Digital Commons Network^™

Patient Perceptions On The Advancement Of Noninvasive Prenatal Testing For Sickle Cell Disease Among Black Women In The United States, Shameka P Thomas, Faith E Fletcher, Rachele Willard, Tiara Monet Ranson, Vence L Bonham

Center for Medical Ethics and Health Policy Staff Publications

Background: Noninvasive prenatal testing (NIPT) designed to screen for fetal genetic conditions, is increasingly being implemented as a part of routine prenatal care screening in the United States (US). However, these advances in reproductive genetic technology necessitate empirical research on the ethical and social implications of NIPT among populations underrepresented in genetic research, particularly Black women with sickle cell disease (SCD).

Methods: Forty (N = 40) semi-structured interviews were conducted virtually with Black women in the US (19 participants with SCD; 21 participants without SCD) from June 2021 to January 2022. We employed a qualitative approach to examine the …

‘Routines’ And ‘Formulaic Language’ In Conversation Analysis (Author's Extended Data), Danielle M. Pillet-Shore

Faculty Publications

Though the field of conversation analysis (CA) was founded upon examinations of interactional “routines” such as conversation openings and closings, conceptualizing and categorizing communicative phenomena as “formulaic” is anathema to CA. This chapter details how, since its inception, CA work has empirically elucidated how participants to recorded episodes of naturally occurring social interaction actively and collaboratively accomplish conversational activities as ‘routine’ or not by selecting from available action alternatives, spontaneously coordinating their selections vis-à-vis one another. Taking a multimodal CA approach, this chapter reviews state-of-the art literature on how people open and close in-person and telephone conversations, showing the immense …

'I’M A Pilot First, Female Second': Why Flight Deck Gender Imbalance Persists And The Case For Allyship, Kimberly Perkins, Rachael H. Merola, Sourojit Ghosh, Cecilia Aragon

Journal of Aviation/Aerospace Education & Research

Why is there greater gender parity for long-haul truck drivers, astronauts, and paleontologists than for women airline captains? This study uses a mixed-methods approach to examine the underlying causes of the gender imbalance in the United States aviation industry, in which only 3.6% of airline captains are women. Two polls and one survey gather data from professional pilots (N=1093) on their experience with stereotyping, gender bias, and allyship. Direct comments were analyzed to shed light on the results of the survey. Results suggest that, contrary to prevailing perceptions, the persistent gender imbalance in the flight deck can largely be attributed …

History’S Slowest Digital Transformation: The Long Road To Flight Data Monitoring, Michael Ott

Journal of Aviation/Aerospace Education & Research

Flight data monitoring (FDM) began in the flight test community in 1939 and entered the airline industry in 1974. In the 48 years since, however, very few operators have chosen to adopt this practice, which has shown clear safety benefits where it has found acceptance. While technical issues have created some obstacles, cultural issues have proven the greatest hindrance to wider FDM adoption. These cultural issues originated in the traits associated with pilots’ personalities, especially distrust of the regulators and operators who would administer flight data analysis programs (FDAP) that used FDM information. U.S. regulators have relied on voluntary adoption, …

Narratives Of Identity: An Autoethnographic Exploration Of Biracial Identity Construction And Performance In Family, Education, And Media, Eboni Springfield

Dissertations and Theses @ UNI

This thesis explores the complex construction and performance of biracial identity within the context of the United States, delving into the historical and ongoing impacts of race and racism, and the pervasive influence of white supremacy. Through an autoethnographic approach, this study investigates how personal narratives illuminate the processes of biracial identity construction, expression, and negotiation across three social institutions: family, education, and media. The findings reveal the intricate and intersecting interactions that contribute to identity formation, highlighting the expansive nature of intersectionality. The analysis demonstrates that biracial identity is continuously shaped in response to white supremacy, which complicates efforts …

