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Assembling Hyperpop: Genre Formation On Wikipedia, Eliot Bates, Sophie Delphis, Romulo Moraes, Julia Santoli Jan 2024

Assembling Hyperpop: Genre Formation On Wikipedia, Eliot Bates, Sophie Delphis, Romulo Moraes, Julia Santoli

Publications and Research

In this article, we analyze how a music genre is reciprocally defined online, through the crowdsourced ‘facts’ of Wikipedia. What are the traditional implicit and explicit exclusionary practices in this sort of genre formation? And how can internet-specific sociabilities create new exclusionary practices in the process of defining music? By analyzing the edit history of Wikipedia’s ‘hyperpop’ page, we locate ongoing debates, controversies, and contestations that point to shaping forces around online genre formation. These potentially have a huge impact on how hyperpop is understood both inside and outside of the music community. In locating the most active editors of …


Sharing Stories Of Hope And Transformation In U.S. Higher Education: An Ereader By Portland State University Students, Óscar Fernández, David Peterson Del Mar Jan 2024

Sharing Stories Of Hope And Transformation In U.S. Higher Education: An Ereader By Portland State University Students, Óscar Fernández, David Peterson Del Mar

PDXOpen: Open Educational Resources

This eReader showcases stories of hope and transformation written by diverse students enrolled in University Studies courses at Portland State University. The goal is to motivate first-year and transfer students to see that, in higher education, they are not alone in their personal, familial, and academic struggles—and personal, familial, and educational achievements.


American Indian Census Rolls: An Underutilized Source Of Historical Demographic Information On Tribal Populations, David Swanson, Jeff Tayman Jan 2024

American Indian Census Rolls: An Underutilized Source Of Historical Demographic Information On Tribal Populations, David Swanson, Jeff Tayman

Publications, Reports and Presentations

Historical information on tribal populations in the United States is incomplete. American Indians and Alaska Natives were not enumerated with the general population until the 1940 decennial census. However, Indian Census Rolls were produced for the period 1885 – 1940 under the auspices of the Bureau of Indian Affairs in the U.S. The information given in the Indian Census Rolls varies but usually includes the roll number, age, gender, tribal identity, and relationship to the head of the family. In this paper, we present background information on Indian Census Rolls and demonstrate how the digitized microfiche census roll schedules can …


Targeted, Harassed, And Displaced: The Role Of Discrimination In Oregon Evictions, Alex Farrington, Natalie J. Cholula, Lisa K. Bates Jan 2024

Targeted, Harassed, And Displaced: The Role Of Discrimination In Oregon Evictions, Alex Farrington, Natalie J. Cholula, Lisa K. Bates

Urban Studies and Planning Faculty Publications and Presentations

Drawing on focus groups with 101 Oregon tenants who have experienced an eviction since the onset of the COVID-19 pandemic, this report examines the role that discrimination plays in Oregon evictions. As this is not a legal investigation, we do not focus solely on legally-actionable or provable claims. Rather, we include a wide range of tenants’ descriptions of their experiences with unfair, malicious, or prejudicial treatment. We find that many tenants are specifically targeted for eviction or experience prejudicial treatment during the eviction process because of their identity or background. This includes being treated unfairly based on tenants’ race, language, …


Looking At The Past To Change The Future: Showcasing Featured Collections, Building Communities, And Co-Creating, Sherry Buchanan Jan 2024

Looking At The Past To Change The Future: Showcasing Featured Collections, Building Communities, And Co-Creating, Sherry Buchanan

Library Faculty and Staff Publications and Presentations

Academic libraries have the opportunity and the responsibility to promote and advance content that creates transformative and iterative learning opportunities. To that end, and in an effort to build communities and facilitate co-creation, Portland State University showcases three main Featured Collections in our open access repository, PDXScholar: Climate Justice, COVID-19, and Racial and Gender Equity, with a fourth pilot collection—Student Work: An Open Showcase of Outstanding Student-Created Research & Creative Work—under development. The collections include a broad range of audiovisual materials, such as podcasts and webinar series, as well as sustainability and equity work, student-created content, and numerous future-focused multidisciplinary …


