with the guiding principles of participatory action research and dyslexic methodology. Dyslexic ways of knowing were engaged and illuminated in the research design, writing process and findings. Emergent themes revealed participants’ lived …

Exploring Accessibility And Social Inclusion For Children With Hearing Impairments In Residential Camps Through The Occupational Therapy Lens, Tiffany Coles

Student Capstone Papers

Children are encouraged to engage in various play, leisure, and social participation activities to enhance the development of life skills, independence, and social skills. A common leisure and social participation activity for children aged 6 to 18-years-old is to attend residential camp. Residential camps provide children a structured opportunity to engage in leisure activities while learning to become independent and self-confident when socializing and making new friends. Attending camp can be a fun and engaging environment to help accelerate growth in key developmental outcomes, such as positive identity, social skills, physical skills, positive values, and spirituality.

Within the residential camp …

Pre-Employment Transition Services For Students With Intellectual Disabilities Who Applied For Vocational Rehabilitation Services, Alberto Migliore, John Butterworth

All Institute for Community Inclusion Publications

This data note addresses participation in Pre-ETS for students with intellectual disabilities (ID) who applied for VR services. Of the 45,110 people with ID who exited the VR program in 2018, a total of 8,809 (18%) were students who applied for Pre-ETS. Of these, 1,712 (21%) received Pre-ETS and of those who received Pre-ETS, 744 (43%) gained employment.

Behavioral Health Issues Among War Veterans, Michelle Guzman

Capstone Projects and Master's Theses

The Monterey County Military & Veterans Affairs Office is a government agency that helps Veterans and their dependents with Military services that are offered in the Monterey County area. Some of the main problems that returning veterans are facing from coming back from OEF and OIF are behavioral health issues as far as PTSD, substance abuse and many more different health issues. Behaviors required to outlive in a war zone, such as keeping up a consistent state of alertness, may at first decipher into troublesome behaviors in civilian life, such as feeling tense or unsteady and being easily startled. Some …

Legislating Social Inclusion: Social Interaction And Perceptions Of Middle Level Students Toward Those With Disabilities, Deidre Necol Whitehead

Graduate Theses and Dissertations

Recognition of the need for students with disabilities to receive free and appropriate education was brought to the forefront with the passage of Public Law 93 – 112, Rehabilitation Act in 1973. In 1975 Public Law 94-142, the Education for All Handicapped Children Act was enacted requiring all schools to develop and provide a free, appropriate public education for all children and youth with disabilities in the regular classroom to ensure an appropriate education. However, mandating inclusion in classrooms does not ensure social interaction, which is an integral part of learning, especially for early adolescents.

This dissertation uses the Chedoke-McMaster …

Amalan Latihan Neuromotor Terhadap Penguasaan Kemahiran Motor Kasar Dalam Kalangan Murid Bermasalah Pembelajaran, Lalitha Hariram

Student Works (2020-2029)

Perkembangan kemahiran motor kasar seseorang murid bermasalah pembelajaran bergantung kepada perkembangan otak, keseimbangan badan dan koordinasi badan. Kajian ini bertujuan untuk mengkaji amalan latihan neuromotor yang terdiri daripada komponen keseimbangan, ketangkasan, gaya berjalan, proprioseptif dan koordinasi terhadap penguasaan kemahiran motor kasar dalam kalangan murid bermasalah pembelajaran. Kajian ini penting kerana pengukuran kemahiran motor kasar murid-murid bermasalah pembelajaran menggunakan instrumen latihan neuromotor yang tiada hasil penyelidikan didokumenkan di Malaysia. Rekabentuk kajian ini ialah Rekabentuk Subjek Tunggal ‘Single Subject Design’ A-B-A. Seramai 3 orang murid bermasalah pembelajaran berumur 7 hingga 11 tahun terdiri daripada pelbagai jenis ketidakupayaan seperti autisme, kurang upaya intelektual …

I, Too, Sing Neurodiversity, Morénike Giwa Onaiwu

Ought: The Journal of Autistic Culture

The neurodiversity community was envisioned as an inclusive and welcoming space for individuals with neurological conditions such as ADHD, autism, Tourette’s Syndrome, giftedness, dyslexia, dyscalculia, dyspraxia, intellectual disability, NVLD and related diagnoses. The underlying premise of neurodiversity is that people present with various neurological differences and there is value in acknowledging and accepting these differences. Despite efforts made over the past few decades, a growing number of individuals within the neurodiversity community, including people of color, have called for intersectional concepts to be more intentionally and more effectively interwoven into neurodiversity as a whole. Referencing “I, Too,” a decades-old poem …

Lemonade Stand: An Original Theatre For Young Audiences Play For Neurodiverse Children, Kate Tayler

Honors Projects

Lemonade Stand is an original play a Theatre For Young Audiences-style play written with accessibility in mind for neurodiverse children, especially with ADHD and autism.

The Problem With The School System, Julianna Vanvalin

English Department: Research for Change - Wicked Problems in Our World

From the beginning of America, schools have existed in some shape or form. However, once the school system became standardized its failings started to show through. The modern school system is discriminatory against disabled students and students of a low socioeconomic status. It also does not properly prepare students for their future, and promotes poor mental health. In order to fix the school system, it is important to recognize the current failings in regards to students and aim to improve them.

Valuing Lived Experience In Academic Spaces, Jules Csillag

Social Justice Week

Academic spaces (K–12 or higher education) often place a great value on supposedly evidence-based practices, but this ignores the fact that traditional research doesn’t always reflect the priorities nor the realities of the populations they’re supposedly supporting. This results in the perpetuation of harmful practices that are directly or indirectly caused by racism, ableism, classism, queer- and trans-antagonism, monodialectalism/monolingualism, etc. In everything from accommodations statements to who appears in your syllabi or curricula (and more importantly- who’s notably missing), educators at all levels have a responsibility to listen to people with relevant lived experience, and legitimize that expertise.

