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Articles 19471 - 19500 of 20613
Full-Text Articles in Social and Behavioral Sciences
Rectifying Harm Through Care-Based Practices: How Journalists Might Tend To Disengaged Communities, Sue Robinson, Patrick R. Johnson
Rectifying Harm Through Care-Based Practices: How Journalists Might Tend To Disengaged Communities, Sue Robinson, Patrick R. Johnson
College of Communication Faculty Research and Publications
Journalists struggle to engage with disengaged communities, especially conservative and BIPOC groups. In this research, we suggest that an ethic of care, born from developmental psychology, can be a strategy for trust building. Using a multi-phased, multi-method approach through interviews, surveys, and a focus group, we found that community members believe journalists must be more careful and intentional with cultural and political language relating to ideology, racial identity, and sexual orientation. This study shows that journalists must address harm by contending with negative news experiences, nuancing labels and language associated with their communities, and adopting a combination of five care-based …
Extending Athlete Reputational Crises: Theorizing Underperformance Crises And The Flip Appeal, Lillian B. Feder, Diana Zulli
Extending Athlete Reputational Crises: Theorizing Underperformance Crises And The Flip Appeal, Lillian B. Feder, Diana Zulli
College of Communication Faculty Research and Publications
Crisis management scholarship recommends matching crisis response with crisis type to repair reputational damage. However, focusing on the corporate context has limited our understanding of crisis types and available responses. One crisis context yet to be extensively explored is sport/fan interactions online, an increasing site for athlete crises. This article addresses this gap, developing a theoretical framework for underperformance crises, where online publics perceive athletic underperformance as a norm violation that merits excessive hate toward athletes. Using the crisis case of basketball player E. J. Liddell, whose underperformance during a 2021 March Madness game resulted in widespread online harassment, we …
Burnout In Forensic Psychology Related To Personal Traits And Vicarious Trauma, Olivia Shae Bruno
Burnout In Forensic Psychology Related To Personal Traits And Vicarious Trauma, Olivia Shae Bruno
Theses and Dissertations
Burnout is described as having three components: emotional exhaustion, depersonalization, and feelings of ineffectiveness (Maslach et al., 1997). Burnout is considered a major occupational hazard due to the consequences for the afflicted and the population they work with (Leka & Jain, 2012) including low quality care, job dissatisfaction, absenteeism, and high turnover rates (Maslach et al., 2001). Previous research has identified some occupations and settings which are linked to high rates of burnout, including psychologists (Rodriguez & Carlotta, 2017) and those working in a high stress field, such as police officers (Vazquez et al., 2021), corrections officers (Herlickson, 2010) or …
Work Characteristics, Workplace Support, And Mental Ill-Health In A Canadian Cohort Of Healthcare Workers During The Covid-19 Pandemic, Nicola Cherry, Anil Adisesh, Igor Burstyn, Quentin Durand-Moreau, Jean-Michel Galarneau, France Labrèche, Shannon Ruzycki, Tanis Zadunayski
Work Characteristics, Workplace Support, And Mental Ill-Health In A Canadian Cohort Of Healthcare Workers During The Covid-19 Pandemic, Nicola Cherry, Anil Adisesh, Igor Burstyn, Quentin Durand-Moreau, Jean-Michel Galarneau, France Labrèche, Shannon Ruzycki, Tanis Zadunayski
Études primaires
Objective The aim of the study was to identify determinants of mental health in healthcare workers (HCW) during the COVID-19 pandemic. Methods A cohort of Canadian HCW completed four questionnaires giving details of work with patients, ratings of workplace supports, a mental health questionnaire, and substance use. Principal components were extracted from 23 rating scales. Risk factors were examined by Poisson regression. Results A total of 4854 (97.8%) of 4964 participants completed ratings and mental health questionnaires. Healthcare workers working with patients with COVID-19 had high anxiety and depression scores. One of three extracted components, 'poor support,' was related to …
Occupational Pressures Of Frontline Workers Enforcing Covid-19 Pandemic Measures In Ontario And Quebec, Canada, Pamela Hopwood, Ellen Maceachen, Daniel Côté, Samantha B. Meyer, Shannon Majowicz, Ai-Thuy Huynh, Meghan K. Crouch, Joyceline Amoako, Yamin T. Jahangir, Amelia León Correal, Antonela Ilic
Occupational Pressures Of Frontline Workers Enforcing Covid-19 Pandemic Measures In Ontario And Quebec, Canada, Pamela Hopwood, Ellen Maceachen, Daniel Côté, Samantha B. Meyer, Shannon Majowicz, Ai-Thuy Huynh, Meghan K. Crouch, Joyceline Amoako, Yamin T. Jahangir, Amelia León Correal, Antonela Ilic