Characterizing The Beneficial Uses Of The Arcata Marsh Constructed Wetland Treatment System And Wildlife Sanctuary, Andrew S. Wolff Jan 2024

Characterizing The Beneficial Uses Of The Arcata Marsh Constructed Wetland Treatment System And Wildlife Sanctuary, Andrew S. Wolff

Cal Poly Humboldt theses and projects

The Arcata Marsh Constructed Wetland Treatment System and Wildlife Sanctuary, located in Arcata California, has been in operation since 1986. Not only has it served as the wastewater treatment facility for the city, it has also provided other beneficial uses such as acting as a sanctuary for bird, mammal, amphibian, and macroinvertebrate species. With facility upgrades currently underway, it has become important to revisit the beneficial uses of the Arcata Marsh. This project aimed to identify and characterize these beneficial uses. Literature review was conducted, and eleven beneficial uses were identified. Existing and newly obtained data were analyzed to characterize …


Alternative Shelter Evaluation Report, Jacen Greene, Todd Ferry, Emily Leickly, Franklin H. Spurbeck Jan 2024

Alternative Shelter Evaluation Report, Jacen Greene, Todd Ferry, Emily Leickly, Franklin H. Spurbeck

Homelessness Research & Action Collaborative Publications and Presentations

This report summarizes research by Portland State University’s Homelessness Research & Action Collaborative for the Joint Office of Homeless Services on the cost, participant experiences, and client outcomes in village-style and motel shelters as compared to each other and to traditional, congregate shelters.


Exploring The Realities Of Queer/Trans, Black, Indigenous, And/Or People Of Color Students At Humboldt State University, Kat Hồng Nguyễn Jan 2024

Exploring The Realities Of Queer/Trans, Black, Indigenous, And/Or People Of Color Students At Humboldt State University, Kat Hồng Nguyễn

Cal Poly Humboldt theses and projects

In this thesis, I use participant interviews with 12 queer student activists at Humboldt State University (now Cal Poly Humboldt) and participant observation from 2019-2021 to provide a qualitative analysis of Queer, Trans, Black, Indigenous, and People of Color (QTBIPOC) student knowledge. While student activism is not a primary site of analysis in this paper, all of the participants of this study identify as student activists which has implications on their overall experience. Participants in this study note the institutional efforts to disrupt institutional memory between student leaders and activists. This study was specifically designed to combat this issue by …


Adoption Of Holistic Education Practices: A Survey Of California K-12 Educator Experiences, Arianne M. Nova Jan 2024

Adoption Of Holistic Education Practices: A Survey Of California K-12 Educator Experiences, Arianne M. Nova

Cal Poly Humboldt theses and projects

In a rapidly evolving educational landscape, the federal government must explicitly consider holistic approaches to education as essential for the well-being and future of students in public schools. Holistic education, which extends beyond traditional academics to nurture the 'whole child,' has garnered substantial support in the literature for its positive impact on academic performance, behavior, and student well-being. This research explores educator perspectives on holistic education in a K-12 California school district. By surveying teachers, counselors, school social workers, and principals within this district, I assess their awareness concerning structural levels, available resources, and implementation capabilities related to holistic education. …


Salvation And Sweet Rolls: An Examination Of Mormon Diet Books, Rachel Noorda Jan 2024

Salvation And Sweet Rolls: An Examination Of Mormon Diet Books, Rachel Noorda

English Faculty Publications and Presentations

Religious diet books highlight the overlap between religious and diet cultures. This article examines the intersection of Mormonism, diet culture, and fatphobia through an analysis of Mormon diet books published between 1990 and 2015. The study explores how Mormon diet books leverage the Word of Wisdom (the LDS health code) to promote weight loss and reinforce religious obedience. By framing dietary compliance as a spiritual mandate, these texts link physical health and body size to moral and spiritual worthiness. This conflation of body and spirit, rooted in Mormon theology, amplifies fatphobia by promoting thinness as a sign of obedience and …


