Social Work Commons^™

Perceived Outcomes And Barriers Of Advance Care Planning From Healthcare Professionals, Faith Parsons

Electronic Theses and Dissertations

Advance care planning (ACP) is the process of aligning patients’ values and preferences to their future medical care. ACP is important in promoting patient autonomy and helping patients and their families prepare for end-of-life conversations. Healthcare teams, made up of physicians, nurses, or social workers, carry the responsibility to engage patients into such conversations. The purpose of this study was to explore the perceptions and experiences of healthcare professionals regarding ACP outcomes and barriers. This cross- sectional study used survey responses of a convivence sample of 18 allied healthcare professionals and 4 physicians in a not-for-profit, faith-based hospital system in …

Barriers To The Use Of Palliative And Hospice Care Among The Latino Population, Diana Ramirez

Electronic Theses, Projects, and Dissertations

Patients suffering from irreversible and terminal illnesses may benefit from the services provided by Palliative and Hospice Care to control any symptom burden and assist in navigating complex medical decisions. Many patients may express hesitation in accepting and enrolling to this service due to misconceptions. Language barriers may add an additional layer of complexity. This study explored the challenges Palliative Care providers encounter when introducing concept of hospice to Spanish-speaking patients their families for the first time. This study implemented qualitative research methods by using semi-structured one-on-one interviews. Ten members of an In-patient Palliative Care Team at a University Hospital …

A Virtue-Care Approach To Spiritually Sensitive Social Work., Ann M. Callahan

EKU Faculty and Staff Scholarship

Sensitivity to the importance of spirituality in social work practice has grown over the past thirty years (Kvarfordt, Sheridan, and Taylor, 2017; Oxhandler & Pargament, 2014). Research suggests that social workers often consider spirituality as an expression of cultural diversity, if not inherent to being human (Barker, 2007; Kvarfordt et al., 2017; Lun & Wai, 2015). Depending on how spirituality is defined or experienced, spirituality can be a source of strength or exacerbate suffering, particularly when a client is in crisis (Callahan, 2017). Social workers must be prepared to engage in spiritually sensitive social work (Cunningham & de Saussure, 2019; …

Spiritual Diversity, Spiritual Assessment, And Māori End-Of-Life Perspectives: Attaining Ka Ea,, Holly Nelson-Becker, Tess Moeke-Maxwell

Social Work: School of Social Work Faculty Publications and Other Works

The contemporary world is endowed with increasingly diverse spiritual and cultural perspectives, yet little is known about the spiritual concerns and spiritual resilience of Māori from Aotearoa New Zealand at the end of life. A context is provided for the value of spiritual assessment and identification of spiritual needs or concerns. Spiritual concerns and the desire to attain a state of ka ea (fulfillment, gratitude, or peace) may point to interventions, helping activities, or referrals that guide treatment. We reflect on qualitative findings from the 2017–2020 Pae Herenga study of 61 caregiving families, their helping professionals, and religious/spiritual leaders. We …

Meaning-Centered Supervision: A Structured Self-Reflection Model To Reconnect With Personal And Professional Meaning In Palliative Care Work, Rebecca Cammy, Msw, Lcsw

Department of Medical Oncology Posters

Meaning-centered supervision explores participant’s sense of meaning of past, present, and future personal and professional experiences. The series aims to reintegrate selfreflection into clinical practice through experiential exercises, homework journaling, and group discussion. Social workers develop a narrative around themes of professional attitude, living and creating work life, and connections with the social work profession. The goal is to help palliative care social workers create a sense meaning and purpose in their work as they develop their personal and professional identities. Additionally, the hope is to support supervisees through any concerns of burnout and compassion fatigue.

Racial And Ethnic Disparities In Palliative Care: A Systematic Scoping Review, Daniel Gardner, Meredith Doherty, Gleneara Bates, Aliza Koplow, Sarah C. Johnson

Publications and Research

Despite the advances and spread of palliative care programs, communities of color remain significantly underserved. Although these disparities are widely known, there is a marked lack of empirical evidence. The authors conducted a systematic scoping review that synthesized the literature since 2000 about racial and ethnic disparities in palliative and end-of-life care. We searched PubMed, Medline, SocIndex, CINAHL, Social Work Abstracts, and PsycINFO, using search terms including palliative care or end-of-life care, disparities or barriers or utilization, and race or ethnicity or African American or Hispanic. Findings lend support to extant literature that social environmental barriers and disparities distinctly affect …

We Are The Medicine, Madalynn Wendland, Toni Speed

Interprofessional Education

We are all healers— to ourselves, each other and the world around us. Whether you are on the path of becoming a health professional, or have been in practice for a long time, this half-day workshop will help you to view healing from a holistic perspective that draws from the ancient traditions while respecting contemporary science.