Études primaires
BACKGROUND:During the COVID-19 pandemic, low-wage public-facing frontline workers (FLWs), such as grocery store clerks, were required to monitor retail customers and enforce COVID-19 protocols. OBJECTIVE:This analysis aimed to examine FLWs experiences of enforcing COVID-19 pandemic measures. METHODS:Between September 2020 and March 2021, in Ontario and Quebec (Canada), we conducted in-depth interviews about customer-related work and health risks with FLWs who interacted with the public (n = 40) and their supervisors (n = 16). Using a lens of situational analysis, verbatim transcripts were coded according to recurring topics. RESULTS:We found that enforcing public health measures placed already-precarious workers in difficult occupational …
L’Insolite « Monde D’Après » De La Restauration : Une Comparaison France-Italie-Québec, Giovanna Fullin, Sylvie Monchatre, Samantha Vila
L’Insolite « Monde D’Après » De La Restauration : Une Comparaison France-Italie-Québec, Giovanna Fullin, Sylvie Monchatre, Samantha Vila
Études primaires
Le secteur de la restauration a été grandement affecté par la crise sanitaire et continue de rencontrer des difficultés à attirer et à retenir sa main d’œuvre. Basé sur une recherche comparative entre la France, l’Italie et le Québec, cet article vise à montrer comment la normativité ordinaire, qui prévaut dans ce secteur, a été malmenée par la crise sanitaire, dont les conséquences continuent, encore aujourd’hui, de se faire sentir. Dans les trois contextes, la restauration repose en grande partie sur ce que nous appelons des « régimes de mobilisation flexible » de jeunesses qui, si elles expérimentent un accès …
The Effects Of Video Game Use On Spatial Ability In A Landmark Memory Task, Brendan T. Jacobs, Christina A. Thrasher, Lauren L. Harburger
The Effects Of Video Game Use On Spatial Ability In A Landmark Memory Task, Brendan T. Jacobs, Christina A. Thrasher, Lauren L. Harburger
Modern Psychological Studies
The present study sought to determine whether playing video games more often improves spatial ability on the landmark memory task. The researchers hypothesized that participants who play video games more often would perform better on the task than those who play video games less often. One hundred seventy-two participants (80 men and 92 women) between the ages of 18 and 26 filled out a questionnaire which asked about video gaming habits prior to a landmark memory task. The landmark memory task consisted of 10-second videos that showed 180-degree views of various locations. At the completion of each video, an image …
Body Dissatisfaction In College Students: Which Sociocultural Pressure Best Predicts Drive For Thinness?, Sawyer V. Ellis, Elaine M. Kozmiuk, Mary E. Pritchard, Heather Schoenherr
Body Dissatisfaction In College Students: Which Sociocultural Pressure Best Predicts Drive For Thinness?, Sawyer V. Ellis, Elaine M. Kozmiuk, Mary E. Pritchard, Heather Schoenherr
Modern Psychological Studies
Previous literature has suggested that family pressure is the main predictor of drive for thinness (Palladino Green & Pritchard, 2003). Given the growth of social media where thin beauty is glamorized, we wanted to test if this remains true while including multiple factors that may have been disregarded in body-centric studies. Consequently, we asked which sociocultural pressure—family, peers, or media—relates the strongest with body shame, body surveillance, and drive for thinness. A sample of 1,049 undergraduate psychology students, ages 18-29, were surveyed to better understand body dissatisfaction in college students. We predicted that each sociocultural pressure would correlate with body …
Factors Contributing To Viewing Automobile Commuting As A Waste Of Time, Trishyne J. Butler, Jennifer L. Hughes
Factors Contributing To Viewing Automobile Commuting As A Waste Of Time, Trishyne J. Butler, Jennifer L. Hughes
Modern Psychological Studies
Many commuters view their commute as a waste of time. Although there is an ample amount of research on commuting, there is limited research on what negatively impacts the commuting experience. The current study sought to evaluate the relationship between commuters and their everyday commute. The following factors (i.e., gender identity, age, length, unpredictability, delays, time pressures, and congestion) were evaluated to predict seeing one’s commute as a waste of time. We hypothesized that men and younger commuters, as well as those who were unsatisfied with the length, unpredictability, delays, time pressures, and congestion during the commute, would find their …
Ambiguous Situations Make Me Anxious: Personality Traits And Initiating Social Interaction, Anthony Sego, Aimee Adam
Ambiguous Situations Make Me Anxious: Personality Traits And Initiating Social Interaction, Anthony Sego, Aimee Adam
Modern Psychological Studies