Achieving Surgical, Obstetric, Trauma, And Anesthesia (Sota) Care For All In South Asia, Siddhesh Zadey, Shirish Rao, Isha Gondi, Natalie Sheneman, Chaitrali Patil, Anveshi Nayan, Himanshu Iyer, Arti Raj Kumar, Arun Prasad, G Allen Finley, Chellapuram Raja Krishna Prasad, Chintamani, Dhananjaya Sharma, Dhruva Ghosh, Gnanaraj Jesudian, Irum Fatima, Jogi Pattisapu, Justin Sangwook Ko, Lovenish Bains, Mashal Shah, Mohammed Shadrul Alam, Narmada Hadigal, Naveen Malhotra, Nilmini Wijesuriya, Prateek Shukla, Sadaf Khan, Sunil Pandya, Tariq Khan, Tashi Tenzin, Venkat Raja Hadiga, Daniel Peterson

Faculty, Staff and Students Publications

South Asia is a demographically crucial, economically aspiring, and socio-culturally diverse region in the world. The region contributes to a large burden of surgically-treatable disease conditions. A large number of people in South Asia cannot access safe and affordable surgical, obstetric, trauma, and anesthesia (SOTA) care when in need. Yet, attention to the region in Global Surgery and Global Health is limited. Here, we assess the status of SOTA care in South Asia. We summarize the evidence on SOTA care indicators and planning. Region-wide, as well as country-specific challenges are highlighted. We also discuss potential directions-initiatives and innovations-toward addressing these …

Proof Of Principle For A Self-Governing Prediction And Forecasting Reward Algorithm, Jose Osvaldo Gonzalez-Hernandez, Jonathan Marino, Ted Rogers, Brandon Velasco

Physics Faculty Publications

We use Monte Carlo techniques to simulate an organized prediction competition between a group of scientific experts acting under the influence of a "self-governing" prediction reward algorithm. Our aim is to illustrate the advantages of a specific type of reward distribution rule that is designed to address some of the limitations of traditional forecast scoring rules. The primary extension of this algorithm as compared with standard forecast scoring is that it incorporates measures of both group consensus and question relevance directly into the reward distribution algorithm. Our model of the prediction competition includes parameters that control both the level of …

Let Your Head Hang Down: A Narrative Examination Of Cultic & Conspiratorial Romance, Kyle Macy

Electronic Theses & Dissertations (2024 - present)

A response to recent cultural trends of radicalization, extremism, and violence in American society, this dissertation, a novel rendered in ephemeral fragments of oral histories, interrogates the romanticist postures that compel a community of musical artists, the so-called “Folk Revival Revival,” toward infamy and tragedy. Where more traditional sociological approaches to cultic formations stress the importance of centralized charismatic authority, and more traditional psychological approaches rely upon a conspiratorial Cold War ethos of cognitive bias and coercive control (i.e. “brainwashing”), this project meets such assumptions with incredulity, asserting instead that cultic and conspiratorial entrancement awakens first from within, and may …

Genograms, Culture, Love And Sisterhood: A Conversation With Monica Mcgoldrick, Deisy Amorin-Woods

Research outputs 2022 to 2026

Monica McGoldrick stands as a towering figure in the field of family therapy. Initially earning a Masters in Russian Studies, she then pivoted to social work and systems thinking. McGoldrick's illustrious career has been marked by significant contributions to family therapy, particularly through her work with family genograms, mapping family relationships and histories to identify patterns across generations. She expanded the use of genograms to incorporate cultural, ethnic and gender contexts, revolutionising the field. Her work emphasises understanding individuals within their historical, social and cultural contexts. She has authored multiple seminal texts, including ‘Ethnicity and family therapy’, and Genograms: Assessment …

Ecology Of Emergency Care In Lower-Tier Healthcare Providers In Ghana: An Empirical Data-Driven Bayesian Network Analytical Approach, Ebenezer Afrifa-Yamoah, Victor F. Nunfam, Bernard A. Kwanin, Kwasi Frimpong

