Psychology Commons^™

Growth Of Condition-Related Knowledge Among Youth With Spina Bifida: Associations With Neurocognitive Functioning And Self-Management Skills, Olivia Emery Clark

Master's Theses

Spina bifida (SB) is a congenital birth defect that may involve physical, medical, and neuropsychological complications due to central nervous system malformation (Copp et al., 2015). Ambulation problems, bladder and bowel dysfunction, and hydrocephalus require daily medical management tasks, including catheterization, bowel program management, and skin checks to avoid secondary complications. While self-management skills are typically gained during adolescence, executive dysfunction in SB may complicate gains (Dennis et al., 2006; Greenley, 2010). Indeed, evidence in other chronic conditions suggests that adolescent executive dysfunction is linked to poorer medical self-management. Condition-related knowledge has been identified as an important basis of medical …

Trajectories Of Adaptive Functioning Among Youth With Spina Bifida: The Influence Of Neurocognitive Functioning And Parental Scaffolding, Adrien Winning

Master's Theses

Youth with spina bifida (SB), a congenital birth defect affecting the central nervous system, are at risk of experiencing an array of psychosocial and functional deficits (Copp et al., 2015; Holmbeck et al., 2003). Indeed, previous research has documented difficulties across the three adaptive functioning domains outlined by the American Association on Intellectual and Developmental Disabilities (AAIDD): conceptual (e.g., communication, self-direction, functional academics), social (e.g., interpersonal skills), and practical (e.g., self-care, navigating health-care; Copp et al., 2015). Despite this evidence, whether or not children with SB typically acquire skills across development is largely unknown. Additionally, little is known about risk …

Condition Severity And Parent Psychosocial Functioning In Families Of Youth With Spina Bifida: The Role Of Parental Attitudes And Beliefs, Elicia Wartman

Master's Theses

Past research suggests that parents of youth with spina bifida (SB) have worse psychosocial outcomes than parents of typically developing youth. SB is a complex medical condition that is accompanied by varying degrees of physical disability and cognitive deficits. Research on stress and coping suggests that parents' attitudes and beliefs may contribute to their own psychosocial adjustment. This study unpacks condition severity and examines the role of severity of condition-related factors in predicting parental adjustment and parental attitudes and beliefs. Participants were recruited as part of a larger longitudinal study. Information on condition severity, including type of SB, lesion level, …

Depressive Symptoms, Neuropsychological Functioning, And Self-Management In Youth With Spina Bifida: Direct, Mediating, And Reciprocal Pathways, Alexa Stern

Master's Theses

Although successful self-management of health care responsibilities is critical to meeting the developmental demands associated with the transition to adulthood in youth with spina bifida (SB), research on individual factors impacting self-management in this population is sparse. Given the increased risk for cognitive deficits and development of depressive symptoms in this population, this study utilized a longitudinal, multi-method, multi-informant design to examine two pathways through which depressive symptoms and neuropsychological dysfunction may be associated with medical autonomy and adherence in youth with SB.

Bootstrapped mediation analyses revealed that teacher-reported depressive symptoms significantly mediated the respective relationships between attention and working …

Parenting-Related Stress, Parental Distress, And Youth Health-Related Quality Of Life In Families Of Youth With Spina Bifida: Parenting Behaviors As Mediators, Colleen F. Bechtel

Master's Theses

Research has shown that youth with spina bifida (SB) have poorer psychosocial outcomes, including health-related quality of life (HRQOL), compared to typically developing youth. Demographic and illness-severity factors that may affect HRQOL have been identified, but modifiable factors affecting HRQOL have not yet been identified in this population. Potential modifiable factors include parent factors. In fact, in other pediatric populations, parent factors have been found to impact HRQOL above and beyond illness-severity. This impact may be especially salient for youth with SB, as these youth are more socially isolated and depend on parents for both medical and non-medical caregiving needs. …

Latino Youth With Spina Bifida: Psychosocial Functioning, Family Functioning, And Acculturation, Jaclyn M. Lennon

Master's Theses

Objective: Research on Latino youth with spina bifida (SB) is sparse. However, SB rates are highest in this ethnic group, and typically-developing (TD) Latino youth are at risk for poor psychosocial functioning. The aims of this study were to examine: (1) differences in psychosocial and family functioning between Latino and non-Latino Caucasian youth with SB; (2) family functioning as a predictor of youth psychosocial functioning as moderated by ethnicity; (3) the impact of acculturation on youth psychosocial and family functioning in Latino youth with SB. Methods: Participants were recruited as part of a larger, longitudinal study (Devine et al., 2012). …

Social-Environmental Predictors Of Health-Related Quality Of Life In Youth With Spina Bifida, Caitlin Beth Murray

Master's Theses

Health-related quality of life (HRQOL) is a multidimensional construct including an individual's physical and mental health and psychosocial well-being (De Civita et al., 2005), and the measurement of HRQOL has been recognized as a key marker of health outcomes in pediatric populations (Eiser & Jenney, 2007). Due to medical and technological advances, an increasing number of individuals with chronic illnesses are living longer. As such, research that investigates improvements in HRQOL in youth with chronic illnesses has become essential. Indeed, the number of studies examining HRQOL in pediatric populations has increased markedly; spina bifida (SB) is one among several chronic …

Agreement And Disagreement In Parent And Child Perceptions Of Spina Bifida Medical Responsibilities During The Transition To Adolescence, Alexandra Psihogios

Master's Theses

The purpose of this study was to examine the validity of informant discrepancies by evaluating levels of parent-child agreement and disagreement over who takes responsibility for SB medical tasks in relation to family conflict and medical adherence. Participants were 140 preadolescents with SB. Data used in this study are taken from the first wave of data collection (when adolescents were between the ages of 8-15) in a larger longitudinal study. Although disagreement levels predicting family conflict and medical adherence were non-significant (p > .05), a significant main effect of agreement and two significant Agreement x Conflict interactions predicting medical adherence were …

Towards Observational Measurement Of Social Competence In Youth With Chronic Health Conditions: Development Of Peer Interaction Scales For Youth With Spina Bifida, Christina E. Holbein

Master's Theses

This study aimed to create observational scales that were then validated with comparisons to relevant self-report measures in a sample of 106 children with spina bifida and their peers. Dyads completed questionnaires, interviews, and videotaped interaction tasks, the latter of which were coded on a variety of social functioning items. Five scales (i.e., Conflict, Prosocial Skills, Positive Affect, Conflict, and Dyadic Cohesion) were rationally derived. Internal consistency and inter-rater reliability at the scale level were good-to-excellent. Interscale correlations were in the low-to-moderate range for four scales, although Dyadic Cohesion was highly correlated with two other scales and was dropped. Convergent …

Do Family Dynamics Mediate The Relationshp Between Early Pubertal Development And Depression For Girls With And Without Spina Bifida?, Rachel Wasserman

Master's Theses

Girls who experience premature puberty have higher levels of depressive symptoms than their peers (Rierdan & Koff, 1991; Hayward et al., 1997). However, girls with spina bifida (SB) experience different psychosocial changes during puberty. This study proposed two longitudinal, mediated moderation models to investigate whether family variables (i.e., parent-child conflict and emotional distancing) contributed to differences in the connection between early pubertal timing and depressive symptoms for girls with and without SB. 62 families (31 SB, 31typically developing) were recruited for a larger longitudinal study. Constructs were assessed subjectively and objectively with the use of questionnaire and observational data. Findings …