Support For Girls’ Education And Keeping Them In School, Population Council, Swedd Jan 2024

Support For Girls’ Education And Keeping Them In School, Population Council, Swedd

Adolescents and Young People

SWEDD Series: Best Practice Guide no. 2

This Guide is one of a series that retrospectively documents the process of implementing the interventions of the SWEDD project, and documents good practices, challenges and lessons learned. The “Sahel Women's Empowerment and Demographic Dividend” (SWEDD) project was launched in November 2015 with financial support from the World Bank, and technical support from the United Nations Population Fund (UNFPA) and the West African Health Organisation (WAHO). The research informing this Guide was led by the Population Council.


Le Développement Curriculaire Pour Les Espaces Sûrs, Population Council, Swedd Jan 2024

Le Développement Curriculaire Pour Les Espaces Sûrs, Population Council, Swedd

Adolescents and Young People

Série SWEDD: Guide de Bonnes Pratiques no. 3

Ce Guide fait partie d’une série qui documente d’une manière rétrospective le processus de mise en œuvre des interventions du projet SWEDD, et décrit les bonnes pratiques, les défis et les leçons apprises. Le projet “Autonomisation des Femmes et Dividende Démographique au Sahel” (SWEDD) a été lancé en novembre 2015 avec le soutien financier de la Banque mondiale, et l’appui technique du Fonds des Nations Unies pour la population (UNFPA) et de l’Organisation Ouest -Africaine pour la Santé (OOAS). Les recherches menant à ce Guide ont été dirigées par le Population …


Curriculum Development For Safe Spaces, Population Council, Swedd Jan 2024

Curriculum Development For Safe Spaces, Population Council, Swedd

Adolescents and Young People

SWEDD Series: Best Practice Guide no. 3

This Guide is one of a series that retrospectively documents the process of implementing the interventions of the SWEDD project, and documents good practices, challenges and lessons learned. The “Sahel Women's Empowerment and Demographic Dividend” (SWEDD) project was launched in November 2015 with financial support from the World Bank, and technical support from the United Nations Population Fund (UNFPA) and the West African Health Organisation (WAHO). The research informing this Guide was led by the Population Council.


Safe Spaces, Population Council, Swedd Jan 2024

Safe Spaces, Population Council, Swedd

Adolescents and Young People

SWEDD Series: Best Practice Guide no. 4

This Guide is one of a series that retrospectively documents the process of implementing the interventions of the SWEDD project, and documents good practices, challenges and lessons learned. The “Sahel Women's Empowerment and Demographic Dividend” (SWEDD) project was launched in November 2015 with financial support from the World Bank, and technical support from the United Nations Population Fund (UNFPA) and the West African Health Organisation (WAHO). The research informing this Guide was led by the Population Council.


Le Soutien À La Scolarisation Des Filles Et Leur Maintien À L’École, Population Council, Swedd Jan 2024

Le Soutien À La Scolarisation Des Filles Et Leur Maintien À L’École, Population Council, Swedd

Adolescents and Young People

Série SWEDD: Guide de Bonnes Pratiques no. 2

Ce Guide fait partie d’une série qui documente d’une manière rétrospective le processus de mise en œuvre des interventions du projet SWEDD, et décrit les bonnes pratiques, les défis et les leçons apprises. Le projet “Autonomisation des Femmes et Dividende Démographique au Sahel” (SWEDD) a été lancé en novembre 2015 avec le soutien financier de la Banque mondiale, et l’appui technique du Fonds des Nations Unies pour la population (UNFPA) et de l’Organisation Ouest -Africaine pour la Santé (OOAS). Les recherches menant à ce Guide ont été dirigées par le Population …


The Role Of Group Leaders In Safe Spaces And Clubs For Husbands/Future Husbands, Population Council, Equimundo, Swedd Jan 2024

The Role Of Group Leaders In Safe Spaces And Clubs For Husbands/Future Husbands, Population Council, Equimundo, Swedd

Adolescents and Young People

SWEDD Series: Best Practice Guide no. 6

This Guide is one of a series that retrospectively documents the process of implementing the interventions of the SWEDD project, and documents good practices, challenges and lessons learned. The “Sahel Women's Empowerment and Demographic Dividend” (SWEDD) project was launched in November 2015 with financial support from the World Bank, and technical support from the United Nations Population Fund (UNFPA) and the West African Health Organisation (WAHO). The research informing this Guide was led by the Population Council and Equimundo.