Research outputs 2022 to 2026

The healthcare landscape in Ghana is primarily composed of lower-tier providers, which serve as the initial point of contact for most medical emergencies. This study aimed to assess the emergency care preparedness and readiness of primary healthcare providers using a robust evaluation approach. A multicentre retrospective cross-sectional study was conducted on 460 healthcare facilities using the standardised Health Facilities Emergency Preparedness Assessment Tool (HeFEPAT). Data were analysed via Bayesian Belief network. Emergency preparedness was associated with facility location, type, ownership, and in-charge personnel. Over 70% of facilities lacked specialised emergency/critical care personnel. Although 65% of in-charges reported protocol knowledge, only …

Engendering Ethics: Recognition And Inclusion Of Intersectional Identities In Queer Communities When Conducting Population Survey Research, Kim Andreassen, Leanda D. Mason, Julian Chen

Research outputs 2022 to 2026

This paper delves into the critical importance of ethical considerations in research, with a primary focus on gender, sex, and sexual orientation. Recognizing the vulnerabilities and complexities inherent in these communities, we emphasize here the necessity of ethical awareness throughout all research phases. Ethical obligations may extend to ensuring cultural sensitivity, safety, and equitable resource distribution. The core ethical principles of autonomy, beneficence, non-maleficence, and justice are promoted here to serve as a viable framework for ethical research. These principles require meticulous attention to informed consent, minimizing harm, maximizing benefits, and promoting fairness throughout the research process. The paper delves …

Parental Experiences Of Supporting The Mental Health Of Their Lgbtqa+ Child, Jessica M. Gilbert, Penelope Strauss, Deirdre Drake, Helen Stain, Yael Perry, Angus Cook, Ashleigh Lin, Helen Morgan

Research outputs 2022 to 2026

Young people who are lesbian, gay, bisexual, trans, queer or questioning, asexual and other diverse genders and sexualities (LGBTQA+) are at greater risk of adverse mental health outcomes and suicide, with additional barriers to accessing safe and affirming physical and mental health services in comparison to the general population. Parents of LGBTQA+ young people who are supportive and accepting can take on additional responsibilities and an active role in supporting young people, and more information is needed to understand how parents support LGBTQA+ young people in times of acute mental health difficulties (including suicide risk) and what parents experience while …

Queering Primary Initial Teacher Education, David Rhodes, Matt Byrne, Jason Boron

Research outputs 2022 to 2026

This research was designed to raise awareness, access and understanding of lesbian, gay, bisexual, transgender, intersex, queer/questioning, asexual/aromantic and others who sit outside of the heteronormative binary (LGBTIQA+), inclusion for pre-service educators studying in Bachelor of Education (Primary) and Master of Teaching (Primary) ITE courses in one Australian university. The project involved the production of three video resources intended for inclusion in existing teacher education units. Whilst originally conceptualized as ’bite-sized‘ resources intended for use by pre-service educators, initial survey data from academic staff indicated the need to first develop the collective understanding of primary education LGBTIQA+ inclusion for the …

The Brief Solastalgia Scale: A Psychometric Evaluation And Revision, Bruce K. Christensen, Conal Monaghan, Samantha K. Stanley, Iain Walker, Zoe Leviston, Emily Macleod, Rachael M. Rodney, Lisa-Marie Greenwood, Timothy Heffernan, Olivia Evans, Stewart Sutherland, Julia Reynolds, Alison L. Calear, Tim Kurz, Jo Lane

Research outputs 2022 to 2026

Witnessing degradation and loss to one’s home environment can cause the negative emotional experience of solastalgia. We review the psychometric properties of the 9-item Solastalgia subscale from the Environmental Distress Scale (Higginbotham et al. (EcoHealth 3:245–254, 2006)). Using data collected from three large, independent, adult samples (N = 4229), who were surveyed soon after the 2019/20 Australian bushfires, factor analyses confirmed the scale’s unidimensionality, while analyses derived from Item Response Theory highlighted the poor psychometric performance and redundant content of specific items. Consequently, we recommend a short-form scale consisting of five items. This Brief Solastalgia Scale (BSS) yielded excellent model …

The Impact Of Positive And Negative Psychological Affect And Overconfidence From Major Family Events On New Venture Survival, Pi-Shen Seet, Wee-Liang Tan