Social interaction is important for human health and happiness, yet it may be in decline. In this study, we examined traits related to whether individuals interact with one another. A structured lab observation was used to determine if participants would interact with a confederate. We also measured their Need for Cognitive Closure (NFCC), Social Anxiety (SA), Intolerance for Uncertainty (IU), and the Big Five personality traits, and examined the relationship between these factors and preferred physical distance from the stranger. Only 20% of all participants interacted with a confederate. Predictors of social interaction included higher scores in the Big Five …
Parental Childhood Rejection: An Exploration Of Anxiety And Depression In Later Life, Rocky Ashburn, Stephanie A. Kazanas
Parental Childhood Rejection: An Exploration Of Anxiety And Depression In Later Life, Rocky Ashburn, Stephanie A. Kazanas
Modern Psychological Studies
Many studies have shown parental rejection can lead to depression. However, research exploring parental rejection and anxiety has been lacking and inconsistent, with some studies suggesting a relationship, while others do not. The current study aimed to examine if the perception of parental rejection in one’s childhood could predict trait anxiety and depression scores among young adults. Our hypothesis was that higher perception of parental rejection in childhood would predict both higher trait anxiety and depression. Study participants included 123 undergraduate students from a Southeastern U.S. university, with all participants being at least 18 years old. Correlations were explored across …
Early Identification Of Autism Spectrum Disorder In Childcare Settings: A Literature Review, Maneli Nourzad
Early Identification Of Autism Spectrum Disorder In Childcare Settings: A Literature Review, Maneli Nourzad
Modern Psychological Studies
Timely intervention is key in the development of children with Autism Spectrum Disorder (ASD) and early childhood settings present an opportune environment for early diagnosis, particularly in Canada where the identification of ASD in children below the age of four can be further expanded. This review first summarizes the potential benefits and barriers to early identification of ASD in children. There is robust evidence that early detection can result in improved biological and behavioral outcomes in later stages of life despite the subtle and at times elusive signs of ASD in young children. We then focus on the role early …
Interactions Between Anxiety, Family Influence, And Athletic Status On College Students: A Military School Cohort, Caragh Osborne, Aubrey Whitehead
Interactions Between Anxiety, Family Influence, And Athletic Status On College Students: A Military School Cohort, Caragh Osborne, Aubrey Whitehead
Modern Psychological Studies
The prevalence of anxiety in college students has increased drastically over the past decade. Previous researchers have typically only examined how to help students while they are at school, however, there could be additional factors contributing to their anxiety prior to attending college. The current study aimed to observe how family influence and athletic status may play a role in anxiety among college students. Participants (N = 42) completed an anxiety symptoms inventory then disclosed how much their family influenced their decision to attend college. A two-way ANOVA indicated that neither athletic status nor degree of family influence had a …
Legislative Redistricting And The Partisan Distribution Of Transportation Expenditure, Walter Melnik
Legislative Redistricting And The Partisan Distribution Of Transportation Expenditure, Walter Melnik
Economics Faculty Research and Publications
I show that a state representative’s political party determines transportation expenditure in the area she represents. Previous studies of this topic consider party changes through election outcomes, which may be correlated with unobservable determinants of expenditure. To overcome this issue, I identify my estimates using Ohio’s 2012 state legislative redistricting, which moved many geographic areas into districts with opposite party incumbents. The Republican party controlled the state legislature and governorship over the period I study. I find that areas moving from governing party Republican to minority party Democratic districts received $3.4M (0.18 standard deviations) less annual highway construction funding than …
Health Sciences Libraries: A Changing Landscape, Janet Bolduc, Elizabeth J. Dyer, Linda Kerecman, Dina J. Mckelvy
Health Sciences Libraries: A Changing Landscape, Janet Bolduc, Elizabeth J. Dyer, Linda Kerecman, Dina J. Mckelvy
MaineHealth Maine Medical Center
Health sciences libraries provide specialized resources and services to learners, clinicians, patients and the community. The authors describe how health sciences libraries continue to evolve in a changing healthcare system landscape. New technologies, roles, educational resources and learner expectations provide challenges and opportunities for health sciences libraries.
