Immune System Diseases Commons^™

Celiac Is A Social Disease: Family Challenges And Strategies, Gonzalo Bacigalupe, Aleksandra Plocha

Gonzalo Bacigalupe, EdD, MPH

Celiac disease is the most common autoimmune inherited disorder in the United States, affecting approximately 1% of the population. Little research exists on the impact of family processes on adherence to a gluten-free diet (GFD), the only treatment for celiac disease. The objective of this qualitative study was to examine the barriers that families with a celiac child face and the strategies they use to adhere to the recommended diet. In-depth interviews were conducted with 10 families with a child between the ages of 6 and 12 diagnosed with celiac disease. Grounded theory and narrative analysis were used to analyze …