Research outputs 2022 to 2026

This paper investigates how family events interacting with entrepreneurs’ psychological affect and overconfidence impact new venture viability. We use panel data from the Australian Household, Income and Labor Dynamics survey, focusing on family event-induced psychological affect entrepreneurs experience as a predictor of new venture survival. Our accelerated failure time model shows that although negative family events interact with entrepreneur overconfidence to spur cautious behaviour, positive events interacting with overconfidence have the biggest impact (negative) on new ventures. The study enhances our understanding of the embeddedness of family in the entrepreneurial process and challenges past research by revealing how positive family …

Ghanaian Values In Motion: A Content Analysis Of Slogans On Commercial Vehicles In Accra, Abraham Kenin, Vivian Dzokoto, Annabella Osei-Tutu, Kwabena Asamoah-Gyadu

Research outputs 2022 to 2026

Slogans on commercial vehicles are a common sight in Ghana. These material artefacts can provide insight into beliefs and values about the sociocultural, spiritual, and political experiences of life in the contemporary Ghanaian context. In this study, we collected and analysed a total of 438 commercial vehicles’ slogans from 5 main transportation terminals in the Accra metropolitan area. Our thematic analysis of these slogans shows a major emphasis on religious and spiritual values to the extent that most of the recorded slogans serve as positive affirmations of religious values and sources of spiritual encouragement. The dominance of religious references in …

Kids, Courts And Canines: Evaluating The Justice Facility Dog Program Through A Therapeutic Lens In The Perth Children's Court, Suzanne Rock, Natalie Gately

Research outputs 2022 to 2026

Court environments can be stressful and induce anxiety in victims, witnesses, and other court users. Taking heed from justice facilities in other jurisdictions, the Children's Court of Western Australia introduced Winston, a justice facility dog, at the Perth Children's Court facility to help reduce the stress and anxiety of victims, witnesses, and court users. This article presents survey (n = 55) and interview data (n = 17) from staff and stakeholders who reported positive changes in the court atmosphere, with limited negative impacts on the running of the court. Surveys were also conducted with child victims/survivors (n = 13), caregivers …

You Fooled Me, So I'Ll Tell You About Myself! Personnel-Related Brand Betrayal Experiences And Disclosure Of Personal Information, Teck M. Tan, Jari Salo, Jaakko Aspara

Research outputs 2022 to 2026

Past research has extensively studied the negative effects of brand betrayals on consumer attitudes, but largely ignored their potential positive consequences. Also, while previous research has focused on betrayals made by the brand itself, it has paid less attention to betrayals by the brand's personnel. This paper focuses on one potentially important positive consequence of brand personnel betrayal experiences (a consumer's feeling of being betrayed by the brand staff members): the increased willingness of consumers to share personal insights and information with the brand after experiencing a brand personnel betrayal. A field data set and two online experiments show that …

Enacting Migrant Community: Struggles And Unbelonging In The Field Of Russian-Speaking Cultural Production, Raisa Akifeva, Loretta Baldassar, Farida Fozdar

Research outputs 2022 to 2026

In this article, based on ethnographic research conducted in Perth, Western Australia and Madrid, Spain, we consider how community is understood and enacted for Russian-speaking migrants and its role in cultural (re)production. Studies often overlook the important role of struggle, contestation and power relations in everyday practices of community making. Drawing on Bourdieu’s field theory, we describe the Russian-speaking migrant community as a structured social space in which community leaders and migrant institutions compete for the right to represent the community. As a result of power differentials, contested ideas about what Russian-speaking culture is and how it should be transmitted, …

An Ecosystem Of Knowledge: Relationality As A Framework For Teachers To Infuse Indigenous Perspectives In Curriculum, Maryanne Macdonald, Sarah Booth, Libby Jackson-Barrett