The Influence Of Relational Frames On Climate Purchasing And Policy, Lauren Rose Hutchison
The Influence Of Relational Frames On Climate Purchasing And Policy, Lauren Rose Hutchison
Graduate Theses/Dissertations
Evaluative conditioning refers to the effect that occurs when two stimuli are paired together, resulting in a change in the evaluation or function of one of the stimuli. Evaluative conditioning has been researched in various fields of study, such as advertisement and public administration, but synthetization efforts of these results with a relational frame theory approach, and vice versa, have been limited. This thesis used de-identified data from prior approved research to integrate and discusses two manuscripts that provide a relational frame theory perspective to evaluative conditioning effects. Study 1 extends a previous experiment by Matthews et al. (2022) through …
Exploring Interdisciplinary Literacy Practices Supporting Youth Creativity, Critical Literacy, And Climate Change From An Interdisciplinary Perspective, Thomas W. Bean
Teaching & Learning Faculty Publications
Norfolk, Virginia endures frequent tide- and rain-impacted flooding with king tides and flooding neighborhoods. The heavy rainfall envelops parking lots at the naval airbase, and plans are underway to create barrier sea walls that can be adjusted based on conditions. Given various dire predications for future sea level rise, Old Dominion University has created a “Maritime Consortium” aimed at bringing together interested faculty and students from a range of fields (e.g., oceanography, engineering, education, and other fields). At this stage the focus is on compiling a directory of interested parties. So far regular meetings have been held to learn about …
Payday Power-Up: Let's Make A Raise Distribution, Ayse Ozturk
Payday Power-Up: Let's Make A Raise Distribution, Ayse Ozturk
Teaching & Learning Faculty Publications
This study illustrates a problem-solving activity reflective of a real-life situation wherein high school students articulate their reasoning while contemplating the effectiveness and fairness of distributing raises. Study data were gathered via teaching experiment methodology in problem-solving sessions at a mathematics camp for secondary students. Examination of the data indicated that students sought entry points for problem-solving by making assumptions and pinpointing crucial variables. Framing mathematics within the concept of fairness encouraged students to review their work, engage in active listening, and find purpose in mathematical reasoning.