Taking Care Of Palliative Care, Jolene Baker, Kristina Larsen, Amanda Schumacher

Master of Social Work Student Policy Advocacy Briefs

Minnesota has done well with the amount of palliative care services provided across the state. However, rural communities in Minnesota have far less access to palliative care programs than those living in urban settings. This is in part due to the lack of availability of health care professionals in rural communities, and the lower reimbursement rates provided for palliative care programs in rural settings. Although the majority of large hospitals in Minnesota offer palliative care programs, most hospitals with fifty beds or less do not. Palliative care has been shown to improve the quality of life of individuals living with …

Dreamweaver Foundation Impact Study: Fulfilling Lifelong Dreams For Terminally Ill Seniors In Need, Pamela Ashley, Natalie Scarpa

Reports

Dreamweaver Foundation describes their work as “...fulfill(ing) lifelong dreams for terminally ill seniors in need.” This impact study was designed to provide evidence of how the Foundation is making a difference in the lives of the dreamers and their families. This study applied a systematic and objective approach to understanding the impact of the Dreamweaver Foundation by conducting and analyzing interviews with a representative group of dreamers and their families. The richness of their experiences was captured through these interviews and analyzed to identify themes of impact. In order to provide a solid foundation for the interview process, the study …

Assessing And Addressing Family Caregiver Burden: Palliative Care Social Work Perspective, Taylor Logeais

Master of Social Work Clinical Research Papers

Social workers employed in end-of-life care settings are in a unique position to engage with family caregivers who are at a heightened risk for experiencing caregiver burden, which can have detrimental impacts on the caregivers’ health and wellbeing. Even though the National Association of Social Workers (2004) directs social workers specialized in palliative care to assess the complex needs of and provide helpful interventions to family caregivers, research suggests that this objective often fails to be met. Therefore, the purpose of this study was to examine the ability for palliative care social workers to assess family caregivers for caregiver burden …

Telehealth In Palliative Care: A Systematic Review Of Patient Reported Outcomes, Barbara A. Head, Tara J. Schapmire, Yongqiang Zheng

Faculty Publications - College of Social Work

A systematic review was conducted to explore published quantitative and qualitative research describing patient-reported outcomes of palliative telehealth intervention studies. Multiple databases were searched for articles published between January 2006 and May 2016, which met study criteria. Methodological quality was assessed using Cochrane Collaboration’s tool for assessing risk of bias for quantitative articles. For studies reporting qualitative outcomes, a checklist was used to evaluate trustworthiness of the methodology. Of the 6 studies reporting quantitative outcomes, 3 studies were rated as having moderate study quality, and 3 studies were rated as having low study quality. Of the 6 studies reporting qualitative …

Palliative Chemotherapy Among People Living In Poverty With Metastasised Colon Cancer: Facilitation By Primary Care And Health Insurance, Kevin M. Gorey, Emma Bartfay, Sindu M. Kanjeekal, Frances C. Wright, Caroline Hamm, Isaac N. Luginaah, Guangyong Zou, Eric J. Holowaty, Nancy L. Richter, Madhan K. Balagurusamy

Social Work Publications

Background: Many Americans with metastasised colon cancer do not receive indicated palliative chemotherapy. We examined the effects of health insurance and physician supplies on such chemotherapy in California.

Methods: We analysed registry data for 1199 people with metastasised colon cancer diagnosed between 1996 and 2000 and followed for 1 year. We obtained data on health insurance, census tract-based socioeconomic status and county-level physician supplies. Poor neighbourhoods were oversampled and the criterion was receipt of chemotherapy. Effects were described with rate ratios (RR) and tested with logistic regression models.

Results: Palliative chemotherapy was received by less than half of the participants …

Methods Of Engaging Family Systems At End-Of-Life, Denise I. Johnson

Master of Social Work Clinical Research Papers

Families are recognized in palliative and hospice care as being an integral part of end-of- life care, where they often provide informal caregiving to their terminally ill family members. Caregiving has been shown to put multiple burdens on family members and to negatively affect caregiver health, finances, and socio-emotional wellbeing. The need for end-of-life services in the United States is expected to drastically increase in the next few decades and the demands on families, friends, communities, and services around end-of-life needs will continue to increase as more people require end-of-life care. Therefore, this systematic review aimed to assess the research …

Medical Social Worker Perception Of Competence In Palliative Care Consultations, Katie Rubischko

Master of Social Work Clinical Research Papers

No abstract provided.

Palliative Practices: An Interdisciplinary Approach, Kim Kuebler, Mellar Davis, Crystal Moore

Crystal Moore

The first book of its kind, this must-have resource examines the integration of palliative interventions from a disease-specific approach, providing practical guidance on caring for patients who follow a progressive, chronic disease trajectory prior to death. This uniquely practical book addresses all aspects of palliative care, going beyond theoretical information to advise practitioners on the most effective management of common symptoms and providing physical, psychological, and spiritual comfort to patients and families. The multidisciplinary focus of care is reflected by collaborative contributors and diverse authorship of an oncology/palliative care nurse practitioner, a physician, and a social worker.

