Speech Pathology and Audiology Commons^™

Transition Of Care For The Young Adult With Cleft Palate: Stuck Between Goodbye To The Pediatric Team And Hello To Adult-Centered Care, Linda Vallino, Brenda Louw

ETSU Faculty Works

Participants will be able to:

• Describe the characteristics and needs of young adults with CLP.
• Discuss the model of transition of care for the young adult with CLP.
• Extrapolate strategies that teams could use to improve the care of young adults with CLP.

A New Perspective On The Outcomes Of Children With Cleft Lip And Palate: Application Of The Icf-Cy, Brenda Louw

ETSU Faculty Works

Learner Outcomes:

• Acknowledge the application value of the ICF to individuals with CLP.
• Integrate the ICF framework into the assessment of individuals with CLP.
• Formulate intervention goals that go beyond speech production skills to include functional communication outcomes in a variety of life situations.
• Include improvement and changes in communication participation in everyday functioning in assessment and progress reports.

Assessment Of Single-Word Production For Children Under Three Years Of Age: Comparison Of Children With And Without Cleft Palate, Nancy J. Scherer, A. Lynn Williams, Carol Stoel-Gammon, Ann Kaiser

A. Lynn Williams

Background. This study reports comparative phonological assessment results for children with cleft lip and/or palate (CLP) to typically developing peers using an evaluation tool for early phonological skills. Methods. Children without clefts (NC = noncleft) and 24 children with CLP, ages of 18–36 months, were evaluated using the Profile of Early Expressive Phonological Skills (PEEPSs) [1]. Children interacted with toy manipulatives to elicit a representative sample of target English consonants and syllable structures that are typically acquired by children between 18 and 27 months of age. Results. Results revealed significant differences between the two groups with regard to measures of …

Transition Of Care For The Young Adult With Cleft Palate: Stuck Between Goodbye To The Pediatric Team And Hello To Adult-Centered Care, Linda Vallino, Brenda Louw

Brenda Louw

Participants will be able to:

• Describe the characteristics and needs of young adults with CLP.
• Discuss the model of transition of care for the young adult with CLP.
• Extrapolate strategies that teams could use to improve the care of young adults with CLP.

Young Adults With Cleft Lip And Palate: Are They Receiving Team Services?, Sarah Widy, Andrea Bisceglia, Emily Bradley, Sanjana Kumari Vyda Srinivasa Kumar, Andrea Mcdowell, Amanda Murr, Blake Nowicki, Elisha Reed, Alexandria Staples, Brenda Louw

Brenda Louw

It is widely acknowledged that a team approach is preferred practice and contributes to optimizing the surgical, dental, speech and psychosocial outcomes for individuals with CLP. Young adulthood often marks the transition from child-centered interdisciplinary care to adult-centered care. There is a paucity in literature relating to the transition of care for young adults with CLP. The purpose of this survey research is therefore to explore the CLP team practices regarding young adults with CLP.

Transition Of Care For Young Adults With Cleft Lip And Palate: We’Ve Got Some Growing Up To Do, Brenda Louw, Linda Vallino

Brenda Louw

Participants will be able to:

• Describe the characteristics and needs of young adults with CLP.
• Discuss the model of transition of care for the young adult with CLP.
• Extrapolate strategies that teams could use to improve the care of young adults with CLP.

Full abstract available through The Cleft Palate-Craniofacial Journal.

See, I’Ve Grown: A Service Delivery Model For Young Adults With Cleft/Lip Palate, Brenda Louw, Linda Vallino

Brenda Louw

We compare the health needs between children and young adults with CL/P. Patient-reported experiences about the impact of a cleft are described. A service delivery model integrating quality of life into the ICF framework is presented. Lastly, transition of care for the young adult with CL/P is highlighted.

Parental Perspective: Toddlers With Clefts Using Touch Screen Technology, Cortney Vineyard, Alexandra Coup, Chelsey Hazelett, Rachel Janes, Brenda Louw

Brenda Louw

This investigation assessed the parental perspectives of parents of toddlers with cleft lip and palate and their use of touchscreen technology. Findings will highlight parental perspectives on touchscreen technology in early intervention with their toddler.

Island Voices: Experiences Of Living With Cleft Lip And Or Palate., Rachna Gopal, Brenda Louw

Brenda Louw

To date there is a lack of information on how young adults in Mauritius, a representation of the majority contexts, experience living with CLP. The aim of this study is to give a voice to young Mauritian adults with CLP; in describing their treatment journey and satisfaction with cleft care.

A New Perspective On The Outcomes Of Children With Cleft Lip And Palate: Application Of The Icf-Cy, Brenda Louw

Brenda Louw

Learner Outcomes:

• Acknowledge the application value of the ICF to individuals with CLP.
• Integrate the ICF framework into the assessment of individuals with CLP.
• Formulate intervention goals that go beyond speech production skills to include functional communication outcomes in a variety of life situations.
• Include improvement and changes in communication participation in everyday functioning in assessment and progress reports.

Adults With Cleft Lip And Palate And Hearing Loss, Rachna Gopal, Brenda Louw

Brenda Louw

Framework and Research Question:

• The International Classification of Functioning, Disability and Health (ICF) developed by the World Health Organization (WHO 2001) is a framework to address functioning and disability related to a health condition within the context of the individual’s activities and participation in everyday life.
• Therefore, in addition to the audiologic test battery the individual’s perception of hearing status and its impact on communication should be considered.
• The aim of this study is to describe the hearing status of Mauritian adultslivingwith CL/P and their perceptions of the role of hearing in their lives

Academic Preparation In Cleft Palate For Speech-Language Pathologists: Is The Icf-Cy (Who, 2007) Alive And Well?, Mary B. Graham, Jackie Palmer, Brenda Louw

Brenda Louw

The purpose of this project is to determine inclusion of the ICF-CY in CLP training curricula for SLPs. Survey research was conducted with course instructors across the nation. Results describe the application of the ICF-CY in CLP courses at the graduate level. Recommendations for including the ICF-CY framework are made.

A Proposed Holistic Model Of Assessment For Children With Cleft Palate Within The Icf-Cy Framework, Rabia Foreman, Jamesa Ewing, Olivia Hawley, Mariana De Cassia Macedo, Naiara Rodrigues Carlota Do Nascimento, Brenda Louw, Luciana Maximino

Brenda Louw

The purpose of this project is to describe a proposed model for the assessment of children with cleft palate within the framework of the ICF-CY (WHO, 2007). Suggestions for clinical application and cleft palate curricula are made, and future research needs are identified.

Transition Of Care For Young Adults With Cleft Lip And Palate: We’Ve Got Some Growing Up To Do, Brenda Louw, Linda Vallino

ETSU Faculty Works

Participants will be able to:

• Describe the characteristics and needs of young adults with CLP.
• Discuss the model of transition of care for the young adult with CLP.
• Extrapolate strategies that teams could use to improve the care of young adults with CLP.

Full abstract available through The Cleft Palate-Craniofacial Journal.