Always Politically Correct: Supporting Seriously Ill Older Populations And Their Families, M. Courtney Hughes, Erin Vernon
Always Politically Correct: Supporting Seriously Ill Older Populations And Their Families, M. Courtney Hughes, Erin Vernon
Faculty Articles, Papers, and Other Scholarship
We have been researching outcomes related to seriously ill individuals for over a decade, critically examining countless research articles from around the world, and extensively interviewing various stakeholders in this space, including hospital leaders, hospice leaders, lobbyists, nurses, social workers, and informal caregivers. We have also experienced firsthand the heartwrenching difficulty of caring for seriously ill loved ones. While we have learned a tremendous amount along the way, two specific observations consistently stand out. First, regardless of culture, income level, or politics, most people can personally identify with caring for seriously ill individuals. Second, the research evidence indicates that not …
Clinical Characteristics Of Probands With Obsessive-Compulsive Disorder From Simplex And Multiplex Families, Monicke O Lima, Leonardo C Saraiva, Vanessa R Ramos, Melaine C Oliveira, Daniel L C Costa, Brazilian Research Consortium On Obsessive-Compulsive Spectrum Disorders, Thomas V Fernandez, James J Crowley, Eric A Storch, Roseli G Shavitt, Euripedes C Miguel, Carolina Cappi
Clinical Characteristics Of Probands With Obsessive-Compulsive Disorder From Simplex And Multiplex Families, Monicke O Lima, Leonardo C Saraiva, Vanessa R Ramos, Melaine C Oliveira, Daniel L C Costa, Brazilian Research Consortium On Obsessive-Compulsive Spectrum Disorders, Thomas V Fernandez, James J Crowley, Eric A Storch, Roseli G Shavitt, Euripedes C Miguel, Carolina Cappi
Center for Medical Ethics and Health Policy Staff Publications
Genetic and non-genetic factors contribute to obsessive-compulsive disorder (OCD), with strong evidence of familial clustering. Genomic studies in psychiatry have used the concepts of families that are "simplex" (one affected) versus "multiplex" (multiple affected). Our study compares demographic and clinical data from OCD probands in simplex and multiplex families to uncover potential differences. We analyzed 994 OCD probands (501 multiplex, 493 simplex) from the Brazilian Research Consortium on Obsessive-Compulsive Spectrum Disorders (C-TOC). Clinicians administered the Structured Clinical Interview for DSM-IV (SCID-IV) to diagnose, Yale-Brown Obsessive-Compulsive Scale (Y-BOCS) to assess severity, and Dimensional Yale-Brown Obsessive-Compulsive Scale (DY-BOCS) to assess symptom dimensionality. …
The Regenarrative: How To Change The Story In Order To Change The Future, S. Rose Bigheart O'Leary
The Regenarrative: How To Change The Story In Order To Change The Future, S. Rose Bigheart O'Leary
Dartmouth College Master’s Theses
Abstract
In the era of Climate Change, many are concerned that the end of the Anthropocene, or the end of the era of human life on Earth, is upon us. Western European colonialism and its subsequent systems (settler-colonialism, colonial-capitalism, and globalization - sometimes termed “neocolonialism”) have all been implicated in contributing to unsustainable behaviors linked to accelerating climate change. In searching for possible solutions, some have called for listening to Indigenous Peoples, citing ethics of sustainability found among many Indigenous cultures. However, the cultural products of settler-colonialism are still dominant in ways that do not allow for Indigenous worldviews to …
School Culture: Identifying The Barriers To Belonging At Boarding Schools And Shifting The Culture, Kyle Connolly
School Culture: Identifying The Barriers To Belonging At Boarding Schools And Shifting The Culture, Kyle Connolly
Dartmouth College Master’s Theses
School Culture: Identifying the Barriers to Belonging at Boarding Schools and Shifting the Culture is a theoretical application of sociological concepts to boarding school social spaces. The social environment in schools is a venue where students are subjected to endless influences that play a major role in shaping their social realities. Though much debate in education focuses on the curriculum in public school settings, there is far less attention given to small boarding school communities and even less attention on the culture of belonging, or the obstacles to belonging that exist within it. As American society grows more diverse, economically …
A Use Case Of Chatgpt: Summary Of An Expert Panel Discussion On Electronic Health Records And Implementation Science, Seppo T Rinne, Julian Brunner, Timothy P Hogan, Jacqueline M Ferguson, Drew A Helmer, Sylvia J Hysong, Grace Mckee, Amanda Midboe, Megan E Shepherd-Banigan, A Rani Elwy
A Use Case Of Chatgpt: Summary Of An Expert Panel Discussion On Electronic Health Records And Implementation Science, Seppo T Rinne, Julian Brunner, Timothy P Hogan, Jacqueline M Ferguson, Drew A Helmer, Sylvia J Hysong, Grace Mckee, Amanda Midboe, Megan E Shepherd-Banigan, A Rani Elwy
Center for Medical Ethics and Health Policy Staff Publications
Objective: Artificial intelligence (AI) is revolutionizing healthcare, but less is known about how it may facilitate methodological innovations in research settings. In this manuscript, we describe a novel use of AI in summarizing and reporting qualitative data generated from an expert panel discussion about the role of electronic health records (EHRs) in implementation science.