This engaging …

The Effect Of High School Disability-Based Peer Mentoring On Perspectives Toward People With Disabilities, Caroline Jacobs

Honors Program: Senior Projects (Public)

Negative perspectives towards people with disabilities have been shown to lead to discrimination, prejudice, and an overall decreased quality of life. One way to possibly improve attitudes and interactions with students with disabilities could be implementing peer mentoring programs for special education students in high school. Research presented in this thesis examines the difference in perspectives toward people with disabilities between people who have or have not participated as a mentor in a disability-based peer mentoring program in high school. Data were collected through an online survey that assessed peer mentoring experiences as well as a scale to measure comfort …

Star Performances: Ed Roberts On The Speaking Circuit, 1983-1995, Scot Danforth

Education Faculty Articles and Research

This article uses historical research methods to explore noted disability rights leader Ed Roberts' performances on the speaker circuit between 1983, when he left his position as director of the California Department of Rehabilitation, and his death in 1995. This article examines how he managed his performed identity, his self as presented on stage, in order to be a disability star. Using his own life story as a poignant example, he narrated an autobiography of how a paralyzed man could live a vigorous, successful, indeed a joyful life. His personal stories communicated his lived experiences of battling discrimination and stereotypes. …

What Do Nci Data Tell Us About The Characteristics And Outcomes Of Older Adults With Idd?, Valerie J. Bradley, Dorothy Hiersteiner, Henan Li, Alexandra Bonardi, Laura Vegas

Developmental Disabilities Network Journal

The number of older adults with intellectual and developmental disabilities (IDD) is growing and will continue to expand as the baby boom generation moves into older adulthood. This descriptive analysis provides information on the characteristics and outcomes of a subsample of individuals with IDD aged 55 and over in the 2018-2019 National Core Indicators In Person Survey. Selected findings are compared to characteristics of the general population as measured by the National Health Interview Survey (NHIS). Findings suggest the older adults with IDD are more isolated, have smaller social networks than their younger peers, and have less access to transportation …

Cognitive Disability And Postsecondary Education: A National Study On Earnings, John M. Andresen, Derek Nord

Developmental Disabilities Network Journal

Postsecondary education provides an opportunity to increase the economic potential of individuals. Earnings for individuals with cognitive disabilities are a major concern, as occupational outcomes are often dire. The prevalence of individuals with cognitive disabilities in postsecondary education settings is increasing, but little is known about how postsecondary attendance may relate to post-graduation earnings for this population. This article presents findings from the 2017 U.S. Census Bureau’s American Community Survey on the prevalence of individuals with cognitive disabilities who have attended various levels of postsecondary education and a series of linear regressions identifies the relationship between varying degrees and earnings …

The Origins Of University Centers On Developmental Disabilities: Early Expectations And Legislation, Bryce Fifield, Marvin G. Fifield

Developmental Disabilities Network Journal

This article describes the evolution and early expectations of university-based programs to serve people with disabilities. I describe the how the committee that President John F. Kennedy created to make recommendations about how to better serve people with mental retardation suggested university-based programs that would improve the science and provide training to professionals who work with this community. I describe the early legislation and program decisions that were made by stakeholders that created the first generation of University Affiliated Facilities and Programs to serve people with disabilities.

Employment First In A Time Of Pandemic, Julie J. Christensen Phd, Msw

Developmental Disabilities Network Journal

No abstract provided.

Opening Editorial: The Origin And Aims Of The Developmental Disabilities Network Journal, Matthew Wappett

Developmental Disabilities Network Journal

In this article, I share my experience of going to school and noticing different groups of students. I noticed that students with disabilities were treated differently, but I didn't understand why. Throughout history, people with disabilities have often been treated differently. For hundreds of years, people with disabilities did not live with their families or in their communities. People with disabilities were often forced to live in institutions or workhouses. Institutions were not good places; they were dangerous, unclean, and isolated. People with disabilities were not allowed to live the life they wanted. In the 1960s, many advocates wanted to …

Cover And Acknowledgements, Matthew Wappett

Developmental Disabilities Network Journal

No abstract provided.

The Use Of Speech-Generating Devices For Preschoolers With Autism Spectrum Disorder, Jessica Miller

Graduate Theses and Dissertations

The first of the following articles provides a review of the literature related to vocalizations among individuals with autism spectrum disorder (ASD) who use augmentative and alternative communication (AAC) systems, with special attention paid to speech-generating devices (SGD). After providing an overview of ASD, evidence-based practices (EBP), and AAC types and a brief history, this review evaluates studies that collected data on vocalizations in SGD-users, including both those that targeted vocalizations as a dependent variable and those that measured vocalizations as a collateral effect without directly targeting it. The goal of this review is to evaluate whether SGD use may …

Connecting To The Self: Increasing Self-Awareness In Children With Asd, Development Of A Method, Madison Janke

Expressive Therapies Capstone Theses

Dance/movement therapy is a popular method utilized with the autism spectrum population due to its focus on increasing social skills, developing relationships, improving function, increasing positive body image, and expanding movement repertoire. The literature indicated that mirroring is the most common and most utilized DMT intervention for this population, but it provided minimal alternative dance/movement therapy interventions. The dance/movement therapy method implemented through this research attempted to provide an alternative to mirroring through the creation of a body outline. This method was developed through the theoretical framework of relational-cultural theory, emphasizing the impact that relationships can have on the shaping …