Medicine and Health Commons^™

New Measures To Capture End Of Life Concerns In Huntington Disease: Meaning And Purpose And Concern With Death And Dying From Hdqlife (A Patient-Reported Outcomes Measurement System)., N E Carlozzi, N R Downing, M K Mccormack, S G Schilling, J S Perlmutter, E A Hahn, J S Lai, S Frank, K A Quaid, J S Paulsen, D Cella, S M Goodnight, J A Miner, M A Nance

Rowan-Virtua School of Osteopathic Medicine Faculty Scholarship

PURPOSE: Huntington disease (HD) is an incurable terminal disease. Thus, end of life (EOL) concerns are common in these individuals. A quantitative measure of EOL concerns in HD would enable a better understanding of how these concerns impact health-related quality of life. Therefore, we developed new measures of EOL for use in HD.

METHODS: An EOL item pool of 45 items was field tested in 507 individuals with prodromal or manifest HD. Exploratory and confirmatory factor analyses (EFA and CFA, respectively) were conducted to establish unidimensional item pools. Item response theory (IRT) and differential item functioning analyses were applied to …

Ua68/10/1 Sociological Symposium No. 8 – Childbirth & Infancy Life Cycle Series, Wku Sociology

WKU Archives Records

Table of Contents:

• Hernandez, Pedro F. Catholic Church & Birth Control in Latin America
• Kovit, Leonard. Labor is Hard Work: Notes on the Social Organization of Childbirth
• McNurlen, Lewis J. Childbirth: A Family Affair
• Miller, Rita Seiden & Ron Miller. Social Values Supporting Pregnancy: Dilemma for Population Control
• Newman, John F. & William L. Graves. Neo-Natal Mortality & Socio-Economic Status
• Newman, Lucille F. The Anthropology of Birth
• Rutzen, S. Robert. Urban Life & Breast Feeding: A Sociological Analysis
• Schulz, Barbara & Richard Schulz. Family Size Preferences & Sex Composition
• Steinhoff, Patricia G., Roy G. Smith & Milton Diamond. Characteristics & …