Research outputs 2022 to 2026

New data is presented from two studies involving thirteen practising secondary teachers and twelve pre-service early childhood, primary and secondary teachers in Australia. The first study explored how non-Indigenous practising teacher identities, shaped by external and policy discourse, create obstacles to teachers’ willingness and confidence in infusing Indigenous perspectives in curriculum. With this knowledge in hand, the researchers utilised a Design-Based Research methodology to conduct a second study with pre-service (ITE) teachers, exploring the power of relationality as a framework to re-shape non-Indigenous pre-service teachers’ conceptualisation of racial and place-based identity. By enabling non-Indigenous pre-service teachers to construct an authentic …

Aboriginal Students’ Journeys To University – Privileging Our Sovereign Voices, Renae Isaacs-Guthridge

Research outputs 2022 to 2026

Since invasion the trajectory of colonial education in Australia has been linear; most students are expected to complete primary and secondary education, and, if accepted, seamlessly transition to university by 18 years of age. The reality is that many students do not experience continuity in their education, let alone reach university, and this can be particularly problematic for Aboriginal and Torres Strait Islander students (Australian Institute of Health and Welfare, 2024; Productivity Commission, 2024). Put simply, Australia’s education system continues to fail many Aboriginal and Torres Strait Islander students, further silencing our sovereign voices. Drawing on an Indigenist research paradigm …

Our Right To Play: How Afghan Women Navigate Constraints, Agency, And Aspirations On And Off The Soccer Field, Ramón Spaaij, Aish Ravi, Jonathan Magee, Ruth Jeanes, Dawn Penney, Justen O’Connor

Research outputs 2022 to 2026

In the wake of the Taliban’s return to power in Afghanistan and its ban on women’s sport, hundreds of Afghan athletes, including several Olympians, decided to flee the country rather than give up their sports and see their rights curtailed. This paper explores how Afghan women now living in Australia navigate agency and aspirations on and off the soccer field within the context of high levels of uncertainty, instability, and constraint. Drawing on qualitative interviews with 18 participants, the results demonstrate how soccer offers an insightful microcosm of settlement as a continuation of a fraught journey. The findings reveal both …

"Shut Down And Closed Off": A Routine Activity Approach To Investigating The Relationship Between Covid-19 School Closures And Child Sexual Abuse Report Characteristics In Georgia, Spencer E. Riner

College of Graduate Studies: Theses & Dissertations

The COVID-19 pandemic of 2020 created a public health crisis that led to an unprecedented number of school closures. A major concern raised by child advocates, law enforcement, and social service providers was the possible increase in undetected child abuse and maltreatment. Undergirding this concern was the belief that this mitigation effort might place child abuse victims and offenders within proximity for extended periods of time. While this was a significant concern, it has rarely been analyzed empirically. To address this gap in the literature, this thesis investigates how school closures impacted the characteristics of child sexual abuse (CSA) reports …

The U.S. Southern Mothers Perspective On Affection, Destiny M. Rose

College of Graduate Studies: Theses & Dissertations

This qualitative research study utilizes Murray Bowen’s Family Systems Theory and Kimberlé Crenshaw’s Intersectionality Theory to examine how ten mothers residing in what is identified as the U.S. Deep South (Georgia, Alabama, and South Carolina) perceive affection shown to their children by adults outside of their nuclear family. Additionally, this study considers the influence social class plays in how parents in the Deep South navigate and negotiate social and cultural norms when it comes to affection displays shown to their children. Data was collected using thematic analysis to describe how parents in parts of the Deep South perceive affection shown …

Tackling Grand Societal Challenges: Understanding When And How Reverse Engineering Fosters Frugal Product Innovation In An Emerging Market, Samuel Adomako, Michael Asiedu Gyensare, Joseph Amankwah-Amoah, Pervaiz Akhtar, Nazim Hussain

Research outputs 2022 to 2026

Societies are confronted with grand challenges that require the efforts and coordination of diverse stakeholders. In this context, the role of for-profit organizations has become vital in addressing such challenges. Drawing on the strategy tripod perspective, this study investigated the influence of reverse engineering on frugal product-innovation performance (PIP) through the mediating effect of frugal innovation (i.e., cost innovation, and affordable value innovation). In addition, we examined the moderating impact of the industry environment (i.e., technological turbulence) and institutional context (i.e., legal inefficiency) on this relationship. We tested our hypotheses using time-lagged data from 243 small to medium-sized enterprises (SMEs) …

