Open Access. Powered by Scholars. Published by Universities.®
Family, Life Course, and Society Commons™
Open Access. Powered by Scholars. Published by Universities.®
Articles 1 - 3 of 3
Full-Text Articles in Family, Life Course, and Society
Connections: Social Media And Parents Raising Children With Profound Multiple Disabilities, Amy Ann Terra
Connections: Social Media And Parents Raising Children With Profound Multiple Disabilities, Amy Ann Terra
University of the Pacific Theses and Dissertations
Parenting plays an important role in many adult lives. Parenting a child with profound multiple disabilities results in a distinct parenting experience. This qualitative phenomenological study examined the role of social media in the lives of parents raising children with profound multiple disabilities. Five parents raising children with profound multiple disabilities were interviewed, and resulting themes were identified.
Consistent with previous research, parents described the initial adaptation to their child’s disability-related needs as the most challenging period of their parenting to date. Adaptation was followed by an acclimation to a new normal of their parenting experience. Parents described moving from …
A Mother's Spiritual Journey With Her Disabled Son: An Autoethnography, Margaret C. Higgins Edd
A Mother's Spiritual Journey With Her Disabled Son: An Autoethnography, Margaret C. Higgins Edd
Dissertations
Abstract
This autoethnographic research delves into a mother’s experiences with her disabled son over thirty-five years. Beginning with a thick description of the crib accident that resulted in physical and cognitive disabilities that profoundly change the course of both mother and son’s life, this research chronicles the search for meaning, community, and healing as they negotiate the realms of medicine, education, career, family, and spirituality. Models of disability that seek to explain various ways in which society often views disability are examined, but none resonate with the researcher’s intimate experiences nor satisfies her deepest needs for insight and healing. Making …
Does Culture Matter? : Exploring The Relationships Among Parenting A Child With Disabilities, Cultural Identification, And Stress In A Group Of European American And Immigrant Latino Families, Ximena P. Suarez-Sousa
Does Culture Matter? : Exploring The Relationships Among Parenting A Child With Disabilities, Cultural Identification, And Stress In A Group Of European American And Immigrant Latino Families, Ximena P. Suarez-Sousa
Electronic Theses and Dissertations
The purpose of this correlational exploratory study was to delve into the experience of raising a child with disabilities by investigating the parents' level of stress and the role played by culture, acculturation, and various demographic variables suggested by the literature to influence stress were included. A purposive sample composed of 38 primarily undocumented immigrant Latino parents and 32 European American parents of children with disabilities was recruited from community agencies in a Midwest state. The most frequent disabilities were orthopedic impairments, pervasive developmental disorders, and mental retardation.
Data were collected with the Parent Survey, comprised of the Questionnaire on …