Materials and methods: 15 implementation scientists participated in an hour-long expert panel discussion addressing how EHRs can support implementation strategies, measure implementation outcomes, and influence implementation science. Notes from the discussion were synthesized by ChatGPT (a large language model-LLM) to generate a manuscript summarizing the discussion, …
Ethical Considerations For Integrating Multimodal Computer Perception And Neurotechnology, Meghan E Hurley, Anika Sonig, John Herrington, Eric A Storch, Gabriel Lázaro-Muñoz, Jennifer Blumenthal-Barby, Kristin Kostick-Quenet
Ethical Considerations For Integrating Multimodal Computer Perception And Neurotechnology, Meghan E Hurley, Anika Sonig, John Herrington, Eric A Storch, Gabriel Lázaro-Muñoz, Jennifer Blumenthal-Barby, Kristin Kostick-Quenet
Center for Medical Ethics and Health Policy Staff Publications
Background: Artificial intelligence (AI)-based computer perception technologies (e.g., digital phenotyping and affective computing) promise to transform clinical approaches to personalized care in psychiatry and beyond by offering more objective measures of emotional states and behavior, enabling precision treatment, diagnosis, and symptom monitoring. At the same time, passive and continuous nature by which they often collect data from patients in non-clinical settings raises ethical issues related to privacy and self-determination. Little is known about how such concerns may be exacerbated by the integration of neural data, as parallel advances in computer perception, AI, and neurotechnology enable new insights into subjective states. …
The Determinants Of Nonprofit Hospital Ceo Compensation, Derek Jenkins, Marah N Short, Vivian Ho
The Determinants Of Nonprofit Hospital Ceo Compensation, Derek Jenkins, Marah N Short, Vivian Ho
Center for Medical Ethics and Health Policy Staff Publications
Hospital CEO salaries have grown quickly over the past two decades. We investigate correlates of rising nonprofit hospital CEO pay between 2012 and 2019 by merging compensation data from Candid's IRS 990 forms with hospital data from the National Academy for State Health Policy Hospital Cost Tool. Almost half of the measured increase in CEO compensation (44.5%) accrued to a "base case" CEO, who was leading a non-teaching hospital system or independent hospital with fewer than 100 beds that earned 0 profits and provided no charity care. Another 28.5% of the measured salary increase resulted from changes in the generosity …
Obsessive-Compulsive Disorder Among Individuals Of Hispanic And Latin American Ancestry: Cultural Considerations For Assessment And Psychotherapy, Olivia J Morris, Andrew D Wiese, Caitlin M Pinciotti, Rosa Pacheco, Mayra C Martinez Mallen, Ethan J Schweissing, Keaton J Soileau, Latin American Trans-Ancestry Initiative For Ocd Genomics (Latino), Brazilian Obsessive-Compulsive Spectrum Work Group (Gttoc), James J Crowley, Eric A Storch
Obsessive-Compulsive Disorder Among Individuals Of Hispanic And Latin American Ancestry: Cultural Considerations For Assessment And Psychotherapy, Olivia J Morris, Andrew D Wiese, Caitlin M Pinciotti, Rosa Pacheco, Mayra C Martinez Mallen, Ethan J Schweissing, Keaton J Soileau, Latin American Trans-Ancestry Initiative For Ocd Genomics (Latino), Brazilian Obsessive-Compulsive Spectrum Work Group (Gttoc), James J Crowley, Eric A Storch
Center for Medical Ethics and Health Policy Staff Publications
Research specific to obsessive-compulsive disorder (OCD) among individuals of Hispanic and Latin American (H/L) ancestry is limited, as are culturally relevant assessment and treatment recommendations. This article discusses the implications of underrepresentation of H/L populations in OCD research and emphasizes the need to consider issues related to assessment, treatment, and structural barriers that hinder delivery of culturally appropriate first-line psychotherapy. Recommendations for assessment and treatment are provided to aid clinicians in distinguishing culturally normative thoughts and behaviors from OCD, as well as to inform the implementation of psychotherapeutic interventions with cultural humility. This manuscript offers recommendations for future research to …