Mental Health On The Go: Navigating Travel And Travel Eligibility, Fangli Hu, Jun Wen, Weng M. Lim, Haifeng Hou, Wei Wang

Research outputs 2022 to 2026

The 21st century has seen tourists from various source markets significantly impacted by non-communicable diseases, including mental disorders. Yet, research and practice frequently overlook tourists with mental disorders. Building on Buckley’s discussion in the Journal of Travel Research about tourism and mental health, this study examines the travel eligibility of tourists diagnosed with four prevalent mental disorders: major depressive disorder (MDD), generalized anxiety disorder (GAD), schizophrenia, and dementia. We present preliminary recommendations for accommodating these tourists and highlight the urgent need for collaborative efforts between stakeholders in tourism, hospitality, and medicine. © The Author(s) 2023.

Feminist Evaluation Using Feminist Participatory Action Research: Guiding Principles And Practices, Kaisha Crupi, Naomi Joy Godden

Research outputs 2022 to 2026

There is a lack of instructional literature on how to conduct a feminist evaluation to highlight and transform systemic issues in gendered and intersecting power relations. Feminist Participatory Action Research (FPAR) enables a process for conducting community-driven, -led and -owned feminist evaluations that drive social justice actions. By undertaking a critical review of existing literature, this article presents guiding principles and practices in how to conduct a feminist evaluation using FPAR. These principles and practices provide a framework for those who are seeking an evidence base for transformative social justice action in communities, particularly those who are working with complexity …

Children And Young People’S Participation In Decision-Making Within Healthcare Organisations In New Zealand: An Integrative Review, Mandie Foster, Julie Blamires, Chris Moir, Virginia Jones, Jagamaya Shrestha-Ranjit, Brie Fenton, Annette Dickinson

Research outputs 2022 to 2026

There is a paucity of literature on children and young people’s participation in decision-making within healthcare organisations in New Zealand. This integrative review examined child self-reported peer-reviewed manuscripts and published guidelines, policy, reviews, expert opinion and legislation to explore how New Zealand children and young people participate in discussions and decision-making processes within healthcare settings and what are barriers and benefits to such participation. Four child self-reported peer-reviewed manuscripts and twelve expert opinion documents were retrieved from four electronic databases including academic, government and institutional websites. Inductive content thematic analysis generated one theme (a discourse in children and young people’s …

Managing Digital Assets On Death And Disability: An Examination Of The Determinants Of Digital Asset Planning Literacy, Adam Steen, Chris Graves, Steven D’Alessandro, Henry X. Shi

Research outputs 2022 to 2026

Despite its increasing importance, digital financial literacy (DFL) is yet to be adequately understood. This article reports on one aspect of DFL, namely, digital asset planning literacy (DAPL) which is an individual’s awareness of what happens to their digital assets on their death or incapacity. Our results from Australia and Singapore suggest that single, less-educated women are less likely to possess DAPL, and that the number of digital assets is negatively associated with DAPL, while having a Will is positively related to DAPL. With this study, we put forward that financial education should include consumer rights regarding digital financial assets. …

Customer Experience Quality With Social Robots: Does Trust Matter?, Sanjit K. Roy, Gaganpreet Singh, Saalem Sadeque, Richard L. Gruner

Research outputs 2022 to 2026

Although service providers increasingly adopt social robots, much remains to be learned about what influences customers' experiences with robots. To address this issue, this study investigates the relationships among customer equity drivers (i.e., value equity, brand equity and relationship equity), trust in social robots, and trust in service providers. Specifically, we hypothesize that customer equity drivers influence trust in social robots and trust in service providers. We also propose that customer equity drivers influence customer experience quality in the context of social robots and that trust in social robots and trust in service providers mediate these relationships. The study used …