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Full-Text Articles in Psychology
Growth Of Condition-Related Knowledge Among Youth With Spina Bifida: Associations With Neurocognitive Functioning And Self-Management Skills, Olivia Emery Clark
Growth Of Condition-Related Knowledge Among Youth With Spina Bifida: Associations With Neurocognitive Functioning And Self-Management Skills, Olivia Emery Clark
Master's Theses
Spina bifida (SB) is a congenital birth defect that may involve physical, medical, and neuropsychological complications due to central nervous system malformation (Copp et al., 2015). Ambulation problems, bladder and bowel dysfunction, and hydrocephalus require daily medical management tasks, including catheterization, bowel program management, and skin checks to avoid secondary complications. While self-management skills are typically gained during adolescence, executive dysfunction in SB may complicate gains (Dennis et al., 2006; Greenley, 2010). Indeed, evidence in other chronic conditions suggests that adolescent executive dysfunction is linked to poorer medical self-management. Condition-related knowledge has been identified as an important basis of medical …
Trajectories Of Adaptive Functioning Among Youth With Spina Bifida: The Influence Of Neurocognitive Functioning And Parental Scaffolding, Adrien Winning
Trajectories Of Adaptive Functioning Among Youth With Spina Bifida: The Influence Of Neurocognitive Functioning And Parental Scaffolding, Adrien Winning
Master's Theses
Youth with spina bifida (SB), a congenital birth defect affecting the central nervous system, are at risk of experiencing an array of psychosocial and functional deficits (Copp et al., 2015; Holmbeck et al., 2003). Indeed, previous research has documented difficulties across the three adaptive functioning domains outlined by the American Association on Intellectual and Developmental Disabilities (AAIDD): conceptual (e.g., communication, self-direction, functional academics), social (e.g., interpersonal skills), and practical (e.g., self-care, navigating health-care; Copp et al., 2015). Despite this evidence, whether or not children with SB typically acquire skills across development is largely unknown. Additionally, little is known about risk …
Parenting-Related Stress, Parental Distress, And Youth Health-Related Quality Of Life In Families Of Youth With Spina Bifida: Parenting Behaviors As Mediators, Colleen F. Bechtel
Parenting-Related Stress, Parental Distress, And Youth Health-Related Quality Of Life In Families Of Youth With Spina Bifida: Parenting Behaviors As Mediators, Colleen F. Bechtel
Master's Theses
Research has shown that youth with spina bifida (SB) have poorer psychosocial outcomes, including health-related quality of life (HRQOL), compared to typically developing youth. Demographic and illness-severity factors that may affect HRQOL have been identified, but modifiable factors affecting HRQOL have not yet been identified in this population. Potential modifiable factors include parent factors. In fact, in other pediatric populations, parent factors have been found to impact HRQOL above and beyond illness-severity. This impact may be especially salient for youth with SB, as these youth are more socially isolated and depend on parents for both medical and non-medical caregiving needs. …
Latino Youth With Spina Bifida: Psychosocial Functioning, Family Functioning, And Acculturation, Jaclyn M. Lennon
Latino Youth With Spina Bifida: Psychosocial Functioning, Family Functioning, And Acculturation, Jaclyn M. Lennon
Master's Theses
Objective: Research on Latino youth with spina bifida (SB) is sparse. However, SB rates are highest in this ethnic group, and typically-developing (TD) Latino youth are at risk for poor psychosocial functioning. The aims of this study were to examine: (1) differences in psychosocial and family functioning between Latino and non-Latino Caucasian youth with SB; (2) family functioning as a predictor of youth psychosocial functioning as moderated by ethnicity; (3) the impact of acculturation on youth psychosocial and family functioning in Latino youth with SB. Methods: Participants were recruited as part of a larger, longitudinal study (Devine et al., 2012). …
Social-Environmental Predictors Of Health-Related Quality Of Life In Youth With Spina Bifida, Caitlin Beth Murray
Social-Environmental Predictors Of Health-Related Quality Of Life In Youth With Spina Bifida, Caitlin Beth Murray
Master's Theses
Health-related quality of life (HRQOL) is a multidimensional construct including an individual's physical and mental health and psychosocial well-being (De Civita et al., 2005), and the measurement of HRQOL has been recognized as a key marker of health outcomes in pediatric populations (Eiser & Jenney, 2007). Due to medical and technological advances, an increasing number of individuals with chronic illnesses are living longer. As such, research that investigates improvements in HRQOL in youth with chronic illnesses has become essential. Indeed, the number of studies examining HRQOL in pediatric populations has increased markedly; spina bifida (SB) is one among several chronic …
Do Family Dynamics Mediate The Relationshp Between Early Pubertal Development And Depression For Girls With And Without Spina Bifida?, Rachel Wasserman
Do Family Dynamics Mediate The Relationshp Between Early Pubertal Development And Depression For Girls With And Without Spina Bifida?, Rachel Wasserman
Master's Theses
Girls who experience premature puberty have higher levels of depressive symptoms than their peers (Rierdan & Koff, 1991; Hayward et al., 1997). However, girls with spina bifida (SB) experience different psychosocial changes during puberty. This study proposed two longitudinal, mediated moderation models to investigate whether family variables (i.e., parent-child conflict and emotional distancing) contributed to differences in the connection between early pubertal timing and depressive symptoms for girls with and without SB. 62 families (31 SB, 31typically developing) were recruited for a larger longitudinal study. Constructs were assessed subjectively and objectively with the use of questionnaire and observational data. Findings …