Le Rôle Des Leaders De Groupes Dans Les Espaces Sûrs Et Les Clubs Des Maris/Futurs Maris, Population Council, Equimundo, Swedd Jan 2024

Le Rôle Des Leaders De Groupes Dans Les Espaces Sûrs Et Les Clubs Des Maris/Futurs Maris, Population Council, Equimundo, Swedd

Adolescents and Young People

Série SWEDD: Guide de Bonnes Pratiques no. 6

Ce Guide fait partie d’une série qui documente d’une manière rétrospective le processus de mise en œuvre des interventions du projet SWEDD, et décrit les bonnes pratiques, les défis et les leçons apprises. Le projet “Autonomisation des Femmes et Dividende Démographique au Sahel” (SWEDD) a été lancé en novembre 2015 avec le soutien financier de la Banque mondiale, et l’appui technique du Fonds des Nations Unies pour la population (UNFPA) et de l’Organisation Ouest -Africaine pour la Santé (OOAS). Les recherches menant à ce Guide ont été dirigées par le Population …


Les Espaces Sûrs, Population Council, Swedd Jan 2024

Les Espaces Sûrs, Population Council, Swedd

Adolescents and Young People

Série SWEDD: Guide de Bonnes Pratiques no. 4

Ce Guide fait partie d’une série qui documente d’une manière rétrospective le processus de mise en œuvre des interventions du projet SWEDD, et décrit les bonnes pratiques, les défis et les leçons apprises. Le projet “Autonomisation des Femmes et Dividende Démographique au Sahel” (SWEDD) a été lancé en novembre 2015 avec le soutien financier de la Banque mondiale, et l’appui technique du Fonds des Nations Unies pour la population (UNFPA) et de l’Organisation Ouest -Africaine pour la Santé (OOAS). Les recherches menant à ce Guide ont été dirigées par le Population …


“Muchakang Pangkalawakan”: Queering Engagements With Bakla Of The Philippine Tropics, Artemio P. Millo Jan 2024

“Muchakang Pangkalawakan”: Queering Engagements With Bakla Of The Philippine Tropics, Artemio P. Millo

Sociology & Anthropology Department Faculty Publications

The performance of participants in the Miss Gay Muchakang Pangkalawan [Miss Ugly Gay Universe] in Quiapo, Manila, reflects characteristics of the flamboyant and effeminate bakla. However, these stereotypical depictions may not always be consistent with how participants view themselves. This study argues that an introspective understanding of how participants make sense of their identity work engendered by ever-turning tropes reveals slippages that can liberate them from existing oppressive stereotypes. By utilizing personal narrative and ethnographic reflexivity, this study deconstructs the participants’ performances, revealing identity-making that may reinforce or resist dominant discourses on the bakla under which these narratives are …


A Descriptive Analysis Of Depressive Symptoms And Body Image By Race/Ethnicity And Nativity Status Among Adolescents, Radhika Prasad Jan 2024

A Descriptive Analysis Of Depressive Symptoms And Body Image By Race/Ethnicity And Nativity Status Among Adolescents, Radhika Prasad

Electronic Theses & Dissertations (2024 - present)

Previous research on the immigrant health paradox among children and adolescents show a mental health advantage yet it is unclear if this applies in a similar magnitude to females (Fillion et al., 2018; Zarei et al., 2023). Immigrants may be exposed to stressors related to immigration and acculturation. Some research suggests that females respond more to stress through internalizing symptoms relative to males (Hall-Lande et al., 2007; Adkins et al., 2009). Given these gender differences in stress response, female immigrants may be particularly vulnerable to the psychological consequences of immigration related stressors. The immigrant health paradox has also overlooked subjective …


