Community-Based Research Commons^™

Building Neuro-Inclusive Community, Strengthening Mental Health: The Autism After 21 Utah Project, Sumiko T. Martinez, Anna Smyth, Ann C. Carrick

Developmental Disabilities Network Journal

Over two decades of research shows strong positive relationships are a consistently powerful indicator of wellbeing and resilience. However, the U.S. Surgeon General notes that loneliness and isolation is an epidemic in the U.S., and that it is exacerbated for individuals with physical and mental disabilities as well as those with isolating economic or environmental situations. A recent review shows that many autistic adults in particular face challenges in finding the connections they want and need. They also often have compounding mental health conditions, such as depression and mental illness, lower incomes, isolating home environments due to a lack of …

Adapting Participatory Action Research To Include Individuals With Intellectual And Developmental Disabilities During The Covid-19 Global Pandemic, Kaitlyn P. Ahlers, Kara B. Ayers, Suzannah Iadarola, Rosemary B. Hughes, Hyon Soo Lee, Heather J. Williamson

Developmental Disabilities Network Journal

Participatory action research (PAR), or the inclusion of those affected by the issues being studied, is a growing area of emphasis in disability research. The principles of PAR align with those of the disability rights movement, such that full inclusion and “nothing about us without us” extends as much to research as it does to any other area of life. Moreover, PAR allows for meaningful input from people with intellectual and developmental disabilities (I/DD), which enhances the likelihood that research results are relevant and important to the disability community. As research activity resumes and is adapted to the context of …

Person-Centered Practice As Anchor And Beacon: Pandemic Wisdom From The Ncapps Community, Connor Bailey, Martha Barbone, Lydia X.Z. Brown, Alixe Bonardi, Bevin Croft, Marian Frattarola-Saulino, Karyn Harvey, Miso Kwak, Kelly Lang, Nicole Leblanc, Michelle C. Reynolds, Carole Starr

Developmental Disabilities Network Journal

Objective: This article summarizes the individual, systemic, and collective challenges and opportunities presented by the COVID-19 pandemic, based on 16 videos solicited by the National Center on Advancing Person-Centered Practices and Systems (NCAPPS) and submitted by NCAPPS collaborators during the first six months of the pandemic.

Method: Informed by participatory action approaches and content analysis, we describe common themes in a series of 16 videos solicited by NCAPPS from subject matter experts with professional and lived experience of disability and human services systems.

Results: The team organized the findings to identify both specific factors within each of the levels and …