A Systematic Review Of Telehealth In Palliative Care: Caregiver Outcomes, Yongqiang Zheng, Barbara A. Head, Tara J. Schapmire

Faculty Publications - College of Social Work

Objective: Telehealth interventions have proven efficacy in healthcare, but little is known about the results of such interventions in palliative care. We conducted a systematic review to evaluate caregiver outcomes related to palliative telehealth interventions. Materials and Methods: We searched multiple databases for articles published between January 2003 and January 2015 related to telehealth in palliative care. Two hundred twenty-one articles were considered; nine of these met study inclusion criteria. Data on study design, population, interventions, methods, outcomes, conclusions, and methodological quality were extracted and evaluated by three investigators. Results: Of the nine studies, five measured caregiver quality of life, …

Hospice Social Work And The Patient Protection And Affordable Care Act, Christine A. Couture

Theses, Dissertations, and Projects

This study was undertaken to explore how hospice social workers based at United States hospice agencies perceive changes in their work responsibilities in relation to the Patient Protection and Affordable Care Act (PPACA). Secondly, this study sought to explore hospice social worker support of the Patient Protection and Affordable Care Act healthcare policy reform.

A nonprobability sample of availability was used to find research participants. The researcher recruited participants through online social and professional networking groups and forums and by snowball sampling methods. Self-selected participants electronically confirmed their eligibility for participation in the study, prior to completing the 20-question online …

Resilient Open Heart : An Exploration Of Compassion Fatigue, Compassion Satisfaction, And Spiritual Practice With End Of Life And Palliative Care Clinicians, Nathalie J. Rodriguez

Theses, Dissertations, and Projects

This quantitative study sought to explore how participation in spiritual practice related to self-reported levels of compassion fatigue and compassion satisfaction amongst a sample of 55 mental health clinicians in the end of life and palliative care field (EOLPC). The study used an online questionnaire to assess for levels and types of participation in spiritual practice. Additionally, the study utilized the Professional Quality of Life Scale Version V to measure compassion fatigue, compassion satisfaction, and burnout. The findings of this study demonstrated that participants had lower than average levels of compassion fatigue and burnout. Participant levels of compassion satisfaction were …

Experiencing Joy: Personal Narratives Of Hospice And Palliative Care Social Workers, Kyle Paige Murray

Master of Social Work Clinical Research Papers

A vast majority of the existing research explores the negative impacts that the profession of social work has on its practitioners. Much attention has been given to topics like secondary or vicarious trauma, burnout, and compassion fatigue. There are far fewer studies that explore the positive aspects of social work practice. The concept of joy is often missing from the literature about social work. The purpose of this study was to explore the narratives of joy of social workers practicing in hospice and palliative care. Using an exploratory qualitative design, eight graduate level social workers were interviewed about their experiences …

Improving The Quality Of Spiritual Care As A Dimension Of Palliative Care: The Report Of The Consensus Conference, Christina Puchalski, Betty Ferrell, Rose Virani, Shirley Otis-Green, Pamela Baird, Janet Bull, Harvey Chochinov, George Handzo, Holly Nelson-Becker, Maryjo Prince-Paul, Karen Pugliese, Daniel Sulmasy

Holly Nelson-Becker

A Consensus Conference sponsored by the Archstone Foundation of Long Beach, California, was held February 17–18, 2009, in Pasadena, California. The Conference was based on the belief that spiritual care is a fundamental component of quality palliative care. This document and the conference recommendations it includes builds upon prior literature, the National Consensus Project Guidelines, and the National Quality Forum Preferred Practices and Conference proceedings.

Primary Care Provider Management Of Anxiety And Depression In Palliative Patients, Colette Zunk

Master of Social Work Clinical Research Papers

Anxiety and depression are common psychological experiences in patients who have advanced disease and are often unrecognized and undertreated. This study examined how primary care providers assess, identify and treat anxiety and depression in patients who have advanced disease, as well as to illustrate to what extent social work and mental health services are currently being utilized to address these psychological issues. Primary care providers at two rural clinics in Northern Wisconsin were invited to participate in this study, including Family Practice and Internal Medicine Physicians, Nurse Practitioners and Physician Assistants who provide primary care to patients, including patients who …

Improving The Quality Of Spiritual Care As A Dimension Of Palliative Care: The Report Of The Consensus Conference, Christina Puchalski, Betty Ferrell, Rose Virani, Shirley Otis-Green, Pamela Baird, Janet Bull, Harvey Chochinov, George Handzo, Holly Nelson-Becker, Maryjo Prince-Paul, Karen Pugliese, Daniel Sulmasy

Social Work: School of Social Work Faculty Publications and Other Works

A Consensus Conference sponsored by the Archstone Foundation of Long Beach, California, was held February 17–18, 2009, in Pasadena, California. The Conference was based on the belief that spiritual care is a fundamental component of quality palliative care. This document and the conference recommendations it includes builds upon prior literature, the National Consensus Project Guidelines, and the National Quality Forum Preferred Practices and Conference proceedings.