The Role Of Familial Support And Gender In Asian American Students’ Stem Career Development: A Test Of Social Cognitive Career Theory, Xiao Ting Wang Jan 2024

The Role Of Familial Support And Gender In Asian American Students’ Stem Career Development: A Test Of Social Cognitive Career Theory, Xiao Ting Wang

Electronic Theses & Dissertations (2024 - present)

This study, based on Social Cognitive Career Theory (SCCT; Lent et al., 1994, 2000), investigated the role of familial support in the STEM career development of Asian American college students. Participants included 446 first-year undergraduate students who identified as Asian or Asian American and had not declared an academic major. Due to multicollinearity, four initial familial support variables—instrumental assistance, career-related modeling, verbal encouragement, and emotional support—were regrouped into two: performance motivation (instrumental assistance and verbal encouragement) and career mentoring (career-related modeling and emotional support). Structural equation modeling showed acceptable fit for a modified model, and the results partially supported the …


Everyone’S A Critic: Processes Of Legitimation In The Video Essay Genre On Youtube, Kendall Nagi Jan 2024

Everyone’S A Critic: Processes Of Legitimation In The Video Essay Genre On Youtube, Kendall Nagi

Electronic Theses & Dissertations (2024 - present)

The rise of video essays as a popular genre on YouTube is a notable development in the media criticism and intellectual work in online spaces. Theorization on criticism as intellectual work and the performance of expertise and credibility is well developed within sociology (Alexander 2004; Jacobs & Townsley 2017) but esearch on YouTube specifically is quite limited within the social sciences. Most existing research on the video essay genre comes from media studies and communications scholarship (McWhirter 2022; Smarandache 2021; Sylvia & Moody 2022). This study seeks to understand how creators working in the video essay genre, and more specifically, …


Race, Ethnicity, Language, And The Treatment Of Low-Risk Febrile Infants, Colleen K Gutman, Paul L Aronson, Nidhi V Singh, Michelle L Pickett, Kamali Bouvay, Rebecca S Green, Britta Roach, Hannah Kotler, Jessica L Chow, Emily A Hartford, Mark Hincapie, Ryan St Pierre-Hetz, Jessica Kelly, Laura Sartori, Jennifer A Hoffmann, Jacqueline B Corboy, Kelly R Bergmann, Bolanle Akinsola, Vanessa Ford, Natalie J Tedford, Theresa T Tran, Sasha Gifford, Amy D Thompson, Andrew Krack, Mary Jane Piroutek, Samantha Lucrezia, Sunhee Chung, Nabila Chowdhury, Kathleen Jackson, Tabitha Cheng, Christian D Pulcini, Nirupama Kannikeswaran, Larissa L Truschel, Karen Lin, Jamie Chu, Neh D Molyneaux, Myto Duong, Leslie Dingeldein, Jerri A Rose, Carly Theiler, Sonali Bhalodkar, Emily Powers, Muhammad Waseem, Ahmed Lababidi, Xinyu Yan, Xiang-Yang Lou, Rosemarie Fernandez, K Casey Lion Jan 2024

Race, Ethnicity, Language, And The Treatment Of Low-Risk Febrile Infants, Colleen K Gutman, Paul L Aronson, Nidhi V Singh, Michelle L Pickett, Kamali Bouvay, Rebecca S Green, Britta Roach, Hannah Kotler, Jessica L Chow, Emily A Hartford, Mark Hincapie, Ryan St Pierre-Hetz, Jessica Kelly, Laura Sartori, Jennifer A Hoffmann, Jacqueline B Corboy, Kelly R Bergmann, Bolanle Akinsola, Vanessa Ford, Natalie J Tedford, Theresa T Tran, Sasha Gifford, Amy D Thompson, Andrew Krack, Mary Jane Piroutek, Samantha Lucrezia, Sunhee Chung, Nabila Chowdhury, Kathleen Jackson, Tabitha Cheng, Christian D Pulcini, Nirupama Kannikeswaran, Larissa L Truschel, Karen Lin, Jamie Chu, Neh D Molyneaux, Myto Duong, Leslie Dingeldein, Jerri A Rose, Carly Theiler, Sonali Bhalodkar, Emily Powers, Muhammad Waseem, Ahmed Lababidi, Xinyu Yan, Xiang-Yang Lou, Rosemarie Fernandez, K Casey Lion