Racial And Ethnic Disparities In Acuity Of Presentation Among Children With Newly Diagnosed Acute Leukemia, Lena E Winestone, Kelly D Getz, Yimei Li, Evanette Burrows, Michael E Scheurer, Vicky Tam, M Monica Gramatges, Jennifer J Wilkes, Tamara P Miller, Alix E Seif, Karen R Rabin, Brian T Fisher, Richard Aplenc
Racial And Ethnic Disparities In Acuity Of Presentation Among Children With Newly Diagnosed Acute Leukemia, Lena E Winestone, Kelly D Getz, Yimei Li, Evanette Burrows, Michael E Scheurer, Vicky Tam, M Monica Gramatges, Jennifer J Wilkes, Tamara P Miller, Alix E Seif, Karen R Rabin, Brian T Fisher, Richard Aplenc
Center for Medical Ethics and Health Policy Staff Publications
We evaluated disparities in disease burden, organ dysfunction, vital signs, and timing of therapy in children newly presenting with acute leukemia. Among 899 patients with acute leukemia diagnosed at two large children's hospitals, a priori lab-based definitions of high disease burden, infection risk, renal dysfunction, and coagulopathy were applied to electronic health record data. Black patients with acute myeloid leukemia had increased prevalence of elevated white blood cell count and uric acid; Black patients with acute lymphoblastic leukemia demonstrated increased prevalence of coagulopathy. Black patients' presentation more frequently included multiple lab abnormalities consistent with advanced physiologic dysfunction. No differences were …
Public Perspectives On Investigative Genetic Genealogy: Findings From A National Focus Group Study, Jacklyn Dahlquist, Jill O Robinson, Amira Daoud, Whitney Bash-Brooks, Amy L Mcguire, Christi J Guerrini, Stephanie M Fullerton
Public Perspectives On Investigative Genetic Genealogy: Findings From A National Focus Group Study, Jacklyn Dahlquist, Jill O Robinson, Amira Daoud, Whitney Bash-Brooks, Amy L Mcguire, Christi J Guerrini, Stephanie M Fullerton
Center for Medical Ethics and Health Policy Staff Publications
Background: Investigative genetic genealogy (IGG) is a technique that involves uploading genotypes developed from perpetrator DNA left at a crime scene, or DNA from unidentified remains, to public genetic genealogy databases to identify genetic relatives and, through the creation of a family tree, the individual who was the source of the DNA. As policymakers demonstrate interest in regulating IGG, it is important to understand public perspectives on IGG to determine whether proposed policies are aligned with public attitudes.
Methods: We conducted eight focus groups with members of the public (N = 72), sampled from four geographically diverse US regions, …
"A Double-Edged Sword": A Brief History Of Genomic Data Governance And Genetic Researcher Perspectives On Data Sharing, Kayte Spector-Bagdady, Kerry A Ryan, Amy L Mcguire, Chris D Krenz, M Grace Trinidad, Kaitlyn Jaffe, Amanda Greene, J Denard Thomas, Madison Kent, Stephanie Morain, David Wilborn, J Scott Roberts
"A Double-Edged Sword": A Brief History Of Genomic Data Governance And Genetic Researcher Perspectives On Data Sharing, Kayte Spector-Bagdady, Kerry A Ryan, Amy L Mcguire, Chris D Krenz, M Grace Trinidad, Kaitlyn Jaffe, Amanda Greene, J Denard Thomas, Madison Kent, Stephanie Morain, David Wilborn, J Scott Roberts
Center for Medical Ethics and Health Policy Staff Publications
As the federal government continues to expand upon and improve its data sharing policies over the past 20 years, complex challenges remain. Our interviews with U.S. academic genetic researchers (n=23) found that the burden, translation, industry limitations, and consent structure of data sharing remain major governance challenges.
Sample Instruction Class: Germ 525--Fall 2024, Kathrine C. Aydelott
Sample Instruction Class: Germ 525--Fall 2024, Kathrine C. Aydelott
Faculty Publications
A sample slide deck of a library instruction class given in GERM 525 (a sophomore-level German class) using Mentimeter as a presentation platform.