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Full-Text Articles in Rural Sociology
Community-Based Participatory Research To Adapt Health Measures For Use By People With Developmental Disabilities, Christina Nicolaidis, Dora Raymaker, Marsha R. Katz, Mary Oschwald, Rebecca Goe, Sandra Leotti, Leah Grantham, Eddie Plourde, Janice Salomon, Rosemary Hughes, Laurie E. Powers, The Partnering With People With Disabilities To Address Violence Consortium
Community-Based Participatory Research To Adapt Health Measures For Use By People With Developmental Disabilities, Christina Nicolaidis, Dora Raymaker, Marsha R. Katz, Mary Oschwald, Rebecca Goe, Sandra Leotti, Leah Grantham, Eddie Plourde, Janice Salomon, Rosemary Hughes, Laurie E. Powers, The Partnering With People With Disabilities To Address Violence Consortium
Rural Institute Journal Articles
Background: People with developmental disabilities (DD) are often not included as participants in research owing to a variety of ethical and practical challenges. One major challenge is that traditional measurements instruments may not be accessible to people with DD. Participatory research approaches promise to increase the participation of marginalized communities in research, but few partnerships have successfully used such approaches to conduct quantitative studies people with DD.
Objective: To use a community-based participatory search (CBPR) approach to create an accessible, computer-assisted survey about violence and health in people with DD, and to psychometrically test adapted health instruments.
Methods: Our academic-community …