Faculty, Staff and Students Publications

IMPORTANCE: Febrile infants at low risk of invasive bacterial infections are unlikely to benefit from lumbar puncture, antibiotics, or hospitalization, yet these are commonly performed. It is not known if there are differences in management by race, ethnicity, or language.

OBJECTIVE: To investigate associations between race, ethnicity, and language and additional interventions (lumbar puncture, empirical antibiotics, and hospitalization) in well-appearing febrile infants at low risk of invasive bacterial infection.

DESIGN, SETTING, AND PARTICIPANTS: This was a multicenter retrospective cross-sectional analysis of infants receiving emergency department care between January 1, 2018, and December 31, 2019. Data were analyzed from December 2022 …


An Examination Of Coping Resources And Strategies Among Appalachian Transgender And Gender Nonconforming Adults And Youth, Zachary Ramsey Jan 2024

An Examination Of Coping Resources And Strategies Among Appalachian Transgender And Gender Nonconforming Adults And Youth, Zachary Ramsey

Graduate Theses, Dissertations, and Problem Reports (ETD)

Background. The body of literature shows that TGNC adults and youth face a multitude of health disparities (e.g., depression, anxiety, suicidal ideation, eating disorders, body dysmorphia) due to their marginalization. Neither Meyer’s Minority Stress Model nor Testa’s Gender Minority Stress and Resilience Model sufficiently examines coping and the ways it interacts with other concepts within the model. Aims. The objective of this dissertation was to examine the coping resources and strategies of Appalachian transgender and gender nonconforming individuals. The three aims of this study were to: 1) evaluate the relationship of coping resources and strategies between TGNC Youth and cisgender …


An Appalachian Perspective On Suicide: A Focus On West Virginia’S Unique Context, Erin Delaney Caswell Jan 2024

An Appalachian Perspective On Suicide: A Focus On West Virginia’S Unique Context, Erin Delaney Caswell

Graduate Theses, Dissertations, and Problem Reports (ETD)

INTRODUCTION: The Appalachian region, spanning 13 states from New York to northern Mississippi, experiences the suicide rates in the United States (U.S.), underscoring a public health crisis exacerbated by persistent socioeconomic challenges. West Virginia (WV), the only state entirely within Appalachia, serves as a focal point for understanding the broader suicide crisis in the region, as WV has the highest suicide rates in the region. Moreover, the state has several unique socioeconomic factors, like increased poverty, lower educational attainment, limited access to healthcare, and a high prevalence of chronic pain and substance that may contribute to elevated rates of suicide. …


The Sociology Of Bail Reform: Crime, Social Interaction, And Offender Experiences In Rurality., Scott Kevin Turner Jan 2024

The Sociology Of Bail Reform: Crime, Social Interaction, And Offender Experiences In Rurality., Scott Kevin Turner

Graduate Theses, Dissertations, and Problem Reports (ETD)

The study sought to explore the impact of the New York State “Bail Reform Act of 2019,” in rurality. It examined some of the legislative goals of the law, the claim that it caused crime, and offender experiences in rurality. Secondary data was used to map the rural crime landscape and primary data was collected from offenders during face to face interviews. The study was framed using deterrence and opportunity approaches and situated within the broader field environments; legislative, courtroom, and community. The research failed to find support for the claim that bail reform caused crime. Instead, it revealed that …


Investigating The Effect Of Using Humorous Threats In Recreation Area Rules Signage To Influence Behavioral Intentions, Jacob Timothy Vargas Jan 2024

Investigating The Effect Of Using Humorous Threats In Recreation Area Rules Signage To Influence Behavioral Intentions, Jacob Timothy Vargas

Graduate Theses, Dissertations, and Problem Reports (ETD)

Communicating the importance of rules and warnings to visitors of recreational parks through signage can be difficult. However, it is one of the most important things to keep visitors safe. Oftentimes, these signs use fear of punishment or injury to discourage certain behaviors. According to studies following the Extended Parallel Processing Model (EPPM), using threats can backfire and cause visitors to use maladaptive fear responses to counteract a threat message if the content is too extreme or too psychologically close. Humor is a versatile tool that can be used to grab attention, temper perceptions, and influence decision-making. Comedians like Jon …


Sexual Identity And Homophily: The Powerful Role Of Sexual Identity For Romantic Partner Selection, Lee Thorpe Jr Jan 2024

Sexual Identity And Homophily: The Powerful Role Of Sexual Identity For Romantic Partner Selection, Lee Thorpe Jr

Graduate Theses, Dissertations, and Problem Reports (ETD)

This dissertation investigates the role of sexual identity on homophily, and its effects on romantic partner selection. The principle of homophily states that individuals tend to befriend and seek romantic partners who are most similar to themselves based on certain social characteristics (i.e., birds of a feather flock together). The majority of the homophily literature focuses on heterosexual friendships and coupling. Recently, homophily research has included sexual identity in their analyses. However, recent studies have only investigated friendship formation/bonds for lesbians and describing certain racial coupling types for individuals based on their sexual identity. I fill the lacuna in research …


The Impact Of Race On Pancreatic Cancer Treatment And Survival In The Nationwide Veterans Affairs Healthcare System, Natalia Khalaf, Ann Xu, Theresa Nguyen Wenker, Jennifer R Kramer, Yan Liu, Hardeep Singh, Hashem B El-Serag, Fasiha Kanwal Jan 2024

The Impact Of Race On Pancreatic Cancer Treatment And Survival In The Nationwide Veterans Affairs Healthcare System, Natalia Khalaf, Ann Xu, Theresa Nguyen Wenker, Jennifer R Kramer, Yan Liu, Hardeep Singh, Hashem B El-Serag, Fasiha Kanwal

Faculty, Staff and Students Publications

OBJECTIVES: Among patients with pancreatic cancer, studies show racial disparities at multiple steps of the cancer care pathway. Access to healthcare is a frequently cited cause of these disparities. It remains unclear if racial disparities exist in an integrated, equal access public system such as the Veterans Affairs healthcare system.

METHODS: We identified all patients diagnosed with pancreatic adenocarcinoma in the national Veterans Affairs Central Cancer Registry from January 2010 to December 2018. We examined the independent association between race and 3 endpoints: stage at diagnosis, receipt of treatment, and survival while adjusting for sociodemographic factors and medical comorbidities.

RESULTS: …


Patient Perceptions On The Advancement Of Noninvasive Prenatal Testing For Sickle Cell Disease Among Black Women In The United States, Shameka P Thomas, Faith E Fletcher, Rachele Willard, Tiara Monet Ranson, Vence L Bonham Jan 2024

Patient Perceptions On The Advancement Of Noninvasive Prenatal Testing For Sickle Cell Disease Among Black Women In The United States, Shameka P Thomas, Faith E Fletcher, Rachele Willard, Tiara Monet Ranson, Vence L Bonham

Center for Medical Ethics and Health Policy Staff Publications

Background: Noninvasive prenatal testing (NIPT) designed to screen for fetal genetic conditions, is increasingly being implemented as a part of routine prenatal care screening in the United States (US). However, these advances in reproductive genetic technology necessitate empirical research on the ethical and social implications of NIPT among populations underrepresented in genetic research, particularly Black women with sickle cell disease (SCD).

Methods: Forty (N = 40) semi-structured interviews were conducted virtually with Black women in the US (19 participants with SCD; 21 participants without SCD) from June 2021 to January 2022. We employed a qualitative